My daughter Hannah is 19 months old and had a stroke in utero.
Viewing the MRI revealed that Hannah had several strokes early on and
throughout her brain. Her diagnosis are:

Cerebral Palsy
Microcephaly
Hydrocephaly
Failure to Thrive
Gj tube
Cortically visually impaired
Globally Developmentally Delayed

Hannah does not sit up, roll over, talk. She tends to laugh, smile,
and babbles. I cant say she is doing this on purpose. I guess that
is the key on whether she is aware of what she is doing.

Issues i have:

Hannah when sick gets congested and mucous while feeding due to her
formula. She is unable to take an overnight feed without throwing -
up. Due to the g-j tube she throws up bile and not food. It was
recommended to the nissen (which we do not really want to do - due to
horrid stories). Can someone let us know their story on Nissen.

Also any recommendations that would help prevent mucous and
congestion when sick. Hannah will take food orally but not on a
regular basis. She tends to not be interested at times.

Also does anyone live in NJ - I am trying to figure out the system -
what Hannah is eligible for. We have early intervention, but pay a
ridiculous amount each month for therapy. Hannah only gets PT, OT,
and ST. She needs vision therapy but there is no one local.

Medications:
Topamax
Previcid
Valium
Reglan
Miralax

Equipment:

Medical stroller
Denied high chair and bath chair

She was recommended to get Botox throughout.
She was also recommended MAFO's which i am not sure why, i dont know
if Hannah will walk?

What am i to expect with Cerebral Palsy. Are there any resources,
support groups. What do you do once your child has CP?

I tend to still focus on Hannah had a stroke in utero and not on the
other diagnosis.

I dont want to miss out on needs for Hannah.

Any suggestions would be appreciated.

Thank you
Margie