> Hi my name is Amanda. I have a 19 month old with cp. She was diagnosed at 13
months. I understand, we didn't expect it either. Where did you go to get your
diagnosis? We had mri and eeg done also and they were normal, but she had a
little front lobe damage. I think you are doing everything right now since you
are already getting therapy. You can now apply for TEFRA it is medicaid for
children with disabilities. I hope this helps. I will try to answer any
questions you have. Amanda
> From: "rex_mom" <ebrody@...>
> Date: 2006/05/26 Fri AM 03:18:13 CDT
> To: cerebral_palsy_support@yahoogroups.com
> Subject: [cerebral_palsy_support] Newly Diagnosed
>
>

Hi,
We got hit with the dagnosis of Hypotonia Cerebral Palsy today for our
14 month old, Rex. It's the first we heard this was a possibility even
though we knew he had low tone.  He's been in Early Intervention
services since he was 3 months.  Have any others children been
diagnosed this early?  What tests were run first?  Does anyone know
how we can determine how severe it will be for him and when we'll know
this?  Do any others have retardation as well, the doctor mentioned
this as a possibility?  Anything you can share would be appreciated.
I am scared of the unknown, and that is all there is right now for me,
too many questions and not any answers.  The doctor was vague except
to paint a doom and gloom picture.  He told us Rex would be dependant
for life and most likely retarded too.  I'm going to get a second
opinion, so anything you can tell me will help when I meet with the
new doctor.  What should I look for?  What should I ask the doctor?
Are there any tests I need to have done?  He's had an MRI and EEG,
both normal. Thanks for your input.
Elizabeth