hello, all.... i switched to the mirage swift nasal pillows mask for cpap... after unsuccessfully trying several masks, i was able to use the nasalaire...
Hi, I was just diagnosed with fibromyalgia. I was diagnosed with narcolepsy three years ago, and I guess this came as a surprise. I thought that I had...
Hey everyone, I just signed up with this support group. Just wondering if any of you are having problems with gaining weight after your dianosis? Since my...
Sarah, The short term memory loss was one of the first things (other than falling asleep everywhere!) to clue me in that something was wrong. I still feel like...
I was just wondering what side effects some of us have had while taking provigil. I was on another site and most every one talked about short term memory...
hello: I was wondering if there are any support groups in the cleveland area? I was diagnosed in 2003 with nacolepsy and it's really starting to get to me. I...
Hi Everybody-- I want to remind you that our annual potluck picnic is coming up soon. I hope you will be able to come. We are going to have it at Whetstone...
Hi all, I've been a sort of silent member for awhile. Grad school, a new city and relationship, and learning about my narcolepsy pretty much took up all my...
I have had degenerative spinal disease for over 20 years and have had trouble sleeping and having nightmares. A couple of years ago I found a site to purchase...
JULY – AUGUST – SEPTEMBER 2004 3rd QUARTER MEETING NOTICE *PLEASE POST/SHARE THIS NOTICE!!!* Central Ohio Sleep Disorders Support Group P.O. Box 82011,...
hello everyone! please view the attached flyer for info about our july mtg. or just read below... CENTRAL OHIO SLEEP DISORDERS SUPPORT GROUP Riverside...
I guess we all have a tendency to judge what we "should" be able to accomplish by seeing what the people around us are doing. But, we aren't them! When I am...
Hi everybody-- It has struck me that we spend far too much time in our support group meetings talking about medications and doctors and too little time ...
This group if for people that want to get out this summer and do things. <center> <a href="http://groups.yahoo.com/group/FunThingsToDoInOhio/join"> <img...
some good articles i just discovered... THE NARCOLEPTIC SPECTRUM, an article in the Spring 2001 issue of Sleep Review magazine by Leon Rosenthal, M.D. When...
although there is no solid medical evidence because the technology just didn't exist back then, harriet tubman is believed to have had narcolepsy. she is...
Danielle Evans at Columbus Sleep Consultants would like enough of our brochures for them to laminate and post in their patient rooms. I thought I had a few,...
SEPTEMBER 21 Sunday Meeting 2-4pm @ Columbus Community Health Regional Sleep Disorders Center (formerly Columbus Community Hospital) General gathering of...
Southwest Cleveland Sleep Center in Middleburgh Heights, Ohio is conducting an Orphan Medical sponsored clinical trial on the investigational drug Xyrem in the...
come on out and join us this sunday! AUGUST 17 Sunday Annual Potluck Picnic 4pm-? @ Ellen's House Bring your family and friends. Bring a dish of your favorite...
Orphan Medical has just announced the start of a new Xyrem trial in the U.S. It is open to people who: Have a diagnosis of narcolepsy. Do not have another...
JULY 16 Wednesday Meeting 5:30-7pm @ Scottie MacBean Cafe General gathering of support and learning. If you haven't been able to attend our Sunday meetings,...
To All: I have not been to a support group meeting before but live in the Central Ohio Area. I am 30 years of age and weight is 154. I do not remember what...
I have been dealing with Sleep Apnea problems for years. I have had several overnight studies and MSLT's and have visited two doctors through the last four...
Doug, Identify yourself. Have you been to a sleep support group? Name, address, phone number, etc. Also, age, weight and other details such as what was the...
Here are the meeting dates for this month. Come on out and join us! Please note that since Easter falls on the third Sunday this year, our April meeting will...