Hi my name is Annie. I have three children two girls and a boy.
Alyson is 13, Jamie is 10 and Reagan is 6. I homeschool all three
of them. Jamie was diagnosed with mild c.p. when he was three years
old. He had speech, Ot and Pt. He progressed enough to stop for a
while, but was recently re-evaluated and will be going to therapies
again. Jamie has a severe learning disabilitiy mostly reading. I
recently found out why he is having so much trouble with reading.
He was diagnosed with an eye tracking problem.
The reason I chose to join a group is because I am frustrated with
the dr's not giving me all I need to know about what problems that
we could face. Jamie over the last few months, has been falling
into a fetal position and slightly rocking back and forth. I am not
able to wake him or get him to stop. His last episode he fell
backwards and I saw his face for the first time. His eyes where
rolling all over the place and his body was slight jerking. When he
comes to, he doesn't know what happened. All he remembers is seeing
colors or seeing double. The first neuro ran some tests (mri, and
others) and said it was vertigo. I did not take that for an
answer. WE are taking him for a second opinion on the 13th. I did
my own research and found out that seizure activity has to take
place when the testing is being done to see it.
I know that my child is not as severe as others, but I hope every
one in the group can understand where I am comming from. I feel I
could not only use the support but I can give some helpful advise to
other parents that is maybe in the shoes I was seven years ago.
Thank you and God bless each of you and your families