Elizabeth I posted pics of Moriah if you would like to see my
miricle baby--- In cerebral_palsy_support@yahoogroups.com, Elizabeth
Brody <ebrody@...> wrote:
>
> Hi, We are hanging in. Our live in nanny was shaking Rex and we
caught
> it on tape last week. We called the Sheriff, who is not going to
press
> criminal charges, too hard to prove criminal intent. It could be
the
> cause of some of his regression and delays, but we can't prove
> anything. I want to scream, but can't. The good thing is that
she is
> gone, he has Dave and I and is loving all the attention.
> Rex gets PT, OT, and will begin Speech. They are going to do a
swallow
> study soon too. His water therapy is motivating him to move
towards
> toys we put just out of his reach or by passing him back and forth
> between us. We also hold his sacrum and lower back at the pelvis
while
> he is on his back and gently rock him to help his back and neck
loosen
> up. Massage for your daughter can't hurt and may help loosen her
up, it
> really relaxes Rex and he falls into a deep restful sleep every
time.
> He gets all over body massage and some head massage called cranial
> sacral. Rex will be 16 months on the 4th, he can be demanding
too. He
> is starting to imitate us and roll the ball back to us, so his
cognitive
> thinking is beginning to kick in finally. Our appointments at
Stanford
> are 2 weeks away, wish us luck!
> How are things with Moriah?
>
> temp_mom wrote:
>
> > Hi Elizabeth how you doing this fine HOT morning?Moriah is doing
> > wellhad to have new AFO's because she grew out of her's in less
than
> > 3 months.She has pt and speech only. but im very intrested in the
> > water therapy. we are getting a pool this week is it something we
> > can do or does it have to be a profesional? I have a friend that
ia
> > a massage therpist for adults or would it matter? You mentioned
oid
> > what kind? sorry so many questions Lol but if it works for you
maybe
> > it will for Moriah.How old is Rex now Mriah is 20 months and is a
> > pistol. she is a little delayed but is ver smart they say she is
> > fine no MR . but we have some woor to do .look forw
> >
> > --- In cerebral_palsy_support@yahoogroups.com
> > <mailto:cerebral_palsy_support%40yahoogroups.com>, Elizabeth
Brody
> > <ebrody@> wrote:
> > >
> > > Hi, No he doesn't scissor his legs or stand on his tip toes. He
> > puts
> > > most of his weight on his heels actually. I started taking him
to
> > a
> > > message therapist this week who also does cranial sacral. We
saw
> > an
> > > actual release of his neck muscles when she did this that
> > lengthened his
> > > neck then he slept very sound. We are also doing a ton of water
> > therapy
> > > and added some essential oil use to his routine. We only work
> > with him
> > > while he is comfortable with what we are doing, so far he
enjoys
> > all of
> > > these additional therapies. He is now getting 3 physical
therapy
> > > sessions a week too. How is your daughter doing? Have you tried
> > water
> > > therapy? It seems to have made significant and quick
improvement
> > for Rex.
> > >
> > >
> > > temp_mom wrote:
> > >
> > > > --- In cerebral_palsy_support@yahoogroups.com
> > <mailto:cerebral_palsy_support%40yahoogroups.com>
> > > > <mailto:cerebral_palsy_support%40yahoogroups.com>, Elizabeth
> > Brody
> > > > <ebrody@> wrote:
> > > > >
> > > > >Wonderful news Elizabeth. You know all we have is faith and
> > > > hope.Does REx sissor with his legs? Moriah does and tipie
toes so
> > > > when we get the feet flat she will be off.I"l keep praying,
And
> > > > remember speek positives over your son and let no one else
> > either.
> > > > He is going to do great!!!!!!!Thank you for the words of
> > > > encouragement, it means a lot. I have an
> > > > > update about our son Rex. He has been well for a couple
weeks
> > now
> > > > and
> > > > > is starting to army crawl, bear weight on his arms, stand
> > leaning
> > > > on
> > > > > things for minutes straight, he pulls himself up with only
a
> > > > little help
> > > > > for balance. He will even take steps if we urge him while
we
> > hold
> > > > him.
> > > > > It looks like he will walk! His therapists are not
convinced he
> > > > has CP
> > > > > or mental retardation. He does not fit with what they know
> > about
> > > > either
> > > > > and they have 50 years experience between the two of them.
A
> > new
> > > > > neurologist saw him, spent over two hours with him and did
not
> > > > think he
> > > > > has CP either. The original diagnosis was given after a 5
> > minute
> > > > exam.
> > > > > The new doctor said he is at high risk for mental
retardation
> > due
> > > > to his
> > > > > head size. We will not know about this for sure until he
is 5-6
> > > > years
> > > > > old and can take IQ tests. So even though he is still
delayed
> > > > things
> > > > > look more positive than they did a couple weeks ago.
> > > > >
> > > > > temp_mom wrote:
> > > > >
> > > > > > --- In cerebral_palsy_support@yahoogroups.com
> > <mailto:cerebral_palsy_support%40yahoogroups.com>
> > > > <mailto:cerebral_palsy_support%40yahoogroups.com>
> > > > > > <mailto:cerebral_palsy_support%
40yahoogroups.com>, "rex_mom"
> > > > > > <ebrody@> wrote:
> > > > > > >HI.My daughter was born at 26 weeks, she had a lot of
> > things to
> > > > > > over come she had a stage 3 brain bleed , a pda ligation
on
> > her
> > > > > > heart, hydrosfolic. subgaleal shunt, and we were told she
> > would
> > > > > > never funtion normally.At 13 months we were told she had
> > cp.we
> > > > were
> > > > > > in total shock.BUT!!!! by the grace of God she is doing
> > great NO
> > > > > > mental retardition. she is a little behind but is doing
well
> > she
> > > > can
> > > > > > crawl and walk around everything holding on, we hope she
will
> > > > walk
> > > > > > soon.What Im get around to is The Drs told us the same
thing,
> > > > gloom
> > > > > > and doom!! and look were she is now at 20 months .They
can
> > say
> > > > > > anything but the truth is that they just DON't know how
> > things
> > > > will
> > > > > > turn out.Honey we love these kids no matter what and we
all
> > as
> > > > > > parents will do what ever we have to to help these gifts
from
> > > > > > God.Have Faith and don't give up and find time each day
for a
> > > > > > breather even a very short one it will help you cope with
> > > > > > everything.Rember your little one will be the best she
can be
> > > > what
> > > > > > ever that is for her or him. Take care and know you are
not
> > > > alone.
> > > > > > > Hi,
> > > > > > > We got hit with the dagnosis of Hypotonia Cerebral
Palsy
> > today
> > > > for
> > > > > > our
> > > > > > > 14 month old, Rex. It's the first we heard this was a
> > > > possibility
> > > > > > even
> > > > > > > though we knew he had low tone. He's been in Early
> > Intervention
> > > > > > > services since he was 3 months. Have any others
children
> > been
> > > > > > > diagnosed this early? What tests were run first? Does
> > anyone
> > > > know
> > > > > > > how we can determine how severe it will be for him and
when
> > > > we'll
> > > > > > know
> > > > > > > this? Do any others have retardation as well, the
doctor
> > > > mentioned
> > > > > > > this as a possibility? Anything you can share would be
> > > > > > appreciated.
> > > > > > > I am scared of the unknown, and that is all there is
right
> > now
> > > > for
> > > > > > me,
> > > > > > > too many questions and not any answers. The doctor was
> > vague
> > > > > > except
> > > > > > > to paint a doom and gloom picture. He told us Rex
would be
> > > > > > dependant
> > > > > > > for life and most likely retarded too. I'm going to
get a
> > > > second
> > > > > > > opinion, so anything you can tell me will help when I
meet
> > > > with the
> > > > > > > new doctor. What should I look for? What should I ask
the
> > > > > > doctor?
> > > > > > > Are there any tests I need to have done? He's had an
MRI
> > and
> > > > EEG,
> > > > > > > both normal. Thanks for your input.
> > > > > > > Elizabeth
> > > > > > >
> > > > > >
> > > > > >
> > > > >
> > > >
> > > >
> > >
> >
> >
>