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hi all   Message List  
Reply | Forward Message #424 of 525 |
Re: hi all

Sandra,
Sounds like you guys have really had an eventful week. We've never
experienced seizures, I think if we do I will be crazy.
We will be praying for you guys, I can feel what you say about not
wanting to sleep, I would be the same way.
James has caught a stomach virus, it started today. Here in NC the
stomach virus is running rampant.
James has strabismus, it seems to be common in CP kids from what the
eye Dr. says, his eyes turn out some, the left worse than the right,
the eye Dr. wants to do surgery. Say's it's nothing we have to do
right away, but would suggest it be down before he starts school. It
seems like everytime we turn around they are wanting to do something
else to him.
On a good note, we think he will get to do another year of head start
(pre-K in some areas). The way his birthday falls on Sept 30th, our
school system says he should be in Kindegarten next year because he'll
be 5 on the 30th of Sept. This would make him the youngest in the
class, and James is severely delayed. We feel very strong about
another year of head start, not because we don't want our "baby" going
to kindegarten, but because it would not benefit James at this time.
He needs a little more time to develop his social skills/potty
training/communication skills/cognitive skills, etc. So I am pleased
that the head start program is finally willing to hear my plea. Also,
our Drs. and therapist feel that another year of head start would be in
James best interest.
Hope everyone has a great weekend!
Sandra, hope you get some rest!
Sharon
--- In cerebral_palsy_support@yahoogroups.com, "temp_mom"
<temp_mom@...> wrote:
>
> It has been an eventful week. Ive been sick with the flu and Moriah
> had her 2nd seizure. she is fine but it happened while we were all
> sleeping. We have no idea how long it had been going on. But Praise
> God she is fine, no worse for wear.it is so scarry. my oldest son
went
> to get her up and she was seizing scared him so bad.he thought she
was
> going to die. between him and Rudy and Me we looked like chickens
with
> our heads cut off not a pretty sight I might say.The drs. act like it
> isnt no big deal...Im atraid to sleep for fear of her choking and me
> not being there to help her. Has anyone else been through this ??? I
> can sure use some info..
>





Sat Feb 24, 2007 2:26 am

smjball
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Message #424 of 525 |
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iT WAS GOOD TO HEAR jAMES IS DOING WELL AND HOPEFULLY HOME BY THIS POST.MORIAH GOT HER CAST TODAY LOWER LEGS.SHE HAS A 8 DEGREE INCREASE IN HER ROM(RANGE OF...
temp_mom
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Nov 15, 2006
10:57 pm

Glad to hear Moriahs good report! We have made it home from the hospital, we were discharged on Tues. How great it is to be at home in my bed, those hospitals...
Sharon
smjball
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Nov 16, 2006
3:49 am

It has been an eventful week. Ive been sick with the flu and Moriah had her 2nd seizure. she is fine but it happened while we were all sleeping. We have no...
temp_mom
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Feb 23, 2007
10:54 pm

Sandra, Sounds like you guys have really had an eventful week. We've never experienced seizures, I think if we do I will be crazy. We will be praying for you...
Sharon
smjball
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Feb 24, 2007
2:27 am

Cody has only had 2 noticable siezures at night while we were in bed, the first one was when I first really discovered he was having them, I was sleeping in...
Michelle Carroll
odyton03
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Feb 24, 2007
2:27 pm

-Thanks for all the advice Michelle you gave me a lot to think about. Moriah also had a shunt but they revised it(removed ) it a year ago. she had her first...
temp_mom
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Feb 24, 2007
6:31 pm

Hello all, I mostly lurk on this group discussion but periodically jump on to chat. My son has severe CP and mental retardation. He also has breathing...
Laura MacGregor
lmac1016
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Mar 4, 2007
1:54 pm
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