Hi. We are Jason and Sally Beck. We moved to Colorado about 9
months ago from Omaha, Nebraska. We have three children: Dylan
age almost 15, Lauren 6 athetoid cp, and Sage age 1. We homeschool
all of our children. Lauren just recently received the formal
diagnosis of cp. She had been to a cp clinic several visits when
she was about 3, and they said they couldn't give her a diagnosis.
A few months ago when we decided to start HBO treatments, the doctor
asked for a diagnosis. I contacted the cp clinic, they looked over
the records and sent me a letter with the diagnosis. Lauren is very
bright. She talks, but sometimes people who don't know her can't
understand everything she says. She sight reads about 50 words, she
does adding and subtracting and loves story problems. She also
loves art! She is unable to hold her head up very well. She can
roll and has been army crawling for about the last year, but cannot
sit, crawl, or walk. She has poor fine motor skills.
As for therapies we've tried. We have always been non invasive and
non medication for Lauren. We've used school based and hospital
based PT, OT, ST, and swim therapy. We currently use hippotherapy,
chiropractic, homeopathy when needed, NACD(we've been with them for
about 2 years now and love it, Lauren has been showing slow but
steady improvement in the 2 years), and HBO (we just finished
session number 9). We've had several people say this weekend they
could understand her speech better, and we've seen a little better
neck control. So, we are hoping HBO will keep helping with the
improvements.
We like to share our experiences and love to hear other's stories.
Hi Isha, My daughter Rachel has Medicaid as a secondary insurance. All I did was get a prescription from the doctor stating Brand and diaper size and stating 1...
Joanna, How did you get Medicaid as a secondary insurance? I have a hard time keeping it as an insurance. We have to rob Peter to pay Paul to qualify, and...
My husband has always had insurance through his job. Our insurance so far has never lapsed so I never had the problem with Rachel's condition being considered...
I have filed for I think it is a class 1 status (a disabled child can be considered a single house hold) there is a 8 year waiting list here for that. I...
... hey guys i'm here in va. and 2 of my kids who get ssi 1 dx. w/ pvl also get the medicaid insurance b/c they qualify for the ssi in the 1st place,of course...
In Texas there are some programs that go only on the recipients(the child) income...but of course all of those programs have waiting lists...but it is worth...
Castle Do you know the names of the programs? Castle <castletowery@...> wrote: In Texas there are some programs that go only on the recipients(the child)...
Medically Dependent Children Program(MDCP) and Community Living Assistance and Support Services (CLASS) you can call to get on the waiting list for both of...
There is also medicaid program called either a class waiver or class 1 waiver. It makes it so your child is considered a family of 1. A few years ago there...
thank you castle. Where do I go to find out about this program. maybe abigail will qualify then. the waiting list is long but it is well worth it. Tina...
The department of Human services has a handbook with all the services in it...it is called A Resourse Guide for Families with Children who have special needs....
Thats the one I was told about! On Aug 3, 2005, at 2:16 PM, Castle wrote: also check into this program....I am not sure about the income requirements... ...
thank your carleen. where can i go and apply for abigail. tina(abigail 8yrs cp) Carleen Briney <mooque2@...> wrote: There is also medicaid program called...
Tina, Check this state site out. My friend got information form the State health department. The site i had doesn't work I'll check with the girl at work...
In SC, there is TEFRA or Katie Becket (sp) Medicaid where the only look at the child's assets. This is available to children who are disabled, but there are...
Hi Isha, I'm sorry to hear you had a bad IEP. There is a book called either understanding your child's IEP or writing your child's IEP. I think there are...
That's exactly what we do. Michael is on Medicaid here in Alaska and all I had to do was have his pediatrician to write a prescription for diapers, wipes, and...
Here in Alaska they have a program called TEFRA which is Medicaid for the disabled. We also have private insurance too through my husbands work. Basically this...
Name: Stacy Seigfred City, State, Country: Sioux Falls SD USA Child's name: Katie Child's age: 4 Child's diagnosis: agenesis of the corpus callosum and septum...
Welcome Stacy! My son Ethan is 3 and has CP and a thin corpus callosum. Ethan has high tone in his upper legs but is weak (some say hypotonic) in his upper...
Name: Callum City, State, Country: Greater London, London, UK Child's name: Scout (my granddaughter, but I have legally adopted and taken custody of her). ...
Hi. We are Jason and Sally Beck. We moved to Colorado about 9 months ago from Omaha, Nebraska. We have three children: Dylan age almost 15, Lauren 6...
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