The Central Ohio Sleep Disorders Support Group will have its quarterly
meeting this coming Sunday, July 22 from 2-4 pm at the Elizabeth
Blackwell Center in Columbus.

We'll be sharing Coping Strategies with each other--ways that we have
found to deal with insomnia, daytime sleepiness, and other fun things
that are a part of having a sleep disorder.

We'd love to see you there.  If you need directions on how to get there
or have other questions feel free to contact me.

Ellen Haider

The next meeting of the Central Ohio Sleep Disorders Support Group will
be on Sunday, October 28 from 2:00-4:00 at the Elizabeth Blackwell
Center located north of Riverside Hospital on Olentangy River Road.
Dr. Maureen Delphia, a board certified sleep specialist, will join us
to answer our questions about sleep.

Hope you can be there!

Ellen Haider

hello everyone. just something to share. hope this holiday season is
treating you well. share your dream + wishes. /laura

from NIGHT: night life, night language, sleep, and
dreams. by a. alvarez, 1995.

page 90 `the discovery of rem sleep in 1953 was a
turning point. rapid eye movement, of course, had been
there to be seen by anyone who ever watched a sleeping
dog, eyes rolling, feet twitching, as it chased a
dream rabbit. there is even a passing reference to rem
in the first great work of popular science,
lucretius's poem de rerum natura. but observation, as
scientists say, is always theory driven – you only see
what you are looking for – and nobody had ever focused
on the phenomenon or thought about what it meant.

the breakthrough was made by eugene aserinsky, a
graduate student who never graduated, a drop-out avant
la lettre; he dropped out of dental school and dropped
out of social work before he found his way to the
university of chicago, where taken in  - `like a stray
cat', he has said – by nathanial kleitman, one of the
founders of sleep research. aserinsky had noticed that
the eyes move during sleep and he wanted to study the
physiology of this curious phenomenon; he was
interested, that is, in the how, not the why of what
was eventually called rem sleep. it was an idea no one
else had bothered with, and to study it he resurrected
a junked electroencephalograph from the university's
basement and wired up one of his eight-year-old son's
eyes while the child slept. But the broken-down
machine went on breaking down, no matter how often
aserinsky fixed it, and even when it seemed to be
running properly, recording the slow waves of the
boy's rolling eye movements, its pens intermittently
went wild, tracing jagged peaks and troughs similar to
those of the waking brain. naturally, aserinsky
assumed the machine was malfunctioning, so he double
checked it by wiring up his son's other eye with a
second eeg in tandem with the first. when he still got
the same improbable results, he realized that he might
have stumbled on a significant discovery.

the next question was inevitable but tricky: what was
happening in his son's sleeping brain that made the
pens go wild? but that involved a step from
physiological change to mental event, and aserinsky
took it reluctantly since it contradicted everything
that was then thought to be true about the restorative
nature of sleep. within five years of publishing their
original article, however, aserinsky, kleitman, along
with another distinguished sleep researcher, william
c. dement, had established beyond a doubt that there
was a connection between rem sleep and dreaming. they
repeated aserinsky's experiments 343 times in
carefully controlled laboratory conditions and
discovered that when sleepers were woken while the
polysomnograph was registering rapid eye movement
sleep, between 80 and 95 percent of them reported
vivid dreams, compared with only 6.9 percent of those
woken from non-rem sleep.

the discovery said less about dreaming than about
sleep and the way the sleeping brain behaves.

...

'i've always had access to other worlds. we all do
because  we all dream. what i don't have  access to is
myself.' leonora carrington, surrealist painter

It's been good to hear from you recently.  Your entry on the website encourages
me to post more things on there that are legitimate.  I have one in mind, in
fact, that I'll try to post soon.

   More later,
   Ellen

laura j evert <dreamiestgirlever@...> wrote:
           hello everyone. just something to share. hope this holiday season is
treating you well. share your dream + wishes. /laura

from NIGHT: night life, night language, sleep, and
dreams. by a. alvarez, 1995.

page 90 `the discovery of rem sleep in 1953 was a
turning point. rapid eye movement, of course, had been
there to be seen by anyone who ever watched a sleeping
dog, eyes rolling, feet twitching, as it chased a
dream rabbit. there is even a passing reference to rem
in the first great work of popular science,
lucretius's poem de rerum natura. but observation, as
scientists say, is always theory driven – you only see
what you are looking for – and nobody had ever focused
on the phenomenon or thought about what it meant.

the breakthrough was made by eugene aserinsky, a
graduate student who never graduated, a drop-out avant
la lettre; he dropped out of dental school and dropped
out of social work before he found his way to the
university of chicago, where taken in - `like a stray
cat', he has said – by nathanial kleitman, one of the
founders of sleep research. aserinsky had noticed that
the eyes move during sleep and he wanted to study the
physiology of this curious phenomenon; he was
interested, that is, in the how, not the why of what
was eventually called rem sleep. it was an idea no one
else had bothered with, and to study it he resurrected
a junked electroencephalograph from the university's
basement and wired up one of his eight-year-old son's
eyes while the child slept. But the broken-down
machine went on breaking down, no matter how often
aserinsky fixed it, and even when it seemed to be
running properly, recording the slow waves of the
boy's rolling eye movements, its pens intermittently
went wild, tracing jagged peaks and troughs similar to
those of the waking brain. naturally, aserinsky
assumed the machine was malfunctioning, so he double
checked it by wiring up his son's other eye with a
second eeg in tandem with the first. when he still got
the same improbable results, he realized that he might
have stumbled on a significant discovery.

the next question was inevitable but tricky: what was
happening in his son's sleeping brain that made the
pens go wild? but that involved a step from
physiological change to mental event, and aserinsky
took it reluctantly since it contradicted everything
that was then thought to be true about the restorative
nature of sleep. within five years of publishing their
original article, however, aserinsky, kleitman, along
with another distinguished sleep researcher, william
c. dement, had established beyond a doubt that there
was a connection between rem sleep and dreaming. they
repeated aserinsky's experiments 343 times in
carefully controlled laboratory conditions and
discovered that when sleepers were woken while the
polysomnograph was registering rapid eye movement
sleep, between 80 and 95 percent of them reported
vivid dreams, compared with only 6.9 percent of those
woken from non-rem sleep.

the discovery said less about dreaming than about
sleep and the way the sleeping brain behaves.

...

'i've always had access to other worlds. we all do
because we all dream. what i don't have access to is
myself.' leonora carrington, surrealist painter






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[Non-text portions of this message have been removed]

Does anyone know of studies showing how disabling narcolepsy can be? I
was clinically diagnosed, put on disability by my doctor and then the
insurance behind the company I worked for disallowed the claim.  Three
days after I received the letter from the insurance company, the
company I worked for terminating me.  Going to see an attorney and
need any information anyone can provide to help me establish a solid case.
Thanks  and Blessings,
Randy

---Hello randy i also have narcolepsy and sleep apneq ,but amtill
working .I am not sure how to apply for disability but try looking in
the narcolepsy network or a site called talk aboutsleep .Those two
site will have infoprmation and help in what you may need bye for now
i hope i was able tp help .  In
centralohiosleepdisorders@yahoogroups.com, "Randy Allen"
<randygallen@...> wrote:
>
> Does anyone know of studies showing how disabling narcolepsy can be?
I
> was clinically diagnosed, put on disability by my doctor and then the
> insurance behind the company I worked for disallowed the claim.
Three
> days after I received the letter from the insurance company, the
> company I worked for terminating me.  Going to see an attorney and
> need any information anyone can provide to help me establish a solid
case.
> Thanks  and Blessings,
> Randy
>

randy, sorry to hear about your troubles. you can find
great info here:
http://www.talkaboutsleep.com/sleep-disorders/archives/medicare_disabilitycourse\
.htm

also try, www.narcolepsyinstiute.org.

we'll be thinking about you. /laura


      
________________________________________________________________________________\
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know-it-all with Yahoo! Mobile.  Try it now. 
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Randy,



This is all part of the process.I hate to say.  Yes, you do need to get
legal help NOW.

I have Sleep Apnea, IH, and something like Alzheimer's.   No matter what,
it's all in the Diagnosis and how specific it is.



I have realized that all this stuff is a headache and just a study will not
do it.  The insurance types that review this stuff already know this.  I
went thru all the meds for N and was intolerable to any of them.  I use a
machine to breathe at night also.  Now, I am on Aricept for the memory loss.



No matter how bad I am, the insurance co only looks to see if it fits into
their category of 'disabling conditions'.  N is vague to them, so they push
back.  This is normal for them.



Make sure you get legal help from someone that specializes in Disability.
This is very important but beware of the potential costs.  See if you have a
friend in the business first.  Most attorneys will not charge for a
consultation.



No matter what, get busy fast and get your answers asap, so you can get the
process going sooner than later, for your sake.



Good luck to you!



Darryl

Northside



   _____

From: centralohiosleepdisorders@yahoogroups.com
[mailto:centralohiosleepdisorders@yahoogroups.com] On Behalf Of Tom Gangluff
Sent: Tuesday, December 18, 2007 9:34 PM
To: centralohiosleepdisorders@yahoogroups.com
Subject: [central ohio sleep disorders] Re: Fired 3 days after long-term
disablility disallowed



---Hello randy i also have narcolepsy and sleep apneq ,but amtill
working .I am not sure how to apply for disability but try looking in
the narcolepsy network or a site called talk aboutsleep .Those two
site will have infoprmation and help in what you may need bye for now
i hope i was able tp help . In
centralohiosleepdis <mailto:centralohiosleepdisorders%40yahoogroups.com>
orders@yahoogroups.com, "Randy Allen"
<randygallen@...> wrote:
>
> Does anyone know of studies showing how disabling narcolepsy can be?
I
> was clinically diagnosed, put on disability by my doctor and then the
> insurance behind the company I worked for disallowed the claim.
Three
> days after I received the letter from the insurance company, the
> company I worked for terminating me. Going to see an attorney and
> need any information anyone can provide to help me establish a solid
case.
> Thanks and Blessings,
> Randy
>





[Non-text portions of this message have been removed]

The Central Ohio Sleep Disorders Support Group will hold our next
meeting Sunday, January 20 from 2:00-4:00 at the Elizabeth Blackwell
Center located on Olentangy River Road north of Riverside Hospital in
Columbus.

We will be sharing information among ourselves at this meeting.  Hope
you can join us.

Ellen Haider

On October 23, 2007, the N Y Times had an interesting Science section
about recent findings in the field of sleep research.  Here is a
summary of some of those articles.

"An Active, Purposeful Machine That Comes Out at Night to Play"
Neuroscientists are gradually learning more about the role sleep
plays in flagging and storing important memories.  It appears that
memorization of facts is aided by deep sleep.  Improvement of motor
skills takes place during Stage 2 sleep.  REM sleep helps us to make
sense of what we have learned--to see patterns. It is important,
then, in the creative process and it helps us to make sense of the
world around us.  Now research to learn more detailed information is
proceeding in mice and rats.  Learning more about the process in
humans, though, will take some very creative thinking indeed.

"From Faithful Dogs and Difficult Fish, Insight Into Narcolepsy"
This article is an overview of the research that has been done to
find the cause of narcolepsy.  By working with a group of narcoleptic
dogs, in 1999 Dr. Emmanuel Mignot and a team of researchers at
Stanford University discovered that narcolepsy is caused by a
deficiency of the neurochemical hypocretin in the brain.  The dogs
have now all been adopted by families, Dr. Mignot taking the last one
home with him.  Dr. Mignot is now quite certain that the immune
system in people with narcolepsy destroys the cells that manufacture
hypocretin, but it is proving very difficult to prove.  Mice and
zebrafish have not been as cooperative as the dogs were.  Still, he's
determined to find proof that narcolepsy is caused by a breakdown in
the immune system.

"Sleep Drugs Found Only Mildly Effective, but Wildly Popular"
Americans spend $4.5 billion a year for sleep medicine.  However, the
drugs do not greatly improve sleep for the average person.  People
often think they are being helped more than they really are.  This is
because most sleeping pills work on the same brain receptors as do
the drugs to treat anxiety.  Also, they tend to cause people to
forget that they had trouble sleeping.  Most specialists say that
sleeping pills are generally safe.  The article goes into more detail
about each medication and how it works.

"In the Dreamscape of Nightnames, Clues to Why We Dream at All"
When people are awakened from dreams during REM sleep, three-quarters
of the emotions described are negative.  Recent research suggests
that dreaming serves as the brain's way of discarding old fearful
memories.  If we don't wake up during our dreams, the disposal system
has been effective.  When we wake up during this process, we escape
prematurely, which results in a nightmare.  Therefore, bad dreams are
functional; nightmares are dysfunctional.

"The Elderly Always Sleep Worse, an Other Myths of Aging"
Because older people tend to complain more about their sleep, it has
been assumed until recently that sleep starts to deteriorate in late
middle age and steadily erodes from then on.  Now we know that older
adults who are healthy rarely have trouble sleeping.  People who have
sleep apnea, chronic pain, restless leg syndrome or urinary problems
wake up during the night--and many of these people are older.  More
has also been learned about the relationship of sleep to pain.  A
lack of sleep can apparently increase the sensation of pain.  Then
with worse pain, sleep may become even more difficult.

Ellen Haider

dear debbie forwarded this to me so i forward it to
you. tune in on 01/14-15! /laura

_____
Fri, 11 Jan 2008 20:38:50 -0800
Fwd: [Fwd: Social Security Disability Coalition
Announcement - URGENT - SSD Coalition News Alert - CBS
News Investigation On SSDI]
TO: "Members of Social Security Disability Coalition"
SocialSecurityDisabilityCoalition@...

Social Security Disability Coalition Announcement -
URGENT - SSD Coalition News Alert - CBS News
Investigation On SSDI, 01/14-15

Hi Everyone, Many here have heard that CBS News is
doing a story on Social Security Disability. Several
months ago I contacted them on this issue and the
problems here that everyone has been dealing with.
They realized the importance of this issue and as a
result on Monday & Tuesday, January 14th and 15th they
will be doing a TWO night investigative report. I
cannot even begin to tell you all how thrilled I am
about this. It has taken me 5 years to get this type
of coverage for us. One night would have been great,
but to be getting two nights of coverage on this issue
is incredible, and truly the break we have been
waiting for. It will air on the CBS Evening News With
Katie Couric 6:30 - 7:00 PM EST time - check your
local listings for TV station and air time in your
area. My piece will air on Monday night, and
ironically that is the 11 year anniversary of my brain
surgery, and second chance at life, so this is a very
strange time for me. If you cannot watch, I am pretty
sure they are going to be having it available on their
website as well, so I will send out a follow up e-mail
next week with the link and also put a link on our
website as well. Once this story airs it is the
perfect time to write ALL your elected officials as
this story is going to let the public know what is
really happening to all of us. You can contact all
your elected officials at: Congress.org
http://www.congress.org Congressional E-mail Directory
http://www.webslingerz.com/jhoffman/congress-email.html
It is also the perfect time to tell all the media
outlets you can (newspapers, TV, radio) about your
problems with the Social Security Disability process,
the Social Security Disability Reform Petition and the
Social Security Disability Coalition, as the focus
will now be on this issue, and the chances will be
much greater now for other media outlets to want to
cover it. You can contact the all media outlets in
your area and around the country through Congress.org
at: Find and contact national and local media:
http://www.congress.org/congressorg/dbq/media Thanks
to all of you who are already starting to do this.
Please don't stop now - we need to keep after them in
a big way because the more coverage we start to see,
the more we are likely to get. Also the more that this
issue is covered by the media, especially in an
election year, the more likely that Congress will be
willing to take notice and fix the problems. I hope
you all like the story and can share in the joy of
this major accomplishment. Hopefully there will be
many more to come this year. Thanks to everyone here
for your understanding and support. You are an amazing
group of people and I hope that one day I can meet you
all to thank you in person. I think that is an Oprah
show that really needs to happen! Be well! Sign the
Social Security Disability Reform Petition – read the
horror stories from all over the nation:
http://www.petitiononline.com/SSDC/petition.html Linda
Fullerton President/Co-Founder – Social Security
Disability Coalition ssdcoalition@...

Social Security Disability Coalition – offering FREE
information and support with a focus on SSD reform:
http://groups.msn.com/SocialSecurityDisabilityCoalition


Please check out my website “A Bump On The Head” at:
http://www.frontiernet.net/~lindaf1/bump.html Dying
Before Disability Benefits - R-News –

Time Warner – Channel 9
http://www.rnews.com/Story_2004.cfm?ID=55411&rnews_story_type=18


Sick of Waiting – AARP Bulletin – Barbara Basler –
November 2007
http://www.aarp.org/bulletin/socialsec/sick_of_waiting.html


AARP Radio – Prime Time Focus – Applying For Social
Security Disability Benefits – 12/18/07 - Some advice
from the President/Co-founder of The Social Security
Disability Coalition
http://radioprimetime.org/focusprograms.htm

Ask your elected officials to introduce/support -
Fullerton - Edwards Social Security Disability Reform
Act:
http://groups.msn.com/SocialSecurityDisabilityCoalition/fullertonedwardssocialse\
curitydisabilityreformact.msnw


Social Security Disability Nightmare – It Could Happen
To You!
http://www.frontiernet.net/~lindaf1/SOCIALSECURITYDISABILITYNIGHTMARE.html
“Don’t be a victim; become victorious!” “I am disabled
and my vote counts too!”



      
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know-it-all with Yahoo! Mobile.  Try it now. 
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Hello All

I just found this group tonight doing a general search. Anyway I just
had a sleep study test done this past week before doing that the
tester gave me a small brochure on Narcolepsy, after reading it I
noticed that I may fall into the catagory by the way I answered the
questions as a matter of fact by the questions answerd my score was a
22.

I have fallen asleep driving causing a small accident as well as at
work hitting my head on the computer monitor which woke me up as well
as almost falling out of my seat onto the floor but able to catch
myself before doing so.

When I get tired like that there is no control I really feel the urge
and need to sleep even if it is for a few minutes. Even right before
my test I was in my room falling asleep watching TV trying my darnest
not too I dont even remeber a show going off and a new one coming on
within a few minutes so Im not even sure my test will come out good
results becsue I dont feel I slept very well that night.

People have even said I fall asleep when they talk to me and I have no
memory of that happening. I also have these small pre dreams right as I
am falling asleep during the day but only for a very short time and
will snap out of it.

I thought by loosing weight (107 lbs) this would help my sleepiness and
it has not at all I feel the same way, I was wondering if any of you
have any suggestions from this point or can help me with what I have
just told you. Does this sound like Narcolepsy or maybe something else?
Thank You Much

Tom

--- Have you seen the Doctor about youe sleep study .the Dr .will
help with the falling asleep ,I have narcoleopsy and sleep apnea
inwuich my Dt . has me om perovigl /That helps .Hope to haer from you
on the medication .
  In centralohiosleepdisorders@yahoogroups.com, "Tom Carter"
<indiansfan38@...> wrote:
>
> People have even said I fall asleep when they talk to me and I have
no
> memory of that happening. I also have these small pre dreams right
as I
> am falling asleep during the day but only for a very short time and
> will snap out of it.
>
> I thought by loosing weight (107 lbs) this would help my sleepiness
and
> it has not at all I feel the same way, I was wondering if any of
you
> have any suggestions from this point or can help me with what I
have
> just told you. Does this sound like Narcolepsy or maybe something
else?
> Thank You Much
>
> Tom
>

The testwas just this past Thurs evening so I should be speaking to him soon ! I
just wish they would have caught the eposodes when I was falling asleep in there
before being hooked up because that is waht it was like , there was no control
of nodding out. I will keep you updated on what I foind out from my Dr though.
   Thanks Much

   Tom

Tom Gangluff <tgangluff2002@...> wrote:
           --- Have you seen the Doctor about youe sleep study .the Dr .will
help with the falling asleep ,I have narcoleopsy and sleep apnea
inwuich my Dt . has me om perovigl /That helps .Hope to haer from you
on the medication .
In centralohiosleepdisorders@yahoogroups.com, "Tom Carter"
<indiansfan38@...> wrote:
>
> People have even said I fall asleep when they talk to me and I have
no
> memory of that happening. I also have these small pre dreams right
as I
> am falling asleep during the day but only for a very short time and
> will snap out of it.
>
> I thought by loosing weight (107 lbs) this would help my sleepiness
and
> it has not at all I feel the same way, I was wondering if any of
you
> have any suggestions from this point or can help me with what I
have
> just told you. Does this sound like Narcolepsy or maybe something
else?
> Thank You Much
>
> Tom
>






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[Non-text portions of this message have been removed]

You are welcome let me know how things go with the doctor


Tom Carter <indiansfan38@...> wrote:
           The testwas just this past Thurs evening so I should be speaking to
him soon ! I just wish they would have caught the eposodes when I was falling
asleep in there before being hooked up because that is waht it was like , there
was no control of nodding out. I will keep you updated on what I foind out from
my Dr though.
Thanks Much

Tom

Tom Gangluff <tgangluff2002@...> wrote:
--- Have you seen the Doctor about youe sleep study .the Dr .will
help with the falling asleep ,I have narcoleopsy and sleep apnea
inwuich my Dt . has me om perovigl /That helps .Hope to haer from you
on the medication .
In centralohiosleepdisorders@yahoogroups.com, "Tom Carter"
<indiansfan38@...> wrote:
>
> People have even said I fall asleep when they talk to me and I have
no
> memory of that happening. I also have these small pre dreams right
as I
> am falling asleep during the day but only for a very short time and
> will snap out of it.
>
> I thought by loosing weight (107 lbs) this would help my sleepiness
and
> it has not at all I feel the same way, I was wondering if any of
you
> have any suggestions from this point or can help me with what I
have
> just told you. Does this sound like Narcolepsy or maybe something
else?
> Thank You Much
>
> Tom
>

---------------------------------
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[Non-text portions of this message have been removed]






---------------------------------
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[Non-text portions of this message have been removed]

Hi Tom,

   From what you describe, I will be surprised if you don't have narcolepsy. 
Most of your concerns about not testing well, I don't think matter.  People with
narcolepsy don't sleep well, so the fact that you didn't sleep well could
contribute to your diagnoses of narcolepsy.  Those predreams you describe are
called hypnogic hallucinations.  They can be creepy, especially because they
seem so real.

   If you want to read more about narcolepsy and other sleep disorders, I
recommend the web site talkaboutsleep.com.

   I know it's difficult, but you have plenty of company out there.  Do keep us
informed.

   Ellen Haider

Tom Carter <indiansfan38@...> wrote:
           The testwas just this past Thurs evening so I should be speaking to
him soon ! I just wish they would have caught the eposodes when I was falling
asleep in there before being hooked up because that is waht it was like , there
was no control of nodding out. I will keep you updated on what I foind out from
my Dr though.
Thanks Much

Tom

Tom Gangluff <tgangluff2002@...> wrote:
--- Have you seen the Doctor about youe sleep study .the Dr .will
help with the falling asleep ,I have narcoleopsy and sleep apnea
inwuich my Dt . has me om perovigl /That helps .Hope to haer from you
on the medication .
In centralohiosleepdisorders@yahoogroups.com, "Tom Carter"
<indiansfan38@...> wrote:
>
> People have even said I fall asleep when they talk to me and I have
no
> memory of that happening. I also have these small pre dreams right
as I
> am falling asleep during the day but only for a very short time and
> will snap out of it.
>
> I thought by loosing weight (107 lbs) this would help my sleepiness
and
> it has not at all I feel the same way, I was wondering if any of
you
> have any suggestions from this point or can help me with what I
have
> just told you. Does this sound like Narcolepsy or maybe something
else?
> Thank You Much
>
> Tom
>

---------------------------------
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[Non-text portions of this message have been removed]






---------------------------------
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[Non-text portions of this message have been removed]

Hello Ellen

   And thank you for your reply I appreciate it, I will check out the website
that you have suggested and I should get my results this week I am hoping. I
hope there is something they can do for me either way, I know I shouldnt feel
the way I do, especially trying to keep myself healthy and all with excercise an
diet. But thank you very much and I will keep you updated

   Tom

Ellen Haider <ellenhaider@...> wrote:
           Hi Tom,

From what you describe, I will be surprised if you don't have narcolepsy. Most
of your concerns about not testing well, I don't think matter. People with
narcolepsy don't sleep well, so the fact that you didn't sleep well could
contribute to your diagnoses of narcolepsy. Those predreams you describe are
called hypnogic hallucinations. They can be creepy, especially because they seem
so real.

If you want to read more about narcolepsy and other sleep disorders, I recommend
the web site talkaboutsleep.com.

I know it's difficult, but you have plenty of company out there. Do keep us
informed.

Ellen Haider

Tom Carter <indiansfan38@...> wrote:
The testwas just this past Thurs evening so I should be speaking to him soon ! I
just wish they would have caught the eposodes when I was falling asleep in there
before being hooked up because that is waht it was like , there was no control
of nodding out. I will keep you updated on what I foind out from my Dr though.
Thanks Much

Tom

Tom Gangluff <tgangluff2002@...> wrote:
--- Have you seen the Doctor about youe sleep study .the Dr .will
help with the falling asleep ,I have narcoleopsy and sleep apnea
inwuich my Dt . has me om perovigl /That helps .Hope to haer from you
on the medication .
In centralohiosleepdisorders@yahoogroups.com, "Tom Carter"
<indiansfan38@...> wrote:
>
> People have even said I fall asleep when they talk to me and I have
no
> memory of that happening. I also have these small pre dreams right
as I
> am falling asleep during the day but only for a very short time and
> will snap out of it.
>
> I thought by loosing weight (107 lbs) this would help my sleepiness
and
> it has not at all I feel the same way, I was wondering if any of
you
> have any suggestions from this point or can help me with what I
have
> just told you. Does this sound like Narcolepsy or maybe something
else?
> Thank You Much
>
> Tom
>

---------------------------------
Never miss a thing. Make Yahoo your homepage.

[Non-text portions of this message have been removed]

---------------------------------
Never miss a thing. Make Yahoo your homepage.

[Non-text portions of this message have been removed]






---------------------------------
Looking for last minute shopping deals?  Find them fast with Yahoo! Search.

[Non-text portions of this message have been removed]

I will do Tom, I am hoping maybe this week I will know more.

   Thanks Again
   Tom

TOM GANGLUFF <tgangluff2002@...> wrote:
           You are welcome let me know how things go with the doctor


Tom Carter <indiansfan38@...> wrote:
The testwas just this past Thurs evening so I should be speaking to him soon ! I
just wish they would have caught the eposodes when I was falling asleep in there
before being hooked up because that is waht it was like , there was no control
of nodding out. I will keep you updated on what I foind out from my Dr though.
Thanks Much

Tom

Tom Gangluff <tgangluff2002@...> wrote:
--- Have you seen the Doctor about youe sleep study .the Dr .will
help with the falling asleep ,I have narcoleopsy and sleep apnea
inwuich my Dt . has me om perovigl /That helps .Hope to haer from you
on the medication .
In centralohiosleepdisorders@yahoogroups.com, "Tom Carter"
<indiansfan38@...> wrote:
>
> People have even said I fall asleep when they talk to me and I have
no
> memory of that happening. I also have these small pre dreams right
as I
> am falling asleep during the day but only for a very short time and
> will snap out of it.
>
> I thought by loosing weight (107 lbs) this would help my sleepiness
and
> it has not at all I feel the same way, I was wondering if any of
you
> have any suggestions from this point or can help me with what I
have
> just told you. Does this sound like Narcolepsy or maybe something
else?
> Thank You Much
>
> Tom
>

---------------------------------
Never miss a thing. Make Yahoo your homepage.

[Non-text portions of this message have been removed]

---------------------------------
Never miss a thing. Make Yahoo your homepage.

[Non-text portions of this message have been removed]






---------------------------------
Never miss a thing.   Make Yahoo your homepage.

[Non-text portions of this message have been removed]

hello hello sleepy friends. i've collected much from
you over the years. here is a chance to have your
outpourings put into book form...
/laura, N[ART], columbus, ohio
www.myspace.com/dreamiestgirlever
www.dreamiestgirlever.etsy.com
_____________

From: "tesa mayorga" <tesamayorga@...>
Subject: Narcolepsy poetry book

My name is Tesa Mayorga (Sleep Health Projects
Coordinator for Dr. Rubin Naiman's organization, Third
Eye Sleep).
I'm working with Rubin on a compilation book of poetry
by narcoleptics about narcolepsy. The profits from
this
new book will go to the Narcolepsy Network. A possible
working title for the book is "Out from In-Between".

We would like your help in putting out a request for
poetry submissions through your website, newsletter,
email lists or any other recommendations you may have
for this. It would be ideal to have all submissions by
the end of April this year. Also, we would like some
support in trying to gather an advisory council of
poets (some of them with narcolepsy) to choose poems
for the book.

If there is anyone else who would like to help or be
involved in this project we would welcome their input
or assistance.

Thank you and I look forward to hearing from you about
this exciting new project!

Sincerely,
Tesa Mayorga, MPH, BSN
Sleep Health Projects Coordinator
Third Eye Sleep
520-312-1751
tesamayorga@...

life shrinks and expands in proportion to one’s
courage (Anaοs Nin)
the revolution is right here inside of you







      
________________________________________________________________________________\
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Looking for last minute shopping deals?
Find them fast with Yahoo! Search. 
http://tools.search.yahoo.com/newsearch/category.php?category=shopping

this is precious... one of us in training?
http://www.youtube.com/watch?v=2mXgJuL1drQ&feature=related


      
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http://www.yahoo.com/r/hs

hope this goes through this time....
----- Original Message -----
From: Rebecca Stephens
To: centralohiosleepdisorders@yahoogroups.com
Sent: Friday, May 30, 2008 5:08 PM
Subject: new diagnosis


Dear Group:

     My 14 year old son has just been diagnosed..... I am 22 miles North of
Louisville, outside of LaGrange, Kentucky.  There does not seem to be a support
group anywhere near me......

     There seems to be one in Indianapolis, and then there is your group in
Ohio......

     I am really needing to talk to other parents of kids with narcolepsy.... can
you help?

     Thanks for your time and consideration.

     Rebecca

[Non-text portions of this message have been removed]

I am not a parent of a child with narcolepsy, because I am not a parent, but
I have narcolepsy. I don't know if I can help, but I am willing to talk if
you like.



From: centralohiosleepdisorders@yahoogroups.com
[mailto:centralohiosleepdisorders@yahoogroups.com] On Behalf Of Rebecca
Stephens
Sent: Friday, May 30, 2008 6:28 PM
To: centralohiosleepdisorders@yahoogroups.com
Subject: [central ohio sleep disorders] Fw: new diagnosis



hope this goes through this time....
----- Original Message -----
From: Rebecca Stephens
To: centralohiosleepdisorders@yahoogroups.com
<mailto:centralohiosleepdisorders%40yahoogroups.com>
Sent: Friday, May 30, 2008 5:08 PM
Subject: new diagnosis

Dear Group:

My 14 year old son has just been diagnosed..... I am 22 miles North of
Louisville, outside of LaGrange, Kentucky. There does not seem to be a
support group anywhere near me......

There seems to be one in Indianapolis, and then there is your group in
Ohio......

I am really needing to talk to other parents of kids with narcolepsy.... can
you help?

Thanks for your time and consideration.

Rebecca

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

--- In centralohiosleepdisorders@yahoogroups.com, "Nikki Cottrill"
<any_ol_name@...> wrote:
>Hello I am not a parent but have narcolepsy my self and determned
thave had it all my life .I can talk top you if you would like .Also
go to a web sitre called talk abourt sleep ,there is alot of
information on sleepodisorders there that masy help you also .Hope
this helps .
> I am not a parent of a child with narcolepsy, because I am not a
parent, but
> I have narcolepsy. I don't know if I can help, but I am willing to
talk if
> you like.
>
>
>
> From: centralohiosleepdisorders@yahoogroups.com
> [mailto:centralohiosleepdisorders@yahoogroups.com] On Behalf Of
Rebecca
> Stephens
> Sent: Friday, May 30, 2008 6:28 PM
> To: centralohiosleepdisorders@yahoogroups.com
> Subject: [central ohio sleep disorders] Fw: new diagnosis
>
>
>
> hope this goes through this time....
> ----- Original Message -----
> From: Rebecca Stephens
> To: centralohiosleepdisorders@yahoogroups.com
> <mailto:centralohiosleepdisorders%40yahoogroups.com>
> Sent: Friday, May 30, 2008 5:08 PM
> Subject: new diagnosis
>
> Dear Group:
>
> My 14 year old son has just been diagnosed..... I am 22 miles North
of
> Louisville, outside of LaGrange, Kentucky. There does not seem to
be a
> support group anywhere near me......
>
> There seems to be one in Indianapolis, and then there is your group
in
> Ohio......
>
> I am really needing to talk to other parents of kids with
narcolepsy.... can
> you help?
>
> Thanks for your time and consideration.
>
> Rebecca
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

Rebecca,

   I'm afraid that we don't have any members active in our group who are parents
of children with narcolepsy and haven't had for quite some time.  Have you tried
contacting the Narcolepsy Network?  They have had several articles in their
publication--one just recently--about parents' struggle with children with
narcolepsy, especially regarding dealing with their schools.  I suggest that you
write to them.  I'm sure that they could link you up with others who are in the
same situation--online if not in person.  Their e-mail address is
narnet@....

   All best wishes,
   Ellen Haider

Rebecca Stephens <rjstephens@...> wrote:
           hope this goes through this time....
----- Original Message -----
From: Rebecca Stephens
To: centralohiosleepdisorders@yahoogroups.com
Sent: Friday, May 30, 2008 5:08 PM
Subject: new diagnosis

Dear Group:

My 14 year old son has just been diagnosed..... I am 22 miles North of
Louisville, outside of LaGrange, Kentucky. There does not seem to be a support
group anywhere near me......

There seems to be one in Indianapolis, and then there is your group in
Ohio......

I am really needing to talk to other parents of kids with narcolepsy.... can you
help?

Thanks for your time and consideration.

Rebecca

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

hello rebecca + welcome.
to connect with other parents start here:
www.narcolepsynetwork.org/forums. also try the message
boards at www.talkaboutsleep.com. as diagnosis is
occurring at younger ages, there are many parents to
go to for support + understanding.
/laura 614.784.8823

--- centralohiosleepdisorders@yahoogroups.com wrote:
  Fw: new diagnosis
Posted by:      "Rebecca Stephens"
rjstephens@...                          Fri
May 30, 2008 3:26 pm (PDT)
hope this goes through this time....
----- Original Message -----
From: Rebecca Stephens
To: centralohiosleepdisorders@yahoogroups.com
Sent: Friday, May 30, 2008 5:08 PM
Subject: new diagnosis

Dear Group:

My 14 year old son has just been diagnosed..... I am
22 miles North of Louisville, outside of LaGrange,
Kentucky.  There does not seem to be a support group
anywhere near me......

There seems to be one in Indianapolis, and then there
is your group in Ohio......

I am really needing to talk to other parents of kids
with narcolepsy.... can you help?

Thanks for your time and consideration.

Rebecca

Ellen... thanks so much for your response.. I will check out your suggestions...
it means a great deal to have made contact with your group....
thanks again,
Rebecca
   ----- Original Message -----
   From: Ellen Haider
   To: centralohiosleepdisorders@yahoogroups.com
   Sent: Saturday, May 31, 2008 6:27 PM
   Subject: Re: [central ohio sleep disorders] Fw: new diagnosis


   Rebecca,

   I'm afraid that we don't have any members active in our group who are parents
of children with narcolepsy and haven't had for quite some time. Have you tried
contacting the Narcolepsy Network? They have had several articles in their
publication--one just recently--about parents' struggle with children with
narcolepsy, especially regarding dealing with their schools. I suggest that you
write to them. I'm sure that they could link you up with others who are in the
same situation--online if not in person. Their e-mail address is
narnet@....

   All best wishes,
   Ellen Haider

   Rebecca Stephens <rjstephens@...> wrote:
   hope this goes through this time....
   ----- Original Message -----
   From: Rebecca Stephens
   To: centralohiosleepdisorders@yahoogroups.com
   Sent: Friday, May 30, 2008 5:08 PM
   Subject: new diagnosis

   Dear Group:

   My 14 year old son has just been diagnosed..... I am 22 miles North of
Louisville, outside of LaGrange, Kentucky. There does not seem to be a support
group anywhere near me......

   There seems to be one in Indianapolis, and then there is your group in
Ohio......

   I am really needing to talk to other parents of kids with narcolepsy.... can
you help?

   Thanks for your time and consideration.

   Rebecca

   [Non-text portions of this message have been removed]

   [Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

thanks so much for your response.... I will  check out your suggestions... I may
indeed need to talk... but currently, I am just trying to wrap my head around
this diagnosis, read up about it, and look for support groups...
thanks again
Rebecca
   ----- Original Message -----
   From: Tom Gangluff
   To: centralohiosleepdisorders@yahoogroups.com
   Sent: Saturday, May 31, 2008 1:28 PM
   Subject: [central ohio sleep disorders] Re: Fw: new diagnosis


   --- In centralohiosleepdisorders@yahoogroups.com, "Nikki Cottrill"
   <any_ol_name@...> wrote:
   >Hello I am not a parent but have narcolepsy my self and determned
   thave had it all my life .I can talk top you if you would like .Also
   go to a web sitre called talk abourt sleep ,there is alot of
   information on sleepodisorders there that masy help you also .Hope
   this helps .
   > I am not a parent of a child with narcolepsy, because I am not a
   parent, but
   > I have narcolepsy. I don't know if I can help, but I am willing to
   talk if
   > you like.
   >
   >
   >
   > From: centralohiosleepdisorders@yahoogroups.com
   > [mailto:centralohiosleepdisorders@yahoogroups.com] On Behalf Of
   Rebecca
   > Stephens
   > Sent: Friday, May 30, 2008 6:28 PM
   > To: centralohiosleepdisorders@yahoogroups.com
   > Subject: [central ohio sleep disorders] Fw: new diagnosis
   >
   >
   >
   > hope this goes through this time....
   > ----- Original Message -----
   > From: Rebecca Stephens
   > To: centralohiosleepdisorders@yahoogroups.com
   > <mailto:centralohiosleepdisorders%40yahoogroups.com>
   > Sent: Friday, May 30, 2008 5:08 PM
   > Subject: new diagnosis
   >
   > Dear Group:
   >
   > My 14 year old son has just been diagnosed..... I am 22 miles North
   of
   > Louisville, outside of LaGrange, Kentucky. There does not seem to
   be a
   > support group anywhere near me......
   >
   > There seems to be one in Indianapolis, and then there is your group
   in
   > Ohio......
   >
   > I am really needing to talk to other parents of kids with
   narcolepsy.... can
   > you help?
   >
   > Thanks for your time and consideration.
   >
   > Rebecca
   >
   > [Non-text portions of this message have been removed]
   >
   >
   >
   >
   >
   > [Non-text portions of this message have been removed]
   >





[Non-text portions of this message have been removed]

thank you so very much for your response.... it means a lot to have people
contacting me after I sent out my email... I will do some research and look into
some of the other suggestions that people have been so kind to send....
you are very kind..

thanks again,
Rebecca
   ----- Original Message -----
   From: Nikki Cottrill
   To: centralohiosleepdisorders@yahoogroups.com
   Sent: Saturday, May 31, 2008 1:05 PM
   Subject: RE: [central ohio sleep disorders] Fw: new diagnosis


   I am not a parent of a child with narcolepsy, because I am not a parent, but
   I have narcolepsy. I don't know if I can help, but I am willing to talk if
   you like.

   From: centralohiosleepdisorders@yahoogroups.com
   [mailto:centralohiosleepdisorders@yahoogroups.com] On Behalf Of Rebecca
   Stephens
   Sent: Friday, May 30, 2008 6:28 PM
   To: centralohiosleepdisorders@yahoogroups.com
   Subject: [central ohio sleep disorders] Fw: new diagnosis

   hope this goes through this time....
   ----- Original Message -----
   From: Rebecca Stephens
   To: centralohiosleepdisorders@yahoogroups.com
   <mailto:centralohiosleepdisorders%40yahoogroups.com>
   Sent: Friday, May 30, 2008 5:08 PM
   Subject: new diagnosis

   Dear Group:

   My 14 year old son has just been diagnosed..... I am 22 miles North of
   Louisville, outside of LaGrange, Kentucky. There does not seem to be a
   support group anywhere near me......

   There seems to be one in Indianapolis, and then there is your group in
   Ohio......

   I am really needing to talk to other parents of kids with narcolepsy.... can
   you help?

   Thanks for your time and consideration.

   Rebecca

   [Non-text portions of this message have been removed]

   [Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

Rebecca, I have the big N myself but live alone and am much older and I was
searching out information when I found out over a year ago.  I was desperate
myself to 'learn' something.anything!



All I can say is go thru the motions of doing your homework.  Don't argue
about any of this with your son 'til you learn what you are talking to him
about.  That is not a sarcastic remark to you, but a word of caution.most of
my biggest problems are with so-called friends that argue with me about
something they know absolutely nothing about (and I knew they didn't) but
all of a sudden 'become' experts in telling me that I'm ok and there's
nothing wrong with me; or worse yet.what I have to do about it.as long as
they are comfortable with 'it'.



I do understand that my true friends do not want to believe that there is
anything wrong with me (more for themselves than me sadly).  But, the
so-called friends are just letting their egos run amok at my expense
(well.if I let it).  Get as much info as you can and this is how it
happens.just the way you are doing it.  I did it this way and thought I was
just floundering around lost, but this is normal.  There is no easy way to
'arrive' where you want to be.  No direct line to call, that isn't just an
answering service or someone wanting to sell anyone a subscription to you
for reference material.



This group and the suggestions mentioned by others will start you on your
journey into a brand new world that you and your son can explore together as
you support him (and I'm sure you do or you wouldn't be here).



Remember, it's kinda new to him too, as it was for me.  But you will NEVER
be able to fully understand how he feels and why he behaves the way he does.
Nobody can unless they have personally experienced it themselves.  Sorry,
but that's the truth and that will bring you two together all the more!



Good luck to you both!



Darryl

Northside

E: ddravland@...



   _____

From: centralohiosleepdisorders@yahoogroups.com
[mailto:centralohiosleepdisorders@yahoogroups.com] On Behalf Of Rebecca
Stephens
Sent: Saturday, May 31, 2008 7:34 PM
To: centralohiosleepdisorders@yahoogroups.com
Subject: Re: [central ohio sleep disorders] Fw: new diagnosis



thank you so very much for your response.... it means a lot to have people
contacting me after I sent out my email... I will do some research and look
into some of the other suggestions that people have been so kind to send....
you are very kind..

thanks again,
Rebecca
----- Original Message -----
From: Nikki Cottrill
To: centralohiosleepdis <mailto:centralohiosleepdisorders%40yahoogroups.com>
orders@yahoogroups.com
Sent: Saturday, May 31, 2008 1:05 PM
Subject: RE: [central ohio sleep disorders] Fw: new diagnosis

I am not a parent of a child with narcolepsy, because I am not a parent, but
I have narcolepsy. I don't know if I can help, but I am willing to talk if
you like.

From: centralohiosleepdis
<mailto:centralohiosleepdisorders%40yahoogroups.com> orders@yahoogroups.com
[mailto:centralohiosleepdis
<mailto:centralohiosleepdisorders%40yahoogroups.com> orders@yahoogroups.com]
On Behalf Of Rebecca
Stephens
Sent: Friday, May 30, 2008 6:28 PM
To: centralohiosleepdis <mailto:centralohiosleepdisorders%40yahoogroups.com>
orders@yahoogroups.com
Subject: [central ohio sleep disorders] Fw: new diagnosis

hope this goes through this time....
----- Original Message -----
From: Rebecca Stephens
To: centralohiosleepdis <mailto:centralohiosleepdisorders%40yahoogroups.com>
orders@yahoogroups.com
<mailto:centralohiosleepdisorders%40yahoogroups.com>
Sent: Friday, May 30, 2008 5:08 PM
Subject: new diagnosis

Dear Group:

My 14 year old son has just been diagnosed..... I am 22 miles North of
Louisville, outside of LaGrange, Kentucky. There does not seem to be a
support group anywhere near me......

There seems to be one in Indianapolis, and then there is your group in
Ohio......

I am really needing to talk to other parents of kids with narcolepsy.... can
you help?

Thanks for your time and consideration.

Rebecca

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]