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No Rights for a Child Diagnosed with Cancer   Message List  
Reply | Forward Message #166 of 439 |



No Rights for a Child Diagnosed with Cancer
Medical Satanism

A Child has the right to…
Affection, love, and understanding.
Adequate nutrition and medical care.
Full opportunity for play and recreation.
A name and nationality.
Be among the first to receive relief in times of disaster.
Be a useful member of society and to develop individual abilities.
Be brought up in a spirit of peace and universal brotherhood.
Enjoy these rights, regardless of race, color, sex, religion, national or
social origin.

- United Nations’ Declaration of the Rights of the Child Resolution 1386
XIV, 20 November 1959.




Over forty years ago, those powerful words were written and endorsed by
many nations throughout the world including the United States. It is a
beautiful declaration but sadly it is only an illusion. The medical
establishment took every single one of those rights away from our only
child Alexander. Without the right to live, there are no opportunities for
affection, play, or love.

Alexander was two years old when he was diagnosed with medulloblastoma, the
most common pediatric brain tumor. This killer of children is rising in
frequency. Alexander was a strong, happy, intelligent little boy who loved
life. He enjoyed trucks and could name various types of bulldozers,
backhoe’s, garbage trucks, cranes, and tankers on sight. He had a special
fascination with airplanes and helicopters and enjoyed his visits to the
airplane museum where he could sit in the cockpit of a real helicopter and
make believe he was flying. He enjoyed being pushed in a stroller while his
mommy roller-bladed behind. He loved taking his daddy down to the boat
docks to show him the little animals he had found attached to boat-lines
that had lain in the water too long. Of course, he loved the TeleTubbies
and Barney and dreamed of the day when he would go to school wearing his
little back pack, meet the real-life "Barney’s backyard gang," and build
things, make friends and play. Alexander was a wonderful, handsome, sweet,
happy child who was loved by a large extended family. When he was diagnosed
with brain cancer we turned to the FDA and the medical profession for help.
What happened next none of us could imagine.

After two brain surgeries to remove the tumor Alexander required therapy to
ensure that the cancer would not return. We conducted around-the-clock
research to find the cancer treatment that offered Alexander the best
chance to live. After scrutinizing therapies from throughout the world, we
selected the Burzynski Clinic in Houston Texas. Burzynski, a MD Ph.D. has a
twenty-year track record of curing or controlling the re-growth of
malignant brain tumors in children and adults with an innovative cancer
therapy. In addition, his therapy is non-toxic and offers a good quality of
life. The worst side effect of his treatment is increased thirst and urination.

With this decision made we took Alexander to Houston. There, on September
21st, 1998 Burzynski met with us and then gave us the incredible news that
he could not treat Alexander. He explained that the FDA controlled his
protocols and that this regulatory organization required that Alexander
first be treated with chemotherapy and/or radiation and then have the tumor
return in his brain. We explained that our son had suffered through a total
of sixteen hours of brain surgery to be tumor free. Burzynski said his
hands were tied. He explained that Dr. Robert J. DeLap who was then
Director of the Division of Oncology Drug Products of the Center for Drug
Evaluation and Research of the FDA had sent him a letter dictating what he
could and could not do. Later, through conversations with other parents, we
would learn that the FDA had actively restricted other children from
gaining access to this potentially life saving therapy.

This position by our government signed the death warrant for Alexander and
many other children. Now, instead of needing a diagnosis of brain cancer to
enter the Burzynski Clinic, the FDA was requiring that the child first
receive "standard therapies" (chemotherapy and radiation) and have
"measurable disease." This meant that a child with brain cancer must first
submit to chemo and/or radiation and have the tumor return in order to be
admitted to the Clinic. Alexander did not meet either of these two criteria
and that’s why, at the age of two, he was rejected.

Back in Los Angeles, we scrambled for other options but we were unable to
find any other viable non-toxic therapy that had any record of success with
pediatric brain tumors. We spoke with the oncologists at Children’s
Hospital. They explained that radiation was out of the question. At
two-years old, Alexander was much too young. Radiation would destroy his
developing brain, leave him with severe neurological disabilities and
reduce his IQ to around 60 which would mean retardation. But they held out
a life raft - chemo. Chemotherapy, they told us, was both effective and
relatively safe. Much safer than either surgery or radiation. They told us
that young children do extremely well on chemo. They told us that without a
doubt, chemo would prolong Alexander’s life. It got even better. The doctor
who would later become Alexander’s oncologist (Doctor X) told us that
having Alexander survive wasn’t the problem. The problem was to raise him
as an ordinary child. He made us promise that we would treat Alexander
normally and not show him any inordinate attention because of his disease.
The oncologist gave us what we wanted most - hope. Yet, even with these
encouraging promises we still hesitated. The idea of filling our son’s body
with poisons in order to make him healthy didn’t make sense. We continued
to pursue Burzynski’s therapy. We found that there were several doctors who
planned to use this non-toxic approach outside the USA, beyond the reach of
the FDA, but they were not up and running yet. The clock was ticking for
Alexander. Dr. X of Children’s Hospital began pressuring us to start the
chemo. We began receiving faxes and phone calls from him that communicated
his impatience with us. After more assurances from the oncologists that
their drugs would, at a minimum, "buy as time" we brought Alexander in for
his first round of chemotherapy on October 7th, 1998. Alexander sat on his
mommy’s lap watching his favorite Barney video. The nurse came in the room
covered with a protective "spacesuit" that covered her body with blue
plastic from head to toe. She hooked up the bottles labeled "biohazard" to
the IV pole and connected it to Alexander’s port-a-cath that accessed a
vein near his heart. Then she started the drip. We cried quietly as this
bottle of poison emptied into our son’s body.

Since before Alexander was even born, we had done everything we could to
protect him. His mommy, Raphaele, ate healthy food throughout her pregnancy
and bore Alexander without drugs or painkillers of any kind. She breast-fed
him for four months and then made homemade baby food or bought organic baby
food. His formula was made with bottled water. He rarely ate cookies, candy
or ice cream. From day one, we made sure everything that entered
Alexander’s little body was pure, healthy and wholesome. For the first six
months of his life, we had even made his grandparents wash their hands
before they touched him. And now he lay in a hospital bed attached to an IV
pole where liter bottles of poisons were being purposefully poured into his
veins. To reassure ourselves, Raphaele and I repeated the words that the
oncologists had told us. "We’re buying time." And to Alexander we said,
"This is medicine that is going to help you."

What we didn’t know and what we couldn’t possibly know was that those words
were lies.

After the first round of chemo, Alexander began to change. Even after two
brain operations, Alexander was still a vibrant, ruddy, strong, energetic
child. But as the chemotherapy repeatedly filled his small body Alexander
began to die inside. First the relentless stomach pains and the horrendous
projectile vomiting began. Then his beautiful curly hair fell out. Next his
dark skin tone turned pale as a ghost. He got sick with fevers and spent
weeks in the hospital. Then there were the blood transfusions to replace
the blood cells the chemo had killed, the hearing tests to see if the chemo
drug cisplatin had not devastated too much of his hearing, the nuclear
medicine tests to check if Alexander’s kidneys were not giving up under the
strain of processing so much poison, the liver function tests to ensure
that his liver was not being destroyed, etc. We felt as if we were actively
engaged in the slow but sure torture of our own child.

Then we found the following statement written by Alexander’s oncologist in
our son’s medical chart. It was dated September 26, 1998:

"Dr. Z also called me because he was very concerned about Mr. and Mrs.
Horwin…He was very concerned that the family would refuse treatment and
that a court order would have to be obtained to treat Alexander."

And on October 6, 1998 Dr. X continued:

"I think that if Mr. and Mrs. Horwin do not bring Alexander in for
chemotherapy tomorrow, additional steps will be necessary."

We went to see an attorney to find out if the oncologists could take
Alexander from us if we decided to stop chemo. Incredibly, the answer was
yes. The lawyer explained that the court could take custody until the law
decided what to do. We weighed everything. If we said "no more chemo" to
the oncologists we knew that would get a visit from a police officer and a
social worker. Alexander would be taken from us screaming. His last days
alive could be spent out of our reach in some kind of foster care
environment away from his home, his family, his toys, everything he knew
and loved while an over-burdened legal system decided what to do with him.
If we agreed to continue chemotherapy the horrific side effects would
persist but the oncologists assured us that the treatment would prolong
Alexander’s life if not save it. If we left the country, we would have our
son but no blood tests, MRI’s, or follow-up by the surgeons who operated on
him. Those were our three choices, one worse than the next.

What do we do? We did not have a choice of therapies. Our first choice for
treatment at Burzynski’s Clinic was denied. The oncologists warned us that
if we didn’t use chemotherapy that the tumor would probably return in three
months. These doctors assured us that the chemo they were administering to
our son was the current "state-of-the-art." They told us repeatedly that
this was Alexander’s best choice for a long and healthy life.

We continued the chemotherapy. Soon Alexander’s balance was lost and his
ability to see deteriorated. When we took him home from the hospital, in
between chemo rounds, we had to give him daily injections into his legs to
help raise his blood counts that the chemotherapy had decimated. Alexander
hated it. The whole thing was horrendous.

We never stopped looking for alternatives. After three sessions of chemo,
we had found a clinic in Switzerland that had a good track record with
pediatric cancers using a non-poisonous approach. Raphaele told Alexander:
"No more chemo, Ninouche. It is finished! No more chemo or hospitals!"
Alexander was thrilled. "Yeah mommy, no more chemo," he said. This was on
December 7th, 1998.

But it was already too late. After a "clean" MRI on January 4th, Alexander
had pain in his head and back and he began to vomit. His oncologist, Dr. X
refused to do a MRI because he had done one recently and it had not shown
the return of the tumor. "Mommy I have pain here and here," Alexander
repeated constantly putting his hand on his lower back and on his head. His
suffering was increasing. We brought Alexander into the hospital on January
11th and Dr. X ordered a CAT scan without contrast. We were told that the
scan looked "fine," although later, we would find out that a CAT scan
especially one taken without contrast is not designed to reveal the
presence of a returning brain tumor. As Alexander’s pain continued to
increase, incredibly Dr. X told us to give Alexander Tylenol and "Mountain
Dew" - the soft drink because it had caffeine for his headache. Finally, on
January 18th, we brought Alexander in to the hospital and demanded a MRI.
We knew something was terribly wrong. Dr. X refused to order the test. We
had a confrontation. We would not leave until a MRI was ordered. They would
have to drag us out. Finally, the doctor relented. Alexander was wheeled
into the MRI suite. We told him that he would sleep for a while and then
when he woke up mommy and daddy would be there and we would go home. An
hour later we had the news. It was surrealistic like the first time we were
told our precious son has a brain tumor.

Dr. X shook his head and told us that Alexander had over 30 tumors
throughout his brain and spine.

"What does that mean?" we asked completely stunned.

"I’m afraid that it means that he has about three days to live," he told us.

We were ushered out of the MRI suite. Alexander was waking up slowly
recovering from the powerful drug Nebutal. He smiled because mommy and
daddy were standing over him.

"Mommy, I have to throw-up," he said apologetically and threw up on the floor.

"It is ok Alexander, it is ok Ninouche, mommy loves you so much."

We were keeping back our tears to maintain our sanity in front of our 2 ½
year-old son. One of Alexander’s neurosurgeons stopped in to look at the
MRI and then came out to talk with us.

"What is it?" we asked him.

"Leptomeningeal sarcoma. I am so sorry. There is nothing we can do."

"How is this possible?"

"It happens," he said.

"How often," we asked.

"It happens sometimes. I’m sorry, I’ve got to get back to the OR," he said
and left.

Dr. X added, "Oh, yes I have seen this a lot," and walked back inside the
MRI suite.

We stood silently, holding Alexander’s hands.

"I’m going to ask Dr. X what we can do," I said to my wife.

Without asking permission, I returned to the MRI suite. Dr. X was laughing
with one of the nurses. When he saw me his demeanor changed and the nurse
got off the table where she was sitting and walked away.

"The only thing we can do is send you home with hospice care. I’ll give you
a prescription for morphine and decadron," Dr. X said as he awkwardly
patted me on the shoulder. "I think it is better to keep your son here
tonight and you can go home tomorrow," he added.

Alexander hung on for almost two more weeks. He wanted desperately to stay
alive. He loved life. He loved his mommy and daddy and he wanted very much
to stay with us and grow up and go fishing and do all the things we
promised him that we would all do together. Alexander died on January 31,
1999. He was only 2 ½ years old.



----------------------------

After Alexander was buried, Raphaele and I wanted to know what happened. No
one ever told us that the cancer could come back and kill Alexander while
he was on chemotherapy. In fact, Alexander was only one quarter the way
into a twelve-month chemo protocol. We used Medline the electronic medical
index available on the internet to search for "leptomeningeal sarcoma" the
cancer that had grown so rapidly and killed him. One of the abstracts that
came back stunned us. It was a study published in 1994 by a leading
pediatric oncologist of St. Judes. It discussed the "leptomeningeal
progression" of medulloblastoma in thirteen children Alexander’s age who
were given chemotherapy. It explained how the cancers returned and spread
in eleven of the thirteen children within five months. This abstract
described in detail exactly what happened to our son. In fact, the
treatment went so poorly that according to the abstract:

"Progressive disease required early termination of chemotherapy in 11 (out
of 13) cases."

- Gajjar A, Mulhern RK, Heideman RL, Sanford RA, Douglass EC, Kovnar EH,
Langston JA, JJ Jenkins, Kun LE. Medulloblastoma in very young children:
Outcome of definite craniospinal irradiation following incomplete response
to chemotherapy. J Clin Oncol 1994 June; 12(6): 1212-1216

In other words, it worked so poorly that the oncologists actually stopped
the therapy. Unfortunately, the abstract did not name the chemo these
children were given back in 1994.

"These couldn’t be the same drugs Alexander got. Alexander got
state-of-the-art chemo," I said to Raphaele in disbelief.

We were suspicious so we drove to the medical library at UCLA medical
center to retrieve the full text of the article. What we found sickened us.
The chemo that they had given these children was identical to the chemo the
oncologists had administered to Alexander. The four drugs were exactly the
same. The cancer that returned, metastasized and took Alexander’s life did
so in less than five months from the time when he had his surgeries. Right
on schedule. Just like the other children. Alexander never had a chance.
The chemotherapy they had given him had proven its uselessness years before.

After reading this article we wondered what else the oncologists had not
told us. We began to read hundreds of abstracts and articles on pediatric
brain cancer written by oncologists for oncologists. In the pages of their
medical journals we were amazed to find that they admitted to each other
that chemotherapy is ineffective, extremely dangerous, toxic and
carcinogenic in the treatment of medulloblastoma and other aggressive
pediatric brain cancers. If any of this information had been made available
to us, we would have hidden Alexander so that the oncologists couldn’t
force these useless poisons into our son.

What you are about to read will shock you. It is a story of oncologists
lying to parents about the efficacy of their therapy and using coercive
tactics such as threats of court orders to take children and submit them to
treatments that they know are torturous and ineffective. The quotations
that follow come from abstracts and articles printed in their peer reviewed
medical journals that trace the use of these drugs in children starting
almost a quarter of a century ago. It is organized in chronological order.
All the abstracts are available on Medline
(http://www.ncbi.nlm.nih.gov/PubMed/). Most medical libraries can provide
the full articles. To make it easier to follow the chemo drugs they gave
Alexander, they are bolded in the quotes and listed below. Incredibly, all
these drugs are still being administered today to children whether or not
the parents consent.

Read more here:
http://www.whale.to/v/horwin1.html



Fri Sep 7, 2001 2:25 am

agnes@...
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Message #166 of 439 |
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No Rights for a Child Diagnosed with Cancer Medical Satanism A Child has the right to… Affection, love, and understanding. Adequate nutrition and medical...
Agnes
agnes@...
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Sep 7, 2001
2:25 am

Thank you for posting this. It sickens me that children are being stopped from using what is, based on my research, by far the best treatment for brain cancer...
Barry Jakes
freee81@...
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Sep 12, 2001
11:13 pm
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