Hey Everyone, I have severe incontinence all my life,. I also have Cerebral Palsy .I have tried all the overactive bladder medicaine,and muscle relaxer none ...
Hello my name is Connie. I have a 3 year old with cp. She drools a lot. But the dentist told us that, that's a good thing. She has never had a cavity. But we...
Hi Connie. That whole choking thing is so scary! And I'm glad to hear that your daughter has no cavities! J has had three and no matter how much we brush the...
Sue- Just got back from the doc. We got a great report! For once he didn't seem to be in too much of a rush and answered all of my questions. We also got a...
Staci: Just a quick note to say that is great news!!! I am sooooooo glad things worked out for you. I hope your IEP goes well too. We did Kelly's IEP last...
Hi Mitch, I have seen the big keyboards and will probably get one someday. Most of what he does on the computer is play reader rabbit and other learning...
Hi staci, First of all I think you have to find a good orthepedic doctor that specializes in botox therapy for children with CP and willing to spend much time...
Hi Sue, I fill the same way when I see a child worse than my own and thank God this is all I have to deal with. Yes, Cameron gets O.T and P.T. I always have...
Staci, I know just how you feel. Myah chokes at times too. Does J do ok with chewing? We do a lot of oral stimulation therapy with Myah. Have since she was 8...
Jim- Thanks for the info. Our doc said on Friday that since J is in the middle of a growth spurt, now would not be the right time. But he said it's something...
Connie- J usually only chokes when drinking. Whether it's through a straw or just out of a cup. I figured out that she's sucking the liquid into her mouth but...
hi there My name is Lisa and my daughter Bethany is 6 and has athetoid cerebral palsy,profound deafness and a cochlear implant. Could do with people to have a...
Welcome Lisa! My name is Staci and I'm new here too. This is a great place! Lots of nice people with lots of information and understanding. We fight a lot in...
Hi staci I used to get upset about all the fighting but now i just find it funny! I won't back down and will use anything in my power to get what bethany...
Hi, Everyone: I am not sure if this will help everyone but I was thinking back to when Kelly was younger and some of the things we use to do and I remember one...
Lisa- I know the feeling of being isolated. Parents with "normal" kids either can't understand or feel guilty. I had a preganant friend who stopped coiming...
Sue- The swing and the swimming thing have been great for J! She loves it. She can finally move almost as fast as her siblings in the pool, plus with no weight...
Hey Staci: I will not see my speech therapist until Next Wed. to find out more about the Botox but as soon as I do I will let you know. I am not sure if I...
Hi Staci and Sue, I been reading your discusion about Botox and drooling. Cameron has been taking Botox shots for almost three years. One of the side effects...
Sue- I know exactly what you mean about not wanting to see her get shots in the face. Then I read Jim's thing about how Botox helped with Cameron's speech and...
Jim- I was thrilled to hear that one of the side effects/affects (never sure which one to use) was better speech! I had never heard that about Botox before but...
Hi, I too would be interested in hearing about anyone's successes (or not?!) with Botox and drooling. Our son has a severe drooling problem. He wears up to...
Hi Laura: How old is your son? Kelly is 10 and she drools alot at times. She is on Med. to help control it and at times it does seem to work but right now I...
HI, Jim: Thanks for the input about the botox. How often does Cameron get the shots and what part of the body are they given in? Kelly does not talk however...
Hey Staci: What did your doc. and speech therapist say about the botox? I am going to check it out too. It would be great if it would help Kelly speek even...
Sue- Haven't gotten a call back from anyone about the Botox yet, it's the usual waiting game! There is an oral form of Botox so they don't have to get the...
Today had to be one of the worst days since J came to live with us. Her physical therapist called to say he didn't think seeing her weekly was going to help...
Staci: I am so sorry you are having such a bad day my heart goes out to you!!! I to was having a bad day but not like yours. Kelly is just in a very crabby...
Sue- Thanks for the shoulder! That was only our first try for the ramp, I should have expected the DENIED letter. It's the first one they send out every time...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
