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Reply | Forward Message #1493 of 2351 |
Annie Re: New to the group

Welcome to the group!

Glad to have you hear but sorry you have to be here.
It is great that you are getting your son a second opinion. It does
sound like some kind of seizure to me...

http://www.epilepsy.com/101/ep101_symptom.html
How often does it happen?
Try to get the episode on video...also get an EEG a 48 hours one
would be better than just a 1 or 2 hour EEG since the seizure needs
to take place to see any results on the EEG.

Is the tracking problem cortical visual imparment? Do yu have a
name for it?

I was home schooling my oldest daughter, Payton, but with so many
therapies for Cayden and having a new baby now...we had to enroll
her is public school this year....she is in 1st grade...the only
reason I felt comfortable with putting her in public school is
because we do have a great school system here...it is the same
school I attened when I was in elementary....and she was able to
have a great teacher who our family has known for many
years....anyhow that is another story...

Again welcome to the group!

Castle

"annie36462000" <springera115@...> wrote:
>
> Hi my name is Annie. I have three children two girls and a boy.
> Alyson is 13, Jamie is 10 and Reagan is 6. I homeschool all
three
> of them. Jamie was diagnosed with mild c.p. when he was three
years
> old. He had speech, Ot and Pt. He progressed enough to stop for
a
> while, but was recently re-evaluated and will be going to
therapies
> again. Jamie has a severe learning disabilitiy mostly reading. I
> recently found out why he is having so much trouble with reading.
> He was diagnosed with an eye tracking problem.
> The reason I chose to join a group is because I am frustrated
with
> the dr's not giving me all I need to know about what problems that
> we could face. Jamie over the last few months, has been falling
> into a fetal position and slightly rocking back and forth. I am
not
> able to wake him or get him to stop. His last episode he fell
> backwards and I saw his face for the first time. His eyes where
> rolling all over the place and his body was slight jerking. When
he
> comes to, he doesn't know what happened. All he remembers is
seeing
> colors or seeing double. The first neuro ran some tests (mri, and
> others) and said it was vertigo. I did not take that for an
> answer. WE are taking him for a second opinion on the 13th. I
did
> my own research and found out that seizure activity has to take
> place when the testing is being done to see it.
> I know that my child is not as severe as others, but I hope every
> one in the group can understand where I am comming from. I feel I
> could not only use the support but I can give some helpful advise
to
> other parents that is maybe in the shoes I was seven years ago.
> Thank you and God bless each of you and your families
>





Thu Jan 25, 2007 9:04 pm

castletowery
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Forward
Message #1493 of 2351 |
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Welcome to the group, Annie! I have a 3 year old son with CP (fairly moderate). He has just learned to sit up in the past 4-6 months and is working on...
Mary Fox
marylfox
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Jan 25, 2007
4:59 pm

Welcome to the group! Glad to have you hear but sorry you have to be here. It is great that you are getting your son a second opinion. It does sound like some...
Castle
castletowery
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Jan 26, 2007
12:50 am

To answer your question, the therapist that did the balance test said Jamie has a visual perceptual trackingissue. Something along those lines. We will be...
annie36462000
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Jan 28, 2007
10:29 am

You know my husband who is AWESOME with Cayden and our other children was sorta in denial when I first thought Cayden was having seizures...he would say that...
Castle
castletowery
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Jan 29, 2007
3:29 pm

I would mention seizures to the doctor. My daughter had several before we realized she was having seizures looking back it is easy to see but until she had a...
Carleen Briney
pinkfuzzycow...
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Jan 28, 2007
6:05 pm
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