Cody has only had 2 noticable siezures at night while we were in bed, the first one was when I first really discovered he was having them, I was sleeping in his bed with him the weeks following his G tube placement, and woke up to him twitching, I too freaked out.  The last one he had at night was just the day after Christmas, and I knew he was having one because this time it came with screaming which obviously got my attention, I had to call 911 because it was going too long, and it was a different seizure then before, with the screaming and all, I thought it might have something to do with his Shunt for his hydrocephalus, but it was determined it was a siezure due to all the excitement at christmas.  Kids tend to have more siezure activity when they are tired or have had a busy day that is why they get them at night and that is why when you have an eeg they like them to be sleep deprived for the test.  Have they put her on any meds?  Cody now has to have Trileptal twice a day and we have diastat for emergencies.  If you are really worried about it, you could ask them to do a sleep study with an EEG.  But I wouldn't really worry too much about choking unless she has something in her mouth,  they can't choke on their spit, but if she vomits after, then that can be a problem, because sometimes they go into a deep sleep after a big siezure, Cody does, maybe you could buy one of those new high tech baby monitors that have the sensors on them, so if she starts moving rapidly the alarm could go off I don't know if that will work or not, I know that they are suppose to alert if a baby stops breathing, could be worth some research with other kinds of bed monitors I know the exist for epileptics but I don't know how expensive they are or anything.  But I would start with requesting a sleep study, and if your doc doesn't cooperate I would get a second opinion, does she see a neurologist?  That's where I would start.  Otherwise you could end up like me thinking it is no big deal and months down the road she has mulitple tics one after another and boom free ticket to an ambulance and a hospital stay.  Hope that helps, keep us posted.  Michelle

temp_mom <temp_mom@...> wrote:

It has been an eventful week. Ive been sick with the flu and Moriah
had her 2nd seizure. she is fine but it happened while we were all
sleeping. We have no idea how long it had been going on. But Praise
God she is fine, no worse for wear.it is so scarry. my oldest son went
to get her up and she was seizing scared him so bad.he thought she was
going to die. between him and Rudy and Me we looked like chickens with
our heads cut off not a pretty sight I might say.The drs. act like it
isnt no big deal...Im atraid to sleep for fear of her choking and me
not being there to help her. Has anyone else been through this ??? I
can sure use some info..

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