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centralohiosleepdisorders · our local support group online

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Group Information

  • Members: 151
  • Category: Support
  • Founded: May 8, 2001
  • Language: English
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I have been diagnosed with narcolepsy, irritable bowel syndrome, generalized anxiety disorder, interstitial cystis, GERD, restless legs syndrome and now my...
6 Jan 5, 2011
9:11 pm

CHERYL MARTIN
wannabmainers
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a proper mailing will be sent this month but here is a sneak peek for what we have planned so far for this year... 2011 MEETING SCHEDULE mark your calendars...
1 Jan 1, 2011
9:50 pm

lje
dreamiestgir...
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narcolepsyonian! my new favorite word -- thank you jamie! ... ... laura j evert old north neighborhood of columbus, ohio usa o N[ART] narcolepsyart:...
1 Dec 29, 2010
4:01 pm

lje
dreamiestgir...
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Hey guys. I joined the group this fall, but haven't been very active in it, since I don't live in Ohio. I've found the online stuff to be quite helpful...
1 Dec 28, 2010
5:36 am

gimr7
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Hi If there is anyone going to the NN mini conference in New Albany this Saturday, and interested in coming early to have lunch, I propose we set something up....
1 Nov 4, 2010
4:13 am

Marcianna
o0marcianna0o
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An afternoon of Education * Information * Resources * Support * Community for people with narcolepsy, family members and friends ...
2 Oct 30, 2010
7:17 am

Marcia Coy
o0marcianna0o
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at second impressions consignment shop on north high street (about 1 mile or so north of graceland on west side of street). [Non-text portions of this message...
2 Oct 23, 2010
8:49 pm

Ellen Haider
ellenhaider
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There will be an ART SHOW at the Narcolepsy Network Conference, Friday, October 8 - Sunday, October 10, 2010 in Arlington, Virginia. Organizers Pam Sabourin +...
1 Sep 2, 2010
12:03 pm

lje
dreamiestgir...
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who meets monthly in columbus, ohio. http://www.dailystrength.org/groups/ohio-narcolepsy-group...
1 Aug 28, 2010
4:29 pm

laura j evert
dreamiestgir...
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Narcolepsy is an autoimmune disorder, Stanford researcher says. Finding could lead to new treatments, better understanding of other autoimmune diseases. ...
1 Aug 28, 2010
4:25 pm

laura j evert
dreamiestgir...
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For NE Ohio I liked Dr. Charles Bae at Cleveland Clinic, Neurology, 9500 Euclid Ave, Cleveland, OH 44195. Local number 444-3323 or 1800-223-2273 ext 43323 He...
1 Aug 26, 2010
6:39 am

appleheadq
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i would recommend Frankie Roman, MD. He is a great sleep advocate, understands narcolepsy, + cares very much for his patients + sleep medicine in general. ...
1 Aug 24, 2010
2:10 pm

lje
dreamiestgir...
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http://abcnews.go.com/nightline Paralyzed by Love Man's rare brain malady causes him to sleep whenever loving emotions well up....
1 Aug 20, 2010
12:37 am

lje
dreamiestgir...
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ABC Nightline Primetime tonight. http://abcnews.go.com/Nightline/video/man-literally-paralyzed-love-11398512...
1 Aug 20, 2010
12:35 am

lje
dreamiestgir...
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Dr. Markus Schmidt Addresses Sleep Problems and Health Risks at the Columbus Health & Fitness Expo DUBLIN, OH--(Marketwire - August 18, 2010) - Dr. Markus...
1 Aug 19, 2010
4:04 pm

lje
dreamiestgir...
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i finally found a place to watch this... i think the whole film is here in separate clips. about to watch it but wanted to post before i forgot. i was at the...
2 Aug 16, 2010
1:22 am

Tom Carter
indiansfan38
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Hope to see you at our picnic this coming Sunday, Aug. 15 from 5:00-7:00 at Whetstone Park in Clintonville. We will meet to share food + fun + heartfelt...
1 Aug 12, 2010
4:17 pm

ellenhaider
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MAD LIBS: to begin with, DO NOT look at the story on the page below. make a list of the words called for. then, using the words you have selected, fill in the ...
1 Aug 10, 2010
4:17 am

lje
dreamiestgir...
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just stumbled on to this. don't know anything about it. but looks like this could help some of us. Ohio Legal Rights Service 50 W. Broad St., Suite 1400 ...
1 Jul 19, 2010
9:31 am

laura j evert
dreamiestgir...
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something we learned at sundays meeting... a place to get medications for free. it is located in the church downtown with the big jesus shadow on it at night,...
1 Jul 19, 2010
9:21 am

laura j evert
dreamiestgir...
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we've have a few new members join so i wanted to make sure they have this information + also to remind others out there. From our last meeting announcement... ...
1 Jul 13, 2010
11:02 am

laura j evert
dreamiestgir...
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I just received an e-mail today from Narcolepsy Network about a contest that could result in further funding for research into narcolepsy. It's being...
1 Jun 8, 2010
7:50 pm

ellenhaider
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Has anyone on here ever heard of a hypocretin deficiency for people with narcolepsy. I seem to gain weight at a fast pace and talked to my sleep doctor about...
2 Jun 8, 2010
7:35 pm

ellenhaider
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I have been suffering with Narcolepsy for a few years now and have been struggling with my current doctor. I was wondering if anyone has a strong opinion on...
5 Jun 3, 2010
2:51 am

angelina
angelina8863
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PLEASE POST OR SHARE THIS NOTICE NARCOLEPSY GATHERING [help us come up with a catchier name at our first meeting!] ________________________________________ We...
1 Mar 15, 2010
7:50 pm

lje
dreamiestgir...
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RADIOLAB program on Dreams: Friday, May 25, 2007 on wnyc.org Astrologers and psychics, move over, labcoat scientists are getting in on the study of dreams....
2 Mar 2, 2010
5:46 am

appleheadq@...
appleheadq
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I really don't have anything to add to Laura's description of our futile search for Dr. Clark's funeral, except that we checked when I got home and if I'm not...
1 Feb 13, 2010
1:06 am

ellenhaider
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Dr. Clark's widow, family, and office manager all assured me and my wife that they are working to choose someone who will be best to continue Dr. Clark's...
3 Feb 12, 2010
11:06 pm

Marcia Coy
o0marcianna0o
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some patients of dr. robert clark have asked for a recommendation to a new sleep doctor. i hope some of you can recommend your doctor here. if you have...
2 Feb 11, 2010
5:52 pm

Marcianna
o0marcianna0o
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i should have included ALL sleep disorders as dr. clark did not just have narcolepsy patients. sorry about that. my mind has been with many of his narcolepsy...
1 Feb 10, 2010
9:31 pm

lje
dreamiestgir...
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