Maybe it was Yogi Berra he is always saying odd things...like it anit
over til its over....or cash which is just as good as
money...lol...and a million others...


, "Castle" <castletowery@...> wrote:
>
> Yes!! Where are you located?? Cuz there are intensive therapy
> programs that can offer awesome results and are not inpatient
> programs. If you cannot find one close enough to you you may be able
> to travel to one with your family...I know that probalby sounds
> impossible...but there may be a Ronald McDonald house near an
> intensive therapy program .....Intensive therapy is usually a 5 day a
> week for 3 week thing.
> SO a Ronald McDonald type place could be an affordable option that
> would keep your family together...there are also grants an you can
> find to help pay for travel and hotel/RM house stay and intensive
> therapy (sometimes insurance will pay sometimes not)
>
> Where are you located maybe someone on the group knows of an intensive
> program near you?
>
> Castle
>
> "Aisha Lusk" <Aisha.Lusk@> wrote:
> >
> > Have you looked to see if anyone is offering a summer intensive
therapy
> > program that is near your home?
> >
> > Also, I would ask the Physiatrist to recommend another option that
would
> > offer the same or similar results, explaining you are not able to
do the
> > rehab hospital.
> >
> > ________________________________
> >
> > From: cerebralpalsy@yahoogroups.com
> > [mailto:cerebralpalsy@yahoogroups.com] On Behalf Of Angela Golembeski
> > Sent: Thursday, December 11, 2008 12:32 PM
> > To: cerebralpalsy@yahoogroups.com
> > Subject: RE: [cerebralpalsy] What else can I do? long
> >
> >
> >
> > He says if Topher does't start walking now he will not be able to
build
> > the muscle needed to walk later.
> >
> > --- On Wed, 12/10/08, Aisha Lusk <Aisha.Lusk@> wrote:
> >
> >
> > From: Aisha Lusk <Aisha.Lusk@>
> > Subject: RE: [cerebralpalsy] What else can I do? long
> > To: cerebralpalsy@yahoogroups.com
> > Date: Wednesday, December 10, 2008, 11:05 AM
> >
> >
> > Did the doctor say why he wanted to admit him to a rehab
> > hospital?
> >
> > ________________________________
> >
> > From: cerebralpalsy@ yahoogroups. com [mailto:cerebralpal
> > sy@yahoogroups. com] On Behalf Of Angela Golembeski
> > Sent: Tuesday, December 09, 2008 2:03 PM
> > To: cerebralpalsy@ yahoogroups. com
> > Subject: [cerebralpalsy] What else can I do? long
> >
> >
> > I took the three little ones to see our Physiatrist today. The
> > baby
> > and our 7 year old are doing really well and there are no
> > changes. Our
> > 5 year old, Topher is not doing so well. The physiatrist would
> > like us
> > to have him admitted to a rehab hospital for intensive PT for
> > 2-3
> > weeks. The closest one is almost 4 hours away and Topher can not
> > be
> > away from me. I would have to stay with him. That would leave my
> >
> > other 4 children (2 with significant medical needs) and my
> > husband
> > (with a vascular brain tumor and memory problems) home alone. IT
> > WOULD
> > BE IMPOSSIBLE. Topher has PT at school 3 times per week and now
> > at our
> > local hospital 2 times per week. We work every evening with him
> > in his
> > stander and with the walker. We stretch him at least 5 times per
> > day.
> > I feel like he would not handle anything more at home. So, what
> > do I
> > do? The hospitalization is clearly not an option. Has anyone had
> > any
> > luck with getting PT in there home? My other issue is that
> > Topher does
> > not walk at all and can only stand with full leg braces and
> > assistance. He is not motivated to walk. He seems perfectly
> > happy to
> > crawl or use his wheelchair to get around. Part of me feels like
> > "hey,
> > this kid isn't even supposed to be alive, isn't this good
> > enough?".
> > But another part of me wonders if we don't push him now will he
> > regret
> > it in the future? Help.
> >
> >
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