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Reply | Forward Message #178 of 525 |
Re: New to Group

Thanks to Everyone for your kind thoughts and prayers. Jack has had
tests pretty much from the minute he was born. When he was born, he
wasn't breathing and almost immediately started having seizures.
Apparently he was almost totally cut off from blood flow/ oxygen in
utero. He has had two EEG's (because of the seizures) and 2 MRI's
one when he was in the NICU (he was there 12 days) and one about two
weeks after he came home. He is seeing a pediatric neurologist and
will be seeing a developemental specialist in Jan. When we went for
his last appt. at the neurologist he showed us Jack's MRI compared to
a "normal" baby of the same age. There is a very noticable
difference. Some of the screens didn't even show up because there is
so much damage. It is easy to see that there is not much there.
That is why they already say he has CP. We are keeping the faith
though. We know this happened for some reason...just not sure why
yet!! Take care,
Allison
--- In cerebral_palsy_support@yahoogroups.com, cmhottle@a... wrote:
>
> Hello Allison,
> My name is Connie. I have a 31/2 years old daughter with quad. CP.
I really
> hate to say this, but I must. Doctors are not always right. If I
were you I
> would take him to some specialists that deal with cp. And I didn't
think that
> they were aloud to tell you if they feel your child will walk or
not. I'm
> sorry, but that is just wrong. My daughter is unable to do
anything for herself
> but tries very hard.If your son is already showing signs of
achieving mile
> stones, than I would listen to his body, not the docs. How many
tests have they
> done for your son? What are they? And do you go to a Children's
Hospital?
> I'd like to keep in touch if you would. Write me anytime! God
Bless! Connie
>







Mon Nov 7, 2005 1:47 am

gordoswife
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Message #178 of 525 |
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Hello All, My name is Allison. My son Jack is 8 weeks old and has been diagnosed with very severe CP. We are told he will never walk or talk. and will ...
gordoswife
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Oct 21, 2005
4:08 am

Hello Allison, My name is Connie. I have a 31/2 years old daughter with quad. CP. I really hate to say this, but I must. Doctors are not always right. If I...
cmhottle@...
cmhottle
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Oct 21, 2005
2:05 pm

Thanks to Everyone for your kind thoughts and prayers. Jack has had tests pretty much from the minute he was born. When he was born, he wasn't breathing and...
gordoswife
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Nov 7, 2005
1:59 am

Hi, I an generally a "lurker" but every once in a while I jump in. Your story sounds very similar to mine. My son was completely without oxygen for about 20...
Laura MacGregor
lmac1016
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Nov 8, 2005
12:04 am

Hi Allison- My son Konnor was diagnosed with spastic quad cp just before his first birthday. He is now 15 months old and still can not sit on his own. The...
lisa goeden
lisa4ken
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Oct 21, 2005
5:07 pm

Hi, Allison: First I want to say my heart and prayers go out to you and your family. I have a 10 yr old who has mild C.P. SHe can walk but not talk. Now I do...
Sue Yoder
susiekemp2002
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Oct 21, 2005
6:33 pm
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