The problem is that I had the blood test back in
September, so I know the sample wouldn't be around
anymore. I will look on Labcorps website to try to
understand their reasoning. I was really under the
impression that the tTG replaced the EmA, but it is
interesting that you are telling me that I should have
had both anyway.

I will have to look into this. I really didn't want
to start eating gluten again, and even if the IgA and
IgG is positive, then aren't I having a reaction and
doesn't that indicate to avoid it? Isn't it probable
that I have celiac or gluten sensitivity?

As far as the gene, I received a response for
Enterolabs that I have a gene that is connected with
gluten sensitivity. I didn't really hold much to that
though, and didn't get a blood test or talk to a
doctor about it at all. BTW, I was positive on all of
Dr. Fine's stool tests, and then followed up with
blood tests, and then the endoscopy, since I am a
skeptic. The endoscopy was not a good indication
though, since only two samples were taken. I don't
hold a lot of faith in that at all.

Thanks,

Maureen


--- Jim Barron <dbar7287@...> wrote:
>
> ----- Original Message -----
> From: Maureen Miller
> To: celiacspruedisease@yahoogroups.com
> Sent: Thursday, February 05, 2004 8:39 AM
> Subject: Re: [Celiac Sprue Disease] Re: I'M NEW AT
> THIS..........
>
>
>
>
> I think they replaced the tTG with the IgA
> endomysial
> antibody test. Quest Diagnostics did the same
> thing.
>
> ==========
> ?? I t sounds to me like you misstated that and
> what you meant to say was:
> "they replaced the IgA endomysial
> antibody test with the tTG."
>
> Please indicate whether that is the case or not.
> ---------------------------
>
>
> They indicated that the tTG is more accurate.
> What do
> you think about that?
> ----------------
> The tTG **IF** used WITH the EMA can be used for
> preliminary screening: i.e.: if the tTG is
> positive ****AND the EMA is NOT*** then CD is
> fairly well excluded. What they apparently did was
> to omit doing the EMA so it is absolutely completely
> wrong for them to claim that the test indicated that
> CD was not likely or possible. The plain fact is
> they do not know one way or the other because they
> did not do the correct tests.
>
> For a lab to botch things up in this way AND by
> IGNORING the doctor's request is really apalling!
> I suggest that you demand that they do it again, at
> NO charge and do it CORRECTLY as per the request or
> that you will consult an attorney.
>
> Go to the www.celiac.com web page and spend some
> time reading all they say about the blood antibody
> tests (your health may well depend on it considering
> the apalling "service" you are getting from your
> lab.)
>
> A search at
> www.pubmed.org
> will probably clairfy things or just ask questions
> here.
> ==============
>
>
> I am under the impression that
> I have a gluten sensitivity. I do not have the
> gene
> for celiac disease either, but either way, don't I
> have to be on a gluten free diet?
>
> ----------------
> I would be MOST interested in knowing how anyone
> could possibly come to the conclusion that you "do
> not have the gene for celiac disease" when 1) no
> one has yet identified the geneS involved in CD
> (there are several genes, not just one, and on
> different chromosomes to boot!. While some MARKERS
> are known that are ASSOCIATED with CD, markers are
> NOT an absolute indication of the presence of the
> actual genetic variations (gene mutations) that
> cause CD, they ONLY indicate a PROBABILTY that the
> mutation is present or not. MANY people have the
> markerS and do NOT have the mutationS and MANY
> people are lacking the markerS and nevertheless DO
> have the mutationS.
>
> Whoever told you that you do not have the genes
> for CD is either:
>
> 1) grossly misunderstands the medical aspects of
> CD
>
> or
>
> 2) is FLAT OUT LYING to you (that is, they know
> very well that this is ONLY a probability (and NOT
> that great (proably like 2 out of three you dont
> have the genes (that's like playing a round of
> Russian Roulette with TWO bullets in the gun! Care
> for a game?)
>
> Unfortunately in the United States both 1 and 2
> are very common and either is a very real
> possibility. I would highly recommend getting
> medical help elsewhere! You don't need either a
> grossly incompetent doctor or one who is all too
> willing to play Russian Roulette with your health!
>
> =============
>
> CAn't the gluten
> sensitivity lead to celiac if I continue to eat
> gluten? This whole thing is very confusing! I
> can't
> have the tests re-done because I have been gluten
> free
> for the past 4-5 weeks now.
> ---------------
> [[[For future reference for others involved in
> such situations:
>
> Labs usually don't use the entire blood sample for
> tests and it is the usual practice to same the
> remains for the possibility of further tests if
> needed. I believe that they keep it for around 10
> days or so so if you can get back quickly there is a
> possibility of getting more tests done on the SAME
> blood sample. This does not apply to all tests and
> I don't know whether it applies to antibody tests or
> not. (I know, for example when you get serum iron
> and TIBC (which calculates iron saturation) they do
> save the sample in case it's high and you want the
> serum ferritin tested also (which you should, BTW
> absolutely do in such cases!).]]]
>
> IMHO you have good grounds for a lawsuit and I
> would recommend consulting an attorney who
> specializes in medical malpractice.
>
> Because of their unauthorized and grossly
> inappropriate substitution of tests you'd have a
> pretty good case, IMHO. (But I'm not a lawyer!
> Usually the intial consultation is free and if one
> has a good case they'll handle it for a cut of the
> award.) I suspect that the question of whether a
> lawsuit would be viable is whether the amount of
> damages is sufficent to justify it. (Damages would
> include all of the lifetime effects of failing to
> obtain a diagnosis, IMHO)
>
> JUST my opinion offered as a suggestion of a
> course of action to consider! Obviously NOT legal
> advice!
>
> Jim Barron
> ===============
>
> Thanks,
>
> Maureen
>
>
>
>
>
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