Please join us Sunday, July 15 from 2-4pm  @ The Elizabeth Blackwell
Center

We will share our favorite sources of information for coping with our
sleep-related problems at our meeting on July 15.
Laura Evert (She's back!) will start the ball rolling by telling us
about Julie Flygare, a 28 yr old woman with narcolepsy and cataplexy who
helped to start wakeupnarcolepsy.org <http://wakeupnarcolepsy.org/> .
We'll also check to see if everyone understands how to use our yahoo
group and discuss some of the groups available on facebook.

What sources have you found helpful?  (I'm old fashioned, so my
favorite source is a book!) Bring something to share or just come
prepared to learn.

Light refreshments will be provided.


The Elizabeth Blackwell Center will no longer be available to us for
meetings after our meeting in July.  They are closing the facility.  Any
suggestions as to other possible meeting sites for the group?

(The Elizabeth Blackwell Center is north of Riverside Hospital.  The
address is 3635 Olentangy River Road.)

Hope to see you there!






[Non-text portions of this message have been removed]

Mark your calendars now!





Come out and play with us at our picnic/potluck August 19

5:00-700 at Whetstone Park!



We will meet to share food and fun and heartfelt understanding.  Please
bring a dish of food to share, but if you cannot, just bring yourself.
All else will be provided.  We will be there rain or shine (so hope for
sunshine). Family and friends are welcome.




Just for fun, we will have a white elephant gift exchange.  Bring a
wrapped gift and we will play a game where you try to steal the best
gift for yourself.  If you have lawn chairs, bring those too.




For those who wish to stay, the Clintonville Community Band and Choir
will be in the Park of Roses at 7:00 for a free concert.




How to Get There:  The entrance to Whetstone Park and the Park of Roses
is next to the Whetstone Branch of the Columbus Metropolitan Library at
3909 North High Street.  It is north of North Broadway and south of
Henderson and Cook.  Take the road back until it crosses a small bridge.
Make a left after the bridge and look for the Sleep Picnic sign.




[Non-text portions of this message have been removed]

MORE ABOUT THE

NARCOLEPSY NETWORK CONFERENCE



This year's Narcolepsy Network Conference will be held in Cleveland
the weekend of October 19-21.  It will be at the Intercontinental Hotel
(on the campus of the Cleveland Clinic).  You can make hotel
reservations at narcolepsynetwork.org or by calling 216-707-4000 or
877-707-8999.  Request group rate "POY".  (The cost of rooms is
$99 per night before tax.)

The keynote speaker will be Dr. Emmanuel Mignot, the director of the
Stanford University Center for Narcolepsy and the primary researcher
into the causes of narcolepsy in the United States.  You will also have
the choice of 3 options for each conference session with a wide variety
of topics including Narcolepsy Basics, Research Updates, Current
Treatments, Lifestyle Management, Support Options, Alternative
Approaches and Additional Resources.

The Narcolepsy Network website will be posting updates on confirmed
speakers, session topics, full agenda and scholarship opportunities.

This is a wonderful opportunity for us to attend and to share with
others who have narcolepsy from all over the country!





[Non-text portions of this message have been removed]

http://julieflygare.com/nice-news-segment-narcolepsy-cataplexy/

 
...
laura j evert
olde north neighborhood of columbus, ohio usa
tel: 614.784.8823 (24 hr messaging) / cell: 330.285.5656 (no voice mail)
buy handmade! dreamiestgirlever.etsy.com
{please consider the environment before printing this e-mail}

[Non-text portions of this message have been removed]

Wish I could have made it today, really like the speakers dealing with
narcolepsy.  I was unable to make it to the meeting due to a prior engagement. 
I was wondering if anyone had a summation of what was discussed at the meeting
that might be helpful to those of us with narcolepsy who were unable to attend.

Thanks,
Danielle

--- In centralohiosleepdisorders@yahoogroups.com, "ellenhaider"
<ellenhaider@...> wrote:
>
>
> Please join us Sunday, July 15 from 2-4pm  @ The Elizabeth Blackwell
> Center
>
> We will share our favorite sources of information for coping with our
> sleep-related problems at our meeting on July 15.
> Laura Evert (She's back!) will start the ball rolling by telling us
> about Julie Flygare, a 28 yr old woman with narcolepsy and cataplexy who
> helped to start wakeupnarcolepsy.org <http://wakeupnarcolepsy.org/> .
> We'll also check to see if everyone understands how to use our yahoo
> group and discuss some of the groups available on facebook.
>
> What sources have you found helpful?  (I'm old fashioned, so my
> favorite source is a book!) Bring something to share or just come
> prepared to learn.
>
> Light refreshments will be provided.
>
>
> The Elizabeth Blackwell Center will no longer be available to us for
> meetings after our meeting in July.  They are closing the facility.  Any
> suggestions as to other possible meeting sites for the group?
>
> (The Elizabeth Blackwell Center is north of Riverside Hospital.  The
> address is 3635 Olentangy River Road.)
>
> Hope to see you there!
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the centralohiosleepdisorders
group.

   File        : /N facebook resources.doc
   Uploaded by : dreamiestgirlever <dreamiestgirlever@...>
   Description : N groups on FACEBOOK

You can access this file at the URL:
http://groups.yahoo.com/group/centralohiosleepdisorders/files/N%20facebook%20res\
ources.doc

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html
Regards,

dreamiestgirlever <dreamiestgirlever@...>

hi danielle. at the meeting we were introduced to julie flygare, a PWN+C and a
sleep activist. you can read all about her and her various media appearances at
julieflygare.com. she is quite impressive and inspiring.

we also talked about N groups on facebook. i've attached a file listing all the
ones i could find but in case you can't open the file, i have listed the
contents below. hope to see you soon! maybe in cleveland?

--- In centralohiosleepdisorders@yahoogroups.com, "Danielle" <dschmid17@...>
wrote:
>
> Wish I could have made it today, really like the speakers dealing with
narcolepsy.  I was unable to make it to the meeting due to a prior engagement. 
I was wondering if anyone had a summation of what was discussed at the meeting
that might be helpful to those of us with narcolepsy who were unable to attend.
>
> Thanks,
> Danielle

...........

NARCOLEPSY GROUPS ON FACEBOOK
Information as of 06/27.2012
………………………………....................................................................\
............................

  N. R. G. (Narcolepsy Resource Group)
"http://www.facebook.com/#!/groups/narcresource/members/"

Closed Group / 294 members

Wisdom is nothing more than healed pain. ~Robert Gary Lee
Est. February 2,
2010,

This is a place to help collect, sort, and disseminate information about
resources for people with Narcolepsy. Many of us have other autoimmune and/or
autonomic issues, and we do discuss this also. This is not a support group but a
place where information on Narcolepsy can be discussed. (this has now changed)
This is not a group of professionals giving advice. This is strictly a place for
people with narcolepsy to discuss what is known. Please know that some of this
info may be completely wrong and that a person must always rely on what their
medical providers tell them. This is not a place for diagnosis.

If
you wish to discuss a topic that has already been created, then please post your
comments within the existing category. Create a new discussion only if there is
not a discussion already started.
………………………………....................................................................\
............................

Narcolepsy Support Group
http://www.facebook.com/#!/groups/2212151373/members/

Open Group / 1619 members

Welcome! This is a group for people with narcolepsy and hypersomniacs to meet,
talk, and empathize with each other. We all work hard to be supportive of each
other.
………………………………....................................................................\
............................

PWN
http://www.facebook.com/#!/groups/peoplewithnarc/members/

Secret Group /  465 members

Members have Narcolepsy, IH, or are in the process of being diagnosed and wish
to connect with others who understand.

This group is for PWN ONLY.
If you are looking for support as a careperson for someone with Narcolepsy,
please join us at  "http://www.facebook.com/planetnarcolepsy". Message @Jessica
Stanton for other resources.
………………………………....................................................................\
............................

Narcolepsy Network
http://www.facebook.com/#!/groups/narcolepsynetwork/members/

Open Group / 1703 members

For people who are part of the Narcolepsy Network or for those that wish to
learn more about what we stand for. Also a general meeting place to meet and
talk about those that are affected in one way or another by Narcolepsy (directly
or indirectly)
………………………………....................................................................\
............................

N[ART] narcolepsy art
http://www.facebook.com/#!/groups/194351243920481/members/

Closed Group / 59 members

N[ART] is a grassroots effort to educate the world about the neurological
sleep/wake disorder narcolepsy + the importance of sleep through continuous +
evolving creative works + projects.
………………………………....................................................................\
............................

Narcoleptics
http://www.facebook.com/#!/groups/2210106425/members/

Open Group / 342 members

A group for those of us who have narcolepsy. I have no clue what, if anything,
will become of this group, but I looked for an existing one for narcoleptics and
only found one that seemed to be making fun of it, so I decided to create a
group for those of us who actually have it.

Idiopathic
hypersomniacs are also more than welcome to join this group, as are
family/friends of people with N/IH.

………………………………....................................................................\
............................

Danielle and others,

Just to make it clear, we didn't have a "real professional" at our meeting last
Sunday. Instead (and in some ways much better) one of our members, Laura Evert
(aka dreamiest girl ever), caught us up on some of the sources available to
people with narcolepsy.  Most of the sources she told us about are now posted on
this site.  One is a message about a young woman named Julie Flygare who has
become an activist (One would have thought that was an oxymoron for someone with
narcolepsy, but apparently not in Julie's case)and is the author of a blog "REM
runner" among other things.  Another source she told us about is on this site,
but accessible not under "messages" but under "files".  It lists some of the
sources on Facebook that are very active regarding narcolepsy.  (Darn.  I guess
I'll have to bite the bullet and finally sign up for Facebook.)  Laura also
brought us some copies of a very good article describing N that appeared in the
New York Times on Tues., March 6 titled "Too Often, Doctors Overlook
Narcolepsy".

One of my favorite sources of information is the book "Narcolepsy Primer: A
Guide for Patients and Professionals" by Meeta Goswami and Michael Thorpy of the
Montefiore Medical Center in The Bronx.  It can be ordered through their website
www.narcolepsy institute.org for $12. It's only slightly dated having been
published in 2006, but packs a lot of information into 36 pages.

Does anybody else have some favorite sources of information regarding sleep to
recommend?  Don't be shy. Speak up!


--- In centralohiosleepdisorders@yahoogroups.com, "Danielle" <dschmid17@...>
wrote:
>
> Wish I could have made it today, really like the speakers dealing with
narcolepsy.  I was unable to make it to the meeting due to a prior engagement. 
I was wondering if anyone had a summation of what was discussed at the meeting
that might be helpful to those of us with narcolepsy who were unable to attend.
>
> Thanks,
> Danielle
>
> --- In centralohiosleepdisorders@yahoogroups.com, "ellenhaider" <ellenhaider@>
wrote:
> >
> >
> > Please join us Sunday, July 15 from 2-4pm  @ The Elizabeth Blackwell
> > Center
> >
> > We will share our favorite sources of information for coping with our
> > sleep-related problems at our meeting on July 15.
> > Laura Evert (She's back!) will start the ball rolling by telling us
> > about Julie Flygare, a 28 yr old woman with narcolepsy and cataplexy who
> > helped to start wakeupnarcolepsy.org <http://wakeupnarcolepsy.org/> .
> > We'll also check to see if everyone understands how to use our yahoo
> > group and discuss some of the groups available on facebook.
> >
> > What sources have you found helpful?  (I'm old fashioned, so my
> > favorite source is a book!) Bring something to share or just come
> > prepared to learn.
> >
> > Light refreshments will be provided.
> >
> >
> > The Elizabeth Blackwell Center will no longer be available to us for
> > meetings after our meeting in July.  They are closing the facility.  Any
> > suggestions as to other possible meeting sites for the group?
> >
> > (The Elizabeth Blackwell Center is north of Riverside Hospital.  The
> > address is 3635 Olentangy River Road.)
> >
> > Hope to see you there!
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>

07/19/2012
'N Remains Misunderstood and Underdiagnosed'
http://www.huffingtonpost.com/russell-rosenberg-phd/narcolepsy_b_1659659.html

 
...
laura j evert
olde north neighborhood of columbus, ohio usa
tel: 614.784.8823 (24 hr messaging) / cell: 330.285.5656 (no voice mail)
buy handmade! dreamiestgirlever.etsy.com


o N[ART] narcolepsyart on YAHOO!: groups.yahoo.com/group/narcolepsyart
o N[ART] narcolepsyart on
FACEBOOK: http://www.facebook.com/groups/194351243920481/
o OHIO NARCOLEPSY GROUP:
http://www.dailystrength.org/groups/ohio-narcolepsy-group
o CENTRAL OHIO SLEEP DISORDERS SUPPORT GROUP:
groups.yahoo.com/group/centralohiosleepdisorders

[Non-text portions of this message have been removed]

Please join us for a meeting on Sunday, Sept. 23 from 2-4Location: The
Ohio Sleep Medicine Institute in DublinSpeaker: Dr. Markus SchmidtTopic:
Restless Leg Syndrome Impact if it is untreated Treatment options The
role of iron deficiency in its managementYou may RSVP to 614-766-0773
ext. 101, but if you don't respond in advance you are still  welcome
to come.Light refreshments will be served.
The Ohio Sleep Medicine Institute4975 Bradenton Ave.Dublin, Ohio
43017Bradenton runs off of Frantz Rd. south of Route 161 and north of
Hayden Run Rd. Complete directions available at www.sleepmedicine.com



[Non-text portions of this message have been removed]

WHAT ARE YOU DOING ON AUGUST 19 FROM 5:00-7:00?
COMING TO OUR PICNIC AT WHETSTONE PARK!
WHAT ELSE?
Bring a dish of food to share.  All else will be provided.We will be
there rain or shine (so hope for sunshine).Family and friends are
welcome.
If you wish, bring a wrapped gift for the white elephant gift
exchange.If you have extra lawn chairs, bring them along.
How to get there:  The entrance to whetstone Park and the Park of Roses
is next to the Whetstone Library at 3909 N. High St.  It is north of
North  Broadway and south of Henderson and Cook.  Take the road back
until it crosses a small bridge.  Make a left after the bridge and look
for the Sleep Picnic sign.


[Non-text portions of this message have been removed]

It's on my calendar, I hope we will be able to make it.Ed Edward J. Howard
2617 Camino Pl W
Kettering, OH  45420-3932
937-293-1562
edhoward@...

---------- Original Message ----------
From: "ellenhaider" <ellenhaider@...>
To: centralohiosleepdisorders@yahoogroups.com
Subject: [central ohio sleep disorders] Don't forget our picnic on August 19!
Date: Sat, 04 Aug 2012 23:47:13 -0000


<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.01//EN"
"http://www.w3.org/TR/html4/strict.dtd">
WHAT ARE YOU DOING ON AUGUST 19 FROM 5:00-7:00?
COMING TO OUR PICNIC AT WHETSTONE PARK!
WHAT ELSE?
Bring a dish of food to share. All else will be provided.We will be
there rain or shine (so hope for sunshine).Family and friends are
welcome.
If you wish, bring a wrapped gift for the white elephant gift
exchange.If you have extra lawn chairs, bring them along.
How to get there: The entrance to whetstone Park and the Park of Roses
is next to the Whetstone Library at 3909 N. High St. It is north of
North Broadway and south of Henderson and Cook. Take the road back
until it crosses a small bridge. Make a left after the bridge and look
for the Sleep Picnic sign.

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

NARCOLEPSY NETWORK CONFERENCEComing soon to a city near you.October
19-21 at the Intercontinental Hotel in ClevelandRegister for conference
online or by mail.Early Bird rate of $210 before August 15  After that,
price for adults is $230.Full information available at
narcolepsynetwork.org.




[Non-text portions of this message have been removed]

anyone planning on going? need to share rides? taking greyhound? i will be
driving to the conference with glenn in a pickup truck so no room for more
people but lots of room for artwork (hint hint). contact me if you have some art
you want me to bring + display for you. officialness is attached...
 
...
laura j evert
olde north neighborhood of columbus, ohio usa
tel: 614.784.8823 (24 hr messaging) / cell: 330.285.5656 (no voice mail)


o N[ART] narcolepsyart on YAHOO!: groups.yahoo.com/group/narcolepsyart
o N[ART] narcolepsyart on
FACEBOOK: http://www.facebook.com/groups/194351243920481/
o OHIO NARCOLEPSY GROUP:
http://www.dailystrength.org/groups/ohio-narcolepsy-group
o CENTRAL OHIO SLEEP DISORDERS SUPPORT GROUP:
groups.yahoo.com/group/centralohiosleepdisorders

[Non-text portions of this message have been removed]

Central Ohio Sleep Disorders Support Group's Potluck Picnic TODAY! 5-7pm at
Whetstone Park in Clintonville. Look for the 'Sleep Picnic' sign. If you can't
bring anything, just bring yourself. All are welcome!

http://www.youtube.com/watch?v=NMmMNyTwePY

 
...
laura j evert
olde north neighborhood of columbus, ohio usa
tel: 614.784.8823 (24 hr messaging) / cell: 330.285.5656 (no voice mail)
buy handmade! dreamiestgirlever.etsy.com


o N[ART] narcolepsyart on YAHOO!: groups.yahoo.com/group/narcolepsyart
o N[ART] narcolepsyart on
FACEBOOK: http://www.facebook.com/groups/194351243920481/
o OHIO NARCOLEPSY GROUP:
http://www.dailystrength.org/groups/ohio-narcolepsy-group
o CENTRAL OHIO SLEEP DISORDERS SUPPORT GROUP:
groups.yahoo.com/group/centralohiosleepdisorders

[Non-text portions of this message have been removed]

The Dispatch has had a special section on a topic regarding to health once a
month on a Sunday.  This month the topic was sleep.

Here are links to a couple of the articles:

http://www.dispatch.com/content/stories/local/2012/08/26/health/what-keeps-you-u\
p-at-night.html

http://www.dispatch.com/content/stories/local/2012/08/26/health/no-rest-for-slee\
p-medicine-practitioners.html

Dear Support Group Member,
We would appreciate your input as to how the Central Ohio Sleep
Disorders Support Group can best serve your needs.  Please take a moment
to complete the questionnaire below and send it directly to
ellenhaider@....
Thanks for your assistance,
Ellen, Mary and LauraSupport Group Steering Committee Members
Please give us your input about meetings of the Central Ohio Sleep
Disorders Support Group and mail them directly to ellenhaider@...
1.  Are you still interested in attending Sleep Support meetings?

2.  If so how often do you feel that meetings should be held?      a.
every 3 mos.      b. every 4 mos.       c. every 6 mos.

3.  Is distance to meetings a problem when determining attendance?
4.  Do you feel the Sleep Support Group still has relevance for you?
5.  Have the meetings/information received been beneficial to you?
6.  If  we no longer can use Ohio Health facilities for meetings would
you still attend if meetings were held in a restaurant, cafe, or a
library?
7.  Is time/day of week of meetings something you would like to
change?If so, please give a suggestion as to change.
8.  What keeps you from coming to meetings more often?



Thank you for your time.  We don't want to waste yours.  Our group has
been meeting for a long time.  We want to ensure that people are still
interested.  We realize that you can get information on issues regarding
sleep disorders through other sources, but still feel there is a need
for discussion among ourselves.





[Non-text portions of this message have been removed]

Please check your calendar to see if you have made a note of our meeting
on September 23 from 2-4 at The Ohio Sleep Medicine Institute.  Dr.
Markus Schmidt will talk about Restless Leg Syndrome.  He will include
The impact of untreated Restless Leg Syndrome Current treatment options
The role of iron deficiency in the management of Restless Leg.
You may RSVP to 614-766-0773 ext. 101.  In the event you do not respond
in advance, you are still welcome to come.
In the second hour, we will support each other through group
discussion.Light refreshments will be served.
The Ohio Sleep Medicine Institute4975 Bradenton Ave. Dublin,Ohio
43017Bradenton runs off of Frantz Rd. south of Route 161 and north of
Hayden Run Rd.
More complete directions are available at www.sleepmedicine.com.
We hope to see you there!



[Non-text portions of this message have been removed]

1 - Yes2 - a3 - No4 - Yes5 - Yes6 - Yes7 - No8 - Conflicts with other Duty,
usually can avoid them. Ed Edward J. Howard
2617 Camino Pl W
Kettering, OH  45420-3932937-293-1562
edhoward@...

---------- Original Message ----------
From: "ellenhaider" <ellenhaider@...>
To: centralohiosleepdisorders@yahoogroups.com
Subject: [central ohio sleep disorders] Support Group Questionnaire
Date: Fri, 07 Sep 2012 21:09:38 -0000



Dear Support Group Member,
  We would appreciate your input as to how the Central Ohio Sleep
  Disorders Support Group can best serve your needs. Please take a moment
  to complete the questionnaire below and send it directly to
  ellenhaider@....
  Thanks for your assistance,
  Ellen, Mary and LauraSupport Group Steering Committee Members
  Please give us your input about meetings of the Central Ohio Sleep
  Disorders Support Group and mail them directly to ellenhaider@...
  1. Are you still interested in attending Sleep Support meetings?

  2. If so how often do you feel that meetings should be held? a.
  every 3 mos. b. every 4 mos. c. every 6 mos.

  3. Is distance to meetings a problem when determining attendance?
  4. Do you feel the Sleep Support Group still has relevance for you?
  5. Have the meetings/information received been beneficial to you?
  6. If we no longer can use Ohio Health facilities for meetings would
  you still attend if meetings were held in a restaurant, cafe, or a
  library?
  7. Is time/day of week of meetings something you would like to
  change?If so, please give a suggestion as to change.
  8. What keeps you from coming to meetings more often?

  Thank you for your time. We don't want to waste yours. Our group has
  been meeting for a long time. We want to ensure that people are still
  interested. We realize that you can get information on issues regarding
  sleep disorders through other sources, but still feel there is a need
  for discussion among ourselves.

  [Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Support Group Members,
I posted a questionnaire on Sept. 7 so that we can learn more about the
needs of this group as far as having meetings goes.  I received a good
response from those on our snail mailing list but very little response
from those of you who get your information about our group from our
Yahoo site.  If face-to-face meetings are of interest to you--or
not--please answer the questionnaire and send your answers to me
directly at ellenhaider@....
Thanks,Ellen


[Non-text portions of this message have been removed]

Sent from my Galaxy SยฎIIIellenhaider <ellenhaider@...> wrote:Support
Group Members,
I posted a questionnaire on Sept. 7 so that we can learn more about the
needs of this group as far as having meetings goes. I received a good
response from those on our snail mailing list but very little response
from those of you who get your information about our group from our
Yahoo site. If face-to-face meetings are of interest to you--or
not--please answer the questionnaire and send your answers to me
directly at ellenhaider@....
Thanks,Ellen

[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]

Support Group Members,
Please join us on Sun., Oct. 28, 2012 from 4-6pm.
We are no longer able to have our meetings at the Elizabeth Blackwell
Center, so we're trying something a little different.  We will meet at
the Corner Stone Deli and Cafe, 3296 N. High Street in Columbus.  That's
2 blocks south of North Broadway.  It is a popular Clintonville carry
out and hang out.  We've reserved the side room for our group.  The Deli
features both American and Asian cuisine at reasonable prices.
Topics:Summary of the Narcolepsy Network Conference (which is this
coming weekend in Cleveland).
A discussion of the results of the questionnaire that we recently sent
out.  By coming to the meeting, you will have the opportunity to voice
your preferences as to where we go from here.
If there is sufficient time and attendance, we can split up into groups
divided by sleep disorder.
We hope to see you there!


[Non-text portions of this message have been removed]

Dear Ellen,
What happened to the Elizabeth Blackwell Center?ย  Thanks.

Steve



________________________________
  From: ellenhaider <ellenhaider@...>
To: centralohiosleepdisorders@yahoogroups.com
Sent: Wednesday, October 17, 2012 5:46 PM
Subject: [central ohio sleep disorders] Our next meeting: Sunday, Oct. 28


ย 
Support Group Members,
Please join us on Sun., Oct. 28, 2012 from 4-6pm.
We are no longer able to have our meetings at the Elizabeth Blackwell
Center, so we're trying something a little different.  We will meet at
the Corner Stone Deli and Cafe, 3296 N. High Street in Columbus.  That's
2 blocks south of North Broadway.  It is a popular Clintonville carry
out and hang out.  We've reserved the side room for our group.  The Deli
features both American and Asian cuisine at reasonable prices.
Topics:Summary of the Narcolepsy Network Conference (which is this
coming weekend in Cleveland).
A discussion of the results of the questionnaire that we recently sent
out.  By coming to the meeting, you will have the opportunity to voice
your preferences as to where we go from here.
If there is sufficient time and attendance, we can split up into groups
divided by sleep disorder.
We hope to see you there!

[Non-text portions of this message have been removed]




[Non-text portions of this message have been removed]

A better rephrasing--why is the Elizabeth Blackwell Center no longer available?

Steve



________________________________
  From: Steven Glass <sglass111@...>
To: "centralohiosleepdisorders@yahoogroups.com"
<centralohiosleepdisorders@yahoogroups.com>
Sent: Saturday, October 20, 2012 2:09 PM
Subject: Re: [central ohio sleep disorders] Our next meeting: Sunday, Oct. 28


ย 
Dear Ellen,
What happened to the Elizabeth Blackwell Center?ย  Thanks.

Steve

________________________________
From: ellenhaider <ellenhaider@...>
To: centralohiosleepdisorders@yahoogroups.com
Sent: Wednesday, October 17, 2012 5:46 PM
Subject: [central ohio sleep disorders] Our next meeting: Sunday, Oct. 28


ย 
Support Group Members,
Please join us on Sun., Oct. 28, 2012 from 4-6pm.
We are no longer able to have our meetings at the Elizabeth Blackwell
Center, so we're trying something a little different.  We will meet at
the Corner Stone Deli and Cafe, 3296 N. High Street in Columbus.  That's
2 blocks south of North Broadway.  It is a popular Clintonville carry
out and hang out.  We've reserved the side room for our group.  The Deli
features both American and Asian cuisine at reasonable prices.
Topics:Summary of the Narcolepsy Network Conference (which is this
coming weekend in Cleveland).
A discussion of the results of the questionnaire that we recently sent
out.  By coming to the meeting, you will have the opportunity to voice
your preferences as to where we go from here.
If there is sufficient time and attendance, we can split up into groups
divided by sleep disorder.
We hope to see you there!

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]




[Non-text portions of this message have been removed]

Hi Steve and others who are interested in Steve's question,
OhioHealth decided that the upkeep needed on the building wasn't cost
effective.  I feel that explanation is a little fishy, though, since
they made the same decision about the building right next to it that was
used for hospice.  I think they have plans to extend the Riverside
complex but they haven't announced their plans, as far as I know.  Most
of the things that were housed in Elizabeth Blackwell have been moved
across the street to the Gerlach Center.
We haven't given up on the possibility of meeting somewhere else in the
OhioHealth complex, but for the meeting coming up this next Sunday, we
decided to try meeting in a deli that has a side room from 4-6 so people
will be more likely to buy something to eat (although people are welcome
to come without purchasing anything, of course).
It should be a good meeting with 2 main topics: News about narcolepsy
from last weekend's conference The future of our group including the
results of our questionnaire
Hope you all can come,  Ellen Haider

--- In centralohiosleepdisorders@yahoogroups.com, Steven Glass
<sglass111@...> wrote:
>
>
>
> A better rephrasing--why is the Elizabeth Blackwell Center no longer
available?
>
> Steve
>
>
>
> ________________________________
>  From: Steven Glass sglass111@...
> To: "centralohiosleepdisorders@yahoogroups.com"
centralohiosleepdisorders@yahoogroups.com
> Sent: Saturday, October 20, 2012 2:09 PM
> Subject: Re: [central ohio sleep disorders] Our next meeting: Sunday,
Oct. 28
>
>
> ย
> Dear Ellen,
> What happened to the Elizabeth Blackwell Center?ย  Thanks.
>
> Steve
>
> ________________________________
> From: ellenhaider ellenhaider@...
> To: centralohiosleepdisorders@yahoogroups.com
> Sent: Wednesday, October 17, 2012 5:46 PM
> Subject: [central ohio sleep disorders] Our next meeting: Sunday, Oct.
28
>
>
> ย
> Support Group Members,
> Please join us on Sun., Oct. 28, 2012 from 4-6pm.
> We are no longer able to have our meetings at the Elizabeth Blackwell
> Center, so we're trying something a little different.  We will meet at
> the Corner Stone Deli and Cafe, 3296 N. High Street in Columbus.
That's
> 2 blocks south of North Broadway.  It is a popular Clintonville carry
> out and hang out.  We've reserved the side room for our group.  The
Deli
> features both American and Asian cuisine at reasonable prices.
> Topics:Summary of the Narcolepsy Network Conference (which is this
> coming weekend in Cleveland).
> A discussion of the results of the questionnaire that we recently sent
> out.  By coming to the meeting, you will have the opportunity to voice
> your preferences as to where we go from here.
> If there is sufficient time and attendance, we can split up into
groups
> divided by sleep disorder.
> We hope to see you there!
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>
>
> [Non-text portions of this message have been removed]
>



[Non-text portions of this message have been removed]

ellenhaider <ellenhaider@...> wrote:

>Hi Steve and others who are interested in Steve's question,
>OhioHealth decided that the upkeep needed on the building wasn't cost
>effective.  I feel that explanation is a little fishy, though, since
>they made the same decision about the building right next to it that was
>used for hospice.  I think they have plans to extend the Riverside
>complex but they haven't announced their plans, as far as I know.  Most
>of the things that were housed in Elizabeth Blackwell have been moved
>across the street to the Gerlach Center.
>We haven't given up on the possibility of meeting somewhere else in the
>OhioHealth complex, but for the meeting coming up this next Sunday, we
>decided to try meeting in a deli that has a side room from 4-6 so people
>will be more likely to buy something to eat (although people are welcome
>to come without purchasing anything, of course).
>It should be a good meeting with 2 main topics: News about narcolepsy
>from last weekend's conference The future of our group including the
>results of our questionnaire
>Hope you all can come,  Ellen Haider
>
>--- In centralohiosleepdisorders@yahoogroups.com, Steven Glass
><sglass111@...> wrote:
>>
>>
>>
>> A better rephrasing--why is the Elizabeth Blackwell Center no longer
>available?
>>
>> Steve
>>
>>
>>
>> ________________________________
>>  From: Steven Glass sglass111@...
>> To: "centralohiosleepdisorders@yahoogroups.com"
>centralohiosleepdisorders@yahoogroups.com
>> Sent: Saturday, October 20, 2012 2:09 PM
>> Subject: Re: [central ohio sleep disorders] Our next meeting: Sunday,
>Oct. 28
>>
>>
>> ร‚
>> Dear Ellen,
>> What happened to the Elizabeth Blackwell Center?ร‚  Thanks.
>>
>> Steve
>>
>> ________________________________
>> From: ellenhaider ellenhaider@...
>> To: centralohiosleepdisorders@yahoogroups.com
>> Sent: Wednesday, October 17, 2012 5:46 PM
>> Subject: [central ohio sleep disorders] Our next meeting: Sunday, Oct.
>28
>>
>>
>> ร‚
>> Support Group Members,
>> Please join us on Sun., Oct. 28, 2012 from 4-6pm.
>> We are no longer able to have our meetings at the Elizabeth Blackwell
>> Center, so we're trying something a little different.  We will meet at
>> the Corner Stone Deli and Cafe, 3296 N. High Street in Columbus.
>That's
>> 2 blocks south of North Broadway.  It is a popular Clintonville carry
>> out and hang out.  We've reserved the side room for our group.  The
>Deli
>> features both American and Asian cuisine at reasonable prices.
>> Topics:Summary of the Narcolepsy Network Conference (which is this
>> coming weekend in Cleveland).
>> A discussion of the results of the questionnaire that we recently sent
>> out.  By coming to the meeting, you will have the opportunity to voice
>> your preferences as to where we go from here.
>> If there is sufficient time and attendance, we can split up into
>groups
>> divided by sleep disorder.
>> We hope to see you there!
>>
>> [Non-text portions of this message have been removed]
>>
>> [Non-text portions of this message have been removed]
>>
>>
>>
>>
>> [Non-text portions of this message have been removed]
>>
>
>
>
>[Non-text portions of this message have been removed]
>
>
>
>------------------------------------
>
>Yahoo! Groups Links
>
>
>

File        : cosdsg flyer-1.pdf
Description : cosdsg general flyer

We are planning to have five support group meetings in 2013.
Here is the tentative schedule:
Sunday, January 27 from 2:00-4:00 at the Ohio Sleep Medicine Institute
in Dublin.  Glen Payton will review the various CPAP options.
Sunday, April 21 from 2:00-4:00 at an OhioHealth facility
Sunday, July 14 from 2:00-4:00 at the Ohio Sleep Medicine Institute in
Dublin
Sunday, August 18 from 5:00-7:00 our annual picnic at Whetstone Park
Sunday, October 6 from 2:00-4:00 at an OhioHealth facility
Mark your calendars as you prepare for the new year.
Happy New Year to all!


[Non-text portions of this message have been removed]

Laurence Schmidt prepared the following information regarding our
meeting on Sunday January 27 from 2:00-4:00.  We hope to see you there!
Ohio Sleep Medicine Institute 4975 Bradenton Avenue Dublin, OH
43017rsvp: contact@... <mailto:contact@...>
Make CPAP Your New Best Friend! Master the Ins and Outs of Your
Equipment to Maximize the Benefits of Therapy
Glen Payton, medical equipment coordinator at the Ohio Sleep Medicine
Institute, will review the differences between CPAP, AutoPAP and BiPAP,
explain which equipment is most suited according to patient's needs,
define the various types of masks available, describe equipment cleaning
so as to maximize longevity, provide recommendations as to when filters,
mask and tubing need changing.
Attendees are encouraged to bring their machine, ask questions and share
stories or comments. This session is designed for current and
prospective CPAP/AutoPAP/BiPAP users. You will receive tips,
recommendations and best practices so you can maximize your nights using
the device and improve your health.
Glen Payton is a seasoned respiratory therapist with decades of
expertise in the field. Over the course of his career, he has tested an
extensive array of machines, masks, tubes, and accessories. Patients
regularly consult him to solve problems they encounter. A CPAP user
himself, he understands the issues at play and concerns patients may
face.



[Non-text portions of this message have been removed]