There was some brief discussion of my son getting a gj tube several years ago for the same reason.  However, with the right mix of anti-reflux meds and with a continuous feed pump where we programmed the pump to deliver about 130 ml per hour over the course of the day it worked quite well.  Has your son been tried with a continuous feed of small amounts vs. bolus feed? My son turned into a veritable fountain with a bolus feed.  The dietician arrived during one of the feeds and took one look at hims and said "this is not okay".  We had a pump the next day.

 

As well, even with the g tube and pump we have had episodes of fairly bad vomiting until we sorted out his reflux meds. 

 

My understanding of a gj tube is limited however I believe that they run the tube from the g tube site into the jejunum (just past the stomach into the small intestine).  The gj tube must be replaced by a doc with an x-ray as opposed to just changing the MicKey in your own home when it falls out.  The other thing I understand about the gj is that the small intestine cannot handle large amounts of food and a continuous feed of small amounts then has to happen vs bolus feeds. 

 

I think you have both my phone number and e-mail address.  If you want to talk, just call.

 

Take care,

 

Laura

quadriplegiccpmommy <quadriplegiccpmommy@...> wrote: