This section of this book was very helpful to me in understanding my son. Most of it describes him and his reactions exactly. This is an excerpt from: ...
... over come she had a stage 3 brain bleed , a pda ligation on her heart, hydrosfolic. subgaleal shunt, and we were told she would never funtion normally.At...
Thank you for the words of encouragement, it means a lot. I have an update about our son Rex. He has been well for a couple weeks now and is starting to army...
... hope.Does REx sissor with his legs? Moriah does and tipie toes so when we get the feet flat she will be off.I"l keep praying, And remember speek positives...
Hi, No he doesn't scissor his legs or stand on his tip toes. He puts most of his weight on his heels actually. I started taking him to a message therapist...
Hi my name is Doxie. In 1990, I adopted a boy 8 years old that is said to be in constant seizure activity. Jeremiah was born with extensive brain damage....
Hi Elizabeth how you doing this fine HOT morning?Moriah is doing wellhad to have new AFO's because she grew out of her's in less than 3 months.She has pt and...
Hi, We are hanging in. Our live in nanny was shaking Rex and we caught it on tape last week. We called the Sheriff, who is not going to press criminal...
I need help! My son Nick is 5 years old and has spastic diplegic cp. He can walk with a walker but cannot talk. I have been potty training since the middle of...
My son was diagnosed with cp at 1 and I am a single mom trying to deal with this on my own and it has been really hard sometimes. I have had moments where it...
Sounds like you are doing all you CAN do for a 21/2 year old. I mean, most things for treatment other then botox and some ortho surgeries aren't usually done...
--It has been a horrible week!!!!! Moriah almost died. she was eating and screamed a blood curdleing scream jerked back her head and went unresponive. we...
-My son is normal and he is 3 and is pee trained but the poop thing is another story he tells me when it is too late and he starts crying, so i understand your...
Elizabeth I posted pics of Moriah if you would like to see my miricle baby--- In cerebral_palsy_support@yahoogroups.com, Elizabeth ... caught ... press ... the...
I am so sorry for what you have been through. I guess we both feel the impact of others lack of caring for our children. I am relieved to hear Moriah is...
I just had to chime in regarding the potty training issue. My 6 year old does not have cp or any other diagnosis and he still wears a pull-up at night. It...
Thanks for sharing your similar experiences. I couldn't figure out what I was doing wrong. I started giving Nick stickers every time he successfully went potty...
I was reading you e mail about your little one and it breaks my heart my name is amanda and I am 20 years old and I have cp if you ever need anything or have...
... Thank you for your email. Everything is going well no more seizures.And Moriah is doing real well.she is on a real strong med tegretol. the side effects...
Hello to you all. My name is Sharon and I have a 3 yr old child with spastic diplegia cerebal palsy. He is developmentally delayed in all areas. He currently...
Hi Misty, my name is Sharon and I just joined this support group today. My sound is 3 1/2 and has spastic diplegic cp. We found out when he was 1 also. We...
I have been in contact with a mother whose child had SDR surgery in April with Dr. Parks and she told me he is leaving in Aug. going to Texas. They say he is...
I make a game out of it and make little noises for my child. I have also let him watch a special show that he really likes, play with a special toy that he...
Hello, I posted a few months ago, but have not been using my computer much lately. I have an 11 month old son who was diagnosed with CP and epilepsy at 2 ...
My son doesn't use one, but I have a good friend we goto therapy with her son uses one, if you would like I'll be glad to ask her what type chair they have. I...
Hi Sharon.You go girl , it is so good to hear that drs arent always right. I know I got real tired of hearing glume and dume-!!! They said my Daughter was...
Hey Temp mom! Okay, me and you have alot in common. We adopted James, we knew all his "potential" problems when we got him! How wild. We have been with him...
Hey Sharon post a pic of james . i would love to see him and I never get tierd of showing off my 2 Moriah has a brother joseph we adopted him a year before we...
-Sharon I just saw James pic he is ssssssssssssssooooooooooooooo handsome .I love all the Pics that have been posted. It is so nice to have a face to go with...
HI In! I overlooked this email you sent me, sorry! I saw Moriah's picture, she is way too cute! We live in the mountains of Western North Carolina. So glad to...
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