Okay ladies and gentlmen, when are we going to start standing up for
our kids the way autistic parents have in the recent years, I am
getting so SICK and tired of hearing Autism this and Autism that, I
am tired of the Reds dedicating parade floats, and games for Autism
Awareness, and we don't even have a CP Awarness month day anything.
Autism is on commercials, it was even a topic of discussion on Oprah
the other day. The only support system at least that I have is this
online group that is violated by solicitors and jerks trying to sell
Penis cream. When do we get serious about this? the UCP does nothing
to help the young kids they are there mostly at least around here to
help the older adults, Cody just had selective dorsal rhyzotomy
surgery no one mentioned it to us or pointed us in that direction I
just happen to stumble on it on the web and started the process on my
own, there needs to be more information out there readily available
for all about this thing, I met a mom the other day at Cody's
preschool her son has CP and she knows NOTHING about it, and the kid
is 3 years old. How does you kid get to be 3 and you know nothing
about it???? Because there is no group taking charge and making sure
that kids don't get lost in the cracks some how. How can we change
this? How do we get a CP awareness month, how do we get more
research money? WRITE WRITE WRITE to those congress men, Did you
know that the CDC gives no money what so ever for research for CP?
there is a group out there called Reaching for the Stars, their web
page is Reachingforthestars.org they are on the right path, and they
are making national changes, but we need to come together as parents,
grandparents, aunts, uncles who ever and make some changes in our
local communities to get the buzz going. And I am not sure how to do
that, so we need to start talking about it, and making some plans, IS
ANYONE WITH ME????