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campomelicfamilies · Campomelic Families

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Group Information

  • Members: 275
  • Category: Children's
  • Founded: Oct 1, 2000
  • Language: English
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Messages 29 - 58 of 9976   Oldest  |  < Older  |  Newer >  |  Newest
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29 jinxsig1 Send Email Nov 1, 2001
8:21 am
Hi everyone just wanted to say hi. Little Gary is doing well he got his first tooth. He went to the doctor and they decided that for right now everything is ...
30 hannahsmama12001
hannahsmama1... Send Email
Nov 20, 2001
6:41 pm
Hi Everyone!<br><br>Maria: Sounds like everything is going well with little Gary. I saw the picture...what a cutie! Hope he had a good Halloween. Thanks for ...
31 wlmsfamfarm Send Email Dec 19, 2001
6:08 pm
I joined last night and read about half the posts before I had to get to bed:)We just had a mommy join 'Parents of Little People 2' yesterday with this ...
32 hannahsmama12001
hannahsmama1... Send Email
Dec 19, 2001
7:25 pm
Hello Jill,<br><br>This is Kristin, Hannah's mom. I'd like to visit "parents of Little people 2" but I don't know how to get to that site. Can you help me...
33 hannahsmama12001
hannahsmama1... Send Email
Dec 19, 2001
8:33 pm
Hello Everyone!<br><br>Hannah gave us quite a scare last week. For the second time in a week, she turned blue. Only this time, she completely stopped ...
34 wlmsfamfarm Send Email Dec 20, 2001
2:01 am
What a knuckle head I am.Like inviting everyone to a party but giving no address:))<br>Here is the addy to Parents of Little People-<br><a...
35 wilsontrac Send Email Dec 20, 2001
6:11 am
Hi I'm Tracie , Mom to Lydia who is 19 months. I never imagined there would be something like this club. I have felt really alone in all this. I am so excited...
36 mbnandrew Send Email Dec 23, 2001
5:52 pm
I will update everyone this weekend. I'm sorry I've been out of touch so much lately. Cailie has had a really hard time with colds, etc. and it's already been...
37 campomelic Send Email Dec 27, 2001
12:45 am
Hello everyone,<br>Just a quick note to ask anyone if their child has had a diagnosis of scoliosis and if there is any discussion of surgery. Our son Alex,...
38 campomelic Send Email Dec 27, 2001
1:00 am
Hi,<br>Sorry for the delay in responding to your e-mail. We have had problems with our computer.<br>I would be interested in corresponding with you as I do not...
39 wilsontrac Send Email Dec 27, 2001
1:45 am
I read a great deal of reports from the spine center in MN, when Lydia was first diagnosed. They seemed to be the only ones with positive information about...
40 campomelic Send Email Dec 27, 2001
5:59 pm
Thanks for your response Tracie,<br>I would love to have more info. If you have any web sites etc that would be great.<br>Dianna...
41 vita_20878 Send Email Dec 27, 2001
11:41 pm
Vita here, mom of Stefan, an adult LP with diastrophic dysplasia (DD). DDs are very similar to CDs in many ways, and the kyphosis, scoliosis, and cervical ...
42 wilsontrac Send Email Dec 28, 2001
4:19 am
Hi Dianna,<br>Looks like Vita's info will be more helpful, I am really new at this internet thing! I just got a computer 3 weeks ago.<br>Has everyone's CD kids...
43 mbnandrew Send Email Dec 28, 2001
5:52 am
Hi everyone,<br><br>Vita, I am so glad you found us and that you're here to share some of your experiences. You and I have emailed a few times in the past and...
44 mbnandrew Send Email Dec 28, 2001
5:55 am
I know many of you have posted your stories, but I would like to encourage the newer members to post their stories so that any other new families can log in ...
45 jinxsig1 Send Email Dec 28, 2001
6:06 am
Hi All,<br><br>Well little gary is getting big. He is now up to 16 pounds and 26 inches long. He has a whole bunch of teeth to boot. The little maniac as we...
46 mbnandrew Send Email Dec 28, 2001
6:22 am
You may be sorry you asked about the sign language subject. I have strong opinions on this.<br><br>I will start first by saying that I all the CD kids I've ...
47 jinxsig1 Send Email Dec 28, 2001
6:27 am
Hi Mary Beth,<br><br>I really want to teach little gary to sign. I learned daddy and mommy already. The little guy calls for daddy all the time now. I would...
48 wilsontrac Send Email Dec 28, 2001
6:44 am
Hi Tracie here, We have a speech therapist (Lydia is 19 months) and have taught her sign. Although she makes up her own signs and I get frustrated. We have had...
49 campomelic Send Email Dec 28, 2001
3:23 pm
Hi everyone, With our Alex who had the trach (up until age 4 1/2), we started, with our speech pathologist at about age 18 months to learn signing. Alex is a...
50 vita_20878 Send Email Dec 28, 2001
3:43 pm
Our story is that Stefan is a diastrophic dwarf, who just turned 26 years old. If someone had told me 26 years ago that his life would be so great and things...
51 hannahsmama12001
hannahsmama1... Send Email
Dec 28, 2001
8:30 pm
Tracie,<br><br>My daughter, Hannah, is almost a year old and she has a slight curvature of the upper spine and will eventually need some intervention. Could ...
52 hannahsmama12001
hannahsmama1... Send Email
Dec 28, 2001
8:36 pm
Tracie,<br><br>Is this the first time Lydia has tried the passy-muir valve? Hannah tried it first when she was 3 months old. Did not tolerate it and turned ...
53 hannahsmama12001
hannahsmama1... Send Email
Dec 28, 2001
8:47 pm
As a new mommy, I was scared to death when I was told that my daughter would have all kinds of health problems that didn't necessarily need to be addressed ...
54 hannahsmama12001
hannahsmama1... Send Email
Dec 28, 2001
8:53 pm
In response to your question about sign language...it is the best thing you can do for little Gary! Most CD children have at least a little hearing loss, but...
55 wilsontrac Send Email Dec 29, 2001
3:07 am
Kristin,<br>Yes this is the first time we have tried it! Today was better, she kept it on for about 3 min. Her doctor wants us to use it so we can try to ...
56 jinxsig1 Send Email Dec 29, 2001
6:23 pm
Hi Everyone,<br><br>Hope everyone is doing well. Yes I agree this should stay public. The doctors didn't give us much hope in little Gary surviving past 3 ...
57 campomelic Send Email Dec 30, 2001
6:53 pm
To Vita,<br>Thank you so much for sharing your story with us!<br>Your Stefan sounds so similar to our Alex's and it's great to hear how well he has ...
58 hannahsmama12001
hannahsmama1... Send Email
Dec 31, 2001
6:38 pm
Tracie,<br><br>I am curious, does Lydia cry when the valve is on? Or does she just wrinkle up her nose and try to blow it off? Hannah tries breathing around it...
Messages 29 - 58 of 9976   Oldest  |  < Older  |  Newer >  |  Newest
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