Hi everyone, I'm glad you both found this group. It's been helpful to me (as well as a couple of other yahoo support groups). Other parents are the real...
Hi Jovi, Regarding GBS, I also was positive for my first pregnancy, and my doctor had me on antibiotics when labor began. I believe that's the standard...
How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
Jul 1, 2006 2:44 pm
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A few things to remember.... -No advertisements allowed. Please refrain from advertising your business. -When relying to a post please remember to remove the...
cerebralpalsy@yahoogr...
Jul 1, 2006 2:44 pm
1327
Well, alot has happened over these past few months. its been one week since matt had his surgery to implant the vns system. its a vagus nerve stimulator that...
Hi Betsy, I am so happy that the surgery Matt had has reduced his seizure. Your kids are both beautiful and Sophia is such a cute name. It sounds like you are...
well thanks for thinking i'm doing a great job, but frankly, there are lots of days where we are just plain lazy!! now i may be naive, but doesn't the local...
Hi Jovi and Katy and everybody!, I think I spoke a little about my history with my son and GBS. But I will talk again about it because it seems that there are...
It is frustrating to wait Staci. I live in Houston, where the Texas Children's Medical Center is. There is a wait to see his specialist every year. Right now,...
I agree......I do feel like the medical field let me down in some way. The night Kai was born, the nurses told me I had a slight fever, and they did give me...
I hate when I feel like the Doctors don't really care. It seems like if it was there child they would have already found him a place to go for PT. We have been...
I hear you girl....believe me I do, and I'm right there with you on the frustration part! Chin up.....! ... if it was there child they would have already found...
we have also been persueing the legal issue. you can look up the cases on the docket on line and my ob has 5 cases pending against him and his practice. a...
Hi everyone, It feels so nice to know that I am not alone in my thoughts when it comes to my son. I too feel as though the medical world has failed us and...
Staci, Did the Scottish Rite send you paper work yet or give you an appointment. I think we only waited a few months for our clinic visits and the main reason...
Hi Everybody, I have also tried getting our case looked at by two different lawyers they had reasons they couldn't help us like the didn't do overseas cases. I...
Thanks Jovi, I feel better that someone knows how I feel. When we visit family out of state and they ask if he is getting therapy and I say no that we are...
Hi Carleen, We mailed the paper work into the scottish rite this past monday. So we probably have a few months to go yet to get in there? I should make sure he...
Just to extend this thought to all of you here. We are all in the same boat, though a few details might affect our circumstances somewhat. But, Staci, I'm very...
Staci, Let me know if you need anything. I'll pop into family services while I'm there to see if there is anyway to speed up getting services. I have to stop...
hi, i looked up the clerk of courts for our county. we are in the cleveland area so its a big city courts system and a really good online site. i just...
Hi Carleen, It would be cool if you could say something to them and see what they say. He hasn't had and ortho appointment in over a year. Thats what I am...
Hi Jovi, Thanks for the nice words. Your experience at your Therapy Clinic reminded me of mine when Hunter was first diagnosed. My son was getting therapy at a...
Staci, I'm the other mom from Okinawa ~ long time, no chat. Thought I'd jump in here since your son was born at the same hospital as our disaster. We cannot...
HI Lindsey, I remembered you and but for some reason I was afraid to say your name because I felt like I was talking behind your back or something. It was...
I totally understand! I was actually offline for about a week and just weeded through messages, so I'm glad I was back this week to catch up on the GBS...
Staci, Hey we all have to look out for each other, no one else truly understands what we go through to get these appointments. For years I have taken crap from...
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