Hi there - Katie has taken baclofen by her g-tube. I found . that at first it did make her very sleepy, even a tiny dose. Now, that seems to have evened out, but it also made her quite fussy, and I have wondered if it upsets her tummy. (she has a pretty sensitive tummy). So, she has one teeny dose of 2 mg a day, and we use clonazepam primarily for her tone. This usually makes her sleepy briefly, then she's good to go. ALthough, when we first started that, she was very sleepy for a week or two, as well... Stacy
--- On Tue, 6/9/09, temp_mom <temp_mom@...> wrote:
From: temp_mom <temp_mom@...> Subject: [cerebralpalsy] oral baclofin To: cerebralpalsy@yahoogroups.com Date: Tuesday, June 9, 2009, 9:42
PM
forgive the spelling but have any of you used oral baclofin ? what were the results?where there any side effects to watch for?/
Krys is now 19-of all the meds we have tried for various reasons with her disabilities, oral baclofin was the one that was a "no go" from the first day or two....
Hi there. I have a 3 year old son diagnosed with spastic quad CP and Dysphagia (swallowing issues). As soon as we started him on the oral baclofen, within a...
hi my daughter is 4 and has mild cp only in her legs, she is high funtioning,she walks and runs granted her gait is a little odd but she keeps up with her 6...
Matt is 5 and he is on 10mg 3 times a day. It is a muscle relaxent so he was sleepy for the first week, but it all evens out. I think it helps keep his...
good morning thanks for your post. how severe is matts cp. i am concerened about the bacolfin because moriah also has seizures and that is one of the side...
That's a hard one to answer. Matt is 5. He had a vagus nerve stimulator implanted just after 2 years old. He has complex partial seizures. Up until the...
Hi Everyone. I had a quick question. What exactly does a seizure look like? My 1 yo son does not have a history of seizures but as he was sleeping the other...
my daughter has seizures and is sounds like he might have been dreaming but I would let your nero dr know ________________________________ From: Colin Kong...
Hi there - Katie has taken baclofen by her g-tube. I found . that at first it did make her very sleepy, even a tiny dose. Now, that seems to have evened out,...
I wanted to comment to tell you that we are blessed with a son Luke that has Quad Cp . He is only four and we have been following his hip development with an...
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