Hello. first let me tell you that I don't have very much experience with PD meds
etc. I take mirapex and stalevo and don't seem to have too much trouble but I
am only 49 years young.
My husband passed away back in 1998 so I have some understanding of what you are
experiencing as a caregiver.
Frankly, for me, I give all the credit to God for giving me the "peace that
passes understanding" during some of the most challenging moments of my life. I
know with all my heart that he loves you just as much as me. I know that you can
do anything if you have Christ in you to give you strength.

I don't want to be too forward as people can be resistant to hearing spiritual
things.

I hope someone medically astute can help to give you some insight in the
physical realm. I think you are doing a great job in this situation. It's good
to do research etc.

I know your time is valuable, but reply to me please and let me know where you
are spiritually.

I'll be praying for you and your Father in law, ok?
----- Original Message -----
From: imajoys1093004
To: carepartners@yahoogroups.com
Sent: Wednesday, November 10, 2004 1:18 PM
Subject: [CarePartners] Here I am



Hello all. I am new to this group today. I suppose what I am
looking for is support and information. I will try to be as concise
as I can. My father-in-law was diagnosed with PD in 1995. He had
back surgery last year around Thanksgiving and his meds were changed
because of water retention from eldypryl and mirapex to sinement
(sp). With in 2 weeks of the change, his posture completly doubled
over so if you see him standing he is almost at a 45 degree angle.
He also experienced debilitating cramps down his calves and in his
hips and lost considerable mobility. I have researched this and it
seems to be dystonia. We saw almost no PD symptoms while he was
medicated before the med change and I understand sinement can do
this. Of course the doctors have no answers. We are managing his
cramps with stalevo and requip but he currently has severe pain in
his hips. He moved in with us 2 months ago and we are all doing
fine, but I am finding it difficult not to treat him like a child,
something I said I would never do. I have been his primary caregiver
and find there is no time for anything else. Has anyone else had any
of these problems? He has also been diagnosed with Prostate cancer
which is contained and being managed with hormone therapy. He
doesn't like the pain meds that make him feel "dopey", but tylenol
doesn't manage the pain very well. Any info or suggestions would be
greatly appreciated.

Thanks for being here,

JoyS




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