cerebralpalsy : Message: Re: [cerebralpalsy] oral baclofin

Hi there. I have a 3 year old son diagnosed with spastic quad CP and Dysphagia (swallowing issues). As soon as we started him on the oral baclofen, within a couple of days, he started having even more trouble than usual swallowing his food and actually aspirated on his apple juice. He also had a very strong AT &R reflex that surfaced and even after taking him off it, the characteristics of the athetosis are still there and are not masked by his spasticity anymore. His arms and head turn sideways and he gets stuck there. He has been off the medicine now for 6-8 months. It was not the right choice for my son! Hope that this helps some. Take care and good luck!! Maria

--- On Tue, 6/9/09, temp_mom <temp_mom@...> wrote:

From: temp_mom <temp_mom@...>
Subject: [cerebralpalsy] oral baclofin
To: cerebralpalsy@yahoogroups.com
Date: Tuesday, June 9, 2009, 7:42 PM

forgive the spelling but have any of you used oral baclofin ? what were the results?where there any side effects to watch for?/

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forgive the spelling but have any of you used oral baclofin ? what were the results?where there any side effects to watch for?/...

temp_mom

Jun 10, 2009
2:42 am

Krys is now 19-of all the meds we have tried for various reasons with her disabilities, oral baclofin was the one that was a "no go" from the first day or two....

miriam weir
mweir2

Jun 10, 2009
2:58 am

Hi there. I have a 3 year old son diagnosed with spastic quad CP and Dysphagia (swallowing issues). As soon as we started him on the oral baclofen, within a...

MARY PHILLIPS
p_l_u_m_d_u_m_b

Jun 10, 2009
6:03 am

hi my daughter is 4 and has mild cp only in her legs, she is high funtioning,she walks and runs granted her gait is a little odd but she keeps up with her 6...

Sandra Sanchez
temp_mom

Jun 10, 2009
1:53 pm

Matt is 5 and he is on 10mg 3 times a day. It is a muscle relaxent so he was sleepy for the first week, but it all evens out. I think it helps keep his...

betsy pajak
pajak4

Jun 10, 2009
10:25 am

good morning thanks for your post. how severe is matts cp. i am concerened about the bacolfin because moriah also has seizures and that is one of the side...

temp_mom

Jun 11, 2009
1:52 pm

That's a hard one to answer. Matt is 5. He had a vagus nerve stimulator implanted just after 2 years old. He has complex partial seizures. Up until the...

betsy pajak
pajak4

Jun 12, 2009
12:29 pm

Hi Everyone. I had a quick question. What exactly does a seizure look like? My 1 yo son does not have a history of seizures but as he was sleeping the other...

Colin Kong
ckonger74

Jun 12, 2009
12:51 pm

my daughter has seizures and is sounds like he might have been dreaming but I would let your nero dr know ________________________________ From: Colin Kong...

Sandra Sanchez
temp_mom

Jun 12, 2009
5:10 pm

Hi there - Katie has taken baclofen by her g-tube. I found . that at first it did make her very sleepy, even a tiny dose. Now, that seems to have evened out,...

Stacy
goflymykite

Jun 10, 2009
1:00 pm

I wanted to comment to tell you that we are blessed with a son Luke that has Quad Cp . He is only four and we have been following his hip development with an...

Bruce & Ronda Buckley
rondabuckley

Jun 10, 2009
2:12 pm

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