Hi Lauren, Im Lynne. I turned 39 the other day, Ive got 6 kids from
l4 down to 3 that also have celiac, one doesnt, but his gliaden was
as high as mine when he was tested at 2 so he remains gf, he also
showed more signs of cd than the rest and has more allergies than
his older siblings. I found out I was cd 2 l/2 yrs ago. I also have
the skin sores,had them for 5 years,and was really sick for a few
yrs before being diagnosed. Once I went gf, I developed worsening
allergies, I think because my immune system was so weak, mine werent
to bug bites, but to everything I ate, I would break out in
hives,anaphlyactic to fish,msg,latex,and breathing in bread products
would send me into a severe asthma attack,also I became allergic to
everything that had chemicals, the dryer sheets,perfumes,exhaust
fumes,anything airborne that smelled,even a newspaper would make me
cough til I threw up, it has formaldehyde in the ink I found out
from my allergist. I became oversensitized. We've been perfume
free,dye free for quite awhile now and I can go into stores and have
shopped before getting too sick. I can better handle things now
that Ive cleaned out our own living space, I also moved to a more
isolated area on 5 acres, we are renting but its a bigger house and
great yard for the kids and now we can walk to church. Ive stuck to
this diet faithfully, I got myself a vita mix and make my own flours
from a bag of beans or brown rice in seconds, I make whole juices
w/out discarding pulp, it pulverizes it, I make rice milk in it as
well. My body is just too weak though. Im not able to absorb
magnesium or potassium and its causing my heart to not work right.
Ive had chest pains,numbness,palpitations and severe leg cramps. I
was in the hospital for 4 days last week, got home sun, went back in
thurs, it all dropped right down again. even the ivs arent staying
in me. I get retested again mon. They will give me shots if its low
again. I also have my bones breaking down my spine and in my feet
from the malabsorption. Its frustrating for me since I eat so
healthy and little. Ive developed many other autoimmune diseases
like Hashimotos Thyroiditis and gained weight from that so I dont
look malnourished, but my insides tell a different story. Im
staying on the diet though, I couldnt imagine how sick Id be if I
didnt!! Im going to a clinic that deals with chronic disease and
allergies here in Florida, theres one in Georgia also. They were
recommended through the Makers Diet. You can check it out online:
The Goldberg Clinic. I go this month and hopefully they can help
because even the Mayo clinic didnt know what to do with me. There
are supplements to help stop the allergic reactions like coenzyme
q10, Im no doctor, just a homeschooling mom who uses Prescriptions
forNutritional Healing book by Phyllis A. Balch as a resource, the
library also carries it. I bought it from our local health food
store for $25, reg.book stores carry it as well. It really is a
great resource to have. I understand what youre going through. Im
sorry I dont have specific answers, but that book is a great start,
check it out at the library, then decide. Take care. Lynne