I have a friend who has the sleep safe plus hi lo bed for her son.
It is really great. I want one for my son Evan but the group that
would pay for it will only pay for it for children who have
seizures. Evan is sleeping in a toddler Fire truck bed that has high
sides right now. He is able to slide out of it and crawl where he
wants to go and it would be really hard for him to roll out of it so
we are doing what they said and trying everything else first. He has
reflux and respiratory issues and that is one of the reasons I want
the bed so that I can raise up the head and help with his reflux and
respiratory issues. We will see how it goes.

Stacy mom to Evan 29 months Spastic Left hemiplegia
-- In cerebralpalsy@yahoogroups.com, "Castle" <castletowery@...>
wrote:
>
> Well, Cayden finally got over her pneumonia she had for almost a
> month!! It took 3 antibiotics, several weeks of breathing
treatments
> and oral steroids but she got over it. And about the time she
gets
> feeling better Payton(my 7yr old daughter) gets a stomach
> virus...ewwww YUCK it was coming out of both ends...okay that is
all
> I will say about that!! I just hope none of the other kids get
it!!
> Cayden had an EEG and neurology appt yesterday...the EEG showed no
> seizures (at least not while the test was going) and HO HYPPS
> YEAH!!! Though it did show chaotic activity in several areas and
the
> high potinetial for seizures. SOOO seh will stay on Vigabatrin
and
> go back in 6 months unless there are any changes.
>
> I plan to start the process of getting Cayden a new bed...she is
> still in her crib and she is really getting to big for it. We are
> looking at a SleepSafe bed( http://www.sleepsafebed.com/ )
Hopefully
> we can get insurance to pay for it. We have to get our doc to
write
> up a letter of necessity and a scritp for it and submit it to
Sleep
> Safe.
>
> Hmmmm that is about it not much going on lately.
>
> Castle
> http://caydentowery.tripod.com
>