Hi:
   I haven't gained any weight but I think maye I have lost a little.
I don't and havent for prolly 6 years owned a scale.  I just got to
mad everytime I got on the thing,  So I tossed it out! I don't know
if it is the meds or just the fact I'm not as hungry as I was before.
I also don't seem to crave the stuff I used to. As a major chocoholic
I have kind of lost the taste for!
sarah

Hey everyone.
I've noticed that only one reply to my last post.  Oh, well ;)
Are any of you taking Concerta for Narcolepsy?
See ya!
Tamra

--- In centralohiosleepdisorders@yahoogroups.com, "Tamra"
<nastasiabrooke@y...> wrote:
> Hey everyone.
> I've noticed that only one reply to my last post.  Oh, well ;)
> Are any of you taking Concerta for Narcolepsy?
> See ya!
> Tamra

Tamara:
   It's the short term memory loss thing.. We forget to answere!!  I
have decided that all my problems stem from the fact that I am
a "dyslexic, narcoleptic, metopausal woman!" Sorry!
    I haven't heard of Concerta, I take Provigil 500mg a day.  What is
Concerta? Like Provigil? What kind of side affects if any are there?
I have been having agression issues but that could be the "change".
I've been reading about other meds for this crazinest and may ask the
doc for something different!
sarah

Hey Sarah,
You're funny.  I have been reading some of the old posts concering
short term memory loss.  Do you think this is a side effect of
Provigil, or of N? Fourtunately, knock on wood, I haven't had short
term memory loss.  Good luck with that.
I too, was on Provigil (600mg) in the beginning.  I couldn't take it
anymore, it ALWAYS made me sick.  Concerta is a methylphenidate based
drug, usually used to treat symptoms of ADHD, but has been effective
in treating N symptoms too.  Ritilian which is also a methylphenidate
based drug, can be used as well.  For more information on Concerta
http://www.concerta.net/active/mccus/en_US/html/concerta/important_pro
duct_information.pdf
I do a lot of Narcolepsy research.  Since my diagnosis, it has become
my passion.  I need and want to know as much as possible.  The more I
read about it, the more I think to myself 'this is one weird
condition'.  Since you have it as well, I'm sure you know what I'm
talking about.  When was your diagnosis (how long ago)? My diagnosis
was October 2003.  They believe that I have had N since the age of 15
or so.
Do you have a job? (The only reason I ask this..I have been reading
that a lot of Narcoleptics that have had the condition for a long
time, cannot work in a "normal job setting".) I think that you can
have any job you want, IF the people there have "human
understanding".  One of my biggest problems is sleep paralysis.  I am
late to work often.  My husband now drags me out of bed, yeah
literally, every morning.
So with all that said, I'll stop here...
Tamra
--- In centralohiosleepdisorders@yahoogroups.com, ramoth41@y... wrote:
> --- In centralohiosleepdisorders@yahoogroups.com, "Tamra"
> <nastasiabrooke@y...> wrote:
> > Hey everyone.
> > I've noticed that only one reply to my last post.  Oh, well ;)
> > Are any of you taking Concerta for Narcolepsy?
> > See ya!
> > Tamra
>
> Tamara:
>   It's the short term memory loss thing.. We forget to answere!!  I
> have decided that all my problems stem from the fact that I am
> a "dyslexic, narcoleptic, metopausal woman!" Sorry!
>    I haven't heard of Concerta, I take Provigil 500mg a day.  What
is
> Concerta? Like Provigil? What kind of side affects if any are
there?
> I have been having agression issues but that could be the "change".
> I've been reading about other meds for this crazinest and may ask
the
> doc for something different!
> sarah

Hi,

I was just diagnosed with fibromyalgia.  I was diagnosed with narcolepsy three
years ago,
and I guess this came as a surprise.  I thought that I had arthritis, that my
narcolepsy was
responsible for the tiredness, muscle aches, drained feeling, dry mouth, and my
short
term memory loss...

You know how when you get a diagnosis, you start to think about the past, and
how
suddenly everything makes sense?  Like it was obvious from the beginning that
something
was wrong with you and now that there is a term for it, you understand you
weren't crazy?
Well, I've been doing that a lot lately.  I do it all the time with the narc,
and I guess I can
say that my narc symptoms started two years before my diagnosis.  But the
fibromyalgia
hits so many things, it seems like I've had it forever.  I guess in some way I'm
relieved.
Now I know how to change my lifestyle, again for the umpteenth time.  BUT I'm
confused
and pissed off.  I mean, what do I have?  Really?

I've been reading a ton of information, medical journals, personal stories, etc.
And so far I
haven't found one that says that narcolepsy is one of the common sleep disorders
associated with fibromyalgia.  DOES ANY ONE ELSE HAVE THIS?  I feel like I'm
going insane.
Like every time I find some way to process my disorder, I find out something
else that
makes me question it.

Sorry for the long email, but I knew all of you would understand.  I have a
pretty strong
group of friends and family to support me with the narc, but they are having
trouble
understanding the fibromyalgia.  It'd be nice to actually have a disorder that
isn't complex,
but I know I shouldn't complain.

Anyway, please email me k1torres@... if you can add any thing.

thanks!
Kristina

hello, all....  i switched to the mirage swift nasal pillows mask
for cpap...  after unsuccessfully trying several masks, i was able
to use the nasalaire system for about two years....  unfortunetly,
they've improved it and the last one i received, about seven months
ago, doesn't fit right....   so i switched to the mirage in
novemeber...  the problem i'm having is sore spots on the inside of
one nostril and on the bottom of my nose....  i'm at 10cm pressure,
and if i loosten any straps, it leaks....  so i'm wondering if
anyone has had this problem with this, or any other nasal pillows,
and if there is a solution, or if i just have to wait another six
months and guess at another mask....

any help would be appreciated,
shane

Shane,

I always had those issues with the nasal pillows.  I
use the nose mask, Mirage ultra I beleive is the name.
  Has a forhead adjustment and I do not get any sore
spots.

Probably not much help, but best of luck.


God's Grace and Peace
Jeff
--- p_s_chute <p_s_chute@...> wrote:

>
> hello, all....  i switched to the mirage swift nasal
> pillows mask
> for cpap...  after unsuccessfully trying several
> masks, i was able
> to use the nasalaire system for about two years....
> unfortunetly,
> they've improved it and the last one i received,
> about seven months
> ago, doesn't fit right....   so i switched to the
> mirage in
> novemeber...  the problem i'm having is sore spots
> on the inside of
> one nostril and on the bottom of my nose....  i'm at
> 10cm pressure,
> and if i loosten any straps, it leaks....  so i'm
> wondering if
> anyone has had this problem with this, or any other
> nasal pillows,
> and if there is a solution, or if i just have to
> wait another six
> months and guess at another mask....
>
> any help would be appreciated,
> shane
>
>
>
>




__________________________________
Do you Yahoo!?
Yahoo! Mail - Helps protect you from nasty viruses.
http://promotions.yahoo.com/new_mail

thanks

jeff haverfield <haverfields@...> wrote:Shane,

I always had those issues with the nasal pillows.  I
use the nose mask, Mirage ultra I beleive is the name.
Has a forhead adjustment and I do not get any sore
spots.

Probably not much help, but best of luck.


God's Grace and Peace
Jeff
--- p_s_chute <p_s_chute@...> wrote:

>
> hello, all....  i switched to the mirage swift nasal
> pillows mask
> for cpap...  after unsuccessfully trying several
> masks, i was able
> to use the nasalaire system for about two years....
> unfortunetly,
> they've improved it and the last one i received,
> about seven months
> ago, doesn't fit right....   so i switched to the
> mirage in
> novemeber...  the problem i'm having is sore spots
> on the inside of
> one nostril and on the bottom of my nose....  i'm at
> 10cm pressure,
> and if i loosten any straps, it leaks....  so i'm
> wondering if
> anyone has had this problem with this, or any other
> nasal pillows,
> and if there is a solution, or if i just have to
> wait another six
> months and guess at another mask....
>
> any help would be appreciated,
> shane
>
>
>
>




__________________________________
Do you Yahoo!?
Yahoo! Mail - Helps protect you from nasty viruses.
http://promotions.yahoo.com/new_mail


---------------------------------
Yahoo! Groups Links

    To visit your group on the web, go to:
http://groups.yahoo.com/group/centralohiosleepdisorders/

    To unsubscribe from this group, send an email to:
centralohiosleepdisorders-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.




---------------------------------
Do you Yahoo!?
  Yahoo! Mail - You care about security. So do we.

[Non-text portions of this message have been removed]

p_s_chute <p_s_chute@...> wrote:Hello I would like to have a sechdula of
the next sleep disorders meeting in centeral ohio  the columbus area .thank you
.
hello, all....  i switched to the mirage swift nasal pillows mask
for cpap...  after unsuccessfully trying several masks, i was able
to use the nasalaire system for about two years....  unfortunetly,
they've improved it and the last one i received, about seven months
ago, doesn't fit right....   so i switched to the mirage in
novemeber...  the problem i'm having is sore spots on the inside of
one nostril and on the bottom of my nose....  i'm at 10cm pressure,
and if i loosten any straps, it leaks....  so i'm wondering if
anyone has had this problem with this, or any other nasal pillows,
and if there is a solution, or if i just have to wait another six
months and guess at another mask....

any help would be appreciated,
shane





---------------------------------
Yahoo! Groups Links

    To visit your group on the web, go to:
http://groups.yahoo.com/group/centralohiosleepdisorders/

    To unsubscribe from this group, send an email to:
centralohiosleepdisorders-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.




---------------------------------
Do you Yahoo!?
  Yahoo! Search presents - Jib Jab's 'Second Term'

[Non-text portions of this message have been removed]

March 29, 7 p.m. to 8:30 p.m., Carnegie Institution, 1530 P St. N.W.
Washington, D.C. A free lecture by Dr. David M. Rapoport, founder and
director of the New York University Sleep Disorders Center and
Director of the NYU Sleep Medicine Program, entitled "Catching Our
Breath: Reflections on Diagnosis and Treatment of Obstructive Sleep
Apnea."
Sponsored by the American Sleep Apnea Association and the American
College of Chest Physicians Sleep Institute as part of Sleep Apnea
Awareness Day. Reservations are required. To learn more, call 202-293-
3650.

APRIL – MAY – JUNE 2005
2nd QUARTER MEETING NOTICE
(mailed one month late – our apologies)
***PLEASE POST/SHARE THIS NOTICE!!!***
Central Ohio Sleep Disorders Support Group
COSDSG c/o 2206 Indiana Avenue, Columbus, Ohio 43201-1312
http://healthgroups.yahoo.com/group/centralohiosleepdisorders

NOTE: Our May meeting has been moved to the fourth Sunday due to a
scheduling conflict. We hope you will join us!

MAY 22 Sunday Meeting 2-4pm @ The Elizabeth Blackwell Center
Dr. James Fulop, Board Certified Sleep Specialist and Riverside
Hospital Sleep Center Medical Director, will be addressing the group
for one hour. He will lead a "General Question and Answer Session".
The rest of the meeting will be an open discussion among ourselves.
This meeting is free of charge, open to the public, and requires no
registration. Refreshments will be served thanks to Karen Hedden.
Please feel free to help out by bringing a snack to share.

The Elizabeth Blackwell Center of Riverside Methodist Hospital
3635 Olentangy River Road, Columbus, OH 43214, Tel: 614-566-5153
DIRECTIONS: Riverside Methodist Hospital is located in northwest
Columbus at the corner of W. North Broadway and Olentangy River Road,
with exits from the north and south off State Route 315. The
Elizabeth Blackwell Center is just north of the hospital on the west
side of the road, near the Riverside Health Center and Kobacker
House. Visitor parking is free and is just to the left and also
behind the Center. If you have any questions, please contact Karen
Hedden, medical social worker at Riverside Methodist Hospital Sleep
Diagnostic Center at 614-566-5018.

International Sleep Disorders Meetup Days
APRIL 26, MAY 24, + JUNE 28 [4th Tuesdays] @ 8pm
Sign up for International Sleep Disorders Meetup Day which is
scheduled across the world in up to 561 towns (anywhere that at least
5 people sign up) on the 4th Tuesday of every month. Meetup with
other local people to discuss sleep disorders treatment and coping.
The local meeting location is up for a vote each month. To sign up go
to http://sleepdisorders.meetup.com. You can see who's signed up from
across the world and in your own neighborhood at
http://sleepdisorders.meetup.com/members. LOCALLY, venues up for a
vote include Mozart's Cafe on High Street as well as its second
location on Indianola Avenue. Don't have computer access at home?
Visit your local library and ask the reference staff for help.

In The News

DONATIONS of Used CPAP and BIPAP Machines Needed
If you have a CPAP or BIPAP machine that you are no longer using,
there are patients in the Central Ohio Area who have no insurance and
would benefit greatly from the donation of your machine. Riverside
Methodist Hospital and HomeReach /Homecare are asking for donations
of these machines, which will then be issued to Riverside patients
who cannot afford to pay for them. Income tax donation forms are
available for anyone who wishes to donate. If you are interested,
please call Karen Hedden, social worker at Riverside Methodist
Hospital, 614-566-5018.

FIRSTLINK: Helping People Connect
Our group is listed in the annual FIRSTLINK Directory, their
Directory On-line and additional publications. More than 1 million
Franklin County residents looking to get or give help can reach
FIRSTLINK by simply dialing 2-1-1. The agency connects individuals to
critical resource information, enrichment activities and volunteer
opportunities in the Columbus community. Clients who call 2-1-1 will
receive assistance from an experienced FIRSTLINK specialist, ranging
from home healthcare resources to assist an aging parent to where to
enroll a child in summer camp. For more information, contact
FIRSTLINK, 195 North Grant Avenue, Columbus, OH 43215, Tel: 614-221-
6766 / Fax: 614-224-6866 / Website: http://www.firstlink.org

INSOMNIA: Cognitive Restructuring Techniques For Managing Negative,
Stressful Thoughts About Sleep
The hallmark of insomnia is an anxious preoccupation with insomnia
and its effects on daytime functioning. Negative, stressful thoughts
about sleep exacerbate insomnia by triggering negative emotions such
as anxiety or frustration that mobilize the stress response. In turn,
the stress response strengthens the wakefulness system, weakens the
sleep system, and makes it harder to sleep. Here are some examples of
negative sleep thoughts, or NSTs, that are very common:          (1)
I'm must get eight hours of sleep. (2) I won't be able to function
tomorrow. (3) My insomnia is going to cause health problems. (4) I
didn't sleep at all last night. (5) I can't fall asleep without a
sleeping pill.
NST's are usually distorted and inaccurate. Furthermore, they do not
serve any adaptive purpose and only serve to exacerbate your
insomnia. In order to overcome insomnia, you must learn to recognize
and change your NSTs with cognitive restructuring (CR). The aim of CR
is simple yet powerful: by recognizing and reframing your NSTs with
more accurate, positive thoughts about sleep you will minimize
anxiety and other negative emotions that trigger the stress response
and disturb your sleep. As a result, you will fear insomnia less and
sleep better. Keep in mind that CR is not the same as denying
insomnia or simply using the power of positive thinking. Rather, CR
involves thinking about insomnia less negatively and more accurately.
Read the full article by Dr. Gregg D. Jacobs at:
http://www.talkaboutsleep.com/sleep-disorders/2005/04/insomnia-
stressful-sleep.htm

Please note that mainly due to limited funds, our P.O. Box is no
longer open. Instead, please send mail in care of Laura Evert as
follows: COSDSG c/o 2206 Indiana Avenue, Columbus, OH 43201-1312.

Resources: About Sleep, Sleep Disorders, And Related Conditions

American Academy of Sleep Disorders
Tel: 708-492-0930; www.aasmnet.org
National Sleep Foundation www.sleepfoundation.org
Talk About Sleep www.talkaboutsleep.com
Advocates For Sleep
Tel: 1-800-823-8893 M-F 9am-5pm CST; www.advocatesforsleep.com
SleepNet www.sleepnet.com
American Sleep Apnea Association
Tel: 202-293-3650; www.sleepapnea.org
Narcolepsy Network
Tel: 1-888-292-6522; www.narcolepsynetwork.org
Restless Legs Syndrome Foundation
Tel: 507-287-6465; www.rls.org
National Fibromyalgia Association
Tel: 714-921-0150; www.fmaware.org

This mailing was made possible with the generous help of YOU,
the members of the Central Ohio Sleep Disorders Support Group.
Thank you everyone!

Hello,

I hope this group message of mine finds the reader in good health and
mood. I'm Anitha and this being my first post, I'll keep it short. You
can find the complete healthcare directory here
http://www.hi-fiweb.com/directories/health-care/ .

Take care,

Geetha

for those who have not received this notice directly from meetup.com,
here it is. i am going to try to attend. /laura

---message from meetup.com---
Since you haven't RSVPed yet, you might not know that 2857 - Better
Health -007- Sleeping Disorder has an event in two weeks.

See who's coming and help your Organizer better plan the event by
RSVPing: http://sleepdisorders.meetup.com/24/events/4689098/

What: 2857 - Better Health -007- Sleeping Disorder June Meetup
When: Thursday, June 2 at 6:30PM
Where: Victoria's Midnight Café, 251 W 5th Ave, Columbus OH 43201
________________

HOW TO SUBSCRIBE OR LEARN MORE: register at Meetup.com.

you might not know that 2857 - Better Health -007- Sleeping Disorder
has an event in two weeks.

See who's coming and help your Organizer better plan the event
by RSVPing:
http://sleepdisorders.meetup.com/24/events/4716178/

What: 2857 - Better Health -007- Sleeping Disorder July Meetup

When: Thursday, July 7 at 6:30PM
Where: Victoria's Midnight Café
251 W 5th Ave
Columbus OH 43201
614-299-2295

I'll be on vacation and out of state on that date.  Thanks anyway.  I was at the
last meeting and no one showed up.

Gary

laura j evert <dreamiestgirlever@...> wrote:
you might not know that 2857 - Better Health -007- Sleeping Disorder
has an event in two weeks.

See who's coming and help your Organizer better plan the event
by RSVPing:
http://sleepdisorders.meetup.com/24/events/4716178/

What: 2857 - Better Health -007- Sleeping Disorder July Meetup

When: Thursday, July 7 at 6:30PM
Where: Victoria's Midnight Café
251 W 5th Ave
Columbus OH 43201
614-299-2295





---------------------------------
Yahoo! Groups Links

    To visit your group on the web, go to:
http://groups.yahoo.com/group/centralohiosleepdisorders/

    To unsubscribe from this group, send an email to:
centralohiosleepdisorders-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Yahoo! Sports
  Rekindle the Rivalries. Sign up for Fantasy Football

[Non-text portions of this message have been removed]

Hello!

I found a updated directory on Healthcare resources in Targeted News.
URL : http://targetednews.info/new
Cheers!

Kate

A CPAP user traveling by air from Duluth, MN to Portland, ME
contacted the ASAA to advise us that yesterday (07/14/05) the TAS in
Duluth did not allow him to carry on his CPAP machine to the aircraft.

He was advised that a new TAS regulation is in effect that states
that if a carry-on item has any opaque parts in it when goes through
the x-ray that it cannot be carried on.

Needless to say he checked the item and it was damaged in transit.

We contacted the TAS screening persons with disabilities program
today to find when the change in standard operating procedures (SOP)
had changed.  We were told that a changed had occurred in April of
2005.  We were also told the TAS is currently reviewing this change
in SOP particularly as it relates to CPAP devices, due to the number
of a complaints they had received.

We expect to hear from the TAS next week and we will post what we
learn.

If you have any problems traveling by air with your CPAP device,
please let me know by writing to egrandi@...

sorry sorry, i forgot to post this earlier. this heat has me all
messed up. stay cool everyone. /laura
ps: you can view + print this notice as a word document by going to
the 'files' section of this group. the file is called 07 2005 flyer.

JULY – AUGUST – SEPTEMBER 2005
{Third Quarter Meeting Notice}

*PLEASE POST/SHARE THIS NOTICE!!!*
Central Ohio Sleep Disorders Support Group
c/o 2206 Indiana Avenue, Columbus, Ohio 43201-1312
http://health.groups.yahoo.com/groups/centralohiosleepdisorders

JULY 17 Sunday Meeting 2-4pm @ The Elizabeth Blackwell Center
Our discussion topic will be "Behavioral Techniques For Improving
Sleep Disorders". Please come ready to share those behavioral
techniques and coping strategies that you have found help improve
living with a sleep disorder. Sample topics: planning ahead and
prioritizing; getting up in the morning; staying awake during the
day; eating habits/food choices; to drive or not to drive and how to
stay alert; if and when to nap; getting to sleep at night.
Refreshments will be served thanks to Karen Hedden. Please feel free
to help out by bringing a snack to share.

The Elizabeth Blackwell Center of Riverside Methodist Hospital
3635 Olentangy River Road, Columbus, OH 43214, Tel: 614-566-5153
DIRECTIONS: Riverside Methodist Hospital is located in northwest
Columbus at the corner of W. North Broadway and Olentangy River
Road, with exits from the north and south off State Route 315. The
Elizabeth Blackwell Center is just north of the hospital on the west
side of the road, near the Riverside Health Center and Kobacker
House. Visitor parking is free and is just to the left and also
behind the Center. If you have any questions, please contact Karen
Hedden, medical social worker at Riverside Methodist Hospital Sleep
Diagnostic Center at 614-566-5018.

AUGUST 21 Sunday Annual Potluck Picnic 5-7pm @ Whetstone Park of
Roses
Bring your family and friends. Bring a dish of your favorite food
and/or something to drink. If you can't bring anything, come anyway.
Cups, plates, napkins, and eating utensils will be provided. We
always have a fun time chatting and eating and meeting new people so
make plans to come. All are welcome to join us!

Whetstone Park of Roses
3923 North High Street, Columbus, OH 43214, Tel: 614-645-3217 or
call Columbus Recreations & Parks, 614-645-3350.
DIRECTIONS: Whetstone Park is located in Clintonville off of North
High Street behind the Whetstone Branch of the Columbus Metropolitan
Library. From I-71, exit on North Broadway, proceed East to High
St., turn North on High Street, proceed approximately 1.5 miles
north to the Whetstone Park entrance located at 3901 N. High St.
Enter at this location, follow the park entry road to the lower
parking lot. All parking is free; please use the lower lot adjacent
to the shelter house. We'll be at the picnic tables near this lower
parking lot. Just look for signs that say SLEEP PICNIC and you'll
find us. You may even want to take time to visit the 13-acre
manicured gardens of 11,000 rose bushes of 350 varieties. Peak bloom
is mid-June through mid-September.

SEPTEMBER 18 Sunday – no meeting scheduled

International Sleep Disorders Meetup Days
JULY 26, AUGUST 23, + SEPTEMBER 22 [4th Tuesdays] @ 8pm
Go to http://sleepdisorders.meetup.com to sign up for International
Sleep Disorders Meetup Day which is scheduled across the world on
the 4th Tuesday of every month. Meetup with other local people to
discuss sleep disorder treatments and coping methods. You can see
who's signed up from across the world and in your own neighborhood
at the website http://sleepdisorders.meetup.com/members.

2857 - Better Health - 007- Sleeping Disorder Meetup Group
JULY 7, AUGUST 4, + SEPTEMBER 1 [1st Thursdays] @ 6:30pm
This group meets monthly on the first Thursday at Victoria's
Midnight Cafe located in Victorian Village at 251 West 5th Avenue,
Columbus, OH 43201, 614-229-2295. To learn more, go to
http://sleepdisorders.meetup.com/24.

What's a Meetup Group? A Meetup Group shares a cause or interest and
meets regularly face-to-face. There are thousands of local groups
for thousands of interests with over one million people all over the
world who have joined. Groups usually get together at least once a
month. These real world, face-to-face gatherings are
called 'Meetups.' They are usually informal, and are open to anyone
who's curious. Most Meetups happen at public places like
restaurants, cafés, or public parks, though sometimes they take
place in private homes or offices. In most cases, the organizer will
welcome members, and will often have a printed sign to help you find
the Meetup Group. Generally, people take a few minutes to introduce
themselves. To learn more, go to http://www.meetup.com/tour.
In The News

TALK ABOUT SLEEP: Chat Calendar
If you have trouble making it out to our meetings but still want to
talk to others with sleep disorders, why not try it virtually. Talk
About Sleep offers many regular online chats at
http://www.talkaboutsleep.com. Here is their current schedule:
Mondays: sleep apnea chat 9-11pm
Tuesdays: sleep apnea chat 8-10pm
Wednesdays: all sleep topics 8-10pm + young narcolepsy 9-11pm
Thursdays: narcolepsy/hypersomnia chat 9-11pm + sleep apnea chat 9-
11pm
Friday: sleep apnea chat 8-10pm + narcolepsy/hypersomnia chat 10-
12midnight

RUBIN NAIMAN, Ph.D.: Behavioral Sleep and Dream Medicine
Dr. Naiman is a clinical psychologist based in Tucson, Arizona with
a long-standing interest in consciousness and spirituality who
specializes in behavioral sleep and dream medicine. His website,
http://www.drnaiman.com, is devoted to the development of a new
psychology that integrates scientific approaches with emerging
alternative healing and spiritual perspectives. It emphasizes the
critical place of sleep and dreams in our overall health and
happiness. He is the author of The Sleep Advisor: Help for Insomnia
and Other Sleep Problems, a unique software program designed to
assess and address primary sleep problems and due to be published
this Summer. A beta test version is available at his website. He is
also the author of Healing Night: The Science and Spirit of
Sleeping, Dreaming and Awakening, a groundbreaking book to be
published later in 2005 that approaches sleep and dream issues from
both a scientific as well as a spiritual perspective. Visit his
website for some very interesting information.

Resources Sleep, Sleep Disorders, and Related Conditions

American Academy of Sleep Disorders Tel: 708-492-0930;
www.aasmnet.org
National Sleep Foundation Tel: 202-347-3471; www.sleepfoundation.org
Talk About Sleep www.talkaboutsleep.com
Advocates For Sleep Tel: 1-800-823-8893 M-F 10am-6pm;
www.advocatesforsleep.com
SleepNet www.sleepnet.com
American Sleep Apnea Association Tel: 202-293-3650;
www.sleepapnea.org
Narcolepsy Network Tel: 1-888-292-6522; www.narcolepsynetwork.org
Restless Legs Syndrome Foundation Tel: 507-287-6465; www.rls.org
National Fibromyalgia Association Tel: 714-921-0150; www.fmaware.org

Membership

Central Ohio Sleep Disorders Support Group Membership!
Our July quarterly mailing is the time we ask for your voluntary
membership dues of $10 or more to help pay for our postage and
mailing supplies. We do want to emphasize that no one will be
excluded because of an inability to pay. We want everyone to stay
involved and informed. This will be an honors system based
collection of dues. Membership dues will be asked for each July with
a reminder in October, so please take the time now to send your $10
annual membership dues payable to Central Ohio Sleep Disorders
Support Group, c/o 2206 Indiana Avenue, Columbus, OH 43201-1312. A
membership form follows. A special thank you to all those who have
been able to contribute voluntary membership dues of $10 or more
last year. We also appreciate the personal notes, suggestions, and
ideas that you have sent in. Keep that mail coming! We can't do it
without you! All information is optional and kept confidential.

[  ] new member [  ] renewing member [  ] change of address

Name/Organization:

Address:

Telephone: 	  E-mail:

Website:

Sleep disorder(s): 	 Sleep physician:

Personal notes, suggestions, and ideas:

[  ] Membership dues of $0 or $10 or $____ donation enclosed. Please
send at least $10 if you can.

Please check one:
[  ] I wish to receive quarterly meeting notices by US postal mail
ONLY.
[  ] I wish to receive quarterly meeting notices by e- mail* ONLY.
[  ] I wish to receive quarterly meeting notices by US postal mail
AND by e-mail*.

* In order to receive meeting notices by e-mail, please join our
online Yahoo! group:
http://health.groups.yahoo.com/groups/centralohiosleepdisorders

Get to know our members better and stay in touch between meetings by
joining our online Yahoo! group. If you would like to receive your
meeting notices exclusively by e-mail, let us know by indicating so
above and we will remove you from our US postal mailing list.
Choosing to do this saves trees and lowers our overall mailing
costs. Both good things so sign up today.
__________________________________________________

{THE CENTRAL OHIO SLEEP DISORDERS SUPPORT GROUP is your group but
only if you make it so!}

Hello all,

I was diagnosed with Sleep Apnea a little over a month ago and I am on
a CPAP machine 12 cm.  I went to see my doctor this week for my
consultation and I mentioned to him that I don't have as much energy as
Ithought I would with the machine.  I am overweight also so that could
have something to do with it.

He mentioned to me that there is a drug called Provigil that he could
put me on that would give me more energy and may help with weight
loss.  I do not have narcolepsy, only apnea.

My question is what are the side effects of the drug and is it worth it
for me with only Apnea to be on the drug.

I am really glad I found this support group. I have been very depressed
over having this condition.

Thanks

Hello Teri Ihave sleep apnea and narcolepsy ,I am on provigle and have been on
it for 5 years now and have not had any side effects from it .It is my
undrstanding form what I have lerned about provigle ios that it has very few
side effects andc then it is hard to have eny side effects from the drug .Talk
to your doctir about it he or she can tell yopu more on it .Ny nake is Tom from
hilliard .Bye for now hope to hear from you .

Terri <teresa.a.logiudice@...> wrote:Hello all,

I was diagnosed with Sleep Apnea a little over a month ago and I am on
a CPAP machine 12 cm.  I went to see my doctor this week for my
consultation and I mentioned to him that I don't have as much energy as
Ithought I would with the machine.  I am overweight also so that could
have something to do with it.

He mentioned to me that there is a drug called Provigil that he could
put me on that would give me more energy and may help with weight
loss.  I do not have narcolepsy, only apnea.

My question is what are the side effects of the drug and is it worth it
for me with only Apnea to be on the drug.

I am really glad I found this support group. I have been very depressed
over having this condition.

Thanks





---------------------------------
YAHOO! GROUPS LINKS


     Visit your group "centralohiosleepdisorders" on the web.

     To unsubscribe from this group, send an email to:
  centralohiosleepdisorders-unsubscribe@yahoogroups.com

     Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


---------------------------------





---------------------------------
  Start your day with Yahoo! - make it your home page

[Non-text portions of this message have been removed]

Hello!

Get a quick glance of Healthcare News and Resources here
http://www.allinonedirectory.info/HealthUpdate/
Take care,
Kate

"Love is just like life, it's not always easy and does not always bring
happiness but when we do not stop living why should we stop loving"



---------------------------------
  Start your day with Yahoo! - make it your home page

[Non-text portions of this message have been removed]

The American Sleep Apnea Association (ASAA) is joining the Lance
Armstrong and Susan G. Komen Foundations and has introduced a
wristband to raise money for sleep apnea research.

The American Thoracic Society (ATS) will match dollar for dollar if
the ASAA can raise $50,000 for a two-year sleep apnea research
project.

In addition to the match, the ATS will solicit proposals, evaluate
them and administer the grant.

The wristbands are teal and periwinkle tie-dye and have SLEEP –
A.W.A.K.E. debossed on them.

Please visit the ASAA web site (www.sleepapnea.org) for details on
how to order.

Note: forwarded message attached.




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs


[Non-text portions of this message have been removed]

Note: forwarded message attached.




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs


[Non-text portions of this message have been removed]

Note: forwarded message attached.


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

[Non-text portions of this message have been removed]

From: DOTNews@... [mailto:DOTNews@...]
Sent: Wednesday, September 07, 2005 10:43 AM
To: DOTNEWS@...
Subject: DOT Proposes Rule to Require Airlines to Provide In-Flight
Medical Oxygen Without Charge

  DOT 123-05
Contact: Bill Mosley, Tel.: (202) 366-4570
Wednesday, September 7, 2005

DOT Proposes Rule to Require Airlines to Provide In-Flight Medical
Oxygen Without Charge

Many U.S. air carriers and foreign air carriers operating to and from
the United States would be required to provide medical oxygen without
charge to passengers who need it during flight, under a new rule
proposed today by the U.S. Department of Transportation. This
proposed requirement would apply to all passenger carriers operating
at least one aircraft with more than 60 seats.

The Department is proposing this requirement because passengers
needing supplemental oxygen on flights have long experienced
significant difficulties in obtaining the services they need in order
to fly. Currently, airlines are not required to provide medical
oxygen to passengers, and many choose to not offer it. Those that do
may require passengers to pay for the service, sometimes at a
prohibitively high cost.

"Passengers who use oxygen deserve the same access to our air
transportation system as do travelers with other disabilities or
medical conditions," said U.S. Transportation Secretary Norman Y.
Mineta. "This rulemaking continues our effort to ensure that
Americans with disabilities are treated fairly when they travel by
air."

Airlines also are not required to allow passengers to use their own
portable oxygen concentrators onboard aircraft, although a recent
Federal Aviation Administration (FAA) rule permitted carriers to
allow passengers to use Airsep Lifestyle and Inogen One portable
oxygen concentrator devices aboard an aircraft if certain safety
conditions are met.

The proposal, if made final, also would require all U.S. air carriers
and foreign air carriers operating to and from the United States,
except for on-demand air taxis, to test four types of respiratory
assistive devices to ensure that they will not cause interference
with aircraft navigation or communication systems. These four types
of respiratory devices are ventilators, respirators,continuous
positive airway pressure (CPAP) machines and certain portable oxygen
concentrators. Passengers who use respiratory assistive devices have
had difficulty traveling on certain flights because carriers were
concerned about possible electromagnetic interference with aircraft
navigation and communication systems. Under the proposed rule,
passengers would be allowed to use these devices on aircraft if they
can be safely operated on board.

The proposed rule would require the airlines to comply with all
applicable safety and security regulations when providing medical
oxygen service, testing respiratory devices and permitting their use
aboard aircraft.

Comments on the proposed rule, which was published in today's Federal
Register, are due in 60 days. The proposed rule and comments on the
proposal may be obtained via the Internet at http://dms.dot.gov
docket number OST-2005-22298.
-END-

N.B. when searching the DOT docket remember to in enter only 22298
and not the entire docket number.[/b]

I tried to access sleepapnea.org and it took me to another medical web site.
I searched that site for sleep apnea wristbands and got links to several
wristband sites but can¹t tell which one to go to.  Thoughts?

Thank you.

Cathy

--
Cathy J. Smith
Controller
Young Isaac, Inc.
23 N. Fourth Street
Columbus, OH  43215
Phone: (614) 224-6100
Fax: (614) 224-0660
Email: csmith@...

On 8/23/05 11:25 AM, "efgrandi" <egrandi@...> wrote:

> The American Sleep Apnea Association (ASAA) is joining the Lance
> Armstrong and Susan G. Komen Foundations and has introduced a
> wristband to raise money for sleep apnea research.
>
> The American Thoracic Society (ATS) will match dollar for dollar if
> the ASAA can raise $50,000 for a two-year sleep apnea research
> project.
>
> In addition to the match, the ATS will solicit proposals, evaluate
> them and administer the grant.
>
> The wristbands are teal and periwinkle tie-dye and have SLEEP –
> A.W.A.K.E. debossed on them.
>
> Please visit the ASAA web site (www.sleepapnea.org) for details on
> how to order.
>
>
>
>
>
>
>  SPONSORED LINKS
>
>   Health and wellness
> <http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Health+and+wellnes
> s&w2=Health+and+wellness+program&w3=Health+wellness+product&w4=Corporate+healt
> h+and+wellness&w5=Diet+fitness+health+nutrition+wellness&w6=Central+ohio&c=6&s
> =184&.sig=7ly0IqVPPKGK>    Health and wellness program
> <http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Health+and
> +wellness&w2=Health+and+wellness+program&w3=Health+wellness+product&w4=Corpora
> te+health+and+wellness&w5=Diet+fitness+health+nutrition+wellness&w6=Central+oh
> io&c=6&s=184&.sig=w50i>    Health wellness product
> <http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Health+and+wel
> lness&w2=Health+and+wellness+program&w3=Health+wellness+product&w4=Corporate+h
> ealth+and+wellness&w5=Diet+fitness+health+nutrition+wellness&w6=Central+ohio&c
> =6&s=184&.sig=SBYduK9I>
>   Corporate health and wellness
> <http://groups.yahoo.com/gads?t=ms&k=Corporate+health+and+wellness&w1=Health+a
> nd+wellness&w2=Health+and+wellness+program&w3=Health+wellness+product&w4=Corpo
> rate+health+and+wellness&w5=Diet+fitness+health+nutrition+wellness&w6=Central+
> ohio&c=6&s=184&.sig=tK>    Diet fitness health nutrition wellness
> <http://groups.yahoo.com/gads?t=ms&k=Diet+fitness+health+nutrition+wellness&w1
> =Health+and+wellness&w2=Health+and+wellness+program&w3=Health+wellness+product
> &w4=Corporate+health+and+wellness&w5=Diet+fitness+health+nutrition+wellness&w6
> =Central+ohio&c=6&s=18>    Central ohio
> <http://groups.yahoo.com/gads?t=ms&k=Central+ohio&w1=Health+and+wellness&w2=He
> alth+and+wellness+program&w3=Health+wellness+product&w4=Corporate+health+and+w
> ellness&w5=Diet+fitness+health+nutrition+wellness&w6=Central+ohio&c=6&s=184&.s
> ig=M0MpA1QC4xACGaNb6gN>
>
>
>
>  YAHOO! GROUPS LINKS
>
> *  Visit your group "centralohiosleepdisorders
> <http://groups.yahoo.com/group/centralohiosleepdisorders> " on the web.
> *
> *  To unsubscribe from this group, send an email to:
> *  centralohiosleepdisorders-unsubscribe@yahoogroups.com
> <mailto:centralohiosleepdisorders-unsubscribe@yahoogroups.com?subject=Unsubscr
> ibe>
> *
> *  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service
> <http://docs.yahoo.com/info/terms/> .
>
>
>
>




[Non-text portions of this message have been removed]

--- In centralohiosleepdisorders@yahoogroups.com, "Paula "
<Ppurplepixie@c...> wrote:
>
> Greeting, All~
> My name is Paula.  I live in Urbana, which is about 45 minutes to
an
> hour west of Dublin.  It seems I've had narcolepsy and insomnia for
> several years, and fibromyalgia for many more, but I've only
> recently been correctly diagnosed with each.  I will soon begin
> Xyrem therapy and received all the written information today via
> Federal Express, which the company makes you read before they send
> the actual medication.  I've not heard or read anyone's experience
> with the drug and wanted to ask here...my first contact with a
> support group.  I'd also like to know if any of you have
> fibromyalgia and myofascial pain, as quite a few people with these
> syndromes also have narcolepsy and/or insomnia (non-restorative
> sleep disorders).
> I'll leave my first post at that, as I have over ten years of
horror
> stories leading up to being correctly diagnosed.  But I am very
> eager to share and get to know all of you.  I'm so excited to know
> that I'm not an alien after all ;)
>
Paula,
They are or maybe already have finsihed a study with XYREM and people
with fibromyalgia.  I have both N and F and have just started XYREM
and I'm hoping that it will help both.
Sam

--- In centralohiosleepdisorders@yahoogroups.com, "Paula "
<Ppurplepixie@c...> wrote:
>
> Greeting, All~
> My name is Paula.  I live in Urbana, which is about 45 minutes to
an
> hour west of Dublin.  It seems I've had narcolepsy and insomnia for
> several years, and fibromyalgia for many more, but I've only
> recently been correctly diagnosed with each.  I will soon begin
> Xyrem therapy and received all the written information today via
> Federal Express, which the company makes you read before they send
> the actual medication.  I've not heard or read anyone's experience
> with the drug and wanted to ask here...my first contact with a
> support group.  I'd also like to know if any of you have
> fibromyalgia and myofascial pain, as quite a few people with these
> syndromes also have narcolepsy and/or insomnia (non-restorative
> sleep disorders).
> I'll leave my first post at that, as I have over ten years of
horror
> stories leading up to being correctly diagnosed.  But I am very
> eager to share and get to know all of you.  I'm so excited to know
> that I'm not an alien after all ;)
>
Paula,
They are or maybe already have finsihed a study with XYREM and people
with fibromyalgia.  I have both N and F and have just started XYREM
and I'm hoping that it will help both.
Sam