--- In cerebral_palsy_support@yahoogroups.com, "rex_mom"
<ebrody@...> wrote:
>HI.My daughter was born at 26 weeks, she had a lot of things to
over come she had a stage 3 brain bleed , a pda ligation on her
heart, hydrosfolic. subgaleal shunt, and we were told she would
never funtion normally.At 13 months we were told she had cp.we were
in total shock.BUT!!!! by the grace of God she is doing great NO
mental retardition. she is a little behind but is doing well she can
crawl and walk around everything holding on, we hope she will walk
soon.What Im get around to is The Drs told us the same thing, gloom
and doom!! and look were she is now at 20 months .They can say
anything but the truth is that they just DON't know how things will
turn out.Honey we love these kids no matter what and we all as
parents will do what ever we have to to help these gifts from
God.Have Faith and don't give up and find time each day for a
breather even a very short one it will help you cope with
everything.Rember your little one will be the best she can be what
ever that is for her or him. Take care and know you are not alone.
> Hi,
> We got hit with the dagnosis of Hypotonia Cerebral Palsy today for
our
> 14 month old, Rex. It's the first we heard this was a possibility
even
> though we knew he had low tone. He's been in Early Intervention
> services since he was 3 months. Have any others children been
> diagnosed this early? What tests were run first? Does anyone know
> how we can determine how severe it will be for him and when we'll
know
> this? Do any others have retardation as well, the doctor mentioned
> this as a possibility? Anything you can share would be
appreciated.
> I am scared of the unknown, and that is all there is right now for
me,
> too many questions and not any answers. The doctor was vague
except
> to paint a doom and gloom picture. He told us Rex would be
dependant
> for life and most likely retarded too. I'm going to get a second
> opinion, so anything you can tell me will help when I meet with the
> new doctor. What should I look for? What should I ask the
doctor?
> Are there any tests I need to have done? He's had an MRI and EEG,
> both normal. Thanks for your input.
> Elizabeth
>