LOL...I have no idea how I just put this response on the CP
group...lol....it has nothing to do with anything at least not on this
group....I was supposed to be replying to an email...lol

Castle

"Castle" <castletowery@...> wrote:
>
> Maybe it was Yogi Berra he is always saying odd things...like it anit
> over til its over....or cash which is just as good as
> money...lol...and a million others...
>
>
> , "Castle" <castletowery@> wrote:
> >
> > Yes!! Where are you located?? Cuz there are intensive therapy
> > programs that can offer awesome results and are not inpatient
> > programs. If you cannot find one close enough to you you may be able
> > to travel to one with your family...I know that probalby sounds
> > impossible...but there may be a Ronald McDonald house near an
> > intensive therapy program .....Intensive therapy is usually a 5 day a
> > week for 3 week thing.
> > SO a Ronald McDonald type place could be an affordable option that
> > would keep your family together...there are also grants an you can
> > find to help pay for travel and hotel/RM house stay and intensive
> > therapy (sometimes insurance will pay sometimes not)
> >
> > Where are you located maybe someone on the group knows of an intensive
> > program near you?
> >
> > Castle
> >
> > "Aisha Lusk" <Aisha.Lusk@> wrote:
> > >
> > > Have you looked to see if anyone is offering a summer intensive
> therapy
> > > program that is near your home?
> > >
> > > Also, I would ask the Physiatrist to recommend another option that
> would
> > > offer the same or similar results, explaining you are not able to
> do the
> > > rehab hospital.
> > >
> > > ________________________________
> > >
> > > From: cerebralpalsy@yahoogroups.com
> > > [mailto:cerebralpalsy@yahoogroups.com] On Behalf Of Angela
Golembeski
> > > Sent: Thursday, December 11, 2008 12:32 PM
> > > To: cerebralpalsy@yahoogroups.com
> > > Subject: RE: [cerebralpalsy] What else can I do? long
> > >
> > >
> > >
> > > He says if Topher does't start walking now he will not be able to
> build
> > > the muscle needed to walk later.
> > >
> > > --- On Wed, 12/10/08, Aisha Lusk <Aisha.Lusk@> wrote:
> > >
> > >
> > > From: Aisha Lusk <Aisha.Lusk@>
> > > Subject: RE: [cerebralpalsy] What else can I do? long
> > > To: cerebralpalsy@yahoogroups.com
> > > Date: Wednesday, December 10, 2008, 11:05 AM
> > >
> > >
> > > Did the doctor say why he wanted to admit him to a rehab
> > > hospital?
> > >
> > > ________________________________
> > >
> > > From: cerebralpalsy@ yahoogroups. com [mailto:cerebralpal
> > > sy@yahoogroups. com] On Behalf Of Angela Golembeski
> > > Sent: Tuesday, December 09, 2008 2:03 PM
> > > To: cerebralpalsy@ yahoogroups. com
> > > Subject: [cerebralpalsy] What else can I do? long
> > >
> > >
> > > I took the three little ones to see our Physiatrist today. The
> > > baby
> > > and our 7 year old are doing really well and there are no
> > > changes. Our
> > > 5 year old, Topher is not doing so well. The physiatrist would
> > > like us
> > > to have him admitted to a rehab hospital for intensive PT for
> > > 2-3
> > > weeks. The closest one is almost 4 hours away and Topher can not
> > > be
> > > away from me. I would have to stay with him. That would leave my
> > >
> > > other 4 children (2 with significant medical needs) and my
> > > husband
> > > (with a vascular brain tumor and memory problems) home alone. IT
> > > WOULD
> > > BE IMPOSSIBLE. Topher has PT at school 3 times per week and now
> > > at our
> > > local hospital 2 times per week. We work every evening with him
> > > in his
> > > stander and with the walker. We stretch him at least 5 times per
> > > day.
> > > I feel like he would not handle anything more at home. So, what
> > > do I
> > > do? The hospitalization is clearly not an option. Has anyone had
> > > any
> > > luck with getting PT in there home? My other issue is that
> > > Topher does
> > > not walk at all and can only stand with full leg braces and
> > > assistance. He is not motivated to walk. He seems perfectly
> > > happy to
> > > crawl or use his wheelchair to get around. Part of me feels like
> > > "hey,
> > > this kid isn't even supposed to be alive, isn't this good
> > > enough?".
> > > But another part of me wonders if we don't push him now will he
> > > regret
> > > it in the future? Help.
> > >
> > >
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