Hi, my son Zak is 3 years old and due to a very traumatic birth he has
cerebral palsy and a brachial plexus injury~ but he's the cutest,
sweetest little boy :)
I follow the yahoo groups closely but don't always have a chance to
type ( I have a 22 month old who likes to "help" and I'm busy with
Zak... you know how it is). We'll I think the professionals have
decided Zak has Athetoid and/or mixed CP and I know every person is
different but I was looking to relate to someone about something :)
Zak has flexuating tone, sometimes he stiffens up and other times he
has trouble supporting himself, he uses a (kaye reverse) walker and
AFOs and does pretty well, most of his walking issues seem to be
balance and stamina issues. He points his toes hard and AFO's barely
correct it when he's excited, but he doesn't have much spastisity~ i
don't think. Zak can sit in a long sit and pivit and/or scootch
around, sometimes, but other times he rockets out of it (like he's
falling or extremely uncomfortable). Zak really didn't have any
balance reflexes until recently and now they seem to be minimal and
more learned. Zak uses sign language to communicate, but does have a
few "m" and "b" sounds and we just weaned him off 100% tube feedings
less than a year ago~ eating is still a bit of a work out for him. Zak
is smart, but over 50% delayed in all physical areas, and his left arm
has a brachial plexus injury and is partially paraylized and the
muscles are tight.
Ok i'm done rambling... can anyone relate to Zak? I do better when I
understand things and can relate to other situations.
thanks
Sarah