I Agree!! There is a group also called ourCPkids you should write this on
their too. I have 2 sons who are total care both have CP because of
different reasons and yes I had to "go looking" and figure out who to take
to what Dr and which Dr does this or that. There is a lot of porn
advertisement on OurCPkids too. Jena
----- Original Message -----
From: "odyton03" <odyton03@...>
To: <cerebral_palsy_support@yahoogroups.com>
Sent: Monday, April 09, 2007 4:00 PM
Subject: [cerebral_palsy_support] Getting fed up fast


> Okay ladies and gentlmen, when are we going to start standing up for
> our kids the way autistic parents have in the recent years, I am
> getting so SICK and tired of hearing Autism this and Autism that, I
> am tired of the Reds dedicating parade floats, and games for Autism
> Awareness, and we don't even have a CP Awarness month day anything.
> Autism is on commercials, it was even a topic of discussion on Oprah
> the other day. The only support system at least that I have is this
> online group that is violated by solicitors and jerks trying to sell
> Penis cream. When do we get serious about this? the UCP does nothing
> to help the young kids they are there mostly at least around here to
> help the older adults, Cody just had selective dorsal rhyzotomy
> surgery no one mentioned it to us or pointed us in that direction I
> just happen to stumble on it on the web and started the process on my
> own, there needs to be more information out there readily available
> for all about this thing, I met a mom the other day at Cody's
> preschool her son has CP and she knows NOTHING about it, and the kid
> is 3 years old. How does you kid get to be 3 and you know nothing
> about it???? Because there is no group taking charge and making sure
> that kids don't get lost in the cracks some how. How can we change
> this? How do we get a CP awareness month, how do we get more
> research money? WRITE WRITE WRITE to those congress men, Did you
> know that the CDC gives no money what so ever for research for CP?
> there is a group out there called Reaching for the Stars, their web
> page is Reachingforthestars.org they are on the right path, and they
> are making national changes, but we need to come together as parents,
> grandparents, aunts, uncles who ever and make some changes in our
> local communities to get the buzz going. And I am not sure how to do
> that, so we need to start talking about it, and making some plans, IS
> ANYONE WITH ME????
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> Yahoo! Groups Links
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