Welcome to the group!
Glad to have you hear but sorry you have to be here.
It is great that you are getting your son a second opinion. It does
sound like some kind of seizure to me...
http://www.epilepsy.com/101/ep101_symptom.html
How often does it happen?
Try to get the episode on video...also get an EEG a 48 hours one
would be better than just a 1 or 2 hour EEG since the seizure needs
to take place to see any results on the EEG.
Is the tracking problem cortical visual imparment? Do yu have a
name for it?
I was home schooling my oldest daughter, Payton, but with so many
therapies for Cayden and having a new baby now...we had to enroll
her is public school this year....she is in 1st grade...the only
reason I felt comfortable with putting her in public school is
because we do have a great school system here...it is the same
school I attened when I was in elementary....and she was able to
have a great teacher who our family has known for many
years....anyhow that is another story...
Again welcome to the group!
Castle
"annie36462000" <springera115@...> wrote:
>
> Hi my name is Annie. I have three children two girls and a boy.
> Alyson is 13, Jamie is 10 and Reagan is 6. I homeschool all
three
> of them. Jamie was diagnosed with mild c.p. when he was three
years
> old. He had speech, Ot and Pt. He progressed enough to stop for
a
> while, but was recently re-evaluated and will be going to
therapies
> again. Jamie has a severe learning disabilitiy mostly reading. I
> recently found out why he is having so much trouble with reading.
> He was diagnosed with an eye tracking problem.
> The reason I chose to join a group is because I am frustrated
with
> the dr's not giving me all I need to know about what problems that
> we could face. Jamie over the last few months, has been falling
> into a fetal position and slightly rocking back and forth. I am
not
> able to wake him or get him to stop. His last episode he fell
> backwards and I saw his face for the first time. His eyes where
> rolling all over the place and his body was slight jerking. When
he
> comes to, he doesn't know what happened. All he remembers is
seeing
> colors or seeing double. The first neuro ran some tests (mri, and
> others) and said it was vertigo. I did not take that for an
> answer. WE are taking him for a second opinion on the 13th. I
did
> my own research and found out that seizure activity has to take
> place when the testing is being done to see it.
> I know that my child is not as severe as others, but I hope every
> one in the group can understand where I am comming from. I feel I
> could not only use the support but I can give some helpful advise
to
> other parents that is maybe in the shoes I was seven years ago.
> Thank you and God bless each of you and your families
>