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oral baclofin   Message List  
Reply | Forward Message #2340 of 2351 |
Re: [cerebralpalsy] Re: oral baclofin

That's a hard one to answer.  Matt is 5.  He had a vagus nerve stimulator implanted just after 2 years old.  He has complex partial seizures.  Up until the vns, he had hundreds of episodes a day and was on several meds.  the meds always seemed to make things worse.  any kind of pain made seizures worse.  so, now he is on a small amount of meds, a bit of baclofen and the vns.  He is a much happier kid.   you can see him on youtube at
http://www.youtube.com/user/smopajak4
 
betsy


From: temp_mom <temp_mom@...>
To: cerebralpalsy@yahoogroups.com
Sent: Thursday, June 11, 2009 9:51:51 AM
Subject: [cerebralpalsy] Re: oral baclofin

good morning thanks for your post. how severe is matts cp. i am concerened about the bacolfin because moriah also has seizures and that is one of the side effects,ant the effect on her liver
she is already on 1850 mgs of seizure meds.i don't know if it could be depramental to her .you know what i mean
--- In cerebralpalsy@ yahoogroups. com, betsy pajak <pajak4@...> wrote:
>
> Matt is 5 and he is on 10mg 3 times a day.  It is a muscle relaxent so he was sleepy for the first week, but it all evens out.  I think it helps keep his tightness from being painful.
>
> betsy
>
>
>
> ____________ _________ _________ __
> From: temp_mom <temp_mom@.. .>
> To: cerebralpalsy@ yahoogroups. com
> Sent: Tuesday, June 9, 2009 10:42:09 PM
> Subject: [cerebralpalsy] oral baclofin
>
>
>
>
>
> forgive the spelling but have any of you used oral baclofin ? what were the results?where there any side effects to watch for?/
>




Fri Jun 12, 2009 12:29 pm

pajak4
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Message #2340 of 2351 |
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forgive the spelling but have any of you used oral baclofin ? what were the results?where there any side effects to watch for?/...
temp_mom
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Jun 10, 2009
2:42 am

Krys is now 19-of all the meds we have tried for various reasons with her disabilities, oral baclofin was the one that was a "no go" from the first day or two....
miriam weir
mweir2
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Jun 10, 2009
2:58 am

Hi there. I have a 3 year old son diagnosed with spastic quad CP and Dysphagia (swallowing issues). As soon as we started him on the oral baclofen, within a...
MARY PHILLIPS
p_l_u_m_d_u_m_b
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Jun 10, 2009
6:03 am

hi my daughter is 4 and has mild cp only in her legs, she is high funtioning,she walks and runs granted her gait is a little odd but she keeps up with her 6...
Sandra Sanchez
temp_mom
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Jun 10, 2009
1:53 pm

Matt is 5 and he is on 10mg 3 times a day.  It is a muscle relaxent so he was sleepy for the first week, but it all evens out.  I think it helps keep his...
betsy pajak
pajak4
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Jun 10, 2009
10:25 am

good morning thanks for your post. how severe is matts cp. i am concerened about the bacolfin because moriah also has seizures and that is one of the side...
temp_mom
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Jun 11, 2009
1:52 pm

That's a hard one to answer.  Matt is 5.  He had a vagus nerve stimulator implanted just after 2 years old.  He has complex partial seizures.  Up until the...
betsy pajak
pajak4
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Jun 12, 2009
12:29 pm

Hi Everyone. I had a quick question. What exactly does a seizure look like? My 1 yo son does not have a history of seizures but as he was sleeping the other...
Colin Kong
ckonger74
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Jun 12, 2009
12:51 pm

my daughter has seizures and is sounds like he might have been dreaming but I would let your nero dr know ________________________________ From: Colin Kong...
Sandra Sanchez
temp_mom
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Jun 12, 2009
5:10 pm

Hi there - Katie has taken baclofen by her g-tube. I found . that at first it did make her very sleepy, even a tiny dose. Now, that seems to have evened out,...
Stacy
goflymykite
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Jun 10, 2009
1:00 pm

I wanted to comment to tell you that we are blessed with a son Luke that has Quad Cp . He is only four and we have been following his hip development with an...
Bruce & Ronda Buckley
rondabuckley
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Jun 10, 2009
2:12 pm
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