Yes!! Where are you located?? Cuz there are intensive therapy
programs that can offer awesome results and are not inpatient
programs. If you cannot find one close enough to you you may be able
to travel to one with your family...I know that probalby sounds
impossible...but there may be a Ronald McDonald house near an
intensive therapy program .....Intensive therapy is usually a 5 day a
week for 3 week thing.
SO a Ronald McDonald type place could be an affordable option that
would keep your family together...there are also grants an you can
find to help pay for travel and hotel/RM house stay and intensive
therapy (sometimes insurance will pay sometimes not)

Where are you located maybe someone on the group knows of an intensive
program near you?

Castle

"Aisha Lusk" <Aisha.Lusk@...> wrote:
>
> Have you looked to see if anyone is offering a summer intensive therapy
> program that is near your home?
>
> Also, I would ask the Physiatrist to recommend another option that would
> offer the same or similar results, explaining you are not able to do the
> rehab hospital.
>
> ________________________________
>
> From: cerebralpalsy@yahoogroups.com
> [mailto:cerebralpalsy@yahoogroups.com] On Behalf Of Angela Golembeski
> Sent: Thursday, December 11, 2008 12:32 PM
> To: cerebralpalsy@yahoogroups.com
> Subject: RE: [cerebralpalsy] What else can I do? long
>
>
>
> He says if Topher does't start walking now he will not be able to build
> the muscle needed to walk later.
>
> --- On Wed, 12/10/08, Aisha Lusk <Aisha.Lusk@...> wrote:
>
>
> From: Aisha Lusk <Aisha.Lusk@...>
> Subject: RE: [cerebralpalsy] What else can I do? long
> To: cerebralpalsy@yahoogroups.com
> Date: Wednesday, December 10, 2008, 11:05 AM
>
>
> Did the doctor say why he wanted to admit him to a rehab
> hospital?
>
> ________________________________
>
> From: cerebralpalsy@ yahoogroups. com [mailto:cerebralpal
> sy@yahoogroups. com] On Behalf Of Angela Golembeski
> Sent: Tuesday, December 09, 2008 2:03 PM
> To: cerebralpalsy@ yahoogroups. com
> Subject: [cerebralpalsy] What else can I do? long
>
>
> I took the three little ones to see our Physiatrist today. The
> baby
> and our 7 year old are doing really well and there are no
> changes. Our
> 5 year old, Topher is not doing so well. The physiatrist would
> like us
> to have him admitted to a rehab hospital for intensive PT for
> 2-3
> weeks. The closest one is almost 4 hours away and Topher can not
> be
> away from me. I would have to stay with him. That would leave my
>
> other 4 children (2 with significant medical needs) and my
> husband
> (with a vascular brain tumor and memory problems) home alone. IT
> WOULD
> BE IMPOSSIBLE. Topher has PT at school 3 times per week and now
> at our
> local hospital 2 times per week. We work every evening with him
> in his
> stander and with the walker. We stretch him at least 5 times per
> day.
> I feel like he would not handle anything more at home. So, what
> do I
> do? The hospitalization is clearly not an option. Has anyone had
> any
> luck with getting PT in there home? My other issue is that
> Topher does
> not walk at all and can only stand with full leg braces and
> assistance. He is not motivated to walk. He seems perfectly
> happy to
> crawl or use his wheelchair to get around. Part of me feels like
> "hey,
> this kid isn't even supposed to be alive, isn't this good
> enough?".
> But another part of me wonders if we don't push him now will he
> regret
> it in the future? Help.
>
>
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