I regret the delay in my response, but I have been out-of-town most of the week. My son was fortunate to attend a non-profit organization's preschool program...
Some words of advice for Moriah's mother, ... From: temp_mom To: cerebral_palsy_support@yahoogroups.com Sent: Wednesday, September 27, 2006 9:01 AM Subject:...
I would recommend a Botox form of treatment prior to making the decision for surgery. Botox is not a permanent solution, like surgery is considered. Botox is...
Today at school, Preston's PT took out a walker and had Preston try it out. He was able to walk about 27 feet holding onto just the walker! The PT was moving...
That is wonderful news! Way to go Preston! Watch out, he'll be on the go now. My son has been walking w/his walker for about a year now and he is on the go! ...
That's good how old is Preston.. My lil boy is 2 years and really can't do much! But he smiles a lot. He has a bumbo.. and therapy is coming soon, I hope. ...
Hi Jim! Wow, you posed some good questions and give some very educated advice on issues! Impressed. Our situation with head start is that it is a federal...
Hi Cynthia, Preston's 3. At 2 he had just learned to sit up on his own. I loved the Bumbo chair when he had one! It was so helpful in keeping him upright....
Hi Sharon, I sure hope so, thanks so much! Sharon <smjball@...> wrote: That is wonderful news! Way to go Preston! Watch out, he'll be on the go now. My...
I am in Chicago My 2 year old with CP's name is Georgie. He can't sit or walk yet. I also have a 4 month old named Santino. He is supposed to get therapy soon...
He will, James had just turned 3 when he started using his walker, and now he's even cruising and holding onto the furniture, walls and doors. James turned 4...
Have you tried the EI program in your state? I don't kow how the Early Intervention programs operate in Chicago, but I found the state phone number for it....
Hi, Thank you has gotten EI before but we moved and they got all screwed up. He is getting evaluated again on the 10th. Thank you so much! BRIDGET NICHOLS...
Your school district should be able to assist you with getting the services you need. Also, the Neonatal ICU nurse that checks out pre-infants to their...
I am from Illinois, but now live in Kentucky, Illinois' early intervention system beats any that I have participated in, Ohio and Kentucky both. In Illinois,...
I'm just wondering if there are any adults with hypotonic CP out there. My 3 yr old son has this form of CP and I haven't heard from any adults with it. I'm...
Hi Bridget, Haven't heard of the hypotonic cp, my son has has spastic diplegic and he is 4 yrs old and does not talk much, says a few words, but no sentences,...
Hi Sharon, I'm not completely satisfied that this dx of hypotonic cp covers my son. He's having more extensive genetic testing, so maybe that will give me...
I can so relate with what you said. When we received James diagnosis, we knew something was going on, but when they actually said spastic diplegia cerebal...
Just received the good news that Preston's last genetic testing came back clear. Haven't done all of the testing there is to do, but we've done a lot. Good...
Interesting…my 3 and ½ year old has hypotonic/athetoid CP and I have heard, too, that it can morph into spastic or other types… Interestingmy 3 and ½...
Hello room.My pc has been down and Ive not been able to post.Weve had alot going on here. Moriah had her first round of botox.8 shots 4 in both calfs.It wasnt...
Bridget you I know with Moriah it was harder to not know than to know whats wrong.Once you know you can deal with what ever you have to and know that you at...
I'm so glad you are back! I have truly missed your post! Way to go Moriah! That is such a blessing! James will be having selective dorsal rhizotomy on Wed....
You know what it is so nice to go back to those doctors that give you such news and say LOOK WHAT GOD DID when you said it was not possible. so nana boo boo...
I am so glad you are back! I love what your pastor friend told you about "every thang gonna be alright!" I am just getting ready to give God the Praise for...
Hi we are looking into getting a Mutli Disk DVD Player for Tricia (age 7 with CP) She LOVES her movies and needs to be able to operate at least PLAY button and...
Hi, Joanna: My mane is Sue and my daughter has mild C.P. she can walk but she can not talk. Her fine motor skills and limitied. Eating and drooling are...
I'm not sure this will help, but in our neck of the woods (Ontario) we have TAC which stands for Technology Access Centre. Kids (and adults) can be referred...
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