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Reply | Forward Message #43 of 525 |
Re: [cerebral_palsy_support] need some information

hello all,

my story is alot like Christines. my son is 4 now and
had an MRI that read normal, no brain damage. then i
got him an EMG that showed a muscle disorder. i've
been going down some roads trying to get a diagnosis
for him. people tell me there may not be a dianosis.
i refuse to give up on this.


My sons speach is hard to understand (but getting
better) he cannot jump nor get on tippy toes, he has
to hold on the the rail when walking up stairs. he
has a developmental delay and slobbers alot too. the
nuerologist i've seen, prescribed inserts for ankle
and foot support. we have an appt with the CP clinic
at primary childrens hospital in June. i'm so excited!


at birth he too was without oxygen for what seemed
forever and was put into NICU for about 5-6 hours
until he could breath on his own. during the time
that they were working on him trying to get him to
breath, there was talk that the nubane given to me
made him lithargic and the proper meds werent given to
counter act it for the baby. Keegan was also born
with clubfoot on both feet. its been a long road for
us. but like i said. i wont give up.

thanks,
(keegans mom) Sunny

--- james lawson <tazmania571@...> wrote:
> Hello Christine. My name is James and I also have a
> son with cerebral palsy. His is severe and he also
> has never had anything show up on his MRI's or cat
> scans. CP can be mild, moderate or severe. From the
> brief description you gave, it sounds like your son
> could very possibly have CP. It is definitely worth
> looking into. Hope this is of some help.
>
> Sincerely,
> James
>
> Christine <imamama4three@...> wrote:
> Hello to all! My name is Christy and I need some
> information about
> cerebral palsy. My son EJ is about to be 6 years
> old. He has had
> a "developmental delay" since he first started
> tryingf to move and
> talk. They have done MRIs and Xrays and they could
> never figure out
> what the problem was. My doctors seem to take a
> "wait and see"
> attitude. My son has trouble with balance, speech,
> fine motor, and
> large motor skills. NOW his LD and Speech teachers
> at school ask if
> the doctors have ever mentioned cerebral palsy.
> They mentioned it a
> long time ago, but the MRI showed nothing so they
> threw it out. The LD
> teacher has a daughter with cerebral palsy and says
> that EJ exhibits
> all of the same symptoms as her daughter. Can
> cerebral palsy be mild?
> Her daughters also did not show up on the MRI. Is
> it possible that he
> could be diagnosed with this after 6 years?
> Basically, he cannot write
> correctly, use scissors, falls down a lot, is
> pigeon-toed, and his
> speech is often not understood by other people
> besides his family. His
> birth history is not a good one. He was without
> oxygen for 2 minutes
> after he was out and has meconium aspiration and the
> cord was wrapped
> around twice tightly. Any insight would be great!
>
>
>
>
> ---------------------------------
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Wed May 11, 2005 9:20 pm

gesshooo99
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Message #43 of 525 |
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Hello to all! My name is Christy and I need some information about cerebral palsy. My son EJ is about to be 6 years old. He has had a "developmental delay"...
Christine
imamama4three
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May 10, 2005
4:59 pm

Hello Christine. My name is James and I also have a son with cerebral palsy. His is severe and he also has never had anything show up on his MRI's or cat...
james lawson
tazmania571
Offline Send Email
May 10, 2005
5:08 pm

hello all, my story is alot like Christines. my son is 4 now and had an MRI that read normal, no brain damage. then i got him an EMG that showed a muscle...
Sunny
gesshooo99
Online Now Send Email
May 11, 2005
9:20 pm

Hello my name is Connie and I have a 3 year old daughter with severe spastic dystonia cp. I wanted to say to you christy, don't give up. There is such a large...
connie
cmhottle
Offline Send Email
May 31, 2005
4:22 am
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