Thanks for your response. I did get a hold of the Washington State
Parkinsons Association. They sent me a DVD on Parkinsons. I can't
get my husband to watch it. I think he is afraid to know what to
expect in the future. He needs something to keep him busy when he is
feeling good. He sells things on ebay and that keeps him busy some
of the time. He doesn't have any hobbies. He used to repair vacuums
and sewing machines and janitorial equipment, but his left hand
shakes so bad that he isn't able to do that anymore. His medicine
helps but it doesn't take the shaking away completely. I have my own
sewing business and he helps me with that, making deliveries and
taking care of customers when they come in. He used to help me with
the sewing, like rip out zippers and prepare the pants for me to hem,
but he isn't able to do that anymore either. He feels like he is
just a burden to me and I try to keep his spirits up, but I don't
think I am doing such a great job. He is a city councilman and is
able to go to all his meetings. He used to volunteer for our high
school marching band, but gets very anxious when he tries to now, so
we have quit helping them. I will try to keep in touch. I can only
get on the computer after the kids are in bed, and sometimes too
tired so I just go to bed. Thank you again for the information. Best
wishes for the coming new year. Tammi.


--- In carepartners@yahoogroups.com, s.ZELTSERMAN@... wrote:
>
> hi there,
>
> well it me began with me i have had pd for going on 13 years now.
i must have had it for a couple of years with not knowing the pd
symtoms, but that here and there. you can have your husband read
thiis for it might do him some good.
>
> as i said i came down with pd in 1995. our daughter had died in
1993 from a terrible death. and our dr decided they we should go to
therapy as a family. this we did but my husband could not or would
not accept the therapy so we stopped.i had just retired as did my
husband. i decided right then that the pd was not going to get to
me. and after 13 or more years it has not. i started to do thing
that i had never done before. i volunteer,took up watercolor
painting and pottery plus i started to write poetry and do
decoupage.. this has become my life. i still volunteer, and have
two craft shows that i do each year. i also might my own greeting
cards, in fact a local craft museum is selling them.
> i have my good and bad days. some times my feet just stick-to the
ground and can not move. when this happens i put something in front
of me on the ground it does not have to be big, just a piece of
paper will do. once i step over whatever is on the ground i am
fine. i still take our dog out but not for very long walks.
> now for what you and your husband can do.
> 1. there is a Parkinson group APDA.
> 2. there is this group on the intern=net that i belong to its
Parkinson-partners.
> ask your dr for a group in your area that you both can join.
> i am on sine met and sine met cr and mirpex.
> i also take this juice goji juice it has worked wonders for me.
> you get it over the Internet i will give the name of the person i
deal with
> it is Olga Cantrell tel 847 546 9257
> address 15 n dawn marie dr.round lake il 60073
> .please keep in touch
>
> ellen zeltserman
> 0.
> *
> americn parkinson's disease association., if you go onto the
inrtnet you should be able to fing=d their address
>
> -------------- Original message ----------------------
> From: "tammismith30" <jtcbcbitty@...>
> > My husband is 52 and has been dx with PD in Oct. We have 5
children,
> > 2 still at home. a boy 10 and a girl 4. I am new to this site
and am
> > not sure how all this works, but I could use some support in my
area.
> > I live in Clarkston, Washington. Our community is small so I
haven't
> > found a support group here yet. I am trying to learn as much as
> > possible about this disease so I can be a support to my husband.
He
> > isn't dealing with it real well right now. The dr has put him on
> > carbidopa/levidopa 3x day. It seems to be helping him most of the
> > time. He definitely has his bad and good days. If he feels good
then
> > he overdoes and then he is in bed for a couple of days. I'm
hoping he
> > feels good for the holidays. Our other children will be here
with
> > us. Any info, support, etc would be greatly appreciated. Tammi
> >
> >
>
>
>
>
> [Non-text portions of this message have been removed]
>