To answer your question, the therapist that did the balance test
said Jamie has a visual perceptual trackingissue. Something along
those lines. We will be going to an optamologist on the 8th of
Feb. We will have a complete dianoses then.
I am glad to see another homeschooler that knows how it feels to go
to all the therapies. I understand why you had to put Payton in
school. The first couple of years of my oldest daughters school was
in the the rehabs waiting room. The first three years of my
youngest life was in that same waiting room. Matter of fact the
P.t. noticed how Reagan was crawling and helped her crawl
correctly. It was her second home. She went through first steps
there instead of home because we were there more often.
I know Jamie will be o.k. but my husband still doesn't think
anything is wrong as far as him passing out. He saw the last
episode and still says " he was just sleepy" He didn't see his
eyes. My best friend says he is in complete deniel. My problem is
I am left in reality by myself. Maybe he will come around when we
go to the dr. He is usually very supportive.
I am glad I finally joined a group. Thanks every one for the warm
welcome.
Annie--- In cerebralpalsy@yahoogroups.com, "Castle"
<castletowery@...> wrote:
>
> Welcome to the group!
>
> Glad to have you hear but sorry you have to be here.
> It is great that you are getting your son a second opinion. It
does
> sound like some kind of seizure to me...
>
> http://www.epilepsy.com/101/ep101_symptom.html
> How often does it happen?
> Try to get the episode on video...also get an EEG a 48 hours one
> would be better than just a 1 or 2 hour EEG since the seizure
needs
> to take place to see any results on the EEG.
>
> Is the tracking problem cortical visual imparment? Do yu have a
> name for it?
>
> I was home schooling my oldest daughter, Payton, but with so many
> therapies for Cayden and having a new baby now...we had to enroll
> her is public school this year....she is in 1st grade...the only
> reason I felt comfortable with putting her in public school is
> because we do have a great school system here...it is the same
> school I attened when I was in elementary....and she was able to
> have a great teacher who our family has known for many
> years....anyhow that is another story...
>
> Again welcome to the group!
>
> Castle
>
> "annie36462000" <springera115@> wrote:
> >
> > Hi my name is Annie. I have three children two girls and a
boy.
> > Alyson is 13, Jamie is 10 and Reagan is 6. I homeschool all
> three
> > of them. Jamie was diagnosed with mild c.p. when he was three
> years
> > old. He had speech, Ot and Pt. He progressed enough to stop
for
> a
> > while, but was recently re-evaluated and will be going to
> therapies
> > again. Jamie has a severe learning disabilitiy mostly reading.
I
> > recently found out why he is having so much trouble with
reading.
> > He was diagnosed with an eye tracking problem.
> > The reason I chose to join a group is because I am frustrated
> with
> > the dr's not giving me all I need to know about what problems
that
> > we could face. Jamie over the last few months, has been falling
> > into a fetal position and slightly rocking back and forth. I am
> not
> > able to wake him or get him to stop. His last episode he fell
> > backwards and I saw his face for the first time. His eyes where
> > rolling all over the place and his body was slight jerking.
When
> he
> > comes to, he doesn't know what happened. All he remembers is
> seeing
> > colors or seeing double. The first neuro ran some tests (mri,
and
> > others) and said it was vertigo. I did not take that for an
> > answer. WE are taking him for a second opinion on the 13th. I
> did
> > my own research and found out that seizure activity has to take
> > place when the testing is being done to see it.
> > I know that my child is not as severe as others, but I hope
every
> > one in the group can understand where I am comming from. I feel
I
> > could not only use the support but I can give some helpful
advise
> to
> > other parents that is maybe in the shoes I was seven years ago.
> > Thank you and God bless each of you and your families
> >
>