Brandy,

   I am still waiting to have a test for narcolepsy, but know I have some other
sleep disorder as well.  I keep reading about people with narcolepsy going on
disability as a matter of normal business with the condition.  I'm not sure how
I feel about that, but have found the following article from talkaboutsleep.com
to be very helpful.  Hopefully it will steer you in the right direction: 
http://www.talkaboutsleep.com/sleep-disorders/archives/disability_printable.htm
In it there are links to the Social Security Administration disability pages,
claim forms, and laws.

   Take care,
   Janice

tinichic7 <brandysmith7@...> wrote:
           Hello, I have been diagnosed with OSA and Narcolepsy for a little
over a year now and am struggling with work. I can't take the
Provigil so my doctors have me on Dexedrine Cr 10mg (8 pills a
day). I am off work again and people keep mentioning SSI to me, but
I don't know what it is or how to go about finding out about it. I
am only thirty but feel as if I am 90, so any help would REALLY be
appreciated!

Thanks in Advance

Brandy






A ship in the harbor is safe
   but that's not what ships are built for.

   Grace Murray Hopper


---------------------------------
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[Non-text portions of this message have been removed]

Hi Mike,

As someone else posted, you are technically protected under the ADA (Americans
with
Disabilities Act), however, having worked in the disability field and being a
person with
narcolepsy and other assorted disabilities, my personal preference is not to
disclose my
disabilities until I am in an interview or during the job negotiation.  There
are a lot of loop
holes that businesses can use (for example, narcolepsy is not one of the
official protected
disabilities under the law nor is chronic illness), and the number of challenges
brought by
individuals against employers are few and far between - most don't win, and most
people
feel ashamed or discouraged from bringing up a case.

The tricky part of the ADA is that you cannot prove you weren't given a fair
chance at a job
if they don't bring you in for an interview and you can't get accommodations (or
you have
a really, really, really hard time getting them) if you don't disclose to your
employer at the
time of employment, which is an ambigous defintion.  Therefore, many of us have
to face
the difficult decision of when to disclose and what is the best means of doing
so.

Again, I prefer to tell an employer once I have already won them over in the
interview, then
when towards the end or as part of one of the answers to a question, I bring up
my
disability and how it makes me a better employee.

For instance, in my current position, I was terrified about disclosing because I
was going
into a non-disability field.  I talked about how my narcolepsy and fibromyalgia
actually
serve to make me more organized and pay attention to my schedule because I don't
have
the liberty of pushing myself over the limits and recovering quickly.  I
explained to my
employer that proper communication and balance, which may mean working at home
occasionally or short naps, allows me to manage my time more effectively and
produce
better work.

The most important thing when disclosing is to be honest - tell your employer
what you
need and educate them nicely on how having these reasonable acommodations can
mean
a longer, productive working relationship.  Most employers just don't know how
to react
when you tell them you have narcolepsy - I mean, the most "popular" images of
narcolepsy are people falling on the floor asleep.  They don't necessarily know
that you
can work and that you can perform.

If you do choose to put it down on an application (don't put it on your resume,
no need
there), then it would go under disability.  Depending on where you are applying,
there may
be an ADA Coordinator or Disability Specialist to help you.  Again, technically
the law
prevents any employer from discriminating against you for putting down that you
have a
disability (any disability) on an application.

My feeling is that until we get everyone to understand what it means to have a
disability,
I'm not comfortable with disclosing on an application.  I can never know whether
or not
that person's previous experiences or their misconceptions (or biases) may
prevent me
from getting the opportunity to work with them.

Sorry for the long, long response.  This issue is something very important to
me.

I wish you all the best of luck, and feel free to email me if you have
questions.

best,
Kristina

--- In centralohiosleepdisorders@yahoogroups.com, "Mike & Kristen" <mjred23@...>
wrote:
>
> If you are diagnosed with Narcolesy.  Do you put that down on any
> application or resume or other with tell the company you are
> interviewing with?  Does it go under disability if you do?
>
> Thanks
>
> Mike
>

Kristina,

   your response is most important and well done!  Pointing out the pluses of
what you've learned in self care is genius!

   Please remember it is illegal for an employer to ask about disabilities on the
application or in an interview.  The closest they can get to it is to describe
the duties and then to ask "is there anything that would keep you from being
able to perform those as described?"  Then it is up to the person with an issue
to tell them.

   It surprises me that my sister is a regional expert on the ADA but didn't know
that her daughter did not have to reveal she is pregnant during interviews and
had advised her to agressively tell them what her needs were from insurance to
working conditions.  Your method of discussing the job itself and what your
talents/skills/self-awareness bring to doing the job very well in spite of what
might look like unusual working conditions is excellent.

   Take care,
   Janice

k1torres <k1torres@...> wrote:
           Hi Mike,

As someone else posted, you are technically protected under the ADA (Americans
with
Disabilities Act), however, having worked in the disability field and being a
person with
narcolepsy and other assorted disabilities, my personal preference is not to
disclose my
disabilities until I am in an interview or during the job negotiation. There are
a lot of loop
holes that businesses can use (for example, narcolepsy is not one of the
official protected
disabilities under the law nor is chronic illness), and the number of challenges
brought by
individuals against employers are few and far between - most don't win, and most
people
feel ashamed or discouraged from bringing up a case.

The tricky part of the ADA is that you cannot prove you weren't given a fair
chance at a job
if they don't bring you in for an interview and you can't get accommodations (or
you have
a really, really, really hard time getting them) if you don't disclose to your
employer at the
time of employment, which is an ambigous defintion. Therefore, many of us have
to face
the difficult decision of when to disclose and what is the best means of doing
so.

Again, I prefer to tell an employer once I have already won them over in the
interview, then
when towards the end or as part of one of the answers to a question, I bring up
my
disability and how it makes me a better employee.

For instance, in my current position, I was terrified about disclosing because I
was going
into a non-disability field. I talked about how my narcolepsy and fibromyalgia
actually
serve to make me more organized and pay attention to my schedule because I don't
have
the liberty of pushing myself over the limits and recovering quickly. I
explained to my
employer that proper communication and balance, which may mean working at home
occasionally or short naps, allows me to manage my time more effectively and
produce
better work.

The most important thing when disclosing is to be honest - tell your employer
what you
need and educate them nicely on how having these reasonable acommodations can
mean
a longer, productive working relationship. Most employers just don't know how to
react
when you tell them you have narcolepsy - I mean, the most "popular" images of
narcolepsy are people falling on the floor asleep. They don't necessarily know
that you
can work and that you can perform.

If you do choose to put it down on an application (don't put it on your resume,
no need
there), then it would go under disability. Depending on where you are applying,
there may
be an ADA Coordinator or Disability Specialist to help you. Again, technically
the law
prevents any employer from discriminating against you for putting down that you
have a
disability (any disability) on an application.

My feeling is that until we get everyone to understand what it means to have a
disability,
I'm not comfortable with disclosing on an application. I can never know whether
or not
that person's previous experiences or their misconceptions (or biases) may
prevent me
from getting the opportunity to work with them.

Sorry for the long, long response. This issue is something very important to me.

I wish you all the best of luck, and feel free to email me if you have
questions.

best,
Kristina

--- In centralohiosleepdisorders@yahoogroups.com, "Mike & Kristen" <mjred23@...>
wrote:
>
> If you are diagnosed with Narcolesy. Do you put that down on any
> application or resume or other with tell the company you are
> interviewing with? Does it go under disability if you do?
>
> Thanks
>
> Mike
>






A ship in the harbor is safe
   but that's not what ships are built for.

   Grace Murray Hopper


---------------------------------
Stay in the know. Pulse on the new Yahoo.com.  Check it out.

[Non-text portions of this message have been removed]

In her post, Kristina brought up the idea that people assume that people with
narcolepsy fall to the floor in a sudden heap of sleep.

   I have to admit that I thought the same thing and thought "oh no way" when the
neurologist suggested I get tested for narcolepsy ... something that has yet to
be done.  When I mention to people that I am going to be tested for it, their
response is related to that perception.  Now that I've done my research, it's
most annoying!

   How do y'all handle that?  How have you educated people that need to know?

   Thanks,
   Janice


A ship in the harbor is safe
   but that's not what ships are built for.

   Grace Murray Hopper


---------------------------------
Get your email and more, right on the  new Yahoo.com

[Non-text portions of this message have been removed]

Hi,
In regards to the problem of explaining narcolepsy,
I related to better known conditions such as diabetes,
where most people know that the effects vary from mild
to severe according to individual's differences.

  In my case I wasn't diagnosed until afterage 50.  I
went on disability from teaching because I could no
longer take the stress, even on meds. My medication
level dropped by 2/3 when I retired.

Meds (Provigil now) enable me to function "normally"
as long as I don't get careless and over-do. I do work
part-time.

Most of my friends with narcolepsy aren't as lucky. We
all learn to compensate, but it just gets a lot easier
if the meds work for you.

Lynn

--- J B <hjoychick@...> wrote:

> In her post, Kristina brought up the idea that
> people assume that people with narcolepsy fall to
> the floor in a sudden heap of sleep.
>
>   I have to admit that I thought the same thing and
> thought "oh no way" when the neurologist suggested I
> get tested for narcolepsy ... something that has yet
> to be done.  When I mention to people that I am
> going to be tested for it, their response is related
> to that perception.  Now that I've done my research,
> it's most annoying!
>
>   How do y'all handle that?  How have you educated
> people that need to know?
>
>   Thanks,
>   Janice
>
>
> A ship in the harbor is safe
>   but that's not what ships are built for.
>
>   Grace Murray Hopper
>
>
> ---------------------------------
> Get your email and more, right on the  new Yahoo.com
>
>
> [Non-text portions of this message have been
> removed]
>
>


__________________________________________________
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Janice (and everyone else :-),

I had the same perception of narcolepsy when my doctor first suggested it to me,
so I can
definitely understand people's reactions when I tell them. Honestly, I feel like
it makes
things easier if I can laugh about it and joke about some of the misconceptions.
Sometimes I make fun of myself because some of the things I do are really funny,
but then
I go on to talk about how or why that stuff happens.

I usually say that yeah, there are people that fall down asleep, and they may
even notice
that I fall asleep at inappropriate times, but narcolepsy is a lot more complex
than what we
usually think.

Like Lynn said, I use something common.  When I was in college, I explained it
using an
analogy to cramming for a test.  Now, most people have crammed at one point or
another,
and that heavy, tired feeling that you can't shake?  Yeah, that's what I feel on
a daily basis
unless I have proper meds and take care of myself.  And sometimes even with
meds, I still
feel like that.  When other people go to bed to rest up and wake up refreshed, I
wake up
feeling the same way.

I'm really lucky.  Even when you have other friends with disabilities, it still
takes a lot to
understand our differences sometimes.  One thing that made my boyfriend (now
fiance)
and I grow closer was when he was diagnosed with Diabetes 1 and the switch to
meds
made him ridiculously tired and low energy.  We were able to talk about coping
methods
and frustrations really easily because we were both able to relate to one
another.  His
neuropathy made it much easier to understand my fibromyalgia.  Even though we
can both
look pretty "normal", we don't always feel that way and it was so, so good to
have a
partner that understood that.

Anyway, thanks for all the food for thought!
best,
Kristina

Thank you for the thoughts.  I did have a giggle at the thought that, post test
and results, I might find that I have narcolepsy and need to get rest in the
middle of the day.  There are so many who think that my office does nothing, so
I thought "wouldn't it be funny if they asked about why I get to take a nap?" 
Hehehehe.   totally evil and probably a way to help me relax.  The test is
tomorrow into Tuesday.

k1torres <k1torres@...> wrote:          Janice (and everyone else :-),

I had the same perception of narcolepsy when my doctor first suggested it to me,
so I can
definitely understand people's reactions when I tell them. Honestly, I feel like
it makes
things easier if I can laugh about it and joke about some of the misconceptions.
Sometimes I make fun of myself because some of the things I do are really funny,
but then
I go on to talk about how or why that stuff happens.

I usually say that yeah, there are people that fall down asleep, and they may
even notice
that I fall asleep at inappropriate times, but narcolepsy is a lot more complex
than what we
usually think.

Like Lynn said, I use something common. When I was in college, I explained it
using an
analogy to cramming for a test. Now, most people have crammed at one point or
another,
and that heavy, tired feeling that you can't shake? Yeah, that's what I feel on
a daily basis
unless I have proper meds and take care of myself. And sometimes even with meds,
I still
feel like that. When other people go to bed to rest up and wake up refreshed, I
wake up
feeling the same way.

I'm really lucky. Even when you have other friends with disabilities, it still
takes a lot to
understand our differences sometimes. One thing that made my boyfriend (now
fiance)
and I grow closer was when he was diagnosed with Diabetes 1 and the switch to
meds
made him ridiculously tired and low energy. We were able to talk about coping
methods
and frustrations really easily because we were both able to relate to one
another. His
neuropathy made it much easier to understand my fibromyalgia. Even though we can
both
look pretty "normal", we don't always feel that way and it was so, so good to
have a
partner that understood that.

Anyway, thanks for all the food for thought!
best,
Kristina






A ship in the harbor is safe
   but that's not what ships are built for.

   Grace Murray Hopper


---------------------------------
Do you Yahoo!?
  Get on board. You're invited to try the new Yahoo! Mail Beta.

[Non-text portions of this message have been removed]

I was just changed from Provigile to the Ritalin / Concerta combo.  I
guess concerta is the same thing just is extended release.

Anyway I started taking it over the weekend and so far found it
lacking.  Sunday I fell a sleep severl times while on provigle it
still happened but was not very often.  This morning I took the combo
again and found it hard to get going and fell asleep again at work.  I
took have take 3 of the ritaling to this point and am finally feeling
up and wake.  I am only surpose to take 3 in the day...  (I do have a
call into the doc though.)

My question is really to any one who has used this.  Does it really
take that long to start working?  granted I may be on the wrong
strenth. She started low.  But wanted to know other peoples experience.

Thanks

Mike

Give your doc time to adjust your dosage because to much (which I have had)
and you can have some nasty side effects like shaking, inability to
concentrate, even anixety attacks.
Ritalin is a stimulant simular to anphetamine  so they have to use some
caution and be very careful about self dosing. And yes Concerta is the time
released form. I know it's really hard but be patient and communicate with
your doc.

Jay

>From: "Mike & Kristen" <mjred23@...>
>Reply-To: centralohiosleepdisorders@yahoogroups.com
>To: centralohiosleepdisorders@yahoogroups.com
>Subject: [central ohio sleep disorders] Ritalin and Concerta question
>Date: Mon, 28 Aug 2006 16:46:27 -0000
>
>I was just changed from Provigile to the Ritalin / Concerta combo.  I
>guess concerta is the same thing just is extended release.
>
>Anyway I started taking it over the weekend and so far found it
>lacking.  Sunday I fell a sleep severl times while on provigle it
>still happened but was not very often.  This morning I took the combo
>again and found it hard to get going and fell asleep again at work.  I
>took have take 3 of the ritaling to this point and am finally feeling
>up and wake.  I am only surpose to take 3 in the day...  (I do have a
>call into the doc though.)
>
>My question is really to any one who has used this.  Does it really
>take that long to start working?  granted I may be on the wrong
>strenth. She started low.  But wanted to know other peoples experience.
>
>Thanks
>
>Mike
>
>
>
>

_________________________________________________________________
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Toolbar Today!   http://get.live.com/toolbar/overview

After many years of one sleep disorder diagnosis after another.
Because my waking hours difficulties would come and go in no
particular pattern sometimes there would be no diagnosis at all.
  None of the meds helped me with the exception of time relesaed adoral
but it has some over stimulation side effects so I only took it when I
was totally unable to function. Finally my Phycologist suggested that
I may have the rare Bi Polar type 2 and that I should be tried on
Topamax or one of the other drugs for this disorder. Topamax has made
the most improvement for me. So I though I would let others who have
been through it all and found no help know.

Jay

I saw a page once that had info on SSI and basicly what you needed
to do to get it.  Is there any good pages about the ADA and Nacolpsy
or other sleep disorders.

Then I also need information or know if things covered are
transferable.  Here is what I mean:

I am currently a contractor for a staffing service and am on
assignment or contract at one of the countries biggest medical
supply companies.  I am rather sure that any accomodations that are
needed my contract company would need to follow.  But would the
company I am contracted to.

When I started with both companies at the same time, I was not
diagnosed and just had tired spells and dozed off here and ther.
Since then I have found I have Narcolepsy, aptnia,  and after a
brief stint in the hospital recently for not haveing any muscle
control on my left side, I suspect cataplexy. Anyway I have missed
on to two days of work a month for the last 6.  So now the company I
am assigned to is saying this is not acceptable.  So I am hoping
that I might be able to get some info.  Any other help would be
appriciated also.

Thanks
MIke

I recently had a sleep study done (both day and night). They said I
don't have apnea or narcolepsy, but they did find that I never reach
REM sleep. My doctors find this very odd... (but have no suggestions).
Up to this poing I've been diagnosed with CFS. The sleep study also
showed I had little stage 3 and 4 sleep.

I've been trying to find something on this and haven't really had any
luck. I'm trying to figure out why I wouldn't be reaching REM sleep,
what damage it might be doing to my body (other than the extreme
fatigue) and how I can start getting into the deep stages of sleep.
Right now I'm taking a muscle relaxant which seems to help some with
sleep, but the doc says I can only take it for a month at a time.
Any suggestions or info is greatly appreciated!

I am looking for when and where in the
Columbus, Ohio region does a support
group for sleep disorders meet?

Please respond if you know...
Thank you!  Karen

--- In centralohiosleepdisorders@yahoogroups.com, "karen.buon"
<karen.buon@...> wrote:
>
> I am looking for when and where in the
> Columbus, Ohio region does a support
> group for sleep disorders meet?
>
> Please respond if you know...
> Thank you!  Karen
>
Hello the centeral ohio had asupporty meetinmg ;as t sunday at the
elizabeth balckwell cente at riverside last sinday ad there is one at
the wetston publis liberary this sunda ,The meeting starts at 2:pm and
ends at 4:pm .Hope this helps you out Bye for now Tom.

They meet the thrid sunday of the month  ,Th next ne at lizabeth black well
centr will be in Janurary the third sunday of the month at 2PM.There is one this
sunday at the whetstone public Liberary strarting at PM if you ned an more
information let me know and Iwill send you more Bye for now .

---------------------------------
Do you Yahoo!?
  Everyone is raving about the  all-new Yahoo! Mail.

[Non-text portions of this message have been removed]

If your doc is not a Neruologist I would suggest a nerulogist that treats
sleep problems.

I share your frustration with the medical community; while many acknowloge
other sleep
disorderers exist they seem only to be able or maybe willing to help with
apnea and narcolepsy and restless legs and mostly the first two.

Jeff


>From: "Tracey" <tracey_416@...>
>Reply-To: centralohiosleepdisorders@yahoogroups.com
>To: centralohiosleepdisorders@yahoogroups.com
>Subject: [central ohio sleep disorders] REM sleep
>Date: Sat, 14 Oct 2006 15:59:38 -0000
>
>I recently had a sleep study done (both day and night). They said I
>don't have apnea or narcolepsy, but they did find that I never reach
>REM sleep. My doctors find this very odd... (but have no suggestions).
>Up to this poing I've been diagnosed with CFS. The sleep study also
>showed I had little stage 3 and 4 sleep.
>
>I've been trying to find something on this and haven't really had any
>luck. I'm trying to figure out why I wouldn't be reaching REM sleep,
>what damage it might be doing to my body (other than the extreme
>fatigue) and how I can start getting into the deep stages of sleep.
>Right now I'm taking a muscle relaxant which seems to help some with
>sleep, but the doc says I can only take it for a month at a time.
>Any suggestions or info is greatly appreciated!
>
>

_________________________________________________________________
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Live Search!
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&source=hmtagline

Here is a link to new to a new web site – www.mydaddysnores.com, which
was developed in conjunction with a new children's book My Daddy
Snores, published by Scholastic, Inc.

The goal of the book and the website is to educate and raise awareness
about snoring and the health risks that lurk behind the noise, as well
as about sleep in general......... leading families to a better night's
sleep!

Please join us for our meeting Sunday January 21 from 2-4pm
@ The Elizabeth Blackwell Center

Let's Talk About Sleep Problems
This is your opportunity to share the problems you have been having
sleeping and/or staying awake.  Do you also have success stories to
share?  What strategies have been working for you that might help
others?

Refreshments will be served thanks to Karen Hedden. Please feel free
to help out by bringing a snack to share.

  The Elizabeth Blackwell Center of Riverside Methodist Hospital
3635 Olentangy River Road, Columbus, OH 43214
DIRECTIONS: Riverside Methodist Hospital is located in northwest
Columbus at the corner of W. North Broadway and Olentangy River
Road, with exits from the north and south off of State Route 315.
The Elizabeth Blackwell Center is just north of the hospital on the
west side of Olentangy River Road, near the Riverside Health Center
and Kobacker House. Visitor parking is free and is just to the left
and also behind the Center.

i had not seen this until today...
narcolepsy w cataplexy patient video
http://www.catalystscreener.info/patvideo.htm
/laura, columbus, ohio



________________________________________________________________________________\
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with the Yahoo! Search movie showtime shortcut.
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as heard on npr saturday, listening in: music for sleeping
http://weekendamerica.publicradio.org/programs/2007/01/27/listening_in_music_f.h\
tml

i personally love my august stars cd, ambient / experimental.
www.myspace.com/starsinaugust

/laura, columbus, ohio



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Click on this link for a current schedule of events -

www.sleepapnea.org/saad2007.html

The Central Ohio Sleep Disorders Support Group will meet Sunday, April
22 from 2-4 at the Elizabeth Blackwell Center north of Riverside
Hospital in Columbus.  Dr. James Fulop, Board-Certified Sleep
Specialist and Medical Director of Riverside Hospital Sleep Center will
be there to answer our questions about sleep.

If you need directions to the meeting or have other questions about it,
you can contact me.

Ellen Haider
ellenhaider@...

The Central Ohio Sleep Disorders Support Group will have its quarterly
meeting this coming Sunday, July 22 from 2-4 pm at the Elizabeth
Blackwell Center in Columbus.

We'll be sharing Coping Strategies with each other--ways that we have
found to deal with insomnia, daytime sleepiness, and other fun things
that are a part of having a sleep disorder.

We'd love to see you there.  If you need directions on how to get there
or have other questions feel free to contact me.

Ellen Haider

The next meeting of the Central Ohio Sleep Disorders Support Group will
be on Sunday, October 28 from 2:00-4:00 at the Elizabeth Blackwell
Center located north of Riverside Hospital on Olentangy River Road.
Dr. Maureen Delphia, a board certified sleep specialist, will join us
to answer our questions about sleep.

Hope you can be there!

Ellen Haider

hello everyone. just something to share. hope this holiday season is
treating you well. share your dream + wishes. /laura

from NIGHT: night life, night language, sleep, and
dreams. by a. alvarez, 1995.

page 90 `the discovery of rem sleep in 1953 was a
turning point. rapid eye movement, of course, had been
there to be seen by anyone who ever watched a sleeping
dog, eyes rolling, feet twitching, as it chased a
dream rabbit. there is even a passing reference to rem
in the first great work of popular science,
lucretius's poem de rerum natura. but observation, as
scientists say, is always theory driven – you only see
what you are looking for – and nobody had ever focused
on the phenomenon or thought about what it meant.

the breakthrough was made by eugene aserinsky, a
graduate student who never graduated, a drop-out avant
la lettre; he dropped out of dental school and dropped
out of social work before he found his way to the
university of chicago, where taken in  - `like a stray
cat', he has said – by nathanial kleitman, one of the
founders of sleep research. aserinsky had noticed that
the eyes move during sleep and he wanted to study the
physiology of this curious phenomenon; he was
interested, that is, in the how, not the why of what
was eventually called rem sleep. it was an idea no one
else had bothered with, and to study it he resurrected
a junked electroencephalograph from the university's
basement and wired up one of his eight-year-old son's
eyes while the child slept. But the broken-down
machine went on breaking down, no matter how often
aserinsky fixed it, and even when it seemed to be
running properly, recording the slow waves of the
boy's rolling eye movements, its pens intermittently
went wild, tracing jagged peaks and troughs similar to
those of the waking brain. naturally, aserinsky
assumed the machine was malfunctioning, so he double
checked it by wiring up his son's other eye with a
second eeg in tandem with the first. when he still got
the same improbable results, he realized that he might
have stumbled on a significant discovery.

the next question was inevitable but tricky: what was
happening in his son's sleeping brain that made the
pens go wild? but that involved a step from
physiological change to mental event, and aserinsky
took it reluctantly since it contradicted everything
that was then thought to be true about the restorative
nature of sleep. within five years of publishing their
original article, however, aserinsky, kleitman, along
with another distinguished sleep researcher, william
c. dement, had established beyond a doubt that there
was a connection between rem sleep and dreaming. they
repeated aserinsky's experiments 343 times in
carefully controlled laboratory conditions and
discovered that when sleepers were woken while the
polysomnograph was registering rapid eye movement
sleep, between 80 and 95 percent of them reported
vivid dreams, compared with only 6.9 percent of those
woken from non-rem sleep.

the discovery said less about dreaming than about
sleep and the way the sleeping brain behaves.

...

'i've always had access to other worlds. we all do
because  we all dream. what i don't have  access to is
myself.' leonora carrington, surrealist painter

It's been good to hear from you recently.  Your entry on the website encourages
me to post more things on there that are legitimate.  I have one in mind, in
fact, that I'll try to post soon.

   More later,
   Ellen

laura j evert <dreamiestgirlever@...> wrote:
           hello everyone. just something to share. hope this holiday season is
treating you well. share your dream + wishes. /laura

from NIGHT: night life, night language, sleep, and
dreams. by a. alvarez, 1995.

page 90 `the discovery of rem sleep in 1953 was a
turning point. rapid eye movement, of course, had been
there to be seen by anyone who ever watched a sleeping
dog, eyes rolling, feet twitching, as it chased a
dream rabbit. there is even a passing reference to rem
in the first great work of popular science,
lucretius's poem de rerum natura. but observation, as
scientists say, is always theory driven – you only see
what you are looking for – and nobody had ever focused
on the phenomenon or thought about what it meant.

the breakthrough was made by eugene aserinsky, a
graduate student who never graduated, a drop-out avant
la lettre; he dropped out of dental school and dropped
out of social work before he found his way to the
university of chicago, where taken in - `like a stray
cat', he has said – by nathanial kleitman, one of the
founders of sleep research. aserinsky had noticed that
the eyes move during sleep and he wanted to study the
physiology of this curious phenomenon; he was
interested, that is, in the how, not the why of what
was eventually called rem sleep. it was an idea no one
else had bothered with, and to study it he resurrected
a junked electroencephalograph from the university's
basement and wired up one of his eight-year-old son's
eyes while the child slept. But the broken-down
machine went on breaking down, no matter how often
aserinsky fixed it, and even when it seemed to be
running properly, recording the slow waves of the
boy's rolling eye movements, its pens intermittently
went wild, tracing jagged peaks and troughs similar to
those of the waking brain. naturally, aserinsky
assumed the machine was malfunctioning, so he double
checked it by wiring up his son's other eye with a
second eeg in tandem with the first. when he still got
the same improbable results, he realized that he might
have stumbled on a significant discovery.

the next question was inevitable but tricky: what was
happening in his son's sleeping brain that made the
pens go wild? but that involved a step from
physiological change to mental event, and aserinsky
took it reluctantly since it contradicted everything
that was then thought to be true about the restorative
nature of sleep. within five years of publishing their
original article, however, aserinsky, kleitman, along
with another distinguished sleep researcher, william
c. dement, had established beyond a doubt that there
was a connection between rem sleep and dreaming. they
repeated aserinsky's experiments 343 times in
carefully controlled laboratory conditions and
discovered that when sleepers were woken while the
polysomnograph was registering rapid eye movement
sleep, between 80 and 95 percent of them reported
vivid dreams, compared with only 6.9 percent of those
woken from non-rem sleep.

the discovery said less about dreaming than about
sleep and the way the sleeping brain behaves.

...

'i've always had access to other worlds. we all do
because we all dream. what i don't have access to is
myself.' leonora carrington, surrealist painter






---------------------------------
Never miss a thing.   Make Yahoo your homepage.

[Non-text portions of this message have been removed]

Does anyone know of studies showing how disabling narcolepsy can be? I
was clinically diagnosed, put on disability by my doctor and then the
insurance behind the company I worked for disallowed the claim.  Three
days after I received the letter from the insurance company, the
company I worked for terminating me.  Going to see an attorney and
need any information anyone can provide to help me establish a solid case.
Thanks  and Blessings,
Randy

---Hello randy i also have narcolepsy and sleep apneq ,but amtill
working .I am not sure how to apply for disability but try looking in
the narcolepsy network or a site called talk aboutsleep .Those two
site will have infoprmation and help in what you may need bye for now
i hope i was able tp help .  In
centralohiosleepdisorders@yahoogroups.com, "Randy Allen"
<randygallen@...> wrote:
>
> Does anyone know of studies showing how disabling narcolepsy can be?
I
> was clinically diagnosed, put on disability by my doctor and then the
> insurance behind the company I worked for disallowed the claim.
Three
> days after I received the letter from the insurance company, the
> company I worked for terminating me.  Going to see an attorney and
> need any information anyone can provide to help me establish a solid
case.
> Thanks  and Blessings,
> Randy
>

randy, sorry to hear about your troubles. you can find
great info here:
http://www.talkaboutsleep.com/sleep-disorders/archives/medicare_disabilitycourse\
.htm

also try, www.narcolepsyinstiute.org.

we'll be thinking about you. /laura


      
________________________________________________________________________________\
____
Be a better friend, newshound, and
know-it-all with Yahoo! Mobile.  Try it now. 
http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

Randy,



This is all part of the process.I hate to say.  Yes, you do need to get
legal help NOW.

I have Sleep Apnea, IH, and something like Alzheimer's.   No matter what,
it's all in the Diagnosis and how specific it is.



I have realized that all this stuff is a headache and just a study will not
do it.  The insurance types that review this stuff already know this.  I
went thru all the meds for N and was intolerable to any of them.  I use a
machine to breathe at night also.  Now, I am on Aricept for the memory loss.



No matter how bad I am, the insurance co only looks to see if it fits into
their category of 'disabling conditions'.  N is vague to them, so they push
back.  This is normal for them.



Make sure you get legal help from someone that specializes in Disability.
This is very important but beware of the potential costs.  See if you have a
friend in the business first.  Most attorneys will not charge for a
consultation.



No matter what, get busy fast and get your answers asap, so you can get the
process going sooner than later, for your sake.



Good luck to you!



Darryl

Northside



   _____

From: centralohiosleepdisorders@yahoogroups.com
[mailto:centralohiosleepdisorders@yahoogroups.com] On Behalf Of Tom Gangluff
Sent: Tuesday, December 18, 2007 9:34 PM
To: centralohiosleepdisorders@yahoogroups.com
Subject: [central ohio sleep disorders] Re: Fired 3 days after long-term
disablility disallowed



---Hello randy i also have narcolepsy and sleep apneq ,but amtill
working .I am not sure how to apply for disability but try looking in
the narcolepsy network or a site called talk aboutsleep .Those two
site will have infoprmation and help in what you may need bye for now
i hope i was able tp help . In
centralohiosleepdis <mailto:centralohiosleepdisorders%40yahoogroups.com>
orders@yahoogroups.com, "Randy Allen"
<randygallen@...> wrote:
>
> Does anyone know of studies showing how disabling narcolepsy can be?
I
> was clinically diagnosed, put on disability by my doctor and then the
> insurance behind the company I worked for disallowed the claim.
Three
> days after I received the letter from the insurance company, the
> company I worked for terminating me. Going to see an attorney and
> need any information anyone can provide to help me establish a solid
case.
> Thanks and Blessings,
> Randy
>





[Non-text portions of this message have been removed]