We read Doris Rapp, M.D.'s book IS THIS YOUR CHILD.  If your child may have
allergies, it is a key book to read.  Chapter 25 on Allergy Extract Testing and
Therapy has information on the testing.  The testing to have done is P/N
(Provocation/Neutralization) Allergy Testing and Treatment.  See
http://www.drrapp.com/

We went to a doctor recommended by Doris Rapp, M.D.'s office for the treatment. 
(I think who Dr. Rapp recommends may be important)  They do the treatment for
children (older than 2) and adults.  It took 3 days, they put many pin dots of
extracts under the skin in the arms, they diagnosed what we were allergic to,
determined the correct dosage of extract to counteract each allergy, and gave us
the correct dose of histamine (which serves as a natural antihistamine) to
counteract stray allergic reactions.

The testing is similar to the provocation testing by typical allergy doctors
because they judge the allergy by the extent of the reddened and raised area
around the pin prick.  (In our testing they also checked for pulse and ask about
symptoms.)  The difference is that they then give different pinprick doses of
the same extract until there is no red or swollen reaction--this is the
neutralization part.

The first night after the treatment I slept 10 hours even though I was sometimes
sleeping as little as 3 hours before and struggling to get 6 hours sleep.

The treatment also requires a 4-day Rotary Diet.  There is information about the
Rotary Diet in Dr. Rapp's book.  It is a drag until you get used to it, and you
can ease off on it as your allergic reactions start to get better.

Most of it is not covered by insurance although it is the most helpful treatment
I have seen or heard of for allergies.  Insurance companies should pay for the
provocation, at least, because it is the same thing that typical allergists do. 
Therefore, the treatment that takes 3 days per person costs $300 a day.  Then
the combined extracts that you take cost about $300 per six months and the
histamine about $50.  The treatment can be given to yourself by drops or shots. 
They find that children are rid of all but their inborn allergies within 2 years
or so.  They have not done this on adults as long so they are doing studies to
see if and when the adults do get rid of their allergies.

We are strongly opposed to typical allergy treatment because years ago our
younger daughter had many allergies for which she was given typical allergy
treatment which gives you shots once a week until they determine the correct
dosage and then keep you on that dosage until you get over the allergy.  Not
long after she started the shots, she got mono, then a thyroid infection that
made her hot one minute and cold the next, with which she was so sick and out of
school for several months.  She did not get well until after we stopped the
allergy shots.  We think the fact that she was being given so many extracts that
she was allergic to and that they were not yet at the right dosage to treat her
is what wore down her system.  And typical allergy doctors don't test for the
other ingredients in the extracts, so she may have been allergic to the other
ingredients.

Jo Anne


----- Original Message -----
From: dochinkacoco
To: celiacspruedisease@yahoogroups.com
Sent: Monday, January 31, 2005 3:49 PM
Subject: [Celiac Sprue Disease] "top flight allergist"



How do you find a "top flight allergist"?  I'm new to the area, I
went to a University hospital and asked them  to do a lot of testing
for my daughter.  She has GERD, Asthma, and Sinusitis problems.
She's had allergy testing for many, many things and they all come
back negative.  These testings include scratch test, subdermal
testing, rast test, test for CF, agg and igg (?) and for celiac
disease.  I don't know what to do next.  In the meantime, she
suffers a lot.  We quit eating early to avoid reflux.  She wears a
mask when we go outside during the cold weather.   She's had two
sinus surgeries.  She's on previcid- but it doesn't work that well.


Someone suggested doing DNA testing for genetic conditions that
might suggest she's predisposed to something.

I'm just confused as how to find the best doctors when we are new in
a area.  BTW.. I'm in DC.

We are going to go on a celiac diet to see if this clears up some of
her problems.  I'm kind of confused on food intolerance vs food
allergies.  She may not be allergic but instead of food intolerances.

Thanks,


Cathy





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[Non-text portions of this message have been removed]

Hi,

I'm getting ready to buy a breadmaker and wonder if anyone has a
recommendation for one that does well with the rice and other gluten
free flours. I borrowed a couple of years ago and remember it had
difficulty mixing and cooking well with the different textures.

Sandra

The Enterolab stool analysis cannot diagnose celiac disease because a positive
celiac biopsy is required by gastroenterologists.  The U.S. government has
stated that the threshold set by gastroenterologists of a positive biopsy is too
high because it misses some that have celiac disease. 
http://www.ahrq.gov/clinic/epcsums/celiacsum.htm ;
http://www.ncbi.nlm.nih.gov/books/bv.fcgi?rid=hstat1a.chapter.46847 .

There are a number of stool tests that Enterolab test does.  The test that most
completely explores whether you may have celiac disease is the Gluten
Sensitivity Stool and Gene Panel Complete.  It gives you the gluten sensitivity
gene test, the gluten sensitivity test, the tissue transglutaminase test (test
for in celiac disease), the intestinal malabsorption test (and throws in a milk
sensitivity test).  As I understand it, If you show positive on the gluten
tests, the tissue transglutaminase, and the intestinal malabsorption you likely
do have celiac disease.  Otherwise, it is maybe, but you may have gluten
sensitivity.

If you are negative on the others but show positive on the gluten sensitivity
gene test, then it may mean that someday you will develop celiac disease. 
Almost all people that have celiac disease have a positive celiac gene test. 
But having a positive celiac gene test does not prove that you have celiac
disease because many don't.  The gluten sensitivity gene test includes more than
the celiac gene test.  It includes gluten sensitivity genes that are sometimes
associated with celiac disease and often are connected with neurological
problems.

Jo Anne


----- Original Message -----
From: roberto_meza75
To: celiacspruedisease@yahoogroups.com
Sent: Saturday, January 29, 2005 1:44 PM
Subject: [Celiac Sprue Disease] Stool analysis for celiac



Hi:

Has anyone used stool analysis from www.EnteroLab.com to detect celiac
disease?

I was reading the info on their website and sounds interesting.

Please advise.

Thanks,
Roberto





--------------------------------------------------------------------------------
Yahoo! Groups Links

   a.. To visit your group on the web, go to:
   http://groups.yahoo.com/group/celiacspruedisease/

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   celiacspruedisease-unsubscribe@yahoogroups.com

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[Non-text portions of this message have been removed]

How do you find a "top flight allergist"?  I'm new to the area, I
went to a University hospital and asked them  to do a lot of testing
for my daughter.  She has GERD, Asthma, and Sinusitis problems.
She's had allergy testing for many, many things and they all come
back negative.  These testings include scratch test, subdermal
testing, rast test, test for CF, agg and igg (?) and for celiac
disease.  I don't know what to do next.  In the meantime, she
suffers a lot.  We quit eating early to avoid reflux.  She wears a
mask when we go outside during the cold weather.   She's had two
sinus surgeries.  She's on previcid- but it doesn't work that well.


Someone suggested doing DNA testing for genetic conditions that
might suggest she's predisposed to something.

I'm just confused as how to find the best doctors when we are new in
a area.  BTW.. I'm in DC.

We are going to go on a celiac diet to see if this clears up some of
her problems.  I'm kind of confused on food intolerance vs food
allergies.  She may not be allergic but instead of food intolerances.

Thanks,


Cathy

Stella, there is a flu going around that has a stomach component.

I developed a lot of allergies either from gluten or antibiotics, and I could
not resolve them until both were identified, I went gluten-free and a top-flight
allergist identified and treated me for allergies.

There is a thing called diverticulitis which can be an infection of diverticulum
which are little pouches in the intestine developed when one is older, sometimes
from long-term constipation.  I had diverticulitis once and it gives intense
pain worse than gall stones.  Oddly, mine was resolved by taking Go-Lytely for a
GI test.

If you feel sure you don't have the flu, then you probably should see a
gastroenterologist, and, maybe, a top-flight allergist.

Jo Anne


----- Original Message -----
From: stelladove
To: celiacspruedisease@yahoogroups.com
Sent: Saturday, January 29, 2005 12:01 PM
Subject: Re: [Celiac Sprue Disease] sick



Thanks Harper,
Yes, this is my fear also.  That I have a secondary gastrointestinal
issue.  I read on Celiac.com that bacterial infections are common
with Celiacs who continue to have gastro complaints after going
gluten free.  And I did get tested for bacteria and I took
antibiotics a year ago for it.  And mabey the bacteria is back?  Or,
I have IBS. Or I dont show DH anymore.  So, guess I have to go to the
doctor.

Stella

--- In celiacspruedisease@yahoogroups.com, flatcat9@a... wrote:
>
> Is it possible you have some GI problem unrelated to gluten? Best
wishes.
> Harper
>
> In a message dated 1/28/2005 12:02:00 PM Pacific Standard Time,
> no_reply@yahoogroups.com writes:
>
> Hi  group, how are you?  I am sick and ive been this way for at
least
> a  week.  I usually get DH when I have gluten, and this time I have
> all  the symptoms of gluten without any DH outbreak.  so its
confused
> me a  bit.  Is it possible my DH has gone away and I only have
> gastrointestinal symptoms of gluten now?
>
> What do you all do when  your sick from contamination?  I have been
> constipated for seven days  and have nausea and cramps daily.  I
feel
> so awful and I wish it  would go away.  I dont know where i got the
> gluten from as I follow a  very strict diet.
>
> Stella
>
>
>
>
>
> [Non-text portions of this message have been removed]





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   http://groups.yahoo.com/group/celiacspruedisease/

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[Non-text portions of this message have been removed]

Hey everyone, go to www.celiaccenter.org and scroll down.  There is
a picture of the bracelet, as well as ordering information.

Good Luck!

Kelly.

My hope is that you "just" have a transitory tummy problem, like celiacs  and
non-celiacs alike come down with.  A virus maybe, or food  poisoning. Those
things happen to everyone, and they go away.  Let's  hope that's what you're
dealing with.  This doesn't mean you might not need  medical help to deal with
it.
Harper
In a message dated 1/29/2005 9:03:20 AM Pacific Standard Time,
no_reply@yahoogroups.com writes:

Thanks  Harper,
Yes, this is my fear also.  That I have a secondary  gastrointestinal
issue.  I read on Celiac.com that bacterial  infections are common
with Celiacs who continue to have gastro complaints  after going
gluten free.  And I did get tested for bacteria and I  took
antibiotics a year ago for it.  And mabey the bacteria is  back?  Or,
I have IBS. Or I dont show DH anymore.  So, guess I  have to go to the
doctor.

Stella





[Non-text portions of this message have been removed]

The big thing to remember about CD blood tests and/or biopsy (don't know
much about stool tests) is that you MUST be eating gluten well ahead of time for
the testing to be reliable.
Harper

In a message dated 1/29/2005 9:23:37 AM Pacific Standard Time,
no_reply@yahoogroups.com writes:



Roberto, try Celiac.com for all your questions on Celiac  Disease.  I
can't remember off the top of my head what blood tests  are the most
important.  I think its Tissue Transglutinamase and  endomiosial
antibodies.  But, the science is growing and I dont know  what is
precisely current.  (my computer crashed recently and I lost  all my
files or this would be easier).  Your best bet is to go to a  website
where they do alot of Celiac Research, I forget where, and see  what
is the most up to date and accurate tests.  There are stool  tests you
can get nowadays.  And lord knows what else, gene  tests....
Its all rather complicated to be honest.

I had the  wrong seriological tests done and that made me very mad.
Im not a  good person to ask about this sort of thing.

good luck, any more  questions please ask

Stella






[Non-text portions of this message have been removed]

Hi:

Has anyone used stool analysis from www.EnteroLab.com to detect celiac
disease?

I was reading the info on their website and sounds interesting.

Please advise.

Thanks,
Roberto

Roberto, try Celiac.com for all your questions on Celiac Disease.  I
can't remember off the top of my head what blood tests are the most
important.  I think its Tissue Transglutinamase and endomiosial
antibodies.  But, the science is growing and I dont know what is
precisely current.  (my computer crashed recently and I lost all my
files or this would be easier).  Your best bet is to go to a website
where they do alot of Celiac Research, I forget where, and see what
is the most up to date and accurate tests.  There are stool tests you
can get nowadays.  And lord knows what else, gene tests....
Its all rather complicated to be honest.

I had the wrong seriological tests done and that made me very mad.
Im not a good person to ask about this sort of thing.

good luck, any more questions please ask

Stella



--- In celiacspruedisease@yahoogroups.com, "roberto_meza75"
<roberto_meza75@y...> wrote:
>
> Hi:
>
> My name is Roberto,male and I'm 29 years old.
>
> I would like to know which blood tests are reliable to know if
someone
> has celiac disease (gluten intolerance).
>
> Thanks a lot for your help,
> Roberto

Thanks Harper,
Yes, this is my fear also.  That I have a secondary gastrointestinal
issue.  I read on Celiac.com that bacterial infections are common
with Celiacs who continue to have gastro complaints after going
gluten free.  And I did get tested for bacteria and I took
antibiotics a year ago for it.  And mabey the bacteria is back?  Or,
I have IBS. Or I dont show DH anymore.  So, guess I have to go to the
doctor.

Stella

--- In celiacspruedisease@yahoogroups.com, flatcat9@a... wrote:
>
> Is it possible you have some GI problem unrelated to gluten? Best
wishes.
> Harper
>
> In a message dated 1/28/2005 12:02:00 PM Pacific Standard Time,
> no_reply@yahoogroups.com writes:
>
> Hi  group, how are you?  I am sick and ive been this way for at
least
> a  week.  I usually get DH when I have gluten, and this time I have
> all  the symptoms of gluten without any DH outbreak.  so its
confused
> me a  bit.  Is it possible my DH has gone away and I only have
> gastrointestinal symptoms of gluten now?
>
> What do you all do when  your sick from contamination?  I have been
> constipated for seven days  and have nausea and cramps daily.  I
feel
> so awful and I wish it  would go away.  I dont know where i got the
> gluten from as I follow a  very strict diet.
>
> Stella
>
>
>
>
>
> [Non-text portions of this message have been removed]

Thanks,
Roberto

Is it possible you have some GI problem unrelated to gluten? Best  wishes.
Harper

In a message dated 1/28/2005 12:02:00 PM Pacific Standard Time,
no_reply@yahoogroups.com writes:

Hi  group, how are you?  I am sick and ive been this way for at least
a  week.  I usually get DH when I have gluten, and this time I have
all  the symptoms of gluten without any DH outbreak.  so its confused
me a  bit.  Is it possible my DH has gone away and I only have
gastrointestinal symptoms of gluten now?

What do you all do when  your sick from contamination?  I have been
constipated for seven days  and have nausea and cramps daily.  I feel
so awful and I wish it  would go away.  I dont know where i got the
gluten from as I follow a  very strict diet.

Stella





[Non-text portions of this message have been removed]

Hi group, how are you?  I am sick and ive been this way for at least
a week.  I usually get DH when I have gluten, and this time I have
all the symptoms of gluten without any DH outbreak.  so its confused
me a bit.  Is it possible my DH has gone away and I only have
gastrointestinal symptoms of gluten now?

What do you all do when your sick from contamination?  I have been
constipated for seven days and have nausea and cramps daily.  I feel
so awful and I wish it would go away.  I dont know where i got the
gluten from as I follow a very strict diet.

Stella

Hi:

My name is Roberto,male and I'm 29 years old.

I would like to know which blood tests are reliable to know if someone
has celiac disease (gluten intolerance).

Thanks a lot for your help,
Roberto

We have gluten free beer here in Ontario, but it is only sold in larger
beer/liquor stores, in my city there are 3 stores that sell it..
Unfortunately I don't drink beer so it is not worth too much for me but I
know some people have been very happy to hear that It is here...Liz (Ontario
Canada diagnosed C.D in July 2004)

The Great Gluten Escape Camp - 2005

Youth ages 7-14 who have gluten-restricted diets are invited to a
carefree summer camp where the menu is made just for them! No more
worries about what to eat.

Where: Great Gluten Escape Camp , 418 Lutheran Drive, Pottsboro, TX
75076 (Map)
When: June 26 - July 1, 2005
How much: $325, meals included of course
($100 nonrefundable deposit due March 1; remainder due May 1, 2005)
Contact: www.dallasrock.org/news.htm

The Dallas chapter of Raising Our Celiac Kids (R.O.C.K.) has teamed
up with local Girl Scouts to organize a 6-day, 5-night camp in North
Texas. Gluten as well as casein, egg, and sugar limitations can be
accommodated. Asthmatic campers are also welcome. Space is limited
to 50 campers this year so you need to register as soon as possible.
Check back to www.dallasrock.org/news.htm for more details about the
upcoming registration forms and payment deadlines, soon to be
posted.

Note: The camp will not be able to serve children experiencing the
physical challenges associated with Down Syndrome and/or Autism.

For any other questions, contact Kelly LeMonds, (972) 489-9915,
R.O.C.K. Chapter Leader, Wylie, TX.

Please go to celiac.com for a discussion of vinegar.
Harper

In a message dated 1/22/2005 12:26:37 PM Pacific Standard Time,
minxy@... writes:

I have  read several places that regular white vinegar has gluten, but that
red wine  vinegar is fine.





[Non-text portions of this message have been removed]

Ah, if only we were in Italy we could go down to the pharmacy and buy
gluten-free beer.  Pharmacies there carry GF pasta and cereal, too.

I've heard of some GF-beer produced in the northeastern U.S., but as I'm in
California I haven't looked into it.
Harper

In a message dated 1/22/2005 12:20:29 PM Pacific Standard Time,
magalanne@... writes:

Yee ha I  knew it, I just wanted to varify it.
thanks
Magali
I just wish beer  was glutan free.





[Non-text portions of this message have been removed]

I have read several places that regular white vinegar has gluten, but that red
wine vinegar is fine.
   ----- Original Message -----
   From: magalanne
   To: celiacspruedisease@yahoogroups.com
   Sent: Saturday, January 22, 2005 3:19 PM
   Subject: Re: [Celiac Sprue Disease] red wine?



   Yee ha I knew it, I just wanted to varify it.
   thanks
   Magali
   I just wish beer was glutan free.


   --- In celiacspruedisease@yahoogroups.com, dm12420@a... wrote:
   > Red wine does not have gluten in it. Neither does Smirnoff Vodka!
   > Dee
   >
   >
   > [Non-text portions of this message have been removed]





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   This message scanned for viruses by CoreComm

[Non-text portions of this message have been removed]

Yee ha I knew it, I just wanted to varify it.
thanks
Magali
I just wish beer was glutan free.


--- In celiacspruedisease@yahoogroups.com, dm12420@a... wrote:
> Red wine does not have gluten in it. Neither does Smirnoff Vodka!
> Dee
>
>
> [Non-text portions of this message have been removed]

Do you not have chats set up for the weekends?  I live in Michigan.
and the chats are 8pm U.K time, and 3p.m. our time, and Im usually at
work. Id really like to get into a chat. Is there anyway you can let
me know if you are going to be setting up a weekend one for us that
cannot make the regularly scheduled ones????
THanks so Much.
Sam

--- In celiacspruedisease@yahoogroups.com, "magalanne"
<magalanne@y...> wrote:
>
>  I was talking to my chiropractor/alternative meds doctor and she
said
> that red wine has glutan in it. I said that wine is made from
grapes
> and she still thought that it contained glutan. Is she right? I've
> already given up beer,which I used to enjoy once in a while esp.
while
> watching football games anyway...so I would like to know if she is
> right.
> Magali Taylor

I have read that in Australia, some wineries may start using wheat
to clarify the wine.  I don't know of any that have done so yet.

I'm thinking like you do really.  Just throwing in a possibility.  She
seems to be a bit ignorant of the issue for a health oriented person.
But I don't expect my doctors to know anything anymore.  I double and
triple check every thing they say.  I like my current one though.  He's
right up front about stuff and encourages people to check it out for
themselves.  First appointment, he asked me "Who's responsible for your
health?"  When I said "me" he was happy, said we'd have few problems.  We
haven't.

P

On Thu, 20 Jan 2005 14:05:34 EST flatcat9@... writes:

Uh - I agree -- I wouldn't call a wine with "added flavoring" a wine!
Harper

In a message dated 1/20/2005 9:55:37 AM Pacific Standard Time,
drgnslfthnd@... writes:

Some  wines may have glutens in the added flavorings.  I avoid
"artificial
flavorings" in wines.  There are a few reds with  additional flavorings,
but not usually the ones that are named after their  grape variety.
Maybe
she drinks the blackberry or cherry  varieties.  Most of those commercial
types are flavored grape  wine.

P

[Non-text portions of this message have been removed]

Uh - I agree -- I wouldn't call a wine with "added flavoring" a wine!
Harper

In a message dated 1/20/2005 9:55:37 AM Pacific Standard Time,
drgnslfthnd@... writes:

Some  wines may have glutens in the added flavorings.  I avoid  "artificial
flavorings" in wines.  There are a few reds with  additional flavorings,
but not usually the ones that are named after their  grape variety.  Maybe
she drinks the blackberry or cherry  varieties.  Most of those commercial
types are flavored grape  wine.

P





[Non-text portions of this message have been removed]

Some wines may have glutens in the added flavorings.  I avoid "artificial
flavorings" in wines.  There are a few reds with additional flavorings,
but not usually the ones that are named after their grape variety.  Maybe
she drinks the blackberry or cherry varieties.  Most of those commercial
types are flavored grape wine.

P

On Wed, 19 Jan 2005 21:02:59 EST flatcat9@... writes:

I'd think very, very carefully about my relationship with this  doctor.
Are
you sure she is really a doctor?  I'm not being sarcastic  or hateful; I
truly
think you should check.  Gluten is in wheat (and its  relatives such as
spelt), barley, rye, and perhaps oats. I strongly feel anyone  purporting
to have
medical knowledge should be aware of this.  If she  doesn't know, she
should
look it up before speaking on the subject.  It's  terribly dangerous for
a
professional to give advice without  being sure of its accuracy.
Harper


In a message dated 1/19/2005 11:46:46 AM Pacific Standard Time,
magalanne@... writes:

I was  talking to my chiropractor/alternative meds doctor and she said
that red  wine has glutan in it. I said that wine is made from grapes
and she still  thought that it contained glutan. Is she right? I've
already given up  beer,which I used to enjoy once in a while esp. while
watching football  games anyway...so I would like to know if she is
right.
Magali Taylor

[Non-text portions of this message have been removed]

I'd think very, very carefully about my relationship with this  doctor.  Are
you sure she is really a doctor?  I'm not being sarcastic  or hateful; I truly
think you should check.  Gluten is in wheat (and its  relatives such as
spelt), barley, rye, and perhaps oats. I strongly feel anyone  purporting to
have
medical knowledge should be aware of this.  If she  doesn't know, she should
look it up before speaking on the subject.  It's  terribly dangerous for a
professional to give advice without  being sure of its accuracy.
Harper


In a message dated 1/19/2005 11:46:46 AM Pacific Standard Time,
magalanne@... writes:

I was  talking to my chiropractor/alternative meds doctor and she said
that red  wine has glutan in it. I said that wine is made from grapes
and she still  thought that it contained glutan. Is she right? I've
already given up  beer,which I used to enjoy once in a while esp. while
watching football  games anyway...so I would like to know if she is
right.
Magali Taylor





[Non-text portions of this message have been removed]

Not that I know of, I drink a couple glasses a few times a week and no
reaction at all and I am supper sensitive, so I doubt she is right...Liz

Red wine does not have gluten in it. Neither does Smirnoff Vodka!
Dee


[Non-text portions of this message have been removed]