Good luck! I can tell you I don't want to even think of a gait study. I would surely fail that one *lol*. My right leg is shorter, my left foot is better off...
7175
klechien2000
Jun 1, 2007 6:06 pm
I've been reading all the post on gait and leg/foot surgeries Kyle's right hip was the one that was dislocated and now his right leg is significantly shorter...
7176
claudieana
Jun 1, 2007 7:07 pm
My doctor tried the Illizarov on me in 1986 (so my bridge was a long time ago...) (age 10-11) http://en.wikipedia.org/wiki/Ilizarov_apparatus My leg...
7177
Lisa Clark
mimiflamingo
Jun 1, 2007 8:57 pm
No shunt for now. We went this morning for Courtland's shunt surgery. I asked the neurologist about what you all had mentioned and we all decided to do some...
7178
sugar_pea98
Jun 2, 2007 12:55 am
Hi Lisa, You are doing a wonderful job advocating for Courtland! He is very blessed to have you as his mother. Did the neurosurgeon mention doing an ICP...
7179
Kimberly Lechien
klechien2000
Jun 2, 2007 9:49 am
Lisa, So glad they had decided to wait a little longer and monitor Courtland. I hate to see any child undergo an unnecessary surgery at this point. I have to...
7180
campomelic_ruby
Jun 2, 2007 6:50 pm
Ruby and I were taking a nap yesterday as usual in between her day nurse and Daddy getting home as we do everyday. Evidently her trach either fell out or she...
7181
mbnandrew
Jun 2, 2007 10:43 pm
Kimberleigh, I am so sorry to hear about Ruby. Please know our prayers are with you all as I cannot imagine what you are going through right now. Please keep...
7182
M Kaiser
marianne_kai...
Jun 3, 2007 9:44 am
Dear Kim, I'm sorry to hear about your daughter. I do not know how you feel but I do know that this is not your fault. Ruby knows and feels the love that you...
7183
susan riello
smr11662
Jun 3, 2007 5:59 pm
we are praying hard for your Ruby...........please take care of yourself and let us know how she is doing. The Riello Family (Gianna, 5) campomelic_ruby...
7184
Dana Hoscher
dhoscher
Jun 3, 2007 7:11 pm
Kimberleigh, All of our thoughts and prayers are with you and Ruby to pull through this. You are absolutely not to blame! I only wish I could take those...
7185
kanto59
Jun 3, 2007 7:37 pm
I am so very sorry to hear what happend with little Ruby. You and Ruby will be in our prayers and send you all the strength your way. You are the best mom for...
7186
Lisa Clark
mimiflamingo
Jun 4, 2007 2:04 am
Our whole family is thinking of you and Ruby and you are in our prayers. Be strong for you beautiful little girl. Lisa, Courtland and Family. From:...
7187
Lindner, Kristin
hannahsmama1...
Jun 4, 2007 3:14 pm
Dearest Kimberleigh, I am so very sorry to hear about the situation with Ruby. As others have said, please try to find a way of convincing yourself that you...
7188
Lorri Himes
desertdawgmkt
Jun 4, 2007 11:45 pm
Kimberleigh, I don't often respond to these posts as our son is older and this group is so together, they don't really need me. You my dear, have prayers...
7189
Kimberly Lechien
klechien2000
Jun 5, 2007 7:40 pm
Kimberleigh, We are praying for Ruby's recovery and your peace. You can't blame yourself in these matters. This could happen to anyone. You must be strong...
7190
campomelic_ruby
Jun 6, 2007 11:02 pm
Ruby was basically declared brain dead yesterday. Her father and I have decided to take her off support Friday. In my opinion her death after several moments...
7191
Amy Lyons
shopnforgirls
Jun 7, 2007 12:05 am
Kimberleigh, We are thinking of you and Ruby and praying for strength for you and your family. Ruby will always be remembered as a strong little fighter and...
7192
Rachel
energeticgir...
Jun 7, 2007 1:08 am
I am so sorry that you had to make this decision but at least now Ruby won't be suffering anymore. You and your family are in my thoughts and prayers. Rachel ...
7193
ann chin
annkschin
Jun 7, 2007 1:44 am
Dear Ruby, I am so sorry that you have to walk the same path that I had to walk 18 years ago. You will feel empty arms without her, but letting her go to...
7194
ann chin
annkschin
Jun 7, 2007 2:25 am
Sorry Kimberleigh, My last email should be addressed to you and not your baby Ruby. Ann ... http://groups.yahoo.com/group/campomelicfamilies/join ... ...
7195
kristamadison
Jun 7, 2007 8:59 pm
... My name is Krista and I am 24, and my son had campomelic dysplasia. His diagnosis was death at birth, so my boyfriend and I just had an early termination...
7196
susan riello
smr11662
Jun 8, 2007 3:19 am
krista gods plan is not to terminate your son he has every right to live like any oyne else?it is gods plan to trust in his providence.we where asked to...
7197
Vita
vita_20878
Jun 8, 2007 3:57 am
Krista, While you might feel that the advice that you received from your doctor was good, none of us in the CD Families Yahoo group can agree with it. I'm not...
7198
susan riello
smr11662
Jun 8, 2007 4:17 am
--Hi The previous e-mail was sent to this group by my husband, Joe. I want to apologize for his comments to you, Krista, and to anyone else here who might...
7199
claudieana
Jun 8, 2007 12:32 pm
... My deepest sympathies to you and Ruby's dad. May you find solace in knowing she is no longer in pain and in heaven. ... This may be a little naive, but I...
7200
kanto59
Jun 8, 2007 1:51 pm
Dear Kimberleigh, my deepest sympathies to you and your nearest. My heart cries out to you in this hard and difficult time you go through. Ruby is nolonger in...
7201
sugar_pea98
Jun 8, 2007 2:16 pm
Dear Kimberleigh, Our deepest sympathy is sent to you and your family. Your beautiful little Ruby Skye was a ray of light and hope during the short time she...
7202
Lorri Himes
desertdawgmkt
Jun 8, 2007 7:32 pm
Dear Krista, I am so sorry for your loss! I am also very sorry that people are making this horrible time in your life even worse. Judge not lest you be...
7203
Vita Gagne
vita_20878
Jun 9, 2007 1:13 am
Lorri, Krista's decision is her and her baby's father's business, which makes it all the more odd that she shared her information the way that she did. Did ...
