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Reply | Forward Message #206 of 439 |
We are considering autologous periperal stem cell transplant with
high does chemo for my son. We are looking at Ifosfamide, Carboplatin
Etoposide (ICE) for the high-dose to be administered in Shands of
Jacksonville (FL) with harvesting at Shands of Gainesville (FL).

He has germ cell testicular cancer metastisized to his spine. Three
tumors (maybe more now) thorasic and new tumors (3-5) lumbar. We
thought we were about to win in July and then again in December but
the counts started back up after hitting a low at 300 (Now back at
2500+). Matt turned 21 in late August and has excellent family
support so he has never spent a night alone in the hospital. He is
unable to walk now so he used a chair (usually on two wheels).

After a year of multiple chemo protocols his markers are climbing
(for the third time). His upper body is still pretty strong but he
has lost some fifty pounds in the past year and is loosing more now.
He has tollerated the chemos fairly well during the past year.

I would be interested in hearing from anyone about experiences,
suggestions, cautions, etcetera in dealing with metastisized germ
cell tumors.

Also, I am planning on adjusting his dietary protocols and would
appreciate any suggestions of what to use or avoid. At this time I'm
planning on adding products from "Nutrition For Life" (Phytogreen
Concentrate, B-Complex Mega Formula, E with Lecithin & Wheat Germ
Oil) and "Life Extension" (Life Extension Mix w/o Copper, Life
Extension Booster, Flor-Essence, Super Soy Extract, N-Acetyl L-
Cysteine, Calcium D-Glucarate, Pecta-Sol). If anyone is using
products from these companies or would like to suggest others as
alternatives please feel free to make any suggestions at all.

We're open to any and all suggestions either through the group or in
private. Just one request: be specific where it comes to
products/sources.

Thanks all.







Mon Feb 18, 2002 8:55 pm

j_eric06
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Message #206 of 439 |
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We are considering autologous periperal stem cell transplant with high does chemo for my son. We are looking at Ifosfamide, Carboplatin Etoposide (ICE) for the...
j_eric06
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Feb 19, 2002
2:40 pm

So sorry to hear about your son. My 24 year old son just passed away last week of testicular cancer. Just like your son, my son's tumor markers started back up...
Marga Beukeboom
margagb@...
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Feb 19, 2002
4:43 pm

Hello, I'm not a doctor and do not give medical advice. Some information you may find useful is below. See Billy Best's story. He's in 6 year remission after...
Barry Jakes
freee81
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Mar 4, 2002
2:14 am

There is a website that I think is a *must read* before chemo. It's written by a woman that was healed without chemo: http://www.drday.com/crs.htm Her main...
cat_quilts@...
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Feb 19, 2002
4:43 pm

j_eric, ... Beginning now, I would have him totally avoid animal products and cooked food. I would also put him on large doses of fresh raw vegetable juices....
Mark Hovila
hovila@...
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Feb 19, 2002
5:57 pm

j_eric, ... Also, I would take a look at Hulda Clark's book The Cure for All Cancers. She doesn't recommend raw foods like I did in my previous post, but I...
Mark Hovila
hovila@...
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Feb 19, 2002
5:58 pm

Further to my previous email, I'd like to add that my son did not try the vitamin therapy. It was too late for him when we found out about it. But maybe it...
Marga Beukeboom
margagb@...
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Feb 21, 2002
10:33 am

HI...read your letter about your son and his cancer. I am a cancer survivor for 17 years. It has recently returned in lymph nodes in my neck. I am doing a self...
judith elder
leapinlarry2000
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Feb 21, 2002
10:34 am
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