hi there,

well it me began with me i have had pd for going on 13 years now. i must have
had it for a couple of years with not knowing the pd symtoms, but that here and
there. you can have your husband read thiis for it might do him some good.

as i said i came down with pd in 1995. our daughter had died in 1993 from a
terrible death. and our dr decided they we should go to therapy as a family.
this we did but my husband could not or would not accept the therapy so we
stopped.i had just retired as did my husband. i decided right then that the pd
was not going to get to me. and after 13 or more years it has not. i started
to do thing that i had never done before. i volunteer,took up watercolor
painting and pottery plus i started to write poetry and do decoupage.. this
has become my life. i still volunteer, and have two craft shows that i do each
year. i also might my own greeting cards, in fact a local craft museum is
selling them.
i have my good and bad days. some times my feet just stick-to the ground and
can not move. when this happens i put something in front of me on the ground
it does not have to be big, just a piece of paper will do. once i step over
whatever is on the ground i am fine. i still take our dog out but not for very
long walks.
now for what you and your husband can do.
1. there is a Parkinson group APDA.
2. there is this group on the intern=net that i belong to its
Parkinson-partners.
ask your dr for a group in your area that you both can join.
i am on sine met and sine met cr and mirpex.
i also take this juice goji juice it has worked wonders for me.
you get it over the Internet i will give the name of the person i deal with
it is Olga Cantrell tel 847 546 9257
address 15 n dawn marie dr.round lake il 60073
.please keep in touch

ellen zeltserman
0.
*
americn parkinson's disease association., if you go onto the inrtnet you should
be able to fing=d their address

-------------- Original message ----------------------
From: "tammismith30" <jtcbcbitty@...>
> My husband is 52 and has been dx with PD in Oct. We have 5 children,
> 2 still at home. a boy 10 and a girl 4. I am new to this site and am
> not sure how all this works, but I could use some support in my area.
> I live in Clarkston, Washington. Our community is small so I haven't
> found a support group here yet. I am trying to learn as much as
> possible about this disease so I can be a support to my husband. He
> isn't dealing with it real well right now. The dr has put him on
> carbidopa/levidopa 3x day. It seems to be helping him most of the
> time. He definitely has his bad and good days. If he feels good then
> he overdoes and then he is in bed for a couple of days. I'm hoping he
> feels good for the holidays. Our other children will be here with
> us. Any info, support, etc would be greatly appreciated. Tammi
>
>




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