Hi Misty, my name is Sharon and I just joined this support group
today.
My sound is 3 1/2 and has spastic diplegic cp. We found out when he
was 1 also.
We have had 3 sets of botox injections over the last year and they
have worked great, but wear off quickly.
My son is actually going to be having a surgery in Nov. Selective
Dorsal Rhizotomy. I've researched it and feel really good about
it. It helps permanently relieve the tightness in most kids, with
the kind of cp my child has the drs say he is the ideal candidate
and maybe your son is also. St.Louis Childrens Hospital has an
excellent sight to research about SDR. We live in NC and will be
having surgery in Charlotte.
Best of luck to you!
Sharon

--- In cerebral_palsy_support@yahoogroups.com, "mistyhelt"
<mistyhelt@...> wrote:
>
> My son was diagnosed with cp at 1 and I am a single mom trying to
deal
> with this on my own and it has been really hard sometimes. I have
had
> moments where it seemd like it is too much to handle and then I
look
> and him and realize if he can continue fighting then the least I
can
> do is be there with him and help him fight. He currently gets all
3
> therapies and we have started botox I am not sure what else I can
do
> to help him or if there are any other options. If you could help
me
> with this I would appreciate it. My name is Misty and my sons
name is
> Ernie he is now 2 1/2. He does not walk and wants to potty train
and
> so we have been trying I just dont know what else to do for him.
I am
> so glad that I found this group I really need the support.
>