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centralohiosleepdisorders · our local support group online

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Group Information

  • Members: 151
  • Category: Support
  • Founded: May 8, 2001
  • Language: English
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hello, all.... i switched to the mirage swift nasal pillows mask for cpap... after unsuccessfully trying several masks, i was able to use the nasalaire...
4 Jan 20, 2005
3:21 am

TOM GANGLUFF
tgangluff2002
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Hi, I was just diagnosed with fibromyalgia. I was diagnosed with narcolepsy three years ago, and I guess this came as a surprise. I thought that I had...
1 Sep 18, 2004
10:56 pm

k1torres
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Hey everyone. I've noticed that only one reply to my last post. Oh, well ;) Are any of you taking Concerta for Narcolepsy? See ya! Tamra...
3 Sep 3, 2004
4:09 pm

Tamra
nastasiabrooke
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Hey everyone, I just signed up with this support group. Just wondering if any of you are having problems with gaining weight after your dianosis? Since my...
2 Aug 27, 2004
4:48 am

ramoth41@...
ramoth41
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Sarah, The short term memory loss was one of the first things (other than falling asleep everywhere!) to clue me in that something was wrong. I still feel like...
2 Aug 27, 2004
4:37 am

ramoth41@...
ramoth41
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I was just wondering what side effects some of us have had while taking provigil. I was on another site and most every one talked about short term memory...
1 Aug 24, 2004
9:25 pm

ramoth41@...
ramoth41
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hello: I was wondering if there are any support groups in the cleveland area? I was diagnosed in 2003 with nacolepsy and it's really starting to get to me. I...
4 Aug 24, 2004
3:04 pm

jeff haverfield
haverfields
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Hi Everybody-- I want to remind you that our annual potluck picnic is coming up soon. I hope you will be able to come. We are going to have it at Whetstone...
1 Aug 7, 2004
4:05 pm

Ellen Haider
yemen652000
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Hi all, I've been a sort of silent member for awhile. Grad school, a new city and relationship, and learning about my narcolepsy pretty much took up all my...
1 Aug 5, 2004
3:11 pm

k1torres
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I have had degenerative spinal disease for over 20 years and have had trouble sleeping and having nightmares. A couple of years ago I found a site to purchase...
1 Aug 4, 2004
6:43 pm

Art Benson
komkatz
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JULY – AUGUST – SEPTEMBER 2004 3rd QUARTER MEETING NOTICE *PLEASE POST/SHARE THIS NOTICE!!!* Central Ohio Sleep Disorders Support Group P.O. Box 82011,...
2 Jul 21, 2004
2:25 am

debacac
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hello everyone! please view the attached flyer for info about our july mtg. or just read below... CENTRAL OHIO SLEEP DISORDERS SUPPORT GROUP Riverside...
1 Jul 5, 2004
9:09 pm

laura j. evert
laurajevert
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I guess we all have a tendency to judge what we "should" be able to accomplish by seeing what the people around us are doing. But, we aren't them! When I am...
1 May 14, 2004
6:40 pm

yemen652000
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Hi everybody-- It has struck me that we spend far too much time in our support group meetings talking about medications and doctors and too little time ...
1 May 14, 2004
6:17 pm

yemen652000
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This group if for people that want to get out this summer and do things. <center> <a href="http://groups.yahoo.com/group/FunThingsToDoInOhio/join"> <img...
1 May 9, 2004
9:43 am

Melissa
sweetest_thi...
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some good articles i just discovered... THE NARCOLEPTIC SPECTRUM, an article in the Spring 2001 issue of Sleep Review magazine by Leon Rosenthal, M.D. When...
1 Feb 19, 2004
9:36 pm

laura j. evert
laurajevert
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Please pass this information on to those it may help. ... laura j. evert, columbus, ohio founder/coordinator, N[ART] / make art. advocate sleep. ...
1 Feb 13, 2004
9:28 pm

laura j evert
laurajevert
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although there is no solid medical evidence because the technology just didn't exist back then, harriet tubman is believed to have had narcolepsy. she is...
1 Feb 10, 2004
4:58 pm

laura j evert
laurajevert
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JANUARY - FEBRUARY - MARCH 2004 1st QUARTER MEETING NOTICE Central Ohio Sleep Disorders Support Group P.O. Box 82011, Columbus, Ohio 43202 ...
1 Jan 15, 2004
2:17 am

laura j evert
laurajevert
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Danielle Evans at Columbus Sleep Consultants would like enough of our brochures for them to laminate and post in their patient rooms. I thought I had a few,...
1 Nov 24, 2003
4:46 am

Lynn Jones
lymjones
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SEPTEMBER 21 Sunday Meeting 2-4pm @ Columbus Community Health Regional Sleep Disorders Center (formerly Columbus Community Hospital) General gathering of...
1 Sep 11, 2003
2:23 pm

laura j. evert
laurajevert
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Southwest Cleveland Sleep Center in Middleburgh Heights, Ohio is conducting an Orphan Medical sponsored clinical trial on the investigational drug Xyrem in the...
1 Aug 25, 2003
3:32 pm

laura j evert
laurajevert
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come on out and join us this sunday! AUGUST 17 Sunday Annual Potluck Picnic 4pm-? @ Ellen's House Bring your family and friends. Bring a dish of your favorite...
1 Aug 13, 2003
3:06 am

laura j evert
laurajevert
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Orphan Medical has just announced the start of a new Xyrem trial in the U.S. It is open to people who: Have a diagnosis of narcolepsy. Do not have another...
1 Aug 5, 2003
3:44 pm

laura j evert
laurajevert
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of this dam thing called Narcolepsy !!! is there any thing called (Narcolepsy and the law)...
2 Jul 21, 2003
1:45 pm

laura j evert
laurajevert
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JULY 16 Wednesday Meeting 5:30-7pm @ Scottie MacBean Cafe General gathering of support and learning. If you haven't been able to attend our Sunday meetings,...
1 Jul 15, 2003
7:09 pm

laura j evert
laurajevert
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To All: I have not been to a support group meeting before but live in the Central Ohio Area. I am 30 years of age and weight is 154. I do not remember what...
2 May 26, 2003
4:38 am

Hugh Arnold
hugh_the_hus...
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I have been dealing with Sleep Apnea problems for years. I have had several overnight studies and MSLT's and have visited two doctors through the last four...
2 May 23, 2003
4:49 am

R. H. Arnold
hugh_the_hus...
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Doug, Identify yourself. Have you been to a sleep support group? Name, address, phone number, etc. Also, age, weight and other details such as what was the...
1 May 23, 2003
3:38 am

edhoward@...
edward_howar...
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Here are the meeting dates for this month. Come on out and join us! Please note that since Easter falls on the third Sunday this year, our April meeting will...
1 Apr 14, 2003
2:53 pm

laura j evert
laurajevert
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