Search the web
Sign In
New User? Sign Up
cerebral_palsy_support · Cerebral Palsy Support
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want to share photos of your group with the world? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Messages 470 - 525 of 525   Newest  |  < Newer  |  Older >  |  Oldest
Messages: Show Message Summaries   (Group by Topic) Sort by Date v  
#525 From: "batymohn" <batymohn@...>
Date: Sun Jul 12, 2009 1:45 pm
Subject: EHarmony and Disability
batymohn
Offline Offline
Send Email Send Email
 
Hi Guys,
Years ago I tried a popular dating service in the Washington D.C. area.  I was a
professional at the time and I thought that I was a  good catch.  The manager
asked to speak with me, told me that  their previous clients with disabilities
had had poor experiences and politely refunded my  money.  I was devastated but
felt that he was being sincere.

The happy ending is that I met my wife doing theater several years after that. 
But I've often wondered how dating sties, like eharmony and match.com handle
clients with disabilities?  My wife isn't disabled but we share many common
interests and values.  Would eharmony point me to her or rule me out because of
my disability?

Curious Chris

#524 From: "Sharon" <smjball@...>
Date: Mon Sep 3, 2007 3:02 am
Subject: Re: hi
smjball
Offline Offline
Send Email Send Email
 
So good to hear from you!  I miss all the post we use to have on here!
Glad to hear Ms. Moriah is doing great.
James is doing really well right now.  He started Kindergarten on Aug.
13th.  Real tear jerker for me!  He is loving it, he is in an inclusive
classroom during the morning hours and for the academics he goes to the
resource(spec. ed) room in the afternoon.  He is really working hard on
his walking, he's doing super on his arm cruthces!  Also, I can feel
God working and I can just feel that he will soon walk independtly, he
actually has taken a step by himself, just one, but I'll take it!
The SDR surgery was absolutely a God send for James.  It has made such
a difference in his quality of life.  He also recently had strabismus
surgery on his left eye, and Praise God that went well.
I am learning what alot of parents of special needs children have said
about the school, we really have to be our child's advocate!  After his
2nd day of kindergarten the teachers assistant in his room made a
comment to me that James needs might be better met in the resource room
all day.  I just politely told her that he needed to be given ample
opportunity to prove himself and adjust to the classroom.  UGH. The
first week of school was hard!  But, after speaking to the principal,
teacher and the central school office people we have things all clear
now!
Hope everyone is doing well!  It's been forever since I posted, so
sorry this is so long!
Have a great Labor Day!
Sharon


--- In cerebral_palsy_support@yahoogroups.com, "temp_mom"
<temp_mom@...> wrote:
>
> hi everyone doing ok ? well ive been off line for a while.but have
use
> of a labtop.sharon how is your little one.moriah is great. my
daughter
> moved home she finished radation and one set of the cemo pill snd
will
> start another the 25th they sure make her sick. she has to go back to
> fort worth on the 30th for a scan to see if the cancer has srunk.
keep
> her in your prayers.have missed the room looks like there is unwanted
> guest again .
>

#523 From: "Tim Affholter" <thiansdad@...>
Date: Fri Aug 10, 2007 4:57 pm
Subject: Re: hi
thiansdad
Offline Offline
Send Email Send Email
 
Who?  Me and Chris?

<temp_mom@...> wrote:

>...have missed the room looks like there is unwanted
guest again . <

Just kidding.

We continue to keep Fancee in our prayers.
And you too.


Tim

#522 From: "temp_mom" <temp_mom@...>
Date: Fri Aug 10, 2007 4:18 pm
Subject: hi
temp_mom
Offline Offline
Send Email Send Email
 
hi everyone doing ok ? well ive been off line for a while.but have use
of a labtop.sharon how is your little one.moriah is great. my daughter
moved home she finished radation and one set of the cemo pill snd will
start another the 25th they sure make her sick. she has to go back to
fort worth on the 30th for a scan to see if the cancer has srunk. keep
her in your prayers.have missed the room looks like there is unwanted
guest again .

#521 From: "Tim Affholter" <thiansdad@...>
Date: Mon Aug 6, 2007 7:55 am
Subject: Re: Rant about jobs, disability and demographics
thiansdad
Offline Offline
Send Email Send Email
 
Thank you, Chris, for taking the time to help me understand a little
bit better.  Some times I feel like learning all that I need to know
is like putting together a puzzle.  Thanks for helping me find and
fit some of the pieces.

I don't know how true it is or if its in your interest,
but I hear that in Virginia, around the D.C. area, they
are hiring all the engineers they can find. ???

I heard on the radio, for what that may be worth, the biggest
area of need as for engineers is currently in the cement area.
Again, I don't know how true these are.  I'm just a Dad and
a bread man myself.

Best of luck on your job search.  We'll keep you in our thoughts.

Tim Affholter
Thian's Dad
thiansdad@...

#520 From: "batymohn" <batymohn@...>
Date: Sat Aug 4, 2007 12:15 pm
Subject: Re: Rant about jobs, disability and demographics
batymohn
Offline Offline
Send Email Send Email
 
Hey, thanks for the interest.  I'm trying to find an engineering job
and almost every time I apply for a job online I have to fill out
a "Optional" demographic questioner.  They ask my sex, race, etc.
They never ask if I have a disability, which is distressing because
people with disabilities have the highest unemployment by far.

Most people with moderate to severe disabilities apply for, and get,
social security (disability) income, which is what I meant by
a "poverty stipend " .  The great problem with SSDI is that you early
earn minimal outside income before they take it away and you're
screwed.

I knew a woman who had MS who could only move her face.  But that was
okay because she was a writer.  She wanted to buy a sophisticated
computer to help write but she could earn what it cost because that
would disqualify her for SSDI which she relied on.  Fortunately, her
church passed the hat around and bought it for her.  This is one of
many examples that I could personally site.  (This is also a blatant
argument for establishing a negative income tax for people with
disabilities.)

So what happens when you're poor and have nowhere to live; you live
in government subsidized housing, commonly known as Section VIII.  I
hear that Section VIII requires lots of paperwork so most landlords
don't bother with it.  So people with disabilities often live in
large Section VIII housing complexes.  It's like the projects for
disabilities, if you still don't live with your parents.

So there's really little way to get ahead if you have a disability,
unless you are extremely talented, determined or both.

Most of us have real economic disadvantages, we admit it.  We just
want a reasonable chance to make a living doing whatever we do best.

End of rant.
Chris

--- In cerebral_palsy_support@yahoogroups.com, "Tim Affholter"
<thiansdad@...> wrote:
>
> Dear Chris, (and others)
>
> I am very ignorant on this subject.  Please help me to
> understand what you are going through and what it is
> that I can do to help.
>
> Here is the first of my "stupid " questions:
>
> 1. "demograhic information" ?
> Are you referring to job applications?
>
> 2. What is a "poverty stipend" ?
>
> 3. I've heard the term "section eight" in referance
> to housing, but what is it?
>
> Thank you,
>
> Tim Affholter
> Parent and My Sons's Advocate
> Thiansdad@...
>
>
>
>
>
>
> --- In cerebral_palsy_support@yahoogroups.com, "batymohn"
> <batymohn@> wrote:
> >
> > This is something that I sent to my congress people after filling
> out
> > demographic information for the hundredth time.   May be if we
all
> > write them we can make a small change?
> >
> > Elected Officials,
> >
> > I am one of the few people with a disabilities who has a
> professional
> > degree.  I have been looking for jobs and I am sick of filling
out
> > demographic information that doesn't include disability.  WHY
NOT?
> Is
> > the government afraid of finding out how under-employed we really
> are?
> > Or is the government content to give us a poverty stipend and
> segregate
> > us in Section VIII housing?
> >
> > Sincerely.
> >
> > Chris Baty
> >
> > Your constituent.
> >
>

#519 From: "Tim Affholter" <thiansdad@...>
Date: Sat Aug 4, 2007 8:25 am
Subject: Re: Rant about jobs, disability and demographics
thiansdad
Offline Offline
Send Email Send Email
 
Dear Chris, (and others)

I am very ignorant on this subject.  Please help me to
understand what you are going through and what it is
that I can do to help.

Here is the first of my "stupid " questions:

1. "demograhic information" ?
Are you referring to job applications?

2. What is a "poverty stipend" ?

3. I've heard the term "section eight" in referance
to housing, but what is it?

Thank you,

Tim Affholter
Parent and My Sons's Advocate
Thiansdad@...






--- In cerebral_palsy_support@yahoogroups.com, "batymohn"
<batymohn@...> wrote:
>
> This is something that I sent to my congress people after filling
out
> demographic information for the hundredth time.   May be if we  all
> write them we can make a small change?
>
> Elected Officials,
>
> I am one of the few people with a disabilities who has a
professional
> degree.  I have been looking for jobs and I am sick of filling out
> demographic information that doesn't include disability.  WHY NOT?
Is
> the government afraid of finding out how under-employed we really
are?
> Or is the government content to give us a poverty stipend and
segregate
> us in Section VIII housing?
>
> Sincerely.
>
> Chris Baty
>
> Your constituent.
>

#518 From: "batymohn" <batymohn@...>
Date: Thu Aug 2, 2007 7:47 pm
Subject: Rant about jobs, disability and demographics
batymohn
Offline Offline
Send Email Send Email
 
This is something that I sent to my congress people after filling out
demographic information for the hundredth time.   May be if we  all
write them we can make a small change?

Elected Officials,

I am one of the few people with a disabilities who has a professional
degree.  I have been looking for jobs and I am sick of filling out
demographic information that doesn't include disability.  WHY NOT?  Is
the government afraid of finding out how under-employed we really are?
Or is the government content to give us a poverty stipend and segregate
us in Section VIII housing?

Sincerely.

Chris Baty

Your constituent.

#517 From: Tim Affholter <thiansdad@...>
Date: Tue May 22, 2007 3:52 pm
Subject: Flyer from: United Cerebral Palsy / Detroit
thiansdad
Offline Offline
Send Email Send Email
 
UCP/Detroit is launching a new model of family advocacy…and we would appreciate your help!
 
Are you the parent of a child with a disability? Do you have hopes and dreams for your child that are not necessarily supported by current models of advocacy? Please help us to shape an exciting new model of advocacy for children and families:
 
Person Centered Planning for Children
 
Along with Community Connections, Education, and Family Financial Stability, Person Centered Planning for Children will form the foundation of the agency’s strategy for helping families to realize all of life’s possibilities for their children with disabilities.
 
REGION HOST LOCATION
Oakland County
May 23, 2007
10:00 a.m. – 12:00 noon
Community Housing Network
570 Kirts Blvd., Ste 231, Troy, MI  48084
248.928.0111
 
 
Wayne County
May 29, 2007
10:00 a.m. – 12:00 noon
Arc of Western Wayne
2257 S. Wayne Rd., Westland MI 48186
734.729.9100
   
Macomb County
June 6, 2007
10:00 a.m. – 12:00 noon
Arc of Macomb
44050 Gratiot Avenue
Clinton Township MI 48036
586.469.1600
 
Light refreshments will be served…and, if you have little ones or children who
are not in school, please feel free to bring them. For more information please contact
Pat Dwelle at UCP/Detroit: 248-557-5070 or pdwelle@...


Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

#516 From: Tim Affholter <thiansdad@...>
Date: Sun May 20, 2007 6:59 am
Subject: A Hundred Tears
thiansdad
Offline Offline
Send Email Send Email
 
A Hundred Tears
By Sally Meyer, March, 1999
Copywrite 1999, Sally Meyer
A hundred times I told him
a hundred times and more,
"Don't hit the dog, don't run away
don't throw that on the floor!"

All morning he was tireless
he never stopped to think
he broke my lamp, he spilled his milk
dumped the kitten in the sink.

He ran around the house all day
without a stitch of clothes
he flapped his hands and sang and cried
and fell and bumped his nose.

At dinner came the moment
when I'd simply had enough
he refused to eat his dinner
and that's when I got tough.

I sent him off to bed at once
despite his tearful pleas . . .
I let him cry himself to sleep
it brought me to my knees.

When silence fell upon his room
I slowly crept inside,
and gazing on my little son
I lost my foolish pride.

A hundred tears I wept right then
a hundred tears and more
for this little child who spilled his milk
on my nice bright shiny floor.

Who am I to scold my son
for things he cannot know?
he looks to me for patience
to help him learn and grow.

A hundred prayers I said that night
a hundred prayers and more
Help me Father, teach my child
this child that I adore.

And as I left his room that night
I kissed his tears away
and promised that tomorrow
would be a better day.


Get your own web address.
Have a HUGE year through Yahoo! Small Business.

#511 From: "quadriplegiccpmommy" <quadriplegiccpmommy@...>
Date: Sat May 12, 2007 1:38 pm
Subject: Re: We have guest again!
quadriplegic...
Offline Offline
Send Email Send Email
 
--- In cerebral_palsy_support@yahoogroups.com, "Sharon" <smjball@...>
wrote:
>
> Well, it looks like once we got the nasty talkers off, now we have
some
> new friends visiting our site.
> It seemed like we went for so long w/out any of this junk on our
site,
> and then in the last few months we are being hit w/alot of spam!
> I do hope all of you Mom's have a wonderful Mothers Day!
> God Bless you all!
>
  HI everyone,
just wanted to wish everyone a happy mother's day!
hope everyone is doing well.
God Bless,
Leanne

#508 From: "Sharon" <smjball@...>
Date: Fri May 11, 2007 1:41 pm
Subject: We have guest again!
smjball
Offline Offline
Send Email Send Email
 
Well, it looks like once we got the nasty talkers off, now we have some
new friends visiting our site.
It seemed like we went for so long w/out any of this junk on our site,
and then in the last few months we are being hit w/alot of spam!
I do hope all of you Mom's have a wonderful Mothers Day!
God Bless you all!

#507 From: "mommie_lynne" <mommie_lynne@...>
Date: Thu May 10, 2007 7:42 pm
Subject: re: if u need it
mommie_lynne
Offline Offline
Send Email Send Email
 
I know that there are times that we can help and be a blessing to
others. I have a wheelchair and a walker that my son can no longer use.
If anyone can use these for their child please let me know. Thanks

#505 From: "mommie_lynne" <mommie_lynne@...>
Date: Wed May 9, 2007 11:33 pm
Subject: Re: I need help and info
mommie_lynne
Offline Offline
Send Email Send Email
 
Thanks so much for the info. I did apply through the ARC and spoke to a
Ms. Noto. I applied for CAP, I will call her and ask her to apply for
the CAP+ program and we will try again. I am sick and tired of the
loops and hoops we must go through for our kids and CP has none to
little info out there. I am going to just keep on keeping on. God bless
you and yours and thanks for passing your infor on. Lynne

#502 From: "Sharon" <smjball@...>
Date: Wed May 9, 2007 1:27 am
Subject: Re: I need help and info
smjball
Offline Offline
Send Email Send Email
 
Check on CAP-MRDD, we have that here in NC and it is supposed to be for
those who fall through the loops.  Also, keep appealing the CAP
denials.  You have the right to do that.
We have just signed up through an agency called ARC and they become
your case manager, they told me they would apply for CAP for our son.
Here in NC there is a very long list, but keep on trying and keep
appealing.  It's crazy at the hoops they make us parents of special
needs kids jump through, also do you have a psyche exam to send them?

Best of luck to you!


--- In cerebral_palsy_support@yahoogroups.com, "mommie_lynne"
<mommie_lynne@...> wrote:
>
> Hi all. I need help and information. I applied for CAP for my son
which
> has CP and we have been denied for the second time> I just don't get
> it. He has CP and has been diagnoised with MR. I have had a hard time
> trying to get services for him. He falls through every kind of loop
> hole there is. I am fifty years old and has damaged my hand lifting
him
> and pulling on him trying to do all the work I can in helping him to
> become as independent as possible. I am so tired and being a single
> parent makes it even harder sometimes. Does anyone have any
suggestions
> on what I can try next???
> Thanks and Holla
>

#501 From: "mommie_lynne" <mommie_lynne@...>
Date: Tue May 8, 2007 11:44 pm
Subject: Re: I need help and info
mommie_lynne
Offline Offline
Send Email Send Email
 
Hi all. I need help and information. I applied for CAP for my son which
has CP and we have been denied for the second time> I just don't get
it. He has CP and has been diagnoised with MR. I have had a hard time
trying to get services for him. He falls through every kind of loop
hole there is. I am fifty years old and has damaged my hand lifting him
and pulling on him trying to do all the work I can in helping him to
become as independent as possible. I am so tired and being a single
parent makes it even harder sometimes. Does anyone have any suggestions
on what I can try next???
Thanks and Holla

#500 From: "Sharon" <smjball@...>
Date: Mon May 7, 2007 2:39 pm
Subject: Re: keep praying
smjball
Offline Offline
Send Email Send Email
 
Our family will continue to lift Fancee up in prayers and know that
healing will come her way.

I am so happy also that the spam is gone!  A big Thank You to the
person that removed it!

Hope everyones precious children are doing great!

Sharon

--- In cerebral_palsy_support@yahoogroups.com, "temp_mom"
<temp_mom@...> wrote:
>
> Hi All. Just wanted to tell you that the doctors say my daughter
> Fancee has melanoma of the brain and lungs, the good news is that
> there isnt any in the lymth noles or bones they are oppitimistic that
> they can get it control with cemo and radation . She starts next
week.
> keep her in your prayers.. God is so good! Im already thanking him
for
> everything he ia doing in her life.so nice not to have to sift thru
> that trash in this group anymore..
>

#499 From: "temp_mom" <temp_mom@...>
Date: Sun May 6, 2007 11:42 pm
Subject: keep praying
temp_mom
Offline Offline
Send Email Send Email
 
Hi All. Just wanted to tell you that the doctors say my daughter
Fancee has melanoma of the brain and lungs, the good news is that
there isnt any in the lymth noles or bones they are oppitimistic that
they can get it control with cemo and radation . She starts next week.
keep her in your prayers.. God is so good! Im already thanking him for
everything he ia doing in her life.so nice not to have to sift thru
that trash in this group anymore..

#498 From: "astudnicki" <aas@...>
Date: Fri May 4, 2007 4:20 am
Subject: Offending Spammer Removed
astudnicki
Offline Offline
Send Email Send Email
 
The Alexis character and related messages have been removed from the
group.  Sorry for the delay in doing so.  From now on, memberships
will need to be approved.  Hopefully, this will minimize future spam.

Adam

#497 From: "mommie_lynne" <mommie_lynne@...>
Date: Tue May 1, 2007 3:05 am
Subject: Re: Hi All
mommie_lynne
Offline Offline
Send Email Send Email
 
---
Hey, thanks for the encouragement. It's a hard and long road. I know he
is tired and the work is so painful for him. I pray that I can continue
to be strong for his sake but there are those times when I know that
only God is at work cause I'm just to tired.
Holla




  In cerebral_palsy_support@yahoogroups.com, "ga_girl_w_attitude"
<ga_girl_w_attitude@...> wrote:
>
> I know how tough that this can be my son had surgery on his legs he
was
> uncomfortable for the first couple of days and then he slowly got
> better.  I hope that your son has a speedy recovery.
> > >
>

#496 From: Michelle Carroll <odyton03@...>
Date: Sun Apr 22, 2007 10:32 pm
Subject: Re: question re:gj tubes
odyton03
Offline Offline
Send Email Send Email
 
my son has a G-J Tube, and it has made a huge difference in his life.  He used to get sick all the time and really just over all had a hard time gaining weight, since he has had the G-J, about a year now he has gained over 6 pounds.  The only draw back is you can't give big volumes of formula at one time right now Cody gets 60 ml/hr about 16 hours a day, so he does have to use a back pack and a smaller machine so he can carry it around, but it doesn't really slow him down, the only time we had a problem was trying to explain the process to his school nurse.  Also a lot of kiddos need venting frequently, but Cody has a venting system called a Farell bag, which until recently I thought all children had, but when we went to St. Louis for his surgery a couple months ago, they had no idea what it was.  The only difference between the G and GJ is that instead of the tube going into the stomach it goes into the Jejenum (sp?) hence the "J"  which is the bottom part of the stomach just before the intestines, that way it is digested quicker.  They found with Cody that he had a delay in his emptying, so we were told that the GJ would work better for him, so it didn't have a chance to slow down.  Have they done an emptying study?  it takes about 3 hours but it can give them a clear picture of what the  problem might be, sometimes if it is a delay they can give meds like Reglan to help speed up the stomachs digestion, the meds didn't work for Cody.  Hope that helps.  Take care..

quadriplegiccpmommy <quadriplegiccpmommy@...> wrote:
HI everyone,
I have a question does anyone know much about gj tubes, if so i would
be interested.I am having trouble getting accurate information.
my son has a g-tube and he vomits frequently and the doctor wants him
to have a gj tube and we have some concerns.

thanks,
Leanne



Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

#495 From: Laura MacGregor <lauramacgregor@...>
Date: Sun Apr 22, 2007 12:06 pm
Subject: Re: question re:gj tubes
lmac1016
Offline Offline
Send Email Send Email
 
There was some brief discussion of my son getting a gj tube several years ago for the same reason.  However, with the right mix of anti-reflux meds and with a continuous feed pump where we programmed the pump to deliver about 130 ml per hour over the course of the day it worked quite well.  Has your son been tried with a continuous feed of small amounts vs. bolus feed? My son turned into a veritable fountain with a bolus feed.  The dietician arrived during one of the feeds and took one look at hims and said "this is not okay".  We had a pump the next day.
 
As well, even with the g tube and pump we have had episodes of fairly bad vomiting until we sorted out his reflux meds. 
 
My understanding of a gj tube is limited however I believe that they run the tube from the g tube site into the jejunum (just past the stomach into the small intestine).  The gj tube must be replaced by a doc with an x-ray as opposed to just changing the MicKey in your own home when it falls out.  The other thing I understand about the gj is that the small intestine cannot handle large amounts of food and a continuous feed of small amounts then has to happen vs bolus feeds. 
 
I think you have both my phone number and e-mail address.  If you want to talk, just call.
 
Take care,
 
Laura

quadriplegiccpmommy <quadriplegiccpmommy@...> wrote:
HI everyone,
I have a question does anyone know much about gj tubes, if so i would
be interested.I am having trouble getting accurate information.
my son has a g-tube and he vomits frequently and the doctor wants him
to have a gj tube and we have some concerns.

thanks,
Leanne



#493 From: "quadriplegiccpmommy" <quadriplegiccpmommy@...>
Date: Sun Apr 22, 2007 12:19 am
Subject: question re:gj tubes
quadriplegic...
Offline Offline
Send Email Send Email
 
HI  everyone,
I have a question does anyone know much about gj tubes, if so i would
be interested.I am having trouble getting accurate information.
my son has a g-tube and he vomits frequently and the doctor wants him
to have a gj tube and we have some concerns.

thanks,
Leanne

#492 From: "temp_mom" <temp_mom@...>
Date: Sat Apr 21, 2007 9:56 pm
Subject: Re: Question
temp_mom
Offline Offline
Send Email Send Email
 
NO NEWS YET WAS WITH HER LAST WEEKEND AND SHE SLEPT MOST OF THE
TIME.. IM HOLDING ON TO THE PROMICE FROM GOD BELIEVE AND HE WILL
GIVE YOU THE DESIRES OF YOUR HEART AND IM SURE WHAT THAT IS FOR ME
AND MINE ... THANKS FOR THE PRAYERS.. LET ME KNOW ABOUT A NEW GROUP
WITHOUT TRASH TALKERS--- In
cerebral_palsy_support@yahoogroups.com, "Sharon" <smjball@...> wrote:
>
> Leanne,
> I'm going to ask a friend of mine who set up a local yahoo group
for
> some mothers where my son gets therapy and see how we can set up
our
> own group, like we had here before all this crap got on there from
> these vulgar talking idiots.  Sorry, they are really getting on my
> nerves.  I wanna get on here and talk about our kids.  If anyone
> knows how we can set up our own yahoo group and do it by invite
only,
> then we can select who comes on it and verify that they are not
> spammers.
> Sandra, hope Fancee is doing lots better and got a good report,
she
> has been in my prayers, please update us on her!
> Hope everyone has a great weekend!
> Sharon
>
> --- In
cerebral_palsy_support@yahoogroups.com, "quadriplegiccpmommy"
> <quadriplegiccpmommy@> wrote:
> >
> > --- In cerebral_palsy_support@yahoogroups.com, "Jena" <holmanj@>
> > wrote:
> > >
> > > Also have the posts monitored before they go to the group and
> > delete her. A
> > > new group might just be the answer. Jena
> > > ----- Original Message -----
> > > From: "Sharon" <smjball@>
> > > To: <cerebral_palsy_support@yahoogroups.com>
> > > Sent: Wednesday, April 11, 2007 3:12 PM
> > > Subject: [cerebral_palsy_support] Question
> > >
> > >
> > > > I'm not sure if we have any computer savy people on here(I'm
> sure
> > we
> > > > do, I'm just not one of them).  But this Alexis Sabry that
is
> > sending
> > > > post is getting on my nerves.
> > > >
> > > > I do know that we could start our own private yahoo support
> group
> > and
> > > > someone could be the moderator or there could be several
> > moderators and
> > > > it would be by invitation only.  This would stop all this
spam
> > and junk
> > > > from Alexis Sabry from being on what I feel is a very
important
> > sight
> > > > for us parents with cp kids.
> > > >
> > > > We need each other support and encouragement, not a bunch of
> > > > advertisements.
> > > >
> > > > If anyone knows how to do this or if you guys would be
> interested,
> > > > let's check into this.
> > > > Take Care!
> > > > Sharon
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > Yahoo! Groups Links
> > > >
> > > >
> > > >
> > > >I totally agree with you sharon,
> > I thought we had a really good group but now i am feeling quite
> > discouraged and if this doesn't stop soon, I might quit the
group
> but
> > it is nice to feel like you have someone to talk to who knows
what
> > you are going through.I don't why this person is talking like
this
> > when this is supposed to be a support group for parents who have
a
> > child with cp,when a person has to talk like this it sure shows
the
> > lack of maturity!!
> > hope everyone is doing well.
> > Leanne
> > >
> >
>

#488 From: "Sharon" <smjball@...>
Date: Sat Apr 21, 2007 1:31 am
Subject: Re: Question
smjball
Offline Offline
Send Email Send Email
 
Leanne,
I'm going to ask a friend of mine who set up a local yahoo group for
some mothers where my son gets therapy and see how we can set up our
own group, like we had here before all this crap got on there from
these vulgar talking idiots.  Sorry, they are really getting on my
nerves.  I wanna get on here and talk about our kids.  If anyone
knows how we can set up our own yahoo group and do it by invite only,
then we can select who comes on it and verify that they are not
spammers.
Sandra, hope Fancee is doing lots better and got a good report, she
has been in my prayers, please update us on her!
Hope everyone has a great weekend!
Sharon

--- In cerebral_palsy_support@yahoogroups.com, "quadriplegiccpmommy"
<quadriplegiccpmommy@...> wrote:
>
> --- In cerebral_palsy_support@yahoogroups.com, "Jena" <holmanj@>
> wrote:
> >
> > Also have the posts monitored before they go to the group and
> delete her. A
> > new group might just be the answer. Jena
> > ----- Original Message -----
> > From: "Sharon" <smjball@>
> > To: <cerebral_palsy_support@yahoogroups.com>
> > Sent: Wednesday, April 11, 2007 3:12 PM
> > Subject: [cerebral_palsy_support] Question
> >
> >
> > > I'm not sure if we have any computer savy people on here(I'm
sure
> we
> > > do, I'm just not one of them).  But this Alexis Sabry that is
> sending
> > > post is getting on my nerves.
> > >
> > > I do know that we could start our own private yahoo support
group
> and
> > > someone could be the moderator or there could be several
> moderators and
> > > it would be by invitation only.  This would stop all this spam
> and junk
> > > from Alexis Sabry from being on what I feel is a very important
> sight
> > > for us parents with cp kids.
> > >
> > > We need each other support and encouragement, not a bunch of
> > > advertisements.
> > >
> > > If anyone knows how to do this or if you guys would be
interested,
> > > let's check into this.
> > > Take Care!
> > > Sharon
> > >
> > >
> > >
> > >
> > >
> > > Yahoo! Groups Links
> > >
> > >
> > >
> > >I totally agree with you sharon,
> I thought we had a really good group but now i am feeling quite
> discouraged and if this doesn't stop soon, I might quit the group
but
> it is nice to feel like you have someone to talk to who knows what
> you are going through.I don't why this person is talking like this
> when this is supposed to be a support group for parents who have a
> child with cp,when a person has to talk like this it sure shows the
> lack of maturity!!
> hope everyone is doing well.
> Leanne
> >
>

#487 From: "quadriplegiccpmommy" <quadriplegiccpmommy@...>
Date: Fri Apr 20, 2007 8:40 pm
Subject: Re: Question
quadriplegic...
Offline Offline
Send Email Send Email
 
--- In cerebral_palsy_support@yahoogroups.com, "Jena" <holmanj@...>
wrote:
>
> Also have the posts monitored before they go to the group and
delete her. A
> new group might just be the answer. Jena
> ----- Original Message -----
> From: "Sharon" <smjball@...>
> To: <cerebral_palsy_support@yahoogroups.com>
> Sent: Wednesday, April 11, 2007 3:12 PM
> Subject: [cerebral_palsy_support] Question
>
>
> > I'm not sure if we have any computer savy people on here(I'm sure
we
> > do, I'm just not one of them).  But this Alexis Sabry that is
sending
> > post is getting on my nerves.
> >
> > I do know that we could start our own private yahoo support group
and
> > someone could be the moderator or there could be several
moderators and
> > it would be by invitation only.  This would stop all this spam
and junk
> > from Alexis Sabry from being on what I feel is a very important
sight
> > for us parents with cp kids.
> >
> > We need each other support and encouragement, not a bunch of
> > advertisements.
> >
> > If anyone knows how to do this or if you guys would be interested,
> > let's check into this.
> > Take Care!
> > Sharon
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >I totally agree with you sharon,
I thought we had a really good group but now i am feeling quite
discouraged and if this doesn't stop soon, I might quit the group but
it is nice to feel like you have someone to talk to who knows what
you are going through.I don't why this person is talking like this
when this is supposed to be a support group for parents who have a
child with cp,when a person has to talk like this it sure shows the
lack of maturity!!
hope everyone is doing well.
Leanne
>

#475 From: Tim Affholter <thiansdad@...>
Date: Sat Apr 14, 2007 11:45 am
Subject: Re: Getting fed up fast - Fwd: [UCPDIVERSIFIEDdisABILITYGROUP]
thiansdad
Offline Offline
Send Email Send Email
 
I agree! We need to make society more aware of what our children
encounter daily based on CP. I had to purchase a book (Cerebral
Palsy A Parents Guide) in order to find out things that I should be
doing for and with my child, despite the fact that she sees
thearpist and doctors on a regular basis. I am all for being an
advocate for our children, because thier voices need to be heard.

How do we get started????? ? As a group lets follow through for our
kids and the kids before and after them.
 
tamlynn

--- In UCPDIVERSIFIEDdisAB ILITYGROUP@ yahoogroups. com, Tim Affholter


Note: forwarded message attached.


Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

#474 From: Tim Affholter <thiansdad@...>
Date: Sat Apr 14, 2007 11:30 am
Subject: Fwd: [UCPDIVERSIFIEDdisABILITYGROUP] Re: Getting fed up fast
thiansdad
Offline Offline
Send Email Send Email
 


Note: forwarded message attached.


Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

#472 From: "Sharon" <smjball@...>
Date: Thu Apr 12, 2007 5:02 pm
Subject: Re: URGENT !!! PRAYER REQUEST
smjball
Offline Offline
Send Email Send Email
 
Will be lifting her name up in prayer and binding cancer in Jesus
Name!
Prayers are with you!

--- In cerebral_palsy_support@yahoogroups.com, "temp_mom"
<temp_mom@...> wrote:
>
>  I have a update on my Daughter Fancee .The drs found not 2 lesions
in
> her brain they found 5 one in the front 4 in the back one being
rather
> deep.They say it came from some place else they did a catscan and
they
> found two more one in each lung the size of a pea and nickle they
are
> going to do a biopsey today please pray in agreement that they will
> find NO CANCER!!!!!! AMEN WE NEED THE WORD TO SPREAD AND PRAYERS TO
> FLOW LIKE WATER THANKS ALL  HER NAME IS fANCEE oTERO SHE IS SAVE
BUT
> NOT SERVING--- In cerebral_palsy_support@yahoogroups.com, "kzeien"
> <Kzeien@> wrote:
> >
> > --- In cerebral_palsy_support@yahoogroups.com, "temp_mom"
> > <temp_mom@> wrote:
> > >
> > > My 37 year old daughter has just been told she has brain
cancer.
> they
> > > are doing all kinds of test today ..PLEASE PRAY FOR HIS HEALING
> GRACE
> > > FOR HER HER NAME IS FANCEE OTERO.
> > > THANKS SANDRA
> > >
> > My prayers are with you and yours. God works miracles every day
and
> may
> > he be with you always.
> >
>

#471 From: "temp_mom" <temp_mom@...>
Date: Thu Apr 12, 2007 4:31 pm
Subject: Re: URGENT !!! PRAYER REQUEST
temp_mom
Offline Offline
Send Email Send Email
 
I have a update on my Daughter Fancee .The drs found not 2 lesions in
her brain they found 5 one in the front 4 in the back one being rather
deep.They say it came from some place else they did a catscan and they
found two more one in each lung the size of a pea and nickle they are
going to do a biopsey today please pray in agreement that they will
find NO CANCER!!!!!! AMEN WE NEED THE WORD TO SPREAD AND PRAYERS TO
FLOW LIKE WATER THANKS ALL  HER NAME IS fANCEE oTERO SHE IS SAVE BUT
NOT SERVING--- In cerebral_palsy_support@yahoogroups.com, "kzeien"
<Kzeien@...> wrote:
>
> --- In cerebral_palsy_support@yahoogroups.com, "temp_mom"
> <temp_mom@> wrote:
> >
> > My 37 year old daughter has just been told she has brain cancer.
they
> > are doing all kinds of test today ..PLEASE PRAY FOR HIS HEALING
GRACE
> > FOR HER HER NAME IS FANCEE OTERO.
> > THANKS SANDRA
> >
> My prayers are with you and yours. God works miracles every day and
may
> he be with you always.
>

Messages 470 - 525 of 525   Newest  |  < Newer  |  Older >  |  Oldest
Advanced
Add to My Yahoo!      XML What's This?

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help