Intensive Therapy with or without Suit (Therasuit or other) Hello all. It has been a few months since I posted and wanted to reach out to parents and...
Finally a Non Profit raising money for Intensive Therapy Bright Steps Forward is a Non Profit working toward raising money for children with special needs to...
hi everyone wanted to introduce myself i am a new member of the group. my name is jessica i am 26 years old and i have two kids. james who is 6 and has cp and...
Welcome Jessica, My son Cameron is 5 and has cp. He doesn't walk, but talks well and I think he is pretty smart. He starts kindergarten this fall and he is...
I just joined this group and would like to introduce myself. My name is LaVonda, and I am 25 years old. I am currently in a relationship with a man who has CP....
CNS Foundation has launched a new fundraising campaign to help raise awareness, as well as money, for new research initiatives specializing in pediatric brain...
Hi, We got hit with the dagnosis of Hypotonia Cerebral Palsy today for our 14 month old, Rex. It's the first we heard this was a possibility even though we...
... Hi, We got hit with the dagnosis of Hypotonia Cerebral Palsy today for our 14 month old, Rex. It's the first we heard this was a possibility even though we...
Hi, The diagnosis is always difficult. Our son was diagnosed at six months of age and realistically we knew even before then. My son also has mental...
Hi My son is 20 months and was diagnosed with CP and has more recently developed seizures. It's hartd to handle sometimes. I am also currently 36 weeks...
Hi, My son also has seizures (both while awake and while asleep) and I agree it can be very overwhelming dealing with it all. My only advise right now would be...
Thank you. I will look into TEFRA medicaid. We luckily have excellent insurance and have already reached our out of pocket annual deductable. How is your...
Hi Elizabeth- My name is also Elizabeth! My 2yr old son Geoffrey was diagnosed with cp after an MRI at 11months old. He had high tone and was a preemie so we...
My first step was to call baby net and set up services for her therapy. We set up physical, occupational, and speech. Amanda ... I'd love any advice on the...
... Thank you. I will look into TEFRA medicaid. We luckily have excellent insurance and have already reached our out of pocket annual deductable. How is your...
Rex is my only and he is a miracle. We lost four before he was born. He is showing signs of Autism as well. I'm scared too, but am being strong for him and...
We were trying to have another but the news from Wed. has kind of made us re-think it. It is so much to learn and take in. I try to be the strong one but...
I am an occupational therapy assistant and I work in settings where I treat kiddos with CP and autism. Most however are school aged. I know that the majority...
You are so welcome. Keep in mind that you can always post questions, I may not always know the answers, but I have resources. You seem to be doing a great...
This section of this book was very helpful to me in understanding my son. Most of it describes him and his reactions exactly. This is an excerpt from: ...
... over come she had a stage 3 brain bleed , a pda ligation on her heart, hydrosfolic. subgaleal shunt, and we were told she would never funtion normally.At...
Thank you for the words of encouragement, it means a lot. I have an update about our son Rex. He has been well for a couple weeks now and is starting to army...
... hope.Does REx sissor with his legs? Moriah does and tipie toes so when we get the feet flat she will be off.I"l keep praying, And remember speek positives...
Hi, No he doesn't scissor his legs or stand on his tip toes. He puts most of his weight on his heels actually. I started taking him to a message therapist...
Hi my name is Doxie. In 1990, I adopted a boy 8 years old that is said to be in constant seizure activity. Jeremiah was born with extensive brain damage....
Hi Elizabeth how you doing this fine HOT morning?Moriah is doing wellhad to have new AFO's because she grew out of her's in less than 3 months.She has pt and...
Hi, We are hanging in. Our live in nanny was shaking Rex and we caught it on tape last week. We called the Sheriff, who is not going to press criminal...
I need help! My son Nick is 5 years old and has spastic diplegic cp. He can walk with a walker but cannot talk. I have been potty training since the middle of...
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