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File - Roll Call-Check In   Message List  
Reply | Forward Message #1510 of 2351 |
Re: [cerebralpalsy] Re: File - Roll Call-Check In

Annie, 
He could have a few different kinds of seizures.  My daughter has some that she's in and out of with no side effects some that leave her very disorientated for several minutes others cause her to have a throaty noise which i realized the other day was actually her gasping to breath and occasionally some that wipe her out for the better part of the day.  fortunately she doesn't have ore than one or two a month usually.  good luck at the doctors.  

On Feb 7, 2007, at 2:52 PM, annie36462000 wrote:

Katie, THanks for the info. I think from looking at the web page
that it could be the drop attacks. His first episode was the end of
Aug. We have been to a neuro, but we are going for a second opinion
on Tues. It just feels like a very long time not knowing what it
is. The episodes are a little over a week apart. Yesterday he had
the episode I told you about, but then last evening I called him to
help clean off the dinner table and he said things got blurry so he
sat down and it went away. Another time he came in from playing in
the snow and was standing at the door way. He was looking funny and
rubbing his eyes. I asked him if he was ok and he said in a calm
voice " I only see half of you" I told him to sit down. That was
not an usual episode, but now that I think about it, it could be
something related.
Thanks again, Annie
--- In cerebralpalsy@yahoogroups.com, Katie Darbyson <kdarby33@...>
wrote:
>
> Hi Annie,
> I know alittle bit about seizures because my son has them
everyday and we can't seem to find anything to stop them. We have
controlled the ones that were triggered by him touching things and
the eye rolling/arm flying ones he would have when he woke up but
these past couple of weeks he's been having more of these quick
little seizures where his head will drop when he's sitting and his
whole body lets go, if he could stand I'm sure he would fall. We
see his neurologist on Thursday for a check up and to discuss
options with the seizure meds.
> I have attached a really good website which will give you an
ideas of the different types of seizures and maybe you can find one
that relates to your son.
> http://www.epilepsy.com/epilepsy/types_seizures.html
> Has your son had issues with seizures or is this something new?
It sounds like a seizure to me but I'm no doctor!
> Hope this helps,
> Katie
> Mom to Zach, 17 months old, QCP, CVI, epilepsy
>
>
> annie36462000 <springera115@...> wrote:
> Hi, Just wanted to asked if any one knows about
seizures? If you
> know the different types of them? How do I know if he is having
one?
> Jamie is having passing out episodes. They are now about a week
> apart. He had one at 4:20 today and it lasted under a minute. This
> time his eyes where fluttering after he fell to the floor. If any
one
> knows or has a suggestion of what this is please let me know. We
are
> going to the dr next Tuesday but my stomach is in knots.
> Thanks Annie
>
> --- In cerebralpalsy@yahoogroups.com,
cerebralpalsy@yahoogroups.com
> wrote:
> >
> >
> > How is everyone doing? Please take a second to give us a update.
> Let us know if there are any new milestones your child has
reached.
> Anything new in your life. Also remember to post a link to your
> personal website.
> >
> > Thanks!
> > Castle
> > Group Owner
> >
>
>
>
>
>
>
> ---------------------------------
> Never Miss an Email
> Stay connected with Yahoo! Mail on your mobile. Get started!
>




Thu Feb 8, 2007 12:06 pm

pinkfuzzycow...
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Message #1510 of 2351 |
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Katie, THanks for the info. I think from looking at the web page that it could be the drop attacks. His first episode was the end of Aug. We have been to a...
annie36462000
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Feb 7, 2007
8:53 pm

Annie, He could have a few different kinds of seizures. My daughter has some that she's in and out of with no side effects some that leave her very...
Carleen Briney
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Feb 8, 2007
12:08 pm

Since my daughters surgery straightened her legs so much we had to purchase her new crutches. I have her old ones they are Walk Easy brand, small youth, hot...
Carleen Briney
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Feb 8, 2007
1:20 pm

How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
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Mar 1, 2007
10:24 am

How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
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Apr 1, 2007
10:27 am

How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
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May 1, 2007
8:41 am

Sorry for so long been busy Tony just turned 9 yesterday. We are busy trying to get Started up with 2 social group therapies and starting speech here soon....
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May 1, 2007
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Jun 1, 2007
8:18 am

Hi, Jamie is doing well. He hasn't had any siezures since he got his glasses, up until today. The eye dr gave him by-focals because he has weak eye muscles...
Ann Springer
annie36462000
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Jun 1, 2007
1:18 pm

Braden has been doing pretty good, health wise. He is now eleven and the most precious little boy that I have ever met. He has been able to have his bipap...
blann4
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Jun 2, 2007
2:48 pm

How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
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Jul 1, 2007
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Aug 1, 2007
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www.taylorrumph.com I try to keep this updated. cerebralpalsy@yahoogroups.com wrote: How is everyone doing? Please take a second to give us a update. Let us...
Stephanie Rumph
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Aug 1, 2007
1:13 pm

Braden had Spinal Fusion surgery on July 3rd and after numerous complications and an almost three week hospital stay, he is finally home doing well. He is all...
charles blann
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Aug 1, 2007
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Sorry have not been on lately my son Tony has been dealing with recovering from Bacterial Meginitis. We had alot of set backs and he has come down with 4...
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Aug 1, 2007
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Well, Shay is doing well. She's enjoying summer school and talking more and more each day. She'll turn 8 on sept. 3rd. Its so hard to believe!! Julianna is...
Faith Mills
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Aug 2, 2007
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I am just posting real quick before we leave back to the hospital again. Tony is doing the same type of complaints before he had megnitis that they want me to...
Wendy Bauer
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Aug 10, 2007
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Sep 1, 2007
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Hi everyone. My name is Cyndi and it's been quite awhile since I checked in so I thought I would let everyone know how Michael has been doing. He's been doing...
Cyndi Street
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Sep 3, 2007
11:31 pm

Hi. my name is Faith and I don't post on here much. My daughters with CP are Shay and Julianna..they are number 5 and 6 of 8. Shay's birthday is today..sept...
Faith Mills
tmrcj
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Sep 4, 2007
12:08 am

Happy birthday Shay! ... -- Cyndi Wife to Mike (7/24/99) Mommy to Michael Adam (4/27/00) Spastic quadriplegia CP, CVI, and IS and Mason (5/27/02) Happily...
Cyndi Street
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Sep 4, 2007
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How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
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Oct 1, 2007
8:00 am

Ethan started school through the county in September. He is doing AWESOME and I can't believe how far he has come in such a short time. He goes 4 days a week...
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Oct 2, 2007
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We're doing fine, Daire is awaiting appoinment date for Hamstring lengthening operation. We are off to England on the 27th to go to the Advance Centre - for...
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Oct 2, 2007
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Nov 1, 2007
7:57 am

Hi I am new to the group and am having some very difficult times with my son right now.? Jacob is 10 years old and has CP, he is in a wheelchair and is...
JnDysn@...
jndysn
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Nov 1, 2007
12:44 pm

They need to get in there and FIGURE it out. If they have to do exploratory surgery then so be it. That child should NOT have to be in so much pain. If his...
Faith Mills
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Nov 1, 2007
12:53 pm

Faith, Thanks so much for reiterating what I have been trying to say all this time.? It helps to hear it from another mom.? I am just about going out of my...
JnDysn@...
jndysn
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Nov 1, 2007
1:50 pm

My godson still had constant pain after his fundo. ( At the time he was a student of mine, he became my godson a year later). Reason, he stomach wasn't...
Debra Marasco-McNulty
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Nov 1, 2007
5:12 pm

Jan, I am so sorry you are having such a time with doctors!! Please get a second and 3rd opinion...and not from a doctor that the original docs refer you...
Castle
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Nov 4, 2007
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