Totally with you!
Austism is all over the news anymore, but you never hear about CP. A
close second to autism is Down Syndrome. Around here they are always
having fund raisers for Down Syndrome.
I would love to see a CP Awareness month. Would UCP help anything
with getting that pushed?
Whatever we need to do I am there to help push!
Hope Cody is doing well.
Like you, we were never told by any orthopaedic about Selective
Dorsal Rhizotomy. Just so happened our developmental pediatrician
mentioned it, I researched and researched, prayed and prayed and we
were lead to our neurosurgeon, and Praise God, it has been the best
thing we could have ever done for James.
Okay, now another thing, how can we get this jerk that is
advertising "junk" off our web site!
Sharon


--- In cerebral_palsy_support@yahoogroups.com, "odyton03"
<odyton03@...> wrote:
>
> Okay ladies and gentlmen, when are we going to start standing up
for
> our kids the way autistic parents have in the recent years, I am
> getting so SICK and tired of hearing Autism this and Autism that, I
> am tired of the Reds dedicating parade floats, and games for Autism
> Awareness, and we don't even have a CP Awarness month day anything.
> Autism is on commercials, it was even a topic of discussion on
Oprah
> the other day. The only support system at least that I have is
this
> online group that is violated by solicitors and jerks trying to
sell
> Penis cream. When do we get serious about this? the UCP does
nothing
> to help the young kids they are there mostly at least around here
to
> help the older adults, Cody just had selective dorsal rhyzotomy
> surgery no one mentioned it to us or pointed us in that direction I
> just happen to stumble on it on the web and started the process on
my
> own, there needs to be more information out there readily available
> for all about this thing, I met a mom the other day at Cody's
> preschool her son has CP and she knows NOTHING about it, and the
kid
> is 3 years old. How does you kid get to be 3 and you know nothing
> about it???? Because there is no group taking charge and making
sure
> that kids don't get lost in the cracks some how. How can we change
> this? How do we get a CP awareness month, how do we get more
> research money? WRITE WRITE WRITE to those congress men, Did you
> know that the CDC gives no money what so ever for research for CP?
> there is a group out there called Reaching for the Stars, their web
> page is Reachingforthestars.org they are on the right path, and
they
> are making national changes, but we need to come together as
parents,
> grandparents, aunts, uncles who ever and make some changes in our
> local communities to get the buzz going. And I am not sure how to
do
> that, so we need to start talking about it, and making some plans,
IS
> ANYONE WITH ME????
>