Hi! My husband asked me to ask if anyone has felt that they are having slurred
speaking? He asked his PD doctor and he told him he couldn't hear anything. We
hear it occasionaly. It sounds as if his tounge is to fat and he can't move it
as easy as he should. Has anyone ever gone through this as well and if so, what
if anything can you do for it? Thanks, Mary

Dear Paula,
 
I can't thank you enough for this, I really appreciate your help. You are a
godsend to my uncle!
 
Thank you again,
Brenda

--- On Sun, 4/26/09, Paula Nixon <paule14@...> wrote:


From: Paula Nixon <paule14@...>
Subject: Re: [CarePartners] Neupro help
To: carepartners@yahoogroups.com
Date: Sunday, April 26, 2009, 3:59 PM








Dear Brenda,
I just mailed the package in a manilla envelope yesterday.  It wasn't expensive,
so don't worry about it.  God Bless!
Paula

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 4:15 PM

The address is:
 
Kenny Ashenfelter
P.O. Box 368
Clint, Tx 79836
 
You can send it collect on delivery if you can otherwise let me know how much I
owe you and I'll get a cashier's check sent to you. Thank you so much Paula!
 
Brenda Graves

--- On Fri, 4/24/09, Paula Nixon <paule14@sbcglobal. net> wrote:

From: Paula Nixon <paule14@sbcglobal. net>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 5:51 PM

What is your address so I can send it to you?
Paula

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 1:57 PM

Dear Paula,
 
Yes, I'm very interested. At this point he'd use any dose he can get. We can't
be picky at all since it's the only choice now. We are extremely grateful for
any help we can get! I want to thank you for taking the time as well as offering
your samples to us.
 
Brenda Graves
 
--- On Fri, 4/24/09, Paula Nixon <paule14@sbcglobal. net> wrote:

From: Paula Nixon <paule14@sbcglobal. net>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 2:54 PM

Dear Brenda,
We have some samples.  My husband didn't do well with them, so he stopped.  But
they are just low dosages.  One box has 7 - 4 mg, the other has 5 -two mg.  And
they have an expiration date of 4/09.  We just got them last year, and I think
they would still be OK.  Let me know if you are interested.  I still have them
because I hate thowing something away that is expensive that someone might be
able to use.
Paula Nixon

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 12:22 PM

My uncle recently ran out of his patches and isn't do to well. He has other
health issues that keep him from being able to use other drugs that are
available. Now our family is frantically searching for any unused/unwanted
patches or any advice that may help at this point.
 
Thank you,
Brenda

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

Dear Brenda,
I just mailed the package in a manilla envelope yesterday.  It wasn't expensive,
so don't worry about it.  God Bless!
Paula

--- On Fri, 4/24/09, Brenda Graves <texanjustice@...> wrote:


From: Brenda Graves <texanjustice@...>
Subject: Re: [CarePartners] Neupro help
To: carepartners@yahoogroups.com
Date: Friday, April 24, 2009, 4:15 PM








The address is:
 
Kenny Ashenfelter
P.O. Box 368
Clint, Tx 79836
 
You can send it collect on delivery if you can otherwise let me know how much I
owe you and I'll get a cashier's check sent to you. Thank you so much Paula!
 
Brenda Graves

--- On Fri, 4/24/09, Paula Nixon <paule14@sbcglobal. net> wrote:

From: Paula Nixon <paule14@sbcglobal. net>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 5:51 PM

What is your address so I can send it to you?
Paula

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 1:57 PM

Dear Paula,
 
Yes, I'm very interested. At this point he'd use any dose he can get. We can't
be picky at all since it's the only choice now. We are extremely grateful for
any help we can get! I want to thank you for taking the time as well as offering
your samples to us.
 
Brenda Graves
 
--- On Fri, 4/24/09, Paula Nixon <paule14@sbcglobal. net> wrote:

From: Paula Nixon <paule14@sbcglobal. net>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 2:54 PM

Dear Brenda,
We have some samples.  My husband didn't do well with them, so he stopped.  But
they are just low dosages.  One box has 7 - 4 mg, the other has 5 -two mg.  And
they have an expiration date of 4/09.  We just got them last year, and I think
they would still be OK.  Let me know if you are interested.  I still have them
because I hate thowing something away that is expensive that someone might be
able to use.
Paula Nixon

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 12:22 PM

My uncle recently ran out of his patches and isn't do to well. He has other
health issues that keep him from being able to use other drugs that are
available. Now our family is frantically searching for any unused/unwanted
patches or any advice that may help at this point.
 
Thank you,
Brenda

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]
















[Non-text portions of this message have been removed]

The address is:
 
Kenny Ashenfelter
P.O. Box 368
Clint, Tx 79836
 
You can send it collect on delivery if you can otherwise let me know how much I
owe you and I'll get a cashier's check sent to you. Thank you so much Paula!
 
Brenda Graves

--- On Fri, 4/24/09, Paula Nixon <paule14@...> wrote:


From: Paula Nixon <paule14@...>
Subject: Re: [CarePartners] Neupro help
To: carepartners@yahoogroups.com
Date: Friday, April 24, 2009, 5:51 PM








What is your address so I can send it to you?
Paula

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 1:57 PM

Dear Paula,
 
Yes, I'm very interested. At this point he'd use any dose he can get. We can't
be picky at all since it's the only choice now. We are extremely grateful for
any help we can get! I want to thank you for taking the time as well as offering
your samples to us.
 
Brenda Graves
 
--- On Fri, 4/24/09, Paula Nixon <paule14@sbcglobal. net> wrote:

From: Paula Nixon <paule14@sbcglobal. net>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 2:54 PM

Dear Brenda,
We have some samples.  My husband didn't do well with them, so he stopped.  But
they are just low dosages.  One box has 7 - 4 mg, the other has 5 -two mg.  And
they have an expiration date of 4/09.  We just got them last year, and I think
they would still be OK.  Let me know if you are interested.  I still have them
because I hate thowing something away that is expensive that someone might be
able to use.
Paula Nixon

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 12:22 PM

My uncle recently ran out of his patches and isn't do to well. He has other
health issues that keep him from being able to use other drugs that are
available. Now our family is frantically searching for any unused/unwanted
patches or any advice that may help at this point.
 
Thank you,
Brenda

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

What is your address so I can send it to you?
Paula

--- On Fri, 4/24/09, Brenda Graves <texanjustice@...> wrote:


From: Brenda Graves <texanjustice@...>
Subject: Re: [CarePartners] Neupro help
To: carepartners@yahoogroups.com
Date: Friday, April 24, 2009, 1:57 PM








Dear Paula,
 
Yes, I'm very interested. At this point he'd use any dose he can get. We can't
be picky at all since it's the only choice now. We are extremely grateful for
any help we can get! I want to thank you for taking the time as well as offering
your samples to us.
 
Brenda Graves
 
--- On Fri, 4/24/09, Paula Nixon <paule14@sbcglobal. net> wrote:

From: Paula Nixon <paule14@sbcglobal. net>
Subject: Re: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 2:54 PM

Dear Brenda,
We have some samples.  My husband didn't do well with them, so he stopped.  But
they are just low dosages.  One box has 7 - 4 mg, the other has 5 -two mg.  And
they have an expiration date of 4/09.  We just got them last year, and I think
they would still be OK.  Let me know if you are interested.  I still have them
because I hate thowing something away that is expensive that someone might be
able to use.
Paula Nixon

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 12:22 PM

My uncle recently ran out of his patches and isn't do to well. He has other
health issues that keep him from being able to use other drugs that are
available. Now our family is frantically searching for any unused/unwanted
patches or any advice that may help at this point.
 
Thank you,
Brenda

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]
















[Non-text portions of this message have been removed]

Dear Paula,
 
Yes, I'm very interested. At this point he'd use any dose he can get. We can't
be picky at all since it's the only choice now. We are extremely grateful for
any help we can get! I want to thank you for taking the time as well as offering
your samples to us.
 
Brenda Graves
 
--- On Fri, 4/24/09, Paula Nixon <paule14@...> wrote:


From: Paula Nixon <paule14@...>
Subject: Re: [CarePartners] Neupro help
To: carepartners@yahoogroups.com
Date: Friday, April 24, 2009, 2:54 PM








Dear Brenda,
We have some samples.  My husband didn't do well with them, so he stopped.  But
they are just low dosages.  One box has 7 - 4 mg, the other has 5 -two mg.  And
they have an expiration date of 4/09.  We just got them last year, and I think
they would still be OK.  Let me know if you are interested.  I still have them
because I hate thowing something away that is expensive that someone might be
able to use.
Paula Nixon

--- On Fri, 4/24/09, Brenda Graves <texanjustice@ yahoo.com> wrote:

From: Brenda Graves <texanjustice@ yahoo.com>
Subject: [CarePartners] Neupro help
To: carepartners@ yahoogroups. com
Date: Friday, April 24, 2009, 12:22 PM

My uncle recently ran out of his patches and isn't do to well. He has other
health issues that keep him from being able to use other drugs that are
available. Now our family is frantically searching for any unused/unwanted
patches or any advice that may help at this point.
 
Thank you,
Brenda

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

My uncle recently ran out of the Neupro patch and isn't doing so well. He has
other health issue that keep him from being able to use the other drugs
available. The family is desperately searching for unused patches or advice/help
that is out there.

Dear Brenda,
We have some samples.  My husband didn't do well with them, so he stopped.  But
they are just low dosages.  One box has 7 - 4 mg, the other has 5 -two mg.  And
they have an expiration date of 4/09.  We just got them last year, and I think
they would still be OK.  Let me know if you are interested.  I still have them
because I hate thowing something away that is expensive that someone might be
able to use.
Paula Nixon

--- On Fri, 4/24/09, Brenda Graves <texanjustice@...> wrote:


From: Brenda Graves <texanjustice@...>
Subject: [CarePartners] Neupro help
To: carepartners@yahoogroups.com
Date: Friday, April 24, 2009, 12:22 PM








My uncle recently ran out of his patches and isn't do to well. He has other
health issues that keep him from being able to use other drugs that are
available. Now our family is frantically searching for any unused/unwanted
patches or any advice that may help at this point.
 
Thank you,
Brenda

[Non-text portions of this message have been removed]
















[Non-text portions of this message have been removed]

My uncle recently ran out of his patches and isn't do to well. He has other
health issues that keep him from being able to use other drugs that are
available. Now our family is frantically searching for any unused/unwanted
patches or any advice that may help at this point.
 
Thank you,
Brenda




[Non-text portions of this message have been removed]

I want to meet you. Give me a chance! Click here to chat with me online:
http://deshawndcw.zoomshare.com/files/chat.htm

Vans are tyically seen with people with handicaps (0r lots of kids and
strollers.) The newer ones aren't too high and some even can be equipped for
wheelchairs., plus they have room in the back for dogs or whatever..

LouAnn Corrigan <lacorrigan@...> wrote:          I am the care giver
for my husband who has Parkinsons.

I need some advice. We currently have a Mountaineer with a nice large flat
step, but my husband's legs have recently gotten too weak to climb up into
it safely.

I am wondering if anyone on this list would share the kind of vehicle they
think is about the right height for easy access. I know it will depend on
the length of your legs though. Tom has long legs--21" from the floor to the
back of his knees.

I know we will have to actually try out the vehicles, but he tires out SO
quickly that I would like to have a list of likely ones ahead of time.

The decision is made more difficult by the fact that we have two large dogs
that also need to travel in the vehicle to the vet etc., which is why we
have the Mountaineer now. Previously we had a Jimmy. They both have a hatch
back that when the seats are down, gives the dogs an adequate place to lie
down.

So please, if anyone knows of a station wagon or other type of vehicle that
would be easy access for Tom and have space in the back for dogs, share your
thoughts.

Thanks so much.
LouAnn and Tom


LouAnn in WI

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

I am the care giver for my husband who has Parkinsons.

I need some advice. We currently have a Mountaineer with a nice large flat
step, but my husband's legs have recently gotten too weak to climb up into
it safely.

  I am  wondering if anyone on this list would share the kind of vehicle they
think is about the right height for easy access. I know it will depend on
the length of your legs though. Tom has long legs--21" from the floor to the
back of his knees.

I know we will have to actually try out the vehicles, but he tires out SO
quickly that I would like to have a list of likely ones ahead of time.

The decision is made more difficult by the fact that we have two large dogs
that also need to travel in the vehicle to the vet etc., which is why we
have the Mountaineer now. Previously we had a Jimmy. They both have a hatch
back that when the seats are down, gives the dogs an adequate place to lie
down.

So please, if anyone knows of a station wagon or other type of vehicle that
would be easy access for Tom and have space in the back for dogs, share your
thoughts.

Thanks so much.
LouAnn and Tom


LouAnn in WI

[Non-text portions of this message have been removed]

I created this cool friends network and added you to my friends network. Hit-up
now:
http://daisukeh.zoomshare.com/files/newmessage.htm

Thanks for your response.  I did get a hold of the Washington State
Parkinsons Association.  They sent me a DVD on Parkinsons.  I can't
get my husband to watch it.  I think he is afraid to know what to
expect in the future.  He needs something to keep him busy when he is
feeling good.  He sells things on ebay and that keeps him busy some
of the time.  He doesn't have any hobbies.  He used to repair vacuums
and sewing machines and janitorial equipment, but his left hand
shakes so bad that he isn't able to do that anymore.  His medicine
helps but it doesn't take the shaking away completely.  I have my own
sewing business and he helps me with that, making deliveries and
taking care of customers when they come in.  He used to help me with
the sewing, like rip out zippers and prepare the pants for me to hem,
but he isn't able to do that anymore either.  He feels like he is
just a burden to me and I try to keep his spirits up, but I don't
think I am doing such a great job.  He is a city councilman and is
able to go to all his meetings.  He used to volunteer for our high
school marching band, but gets very anxious when he tries to now, so
we have quit helping them.  I will try to keep in touch.  I can only
get on the computer after the kids are in bed, and sometimes too
tired so I just go to bed. Thank you again for the information. Best
wishes for the coming new year.  Tammi.


--- In carepartners@yahoogroups.com, s.ZELTSERMAN@... wrote:
>
>  hi there,
>
> well it me began with me i have had pd for going on 13 years now.
i must have had it for a couple of years with not knowing the pd
symtoms, but that here and there.  you can have your husband read
thiis for it might do him some good.
>
> as i said i came down with pd in 1995.  our daughter had died in
1993 from a terrible death.  and our dr decided they we should go to
therapy as a family. this we did but my husband could not or would
not accept the therapy so we stopped.i had just retired as did my
husband.  i decided right then that the pd was not going to get to
me.   and after 13 or more years it has not.  i started to do thing
that i had never done before. i  volunteer,took up watercolor
painting and pottery plus i started to write poetry  and do
decoupage..  this has become my life.  i still volunteer, and have
two craft shows that i do each year.  i also might my own greeting
cards,  in fact a local craft museum is selling them.
> i have my good and bad days.  some times my feet just stick-to the
ground and can not move.  when this happens i put something in front
of me on the ground  it does not have to be big, just a piece of
paper will do.  once i step over whatever is on the ground i am
fine.  i still take our dog out but not for very long walks.
> now for what you and your husband can do.
> 1.  there is a Parkinson group  APDA.
> 2.  there is this group on the intern=net that i belong to its
Parkinson-partners.
> ask your dr for a group in your area that you both can join.
> i am on sine met and sine met cr and mirpex.
> i also take this juice goji juice  it has worked wonders for me.
> you get it over the Internet i will give the name of the person i
deal with
> it is  Olga Cantrell   tel 847 546 9257
> address 15 n dawn marie dr.round lake il  60073
> .please keep in touch
>
> ellen zeltserman
> 0.
> *
> americn parkinson's disease association.,  if you go onto the
inrtnet you should be able to fing=d their address
>
>  -------------- Original message ----------------------
> From: "tammismith30" <jtcbcbitty@...>
> > My husband is 52 and has been dx with PD in Oct.  We have 5
children,
> > 2 still at home.  a boy 10 and a girl 4.  I am new to this site
and am
> > not sure how all this works, but I could use some support in my
area.
> > I live in Clarkston, Washington.  Our community is small so I
haven't
> > found a support group here yet.  I am trying to learn as much as
> > possible about this disease so I can be a support to my husband.
He
> > isn't dealing with it real well right now.  The dr has put him on
> > carbidopa/levidopa 3x day. It seems to be helping him most of the
> > time.  He definitely has his bad and good days.  If he feels good
then
> > he overdoes and then he is in bed for a couple of days.  I'm
hoping he
> > feels good for the holidays.  Our other children will be here
with
> > us.  Any info, support, etc would be greatly appreciated.  Tammi
> >
> >
>
>
>
>
> [Non-text portions of this message have been removed]
>

hi there,

well it me began with me i have had pd for going on 13 years now.  i must have
had it for a couple of years with not knowing the pd symtoms, but that here and
there.  you can have your husband read thiis for it might do him some good.

as i said i came down with pd in 1995.  our daughter had died in 1993 from a
terrible death.  and our dr decided they we should go to therapy as a family.
this we did but my husband could not or would not accept the therapy so we
stopped.i had just retired as did my husband.  i decided right then that the pd
was not going to get to me.   and after 13 or more years it has not.  i started
to do thing that i had never done before. i  volunteer,took up watercolor
painting and pottery plus i started to write poetry  and do decoupage..  this
has become my life.  i still volunteer, and have two craft shows that i do each
year.  i also might my own greeting cards,  in fact a local craft museum is
selling them.
i have my good and bad days.  some times my feet just stick-to the ground and
can not move.  when this happens i put something in front of me on the ground 
it does not have to be big, just a piece of paper will do.  once i step over
whatever is on the ground i am fine.  i still take our dog out but not for very
long walks.
now for what you and your husband can do.
1.  there is a Parkinson group  APDA.
2.  there is this group on the intern=net that i belong to its
Parkinson-partners.
ask your dr for a group in your area that you both can join.
i am on sine met and sine met cr and mirpex.
i also take this juice goji juice  it has worked wonders for me.
you get it over the Internet i will give the name of the person i deal with
it is  Olga Cantrell   tel 847 546 9257
address 15 n dawn marie dr.round lake il  60073
.please keep in touch

ellen zeltserman
0.
*
americn parkinson's disease association.,  if you go onto the inrtnet you should
be able to fing=d their address

  -------------- Original message ----------------------
From: "tammismith30" <jtcbcbitty@...>
> My husband is 52 and has been dx with PD in Oct.  We have 5 children,
> 2 still at home.  a boy 10 and a girl 4.  I am new to this site and am
> not sure how all this works, but I could use some support in my area.
> I live in Clarkston, Washington.  Our community is small so I haven't
> found a support group here yet.  I am trying to learn as much as
> possible about this disease so I can be a support to my husband.  He
> isn't dealing with it real well right now.  The dr has put him on
> carbidopa/levidopa 3x day. It seems to be helping him most of the
> time.  He definitely has his bad and good days.  If he feels good then
> he overdoes and then he is in bed for a couple of days.  I'm hoping he
> feels good for the holidays.  Our other children will be here with
> us.  Any info, support, etc would be greatly appreciated.  Tammi
>
>




[Non-text portions of this message have been removed]

My husband is 52 and has been dx with PD in Oct.  We have 5 children,
2 still at home.  a boy 10 and a girl 4.  I am new to this site and am
not sure how all this works, but I could use some support in my area.
I live in Clarkston, Washington.  Our community is small so I haven't
found a support group here yet.  I am trying to learn as much as
possible about this disease so I can be a support to my husband.  He
isn't dealing with it real well right now.  The dr has put him on
carbidopa/levidopa 3x day. It seems to be helping him most of the
time.  He definitely has his bad and good days.  If he feels good then
he overdoes and then he is in bed for a couple of days.  I'm hoping he
feels good for the holidays.  Our other children will be here with
us.  Any info, support, etc would be greatly appreciated.  Tammi

I apologize, as this message will be long.

My mother was diagnosed with young-onset PD ~8 years ago and the
disease is now quite advanced.  I am beside myself as to how to help
at this point and am looking for advice.  Here's the story:

My mother, prior to PD, was an incredibly kind and loving
individual.  She is now very angry and mean much of the time when we
try to help.  She has spit in my face on several occassions for
trying to help.  Her PD is at the point where she falls several
times a day, cannot keep track of her meds, has trouble eating,
sleeping, reading, etc., frequently experiences hallucinations,
incontinence, cognitive difficulties, etc.  Bottom line, I don't
believe she is safe living by herself although she does.  I have two
siblings who live near her (I live a state away) and we all try to
work to help but she is now very protective of her medicines and
won't let us look at what she's taking or try to help with everyday
activities.  Therefore, her house is unsanitary, her meds are all
over the place, her checkbook is incomprehensible, etc.  We have
tried to talk to her on several occassions over the years to try
things such as home nurse visits (she wouldn't open the door for the
nurse) to check medications or convince her to look for an assisted
care facility with us.  She is in denial about the progression of
the disease and talks constantly about her problems being associated
with bad eyes, bad telephones, etc.  On some fronts, I feel this
would be fine as she would only be hurting herself by insisting on
keeping everything to herself.  However, this has been a large drain
on our family as she calls frequently due to hallucinations in the
middle of the night or lost medications or other needs that need to
be met such as telephone call or dr. appts.  We go to the doctor
with her all the time but little seems to come from the visits as
she is at the end of the medication rope given the many years of
trying different drugs.  Furthermore, the doctor does not want to
get in the middle of these personal issues such as assited care and
he focuses primarily on medications.  My sister (and some of my
mom's friends) takes the brunt of these responsibilities and is
frequently yelled at or ridiculed by my mother when she comes over
to help (which is almost every day now).  I live a state away and
try to do as much as possible but she rarely can talk on the phone
coherently.  My sister and I talk everyday and mom tells her
different things than she tells my sister to make everything sound
ok.  I convinced her to go to a psychologist once....which she sat
through tight-lipped without saying much and insisting she had no
problems and she was just going for me (I wasn't there but the
psychologist called me after to discuss the session).  We do not
know what to do.  She is many time barely functional (over the
holidays she had a pile of gifts which she didn't know whom they
were bought for and then got very upset at the subsequent confusion)
and takes risks with my son (brand new 8mo old, she can't remember
his name) and then gets very upset when I ask her not to pick him up.

I want to do more to help and I want to help my sister cope with the
constant calls and confusion but we don't know how.  She won't even
consider moving to an assisted care facility nor home care and I'm
beginning to think she never will.  We are at a point where
something needs to be done for everyone's safety and sanity but I
don't even know where to start given her lack of cooperation and
hostility.

Has anyone experienced similar reluctance from family members and
found ways to help cope?  Any advice would be much appreciated.

The CarePartners of PLWP would like to invite anyone who would be
interested to join us for the 6th Christmas Carols Singalong
in the PLWP2 Chat room.
http://health.groups.yahoo.com/group/plwp2/

This year we are trying for the eve of Christmas Eve. Friday night 8pm
Eastern USA & Canada in PLWP2, mark it in your calendars, all are
welcome. (That's midday, Christmas Eve for the aussies on our Eastern
Daylight Saving time,so come in your swimsuit, and get into the
Spirit, singing wobbly, lustily, and with downunder-gusto, drowning
out the frozen Northen Hemispeheric try-hards.)
This is a tradition which should'nt be missed, it's fun, funny and
usually chaotic, but it is also a mark of solidarity, that brings the
PLWP together for 30 minutes of whole family unity.
So please feel free to join us, we would love to see you there.
Happy Christmas PLWP
Virginia Fay (Bella), Chris Hall (Oshticker) & Ron Hagar

Hello  Friends,



     My Name is Baachandran. N, residing in  Atlanta, georgia, Basically  a
Finance Pro, from India I have migrated close to 3 years be 4,  here. Over there
in India for almost 15 years I was working in Multi national companies in
"Senior Managerial grades" carrying Hefty  Packages and lots of stress and
Pressure. Although I was enjoying the pressure and Job scope, some where down
the line during Mid 98 s' one of my Higher ups noticed "minor tremors" in my
right hand  with care  and worry. There started the clock.

   The Neuros to whom I was referred were incidentally ae Biggies" and thorough
Pro's who transfer " Their Knowledge Base" to lot of foreign counties'. It has
been Diagniosed  as Parkinson' which was strange to Indian condition.,
considering my age then, which was approx 36 years. Although, I  was excelling
in my performances officially, I was putting extra eforts to shrug away from any
Neagtive thoughts and "Focus  only on Parkinson'   I was consuming the same
dosage  of Medication' as prescribed by Neuro Doc " of mine who has almost
become my God father.
   But the  Real slide starte  a year back, when the hit was loud enough, even I
started feeling that I m in social trouble.

   I would like to share my feelings and would like to Publish  a Book on,

   " Setbacks on Parkinson' and Measure to overcome Social evils'.
   I am unable to get a proper Job here and I depend on my wife  who is a
Teaching Pro at Higher schoolling level.

   Would appreciate feedback by members, whether it would be good to share my
viiews and get suggestions.  I feel  every human beingover here is Courteous and
friendly. But I m yet to come out in public.

   Cheers and regards,


   BA;LACHANDRAN NATARAJAN
   ATLANTA    GEORGIA  30339
   USA.



---------------------------------
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  Lots of someones, actually. Yahoo! Personals

[Non-text portions of this message have been removed]

Dear Friends,

Ii am new to PD.  Someone told me that certain foods make the symptoms
worse.  Does anyone know if this is true?  If so, can you please tell
me which foods I should avoid.

Thanks!  Jim

I hope this reaches you, Dee.  I can't help you but there might be someone
on the PLWP site who can.  This is where you can find the home page and from
there you can access the message board.  Best of luck to you.  It sounds
like a bad situation you're facing.

Heather

-----Original Message-----
From: carepartners@yahoogroups.com [mailto:carepartners@yahoogroups.com]
Sent: Monday, October 31, 2005 1:59 PM
To: carepartners@yahoogroups.com
Subject: [CarePartners] Digest Number 34



There is 1 message in this issue.

Topics in this digest:

       1. HELP
            From: dee_136


________________________________________________________________________
________________________________________________________________________

Message: 1
    Date: Sun, 30 Oct 2005 19:29:10 -0000
    From: dee_136
Subject: HELP

ANYONE HERE WHO IS A PARKIE AND ALSO CAREGIVER FOR SPOUSE.

I WAS DIAGNOSED IN 1999 AND WAS COPING FAIRLY WELL.

SUDDENLY MY HUSBAND GOT ILL AND NOW I  HAVE TO CARE FOR HIM TOO.

I AM FEELING VERY OVERWELMED AND HAVE NO ONE TO TALK TO.  I HAVE TO USE

MESSAGE BOARD OR E MAIL BECAUSE I CANT GET INTO THE CHAT ROOM ON THIS

COMPUTER.

AT THIS POINT ALL I WANT TO DO IS CRY.

I HOPE THERE IS SOMEONE HERE WHO CAN HELP ME UNDERSTAND WHAT I AM

FEELING.

THANK YOU DEE















________________________________________________________________________
________________________________________________________________________



------------------------------------------------------------------------
Yahoo! Groups Links




------------------------------------------------------------------------

ANYONE HERE WHO IS A PARKIE AND ALSO CAREGIVER FOR SPOUSE.

I WAS DIAGNOSED IN 1999 AND WAS COPING FAIRLY WELL.

SUDDENLY MY HUSBAND GOT ILL AND NOW I  HAVE TO CARE FOR HIM TOO.

I AM FEELING VERY OVERWELMED AND HAVE NO ONE TO TALK TO.  I HAVE TO USE

MESSAGE BOARD OR E MAIL BECAUSE I CANT GET INTO THE CHAT ROOM ON THIS

COMPUTER.

AT THIS POINT ALL I WANT TO DO IS CRY.

I HOPE THERE IS SOMEONE HERE WHO CAN HELP ME UNDERSTAND WHAT I AM

FEELING.

THANK YOU DEE

dr.banks-

i would enjoy talking to youabout pd. i also have yopd.  please
contact me at wingnuts2@...
                         fran

Be not alarmed!
It would appear that we have inadvertantly got the use of two
completely different Carepartners Chat and Message areas, this one,

  http://health.groups.yahoo.com/group/carepartners/

called PLWP Carepartners, originally set up by one of our Co-
Founders Carl McLeod (PC Carl), who sadly lost his life from an
horrific car accident 4 years ago, and another donated by our own
Brenda Tucker called PLWP Carepartners! (What a difference a capital
P makes!)

http://health.groups.yahoo.com/group/PLWPcares/

Under the circumstances, and due to the fact that none of us really
know which room is which, I suggest we stay put this room, and put
the other room in Moth Balls, or maybe vica versa. As you can see,
I have no clue. So I shall post this message on both sites, and the
one which receives the greatest number of replies, shall win the
stay-put gong.

Best wishes to you all
Bella

Of course we'd be interested in new information for PD.  You have to
keep track of treatments yourself in this day and age.  The doctors on
working on the wrong track.

I AM A DOCTOR AND UNFORTUNATELY SUFFERING FROM YOPD I CAN GIVE INFORMATIONS THAT
EVEN RESEARCHERS HAVE NOT BEEN ABLE TO FIND OUT .MY INFORMATIONS  ARE CLINICALS
ONLY PLEASE INFO IF YOU ARE INTERESTED
DR GANI BANK




---------------------------------
Check out Yahoo! India Rakhi Special for Rakhi shopping, contests and lots more.
http://in.promos.yahoo.com/rakhi/index.html

[Non-text portions of this message have been removed]

{{hugs to all}}
I am Karen,  a caregiver to my mother of 10 yrs dx pd. My father
tends to her most of the time, but works f/t still to keep the
medical benefits and is scared to retire (he is 70). I tend to both
their needs, mow their grass each week, do moms hair, run her to the
doctors, and stores, take their dog to the vet, clean her house for
her, you name it, I do it.
Unfortunately I have 2 brothers and their families who take no part
in helping, infact just last week they both went on vacation and my
parents had to run to their house twice a day to take care of their
dog. Yet, of all the things my parents do for us, not one do they
offer assistance of even mowing the lawn for my father (who mind you
has had 1 heart attack, 1 bypass and recently had heart
falipitations) he is currently on coumadin which he will take for
the rest of his life.

It is an awful feeling to be the only one who cares. My feeling is
that my brothers are still (and always will be) in denial of pd,
because I tried to inform them of when my mother was doing poorly
prior to the amantadine, they must not have taken me seriously until
they saw it with their own eyes, they got all upset, and called me.

I am no longer speaking with them , as for years I have done for
them, as my parents have, giving to their kids each holiday,
birthday, occasion, my daughter is now 10 and in 10 yrs she received
1 card for her birthday, ONLY because my sister in law wanted
something in return. They do nothing without it benefitting them in
some way.

BUT on the positive side, if anything happens, I know I did all I
could for both parents, I have a fantastic husband and daughter, and
the best pets that bring us a lot of enjoyment. I try to think of
what I do have as supposed to what I do not have. And am very
grateful for it. I thank God each day that my mother is still able
to be somewhat mobile, she has her off days, but she is doing well
for the most part, progressing slowly of course but it is expected.

Anyhow, I just thought I would post a hello and introduce myself
and if anyone out there has siblings such as mine and would like to
share the frustrations and pain, maybe some laughs, send me an email
as it brings comfort to know we are not alone.
pcsg2005@...

{{hugs, love and prayers}}
Karen
http://www.geocities.com/pcsg2005

Hello,

I hope this group message of mine finds the reader in good health and
mood. I'm Anitha and this being my first post, I'll keep it short. You
can find the complete healthcare directory here
http://www.hi-fiweb.com/directories/health-care/ .

Take care,

Geetha

Dont' forget..
LOL
We'll look forward to seeing some more of us..6.30pm (ish) friday!!

Heather Mingo <heatherv@...> wrote:
I sure hope I'm home this Friday evening and can remember to tune in.
I've been trying for months now with no luck.  I'm either away or
totally forget.  I'm a member of the PLWP main chat room as well but
feel like an interloper there sometimes since I'm not the one
suffering from PD.  Well, of course I suffer from it, just as all of
you do.  But you know what I mean.  I really want to connect with
others who are caring for a PD patient.

I'll tie a string around my finger!

Heather




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    To unsubscribe from this group, send an email to:
carepartners-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



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[Non-text portions of this message have been removed]

I sure hope I'm home this Friday evening and can remember to tune in.
I've been trying for months now with no luck.  I'm either away or
totally forget.  I'm a member of the PLWP main chat room as well but
feel like an interloper there sometimes since I'm not the one
suffering from PD.  Well, of course I suffer from it, just as all of
you do.  But you know what I mean.  I really want to connect with
others who are caring for a PD patient.

I'll tie a string around my finger!

Heather