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I don't remember the degree but she was tight and really turned. Because she was always in a walker or crutches they suggested putting the surgery off as long as possible. Last Summer she was so tight she was pretty much in a wheelchair all the time. Outside of the fact getting a chair allowed her to play basketball she had radical mood swings and rage and meltdowns. In hind sight we believe this was caused from the chair (or being in it). We did several rounds of botox and leg immobilizers. we started out alternating legs but I decided to both legs 4 nights because of sleep issues. She still toe walks slightly but not as much as she did (we decided not to do the heel cords the doctor was afraid she'd get too loose. Her gait is almost normal. She slept ok but what I did she wouldn't take any pain meds said she didn't need them so I snuck on in with her bed time meds so she would be comfortable. She also had muscle relaxers at bed time.
The time line went something like this
7 days in hospital post surgery recovery and rehab time- she was discharged on day 4 (she came home and and figured out to to move in the cast on the floor and get into a standing position)
Cast on for 3 weeks
7 days in the hospital rehabbing after cast removal- she was discharged at the end of day 3.
She missed the next two weeks of school because she couldn't bend her knees far enough to sit comfortable enough in her chair.
She was supposed to spend a week alternating locked knees on the braces but she was able to have them both unlocked after a week and could bare some weight with out bracing.
at the 2 month check up (5 week post cast removal) the full leg braces were removed and she was walking again with crutches by then. Back to AFO's. At the 3 month post surgery check-up the AFO's were removed and she was doing 20 laps in the gym everyday. Her only big obstacle was getting her right leg bent and lifted high enough to get into my van on her own. They told me it would be at least 6 months before I would even consider thanking them for the surgery. So here we are 8 months out no formal physical therapy (lost her medicaid) yesterday she stood up and took 4 solid steps on her own before loosing balance. I can only assume she practices this when no one is looking because she started from the middle of the floor and got up into standing position balanced herself and took steps. she did it to day when we were leaving her grandmas. So I took her to the hospital to see her dad and before we left I said hey show your daddy what you have been doing she had been standing by his bed leaning on the rail and turned towards me and too 5 or 6 solid steps to me. I hope it made him feel good to see that it has bee 2 years since she has tried to take steps on her own.
I'll send you some pictures of before and after so you can see the difference.
On Jun 1, 2007, at 11:33 PM, Carole Rosen wrote:
Carleen,Thanks for the info and your speedy reply. I certainly appreciate it. Can you tell me your daughter's degree of hip subluxation before and at the time of surgery. Had doctors ever recommended to you to do the surgery at an earlier age. How different is her gait now? Is her scissoring and toe walking gone? I have only recently heard of leg immobilizers and not the bar you mentioned but would, of course, love to know more. Did she sleep okay with these. Hayden is a really light sleeper and has never slept through a night.Hayden loves to swim also. Her right arm is not as mobile so she kind of moves in tight circles in a swim collar, but I have never seen bigger smiles of enjoyment.Thanks again for sharing this info with us.All the best,Carole
Carleen Briney <carleenbriney@tx.rr.com> wrote:Carole,My daughter had Hip flexors, abductors and hamstrings done in September. She turned 12 in April. She scissor walked and on her toes. The doctor was not sure how well she would do, and was somewhat apprehensive partly do to how mobil she was. She uses a walker or crutches. She has great success and was real motivated to get up and moving. In fact tonight she stood and took 3 steps gave me a hug and kiss (I need them after a long bad day). A few things to consider when they are small they still have a lot of growing to do might have to have the surgery again at a later date. My daughter had gotten so tight she could barely take steps and tired very easily. I figured she had nothing to loose. Have you tried leg immobilizersand or a bar to sleep in? we do that when she was you and less tight. In January she was able to do 20 laps around the gym every day and out of all bracing. On Jun 1, 2007, at 5:49 PM, Carole Rosen wrote:Hello,I was wondering if any of the members or their children have had myotomies and would be willing to share their experiences with us.My daughter is 4.5 yr old spqd post HIE birth injury. She has begun to take alternating steps in a gait trainer but also scissors.I am trying to gather information from families to weigh this important to do surgery. I am under the impression that often the hips subluxate again.Many thanks,Carole & Daughter Hayden
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